(This little ditty is sung to the tune of "Twinkle Twinkle Little Star")
Fibro, fibro, go away,
I don't want you here today.
I am sick and tired, too,
I don't want to play with you.
I am trying to get well,
So Fibro Monster, GO TO H**L!!

Was thinking "Why not
Come up with a ditty
About this darned disease
That we've all got?"

While dusting I was thinking -
Went shopping, still pondering.
Was puzzling while laundering -
I almost started drinking!

What words would it take
To describe the pain,
The fog, the fear -
This condition that some call fake?

I wanted to be a winner
Of this contest, it is true.
FMS? Fibromyalgia?
I shrugged and started dinner.

After a long time
I realized -
FMS? Fibromyalgia?
I CAN'T make them rhyme!

Some doctors say, "FIBROMYALGIA?
It's all in your head!"
Just take these pills and get to bed.

I wonder if they will ever know,
This unrelenting pain I feel,
Day after day, hour by hour.
Push, Push, and push some more,
Struggling to live,
In my own little world of pain.

In the world of FMS comes much more,
Depression sets in
Isolation within.
Concentration and Memory
Have long gone away,
And the Pain and Fatigue,
Stay and Stay!
The headaches, anxiety,sleeplessness and more,
How do I live, and what for?

The reason I can you see
Is that God has Blessed me
With a wonderful family
And caring friends,
Who help me to see
They will always be there for me.
They understand that it's quite a mess.
It's for them I will struggle to live
In this world of FMS!

Surfing......sadly.
Looking for friends.
Feeling desperate and alone.
Hoping to find
A hand....

A hand
To hold onto. A hand that will never let
Me fall;
never let
Me go.

THUMP!
What is this?
It seems to be a wall of sorts...
A wall of hands?
It IS!

Hands reaching,
Hands holding mine,
Hands lifting me up high
To the top of
The Wall.

I like it here.
I think I'll stay
Right here with my new
F'mily; right here where
I belong.

Smiling, happy
Sitting here with
My new friends; feeling safe
Warm, and loved....
I'm home.

A fibromite turned 33
She walked a block, and crashed the next day.
It's an inane drone, always with you,
It's your medication two minutes too late
and, isn't it annoying....don't you think

It's like pain on a sunny day
It's fatigue, when you just got some sleep
It's the brain fog........wait...what was I saying?
and who would've thought...it's fibro.

there was this girl.... had this fibro thing
always got teased cause she wouldn't run
she finally decided to run that race
and as she cried in pain, well....they didn't understand. and isn't that appalling....don't you think?

It's like pain on a sunny day
It's fatigue, when you just got some sleep
It's the brain fog........wait...what was I saying?
and who would've thought...it's fibro.

Well, pain has a funny way of sneaking up on you
when you think everything's stress free and everything's going right
and doctors have an annoying way of putting you down
when they tell you "it's all in you head", take two of these and call me next week.

it's fibro fog, when you're already tired
a bad muscle ache on your busiest day.
It's like ten thousand hammers just hitting at your nerves, It's like running around all day, and then not being able to sleep.
and isn't that like fibro.....don't you think?
a little too annoying......yeah, I really do think....

It's like pain on a sunny day
It's fatigue, when you just got some sleep
It's the brain fog........wait...what was I saying?
and who would've thought...it's fibro.

Fibro has a funny way of sneaking up on you
and, people have a funny funny way, of helping you out,
putting you down.

As I limp along, I wonder what went wrong
with myself, because I was so strong....

and as I still limp on, I think of, what this thing has done to me
cause I don't seem normal....

I'm walkin' with this pain...tears are fallin' and I feel afraid wishing you would understand about this agony, and I wonder...
I wa wa wa wa wonder. why. why why why why why I've got this thing
and I wonder, if it will stay. this little fibro bug
my fi fi fi fi fi fibro bug.

(Instrumental Break)

I'm limpin' in my pain...muscles achin' I can't find my brain wishing it would go away, and lift this fog someday and I wonder
I wa wa wa wa wonder why. why why why why why I can't think straight
and I wonder if it will stay. this little fibro bug
my fi fi fi fi fi fibro bug.

First you're tired, then you’re sore
Seeking doctors more and more.

Poking, prodding, tests galore.
But you’re still tired and still sore.

Medications trial and error
Occasionally, quite the terror.

In creeps anger, then depression,
“When will this end?” is the question.

You mourn the passing of your life,
and try to deal with daily strife.

