The Information presented on this page and
Page 1, are a collection from
the members of the WALL: sites, articles and resources they have found
to be helpful to them. We offer these links so you can gather information.
We cannot guarantee the accuracy of any information at any site. Please take into
consideration the author of the information, the age of the information, and
your own instincts.
NOTE: The FMPSC does not offer medical advice or diagnosis.
We cannot guarantee the validity or accuracy
of any of the information presented here. Use of the information at these
sites is AT YOUR OWN RISK. As always, consult your physician before
beginning any exercise program or alternative treatments or starting or stopping
any medications. The FMPSC does not endorse any one treatment option or resource.
We encourage you to seek a diagnosis and medical care from your own doctor.
On Page 1
~ Articles ~ General Information ~
Help Finding a Doctor ~
Medication
NutraSanus. A very good resource for information regarding natural
health care nutrition, herbs, vitamins, natural remedies and dietary supplements.
The Fibromyalgia Community. Free and low cost
medication sources.
Needy Meds. There is help available for the many millions of people
who have no insurance and can't afford to purchase their medicines. NeedyMeds is the place to learn about
patient assistance programs and other programs designed to help those who can't afford their medicines.
NeedyMeds is not a program. It's an information source.
National Library of Medicine
Pub Med. PubMed, a service of the National Library of Medicine, provides access to over
12 million MEDLINE citations back to the mid-1960's and additional life science journals.
PubMed includes links to many sites providing full text articles and other related resources.
Circulating Blood Volume in CFS
Chronic fatigue syndrome (CFS) is an illness associated with severe activity limitation and a
characteristic pattern of symptoms despite a relatively normal physical examination and routine laboratory
evaluation. The recent description of delayed orthostatic hypotension in patients with CFS, and previous
findings of reduced red blood cell (RBC) mass in other patients with orthostatic hypotension not known to have
CFS, led us to measure RBC mass and plasma volume in 19 individuals (15 female, four male) with well
characterized, severe CFS. RBC mass was found to be significantly reduced (p < 0.001) below the published
normal range in the 16 women, being subnormal in 15 (93.8%) of them as well as in two of the four men. Plasma
volume was subnormal in 10 (52.6%) patients and total blood volume was below normal in 12 (63.2%). The high
prevalence and frequent severity of the low RBC mass suggest that this abnormality might contribute to the
symptoms of CFS by reducing the oxygen-carrying power of the blood reaching the brain in many of these patients.
Fibromyalgia, Hypothyroidism, Thyroid Hormone Resistance
A website about metabolic health. Metabolic health is described in this way: A state in which the chemical
processes in our cells are sufficient to provide us with at least two things: (1) resistance to sickness and
disease, and (2) the vigor, stamina, and well-being needed to fully engage in all aspects of life. We focus
on what impairs metabolic health, how to recover it, and how to optimize it.
The American Fibromyalgia Syndrome Association
AFSA is the only charitable organization whose primary mission is to seed research in fibromyalgia syndrome
(FMS) and chronic fatigue syndrome (CFS). We acknowledge that patient and physician education, public awareness
and advocacy are all important ingredients in aiding the lives of people with FMS and CFS.
WebMD: You must register to use
this site but it is free and full of the newest research and information, articles,
as well as a chat area. This site is full of information about numerous things.
Autonomic Triad which involves the autonomic
nervous system and the neuro-endocrine system. Thyroid, Hypo and diabetes are
impacted and the Triad consists of IBS, Fibromyalgia and Chronic Fatigue Syndrome.
Fibromyalgia and Myofascial Pain.
Do you hurt all over! Does ANY one believe you? Will it EVER end? If you have been hurting for longer than 6
months, feel your doctor can't help you! You and your family "feel" the pain. You're SCARED! You're MAD! And
life has become a BEAR! You may have Fibromyalgia or Myofascial Pain.
Homeopathy and Supplements
SAM-e. Whether you take SAM-e to ease
depression, restore joint mobility or detoxify your liver, you can help your body utilize SAM-e more effectively
with folic acid and vitamins B6 and B12. The key is neutralizing the dangerous amino acid homocysteine.
Guaifenesin. Guaifenesin is a common over-the-counter
expectorant. It has been around for about seventy years, first as guaiacum and then as guaiacolate, and for
about twenty years as Guaifenesin. Guaifenesin is not a cure for FMS. It does seems to allow the kidneys to
eliminate something harmful that has been stored in the body. Dr. St. Amand feels that at least part of what is
eliminated is phosphates, and I agree. Oxalates may also be part of this package of unwanted stored matter that
is released by Guaifenesin. Excess oxalates seem to be responsible for some of the vulvitis and vulvodynia
experienced by female FMS patients.
5-HTP Article by Dr. Ray Sahelian M.D. 5-HTP
(5-hydroxytryptophan or 5-hydroxy-l-tryptophan) is a natural supplement that converts in the brain into
serotonin. Serotonin is an important brain chemical involved in mood, behavior, appetite, and sleep. Serotonin
is known as 5-HT, or 5-hydroxytryptamine, and is found in many places in the body particularly the brain,
gastrointestinal system, and blood cells.
Pain Free Living by Pete Egoscue. "A pain-free active lifestlye is
not only possible, but it is the way you should expect to feel and live, no matter your age, no matter your
previous experience." Pete Egoscue, President.
St. John's Wort. Here you will find, for free, the complete text of the
best-selling book "Hypericum (St. John's Wort) and Depression", the complete text of the book "How to Heal
Depression," and the latest news and information on Hypericum.
The Fibromyalgia Diet. Go to war against extra weight from
meds and help improve your symptoms. Some people with FMS/MPS have reported that this diet has helped them feel
stronger, reduce "fibro-fog", reduce headaches and lose weight.
11/04/04