Information
The Information presented on this page and
Page 2, are a collection from
the members of the WALL: sites, articles and resources they have found
to be helpful to them. We offer these links so you can gather information.
We cannot guarantee the accuracy of any information at any site. Please take into
consideration the author of the information, the age of the information, and
your own instincts.
NOTE: The FMPSC does not offer medical advice or diagnosis.
We cannot guarantee the validity or accuracy
of any of the information presented here. Use of the information at these
sites is AT YOUR OWN RISK. As always, consult your physician before
beginning any exercise program or alternative treatments or starting or stopping
any medications. The FMPSC does not endorse any one treatment option or resource.
We encourage you to seek a diagnosis and medical care from your own doctor.
On This Page
~ Articles ~
General Information ~
Physician Information ~
On Page 2
~ Medication Information ~ Ongoing Research ~
~ Supplements and Homeopathic Remedies ~
Various Articles
The National Vulvodynia Association. The International Society for the Study
of Vulvovaginal Disease (ISSVD) defines Vulvodynia as chronic vulvar discomfort or pain, characterized by
burning, stinging, irritation or rawness of the female genitalia in cases in which there is no infection or
skin disease of the vulva or vagina causing these symptoms. Burning sensations are the most common, but the
type and severity of symptoms are highly individualized. Pain may be constant or intermittent, localized or
diffuse.
A lecture by
Dr. Lapp that contains discusses the need for gentle exercise vs.
total inactivity in FM Patients
Advanced Techniques
for Overcoming CFS, FMS, and GWS. This web site is dedicated to helping people suffering from Chronic
Fatigue Syndrome (CFS), Fibromyalgia Syndrome (FMS), and Gulf War Syndrome (GWS) .
Chronic
pain management and self hypnosis. "Pain management ... more often than not, is not curing pain, but it's
helping people who have chronic pain return to a more optimal level of functioning," said Alan Lebovitz of the
New York University Medical Center.
"Difficult
Doctors: How to Get the Help You Need" with Paul Zeltzer. Join Brenda Bursch, PhD, Paul Zeltzer, MD, and
Lonnie Zeltzer, MD for a discussion about how to resolve personality conflicts with your current doctor and
how to select a new one.
"Fibromyalgia
vs Myofascial Pain Syndrome" by Cynthia Webber. Learning to differenciate between fibromyalgia and chronic
myofascial pain isn't as difficult as it sometimes appears to be. Dr. Devin Starlanyl has made the distinction
very easy to understand on both her Informational fibromyalgia & myofascial pain web site, and in her books.
Not all doctors are able to diagnose fibromyalgia accurately, and it is possible to be given a diagnosis of
fibromyalgia when what one has is chronic myofascial pain. Tender points are different than trigger points,
and yet many people are given a diagnosis of fibromyalgia based upon trigger point pain.
Malfunctions in two key body systems may contribute
to disorder. According to the findings of a recent study, women with fibromyalgia may have malfunctions
in two key systems -- the autonomic ("automatic" or self-controlling) nervous system and the HPA axis, which
regulates production of certain hormones and the body's response to stress.
General Information and
Overlapping Conditons
Arthritis Daily. Arthritis Daily is a valuable, free source of
information for anyone with an interest in Fibromyalgia. We monitor hundreds of news sources to provide the
latest news and information on the treatments, research, assistive technology, medications, diet, exercise
and alternate treatments for Fibromyalgia patients.
Job Accomodation Network. Accommodation and Compliance Series:
Employees with Fibromyalgia. JAN's Accommodation and Compliance Series is designed to help employers determine
effective accommodations and comply with Title I of the Americans with Disabilities Act (ADA).
Each publication in the series addresses a specific medical condition and provides information
about the condition, ADA information, accommodation ideas, and resources for additional information.
#1 Back Pain Site. Info about Conditions, Therapies, Exercises, and Doctors who Treat Back Pain.
Additionally, you can learn why a Memory Foam mattress may be exactly what the doctor ordered.
Tendonitis.net - Your Source for Tendinitis Information and Treatment Options.