Just when you think that this is all,
Luckily you find the wall!

People here comprehend,
They give you hope and you’ll make friends.

Tomatoes splat with lots of laughter,
Bringing smiles for ever after.

Now we know we’re not alone,
Someone’s there to change our tone.

Life’s still hard with FMS,
but wallabyies make it the BEST!

Dedicated to all those who are suffering and yet bring kindness, understanding and friendship to the wall.

I want to run again,out in the rain.
It's not so much to wish for.
I want life without this pain.
It's not so much to want.

I'd gladly clear my foggy brain.
It's not a thing I chose.
I'd braid my aches into a chain
And send it to my foes.

This neverending,stupid pain
Could be theirs for a day.
Truth'd lead them down our lane
Just long enough to say....

"Try to live life despite pain.
You must admit what's true.
These Fibro people've nothing to gain
Spinning Fibro lies to you."

I'd love to find my way again
To do what I did before.
But as I wander the Fibro plane,
I see that's not in store.

The journey continues anyway
To places I don't know.
I'll treasure what I've learned each day:
Keep going with the flow.

Never give your pride away
No matter how depressed.
The illness may be here to stay
But life's meant to be expressed.

So sing a song of Fibro friends and love
Upon a Wall, where we all thrive,
By being us, with blessings from above.
Fibro or not,one thing I know: it's good to be alive!

Yesterday, all my pain seemed so far away
Now I know that it is here to stay.
Oh why can't I have yesterday?

Gradually, my good health has slipped away from me
FMS has taken over me.
Oh fibro pain is misery.
(bridge)
Why did this Dragon roar?
They don't know - they couldn't say.
Now my body aches, and I long for yesterday.

Invisible, yet pain that is so miserable
Fog and stiffness that won't go away,
Oh fibro is such misery.

Misery - my good health is just a memory
FMS has become a part of me -
Oh the Dragon Grins again at me.......

THE ABC’S OF FIBROMYALGIA

F - is for Fatigue and flu-like symptoms - isn’t this fun?
I - is for IBS - we’re on the run…
B - is for that annoying Bursitis
R - is for that also annoying Rhinitis
O - is for the optical changes that we get
M - is for the Muscle aches and Migraines - who could forget?
Y - is for the Yeast infections and the Years we’ve lost
A - is for Allergies and oh, the cost..
L - is for the Lack of sleep
G - is for Gyn problems and the havoc that can wreak
I - is for the Invisible Illness that we all know and hate
A - is for the AM stiffness and that weird "fibro gait"

FMS.......What have I got?
Pain and suffering and lots of knots!

I can't sleep, I can't bend!
What do I do when I can't fend?

Call the doctor! Call the nurse!
The pain is getting worse and worse!

Doc says, yes; just take a pill.
The nurse says, no: just sit still.

What do I do? What do I say?
I have to suffer one more day!

One more day, and one more day.....
Now I can't work: No job, No pay!

I forget to pay bills! I forget to take pills!
The family says: "What are these ills"?
We can't hug you, we can't make noise!
You just "WANT" to sleep, AND, you get annoyed!

We love our families.
We love our friends.
But, Fibromyalgia......
Why can't they understand?

Behold the woman with plight invisible,
Less alive, not dead, the body endures afflictions of pain.
Whilst cruel, tender skin keeps her neither moving nor warm That by this torment she suffer penance?
But whose distress is answered with scorn.

Aching,
longing for what you used to be.
Wishing you could, knowing you can't.
Wanting to so bad you can practically taste it.
Using your energy wisely,
not willing to waste it.
Waking up, still sleepy, brain-fog deep.
Can't hold a thought for long - have my calendar near.
Need to rest, get some sleep
When will it stop? Who can say?
I WILL GO OUT AND PLAY
WITH MY CHILDREN TODAY
I will not wilt, I will not stop
I will win, I will win, I will win.

The doctors aren't sure...
Though they keep taking tests...
Just what to look for ...
with this FMS...

It doesn't show up...
On the x-ray machines
nor in the blood test
Or by other means...

How I wish there could be
A solution or cure
For I'm so sick and tired
Of being so sore...

I'm trying my best
With this life of pain
To get through each day
With something to gain...

Just when I feel good
And I thinkI'm ok
I look forward to freedom
From this pain for one day!

I know in my heart
That all is not lost
That we'll carry on
Despite what we've lost...

We have what we need
To get through every day
With the love of our wall friends
True friends here to stay...

I have FMS but it doesn't have me
For I'll keep on fighting till one day I'll be free
Of the pain and depression, and Anxiety
With help from my friends, my "Wall" family..

Goodbye, madness, get away
Fightin' Fibro every day
Exercisin'', hey, it's cool
Eatin' healthy, I'm no fool
Gentle stretchin', but with care
Support meetings, yes, I'm there
But, the very best of all
I've got family on the Wall
Humor lives among its bricks
And we've got survival tricks
If you notice we're sometimes dense
Just forget it, that makes sense
We are clever, sweet and bright
Guidin' newbies by our light
So, you see the blues must go
Fightin' Fibro's bound to grow
It's the craze, it's a sensation
Come and join in our elation.

The achiness and tender points
from endless sleepless nights,
cause brain fog and irritable bowel -
the headache soon ignites.

The medication makes me sick
and exercising hurts...
"Oh, it's all in your head",
say those so-called experts.

I don't know what to believe,
maybe I'm crazy!
Or could I be, too sensitive?
My mind is so hazy.

I'm calling out to family
and friends to lend a hand,
as I wonder at this life,
the one I never planned.

The losses all seem so great,
and often I will cry,
as I ask myself again -
Why? Oh why? Oh why?

Those why's have led me on a search
where eventually I find,
another and another,
that share my state of mind!

Now I know that I am joined
with others as I fight
for my spirit, as it climbs,
to reach a higher height.

So thanks to all who come and go
along this path with me,
though fibromyalgia is what binds,
our hearts can still fly free.

Fibromyalgia,
Robs you of sleep,
Muscles scream,
Makes you cry out in pain,
Again and again.
See how it hurts you,
See how it leaves you fatigued,
Like there's fog in your brain,
No one's the same.
All the hurting people,
Where do they all come from?
All the hurting people,
Where do they all belong?

A life
like the light of the sun;
radiating out
reaching, touching, glowing warmth.
Then slowly
a dull, gray blanket envelopes;
smothering, closing, pressing cold.
But underneath the spark remains;
inextinguishable.
Reaching for the warmth,
always struggling;
fighting for the light.

Fibro, fibro, go away....
Let me have on painfree day.

I've been so active all my life,
Till you dropped by to cause me strife.

The aches and pains are not much fun,
And IBS....a pain in the bun!

Headaches I have, weakness, too,
Fibro, fibro, I hate you!

I hope someday they find a cure
And you'll get yours, that's for sure!

Fibro, fibro, go away....
Don't come again another day!!

My friend she washed her windows
And they shine in the sun
She likes to get up early in the morning on time
See what a beautiful job she's done
But now the pain is so hard and strong
She does little all day
'Cept stand neath the shower head singing the blues
Trying to ease that pain away
The shower head...
la la la, fibro-hued
I went out to Calgary city there
Cause she ain't feeling fine
Well the weeds were down and the snow was deep
In the dead of the winter time
But when I left her there everything was in bloom
And her pain's still hard to bear
Those "white coats" like to pretend it's not
Tho proof is everywhere
You can see she's foggy, la la la, fibro screwed
You can tell she's sleepless, la la la fibro screwed
My friend Heather
She says you know me and sleepers, we're of the same heart
The only thing that keeps us distant is that I keep waking up
And I say I'll come out to Calgary city soon
Help you snooze some way...
Yer a beautiful lady you must realize and shouldn't have to live this way
Your body's aching, la la la, fibro screwed
You ought not be waking in the middle of the night
Wandering pain wracked in your night gown
Watching those midnight specials on your tv
When you should be sleeping sound
She says "I been looking for an empathetic doc..
But they're few and far.."
I say you know it's funny if they were in the same boat
They'd be first to find a cure
la la la, fibro screwed

Fibro-Free Zone,
That's what I want.
My very own
Fibro-Free Zone,
Where I can go
When I feel low,
When I moan,
When I groan with pain,
Peace will reign
In the Zone.

When the Dragon
Has me in its grip,
I'll just take a trip
To my Zone. I'll be alone,
For Dragons hate the Zone.
Pain will flee,
Fatigue will flee.
My body - ah, how strong!
It's been so long.

These unwanted companions
Try to keep me down,
But I will win.
I will go to my Zone
And I will sing,
I will dance,
I will sleep, and wake refreshed,
Free from pain,
Free from fatigue,
Forever free!

  The Wall