Are You suffering from Tendonitis? Tendonitis.net offers information and treatment options about tendonitis,
tendonitis treatment, tendonitis symptoms,tendonitis relief, tendinitis pain and more.
National Fibromyalgia Partnership, Inc.. The National
Fibromyalgia Partnership, Inc. (NFP) is the largest non-profit, membership organization for fibromyalgia
(FM) in the United States. Based in the Washington, DC, area, it provides medically accurate information on
FM to individuals with fibromyalgia and their families, health care professionals, and the general public
-- both nationwide and in many other countries.
Bev's Fibromyalgia
Resource Center. Here you will find a comprehensive site filled with information about Fibromyalgia (FMS).
Many links are included to help you in your search for information, treatment and support. I will be adding new
links frequently, so please BOOKMARK this site so you can come back and check them out!
InfoMin. Medical Information Network for
Chronic Pain, CFS, FMS and other Medical Resources. Frequently updated medical information for patients,
family members, and health care providers who are interested in knowing more.
Co-Cure CFS & Fibromyalgia Information Exchange.
The name "Co-Cure" stands for "Cooperate and Communicate for a Cure."
Fibromyalgia & Chronic Myofacial Pain Syndrome.
Dr. Devin Starlanyl also suffers from MPS/FMS. This site describes two medical conditions which often occur
together: Fibromyalgia and Chronic Myofascial Pain. Chronic Myofascial Pain was previously called Myofascial
Pain Syndrome.
Fibromyalgia Educational Resources.
Most of the sites provided at this site are sponsored by non-profit foundations, government agencies, medical
societies or universities. Some newsgroup sites are listed to help you communicate with others who have
similar interests. The MARRTC cannot ensure the reliabilty of medical advice given on these external sites.
Any opinions expressed on external sites are those of the site author, and not of MARRTC.
Fibromyalgia Network. We provide educational materials on fibromyalgia
syndrome (FMS) and chronic fatigue syndrome (CFS). Our quarterly Fibromyalgia Network newsletter includes such
topics as: *Coping techniques *Research studies *Medical journal listings *Conference coverage *Interviews
with the experts and *Drug updates & non-drug treatment. Contact info@fmnetnews.com.
Fibromyalgia:
Researching The Cause. As recently as twenty years ago, fibromyalgia was unrecognized. The symptoms of
the syndrome which include muscle pain and chronic fatigue led people on a quest for help. Clinical examinations
often revealed no concrete physiological findings. X-rays, blood tests, and muscle biopsies appeared normal,
and therefore the symptoms seemed unexplainable. The patient was frequently told the symptoms were "all in
their head". Psychological stresses have long been regarded as contributory to the syndrome, but now much new
research is ongoing. New physiological and biological evidence is being gathered.
NutraMed Labs: Fibromyalgia - The Real Story. The patient goes
from doctor to doctor, seeking an answer to her debilitating pain, unexplained fatigue, morning stiffness,
depression and unrefreshing sleep. Finally, after seeing the twelfth doctor, her condition gets a name . . .
FIBROMYALGIA.
Fibro Nation.
Dedicated to education, support, research and activism for people with FMS/CFIDS/MPS. Life is the question.
Love is the answer.
FM Tender points. To qualify for a diagnosis of
fibromyalgia, patients must ache all over and have tenderness in at least 11 of these 18 spots when 4 kgs. of
pressure are applied.
Healing Well: Irritable Bowel Syndrome (IBS). Your boss, your
spouse, your mother-in-law, your bills, the I.R.S.- life is hard enough and going to the bathroom shouldn't be.
But for 20 million people the urge to go to the bathroom can be agonizing.
"Natural Pain Relief" by Jan Sadler.Survival tricks, relationship
help, pain relief tips and more.
The Fibromyalgia Community. This site is chockfull of very good
information, resources and links.
National ME/FMS Action Network.The National ME/FM Action
Network is a Canadian registered, charitable, non-profit organization dealing with Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia (ME/FM)--offering support, advocacy, education and
research into the many, varied, anomalies connected with these illnesses. We work hand in hand with the General
Public, Educators, Government Agencies, and the ME/FM Community to achieve these goals that are so important to
sufferers under duress everywhere.
Navigating the Body. Profiles of several women with Fibromyalgia.
Karen Frederickson, Rose Williams and Donimo are three women who live with what they have termed "invisible
chronic pain and illness". Each woman has fibromyalgia but individually they additional illnesses and issues,
different symptoms and have tried a variety of treatments.
Online Medical Dictionary. OMD is a searchable dictionary created
by Dr Graham Dark (dark@cancerweb.org.uk) and contains terms relating to biochemistry, cell biology,
chemistry, medicine, molecular biology, physics, plant biology, radiobiology, science and technology. It
includes: acronyms, jargon, theory, conventions, standards, institutions, projects, eponyms, history, in fact
anything to do with medicine or science.
Reuters Health Online.
Online health articles with disease and drug cross references. Reuters Health (RH) is the world's leading
provider of medical and healthcare news. Reuters Health news services are internationally recognized as unbiased,
authoritative, timely and dependable, with the reputation for quality that one expects from a Reuters company.
Reflex Sympathetic Dystrophy Syndrome. The American RSDHope Group reaches
out and serves the entire United States. We are a non-profit group made up of patients, parents and friends
whose mission is to spread information to anyone and everyone who asks or will listen. We are not medical
professionals and we do not offer medical advice.
Understanding Chronic Pain
by Robert Bennett MD, Professor of Medicine OHSU. Pain is a universal experience that serves the vital function
of triggering avoidance. A few unfortunate individuals have a congenital absence of pain sensation; they do not
fare well due to repeated bodily insults that go unnoticed. As a rheumatologist I see patients with an acquired
deficiency in pain sensation (e.g. diabetic neuropathy or neuro-syphilis) who develop a severe destructive
arthritis ...
Fibromyalgia Tee-Shirts These t-shirts are for sale.
This is not just any old web site that sells tee shirts... NationaliTees Co., Inc. is a company that is
dedicated to the effort of bringing awareness toward the debilitating syndrome, Fibromyalgia.
Social Security Benefits - Helping Fibromyalgia
Patients. Helping FMS patients seek and obtain Social Security Disability benefits.
Social Security Disability Secrets. As a social security disability
examiner for a number of years, I have found that most individuals who have to go through the disability
process have many, many questions, with the majority of those being anxious questions. But they have
difficulty getting straight answers from the Social Security office. This site attempts to answer many of
those questions, and give advice and tips.
FreudianSlip Music Therapy. Examines the power of using
popular music, something people already listen to, in therapy. Includes examples of therapeutic
messages in popular music as well as original music by Freudian Slip, therapeutic rock band.
Physician Information
CO-Cure CFS/FMS Good Doctor List. This page represents the
index to the "CFS & FM Good Doctor List," a collection of listings, of doctors who have been recommended by and
for CFS/CFIDS/FM patients. The physicians are listed on separate pages by country and state/province/region and,
within each page, by city.
Kindness@fibrobetsy.com. A personalized service (since 1991) referring patient recommended, fibro-literate doctors. You'll also receive lists of treatment modalities, coping mechanisms, the best FM resources, & important medical abstracts to share w/doubting doctors, friends & family. Tell Betsy exactly where you live when you request doctors. She also accepts new recommendations.
FibroDoc. "We are here with our team of experts to answer your questions
and provide information about Fibromyalgia. All of our columnists are experts in their field of expertise and
each of us has Fibromyalgia."
Fibromyalgia Specialist Network. Fibromyalgia Specialist Network
is a clinic that specializes in the treatment of Fibromyalgia and Chronic Fatigue Syndrome. We have an 80-90%
success rate in the treatment of Fibromyalgia and Chronic Fatigue Syndrome. This is a bold claim that no one
else makes, which is backed by hundreds of patients. Contact us today so you, too, can start the healing process
and be able to lead a normal life once again.
Information Page 2
The WALL
If you have any additions you would like to see considered for this page,
contact The Information Team.
11/04/04