barb Thursday February 01, 2007
barb (GA) Hello, I haven't written in awhile. I'm dealing with extreme pain in my neck, spine and arms. Heat, Ice, Hot baths, etc, are not working. I'm really at my breaking point. I am struggling with thoughts of suicide. I cannot imagine living with this pain for the rest of my life. Im 38 and I know this will more than likely get worse. I cry all the time. I have talked with my pastor. I now feel like everytime I go to church people are staring. i know their thinking she looks fine. My husband sighs when ever I mention pain. I'm just tired. I'm sorry to be just babbling on. I guess I just need to have someone to talk with. Who knows how I feel. I feel abandoned. Barb


Sharon/2-1-07
hello cherl R... I UNDERSTAND WHAT YOUR SAYING...WITH FM THE TRUTH IS THE ONLY WAY TO GO..B ITS HARD ON OTHERS THAT DONT UNDERSTAND, IT OK TO THINK OF YOURSELF..becouse if you feel something not right or known one understand,it becouse it true..Its hard and unfair,thats why if we try more on us, what makes us feel this way...can i fix it. By change,go some where peaceful...(walk, read,music,and etc..)you all know it works.. Barb...It really work. when I feel low,and I dont understand..Well I call the Whys...why this, why that,why they cant understand, and on and on, and ....I forget me...Becouse when i work on me, I feel better and then every thing get better... no matter how i hurt..But with excepting ..is the hardest part of it...I for get to look up and see all the beauiful thing out there..sky, sounds,birds, smiling...Trying to get myself peaceful, in my mind.Is the key of my health...If it effects your health fit it...by changes..when people place or thing get where I question the whys...I have to love harder...speally myself... well thank you all for being here...this is a great place....to be..


Sharon/2-1-07
Sorry for the big letters...I am not yelling....was watching my typing..


Yolanda Mia 2-1-07
Hello All! I'm not going to be such a presence as I have been b/c of the new job. I'll barely have time for the computer soon. But, if things work out well, I'll have a career! Not just a job. Also, I have some back up plans if this falls through. I'm applying to more promotional companies and maybe, if I'm lucky, I can make a living just doing that for a few years. Anything that will work. Plus, I want to get my own websites going and make some money there.

But, main reason I wanted to post was for Barb. I know it's hard! I know you feel hopeless, we all do at times, but please don't consider suicide as an option! We all get to that point, but that's what this site is for, to know that we aren't alone, someone understands, and someone will be there for you! If ever you need a person to call on, just shoot me an e-mail, or I can give you my number. I know when things get that dark, we need someone to lift us out or at least just listen. Know that we are all here for you and love you! If you can, please seek some counseling for this depression, it will help. Try to find a chronic pain support group in your area if possible, if not, make one yourself. That's what I plan to do once my life gets settlled in Chicago. Or, if all else fails, please talk to a very close friend or relative that can help you when thinks get this dark. I'm worried about you! Please let us know how you are doing. Love ya all! Yoyo


ALICE


MICKY2648@AOL.COM
BARB I COMPLETELY UNDERSTAND. I AM GOING THROUGH THE SAME STUFF. NOTHING HELPS MY PAIN ANYMORE. I WOULD PREFER NOT TO HAVE TO DEAL WITH THIS PAIN ANY LONGER. I HAD A HEART ATTACK THANKSGIVING. CONSEQUENTLY THEY ARE WAITING UNTIL MARCH TO DO MY KNEE REPLACEMENT. I'M PRETTY MUCH BEDRIDDEN UNTIL THEN UNLESS SOMETHING CHANGES. LAST NIGHT I MANAGED TO FIND A HYDROCODONE. I THEN WENT TO SLEEP UNTIL NOON TODAY. WHY CAN'T THEY JUST GIVE ME SOME OF THOSE. I TAKE ALL THE OTHER STUFF EVERYONE ELSE TAKES AND IT DOESN'T WORK. HAVING LOST TWIN SISTERS, BEST FRIEND TO SUICIDE I DO THINK ABOUT IT. MY 15 YEAR OLD CAT IS VERY ILL AND WE ARE FACED WITH PUTTING HIM DOWN. WHY CAN'T WE DO THAT WITH PEOPLE. ALICE


Bernadette Feb 1
BARB I went back and read your posts. You have just recently lost a job. You have also just recently been diagnosed with fibro. It sounds like you are struggling with a lot of pain and adjustment right now. Please don't do anything drastic, there is always hope. I understand feeling suicidal, I'm sure most of us do. We need to get you a good doctor. Have you tried a rheumatologist yet? PLEASE do. They might not give you hydrochodone (don't even get me started about how dumb it is that they are afraid to give us something that we might get "addicted" to so they would rather we just live in pain???!!!), but they might give you lyrica, cymbalta or ultram, some of the meds that seem to help the most. Watch out for thoughts like "I will always feel like this and it will probably get worse". When I go there, I feel like killing myself too!! Take it a day at a time. Live with hope. See this illness as a spiritual call to change. We'll have to talk some more about your family dynamics.ALICE I am worried about you too.

Well, last night I was thinking a lot about the emotional link with fibromyalgia. You guys know how many of us are victims of sexual abuse or PTSD. I have read books that say that Fibro is just anger that we are holding on to in our bodies and if we can let go we can heal ourselves. It could be a lot of hooey and I don't know if I believe it but I am always looking for ways to get better. The book did not make sense to me because I have worked really hard to forgive everyone in my life. THen yesterday I realized that I have not forgiven myself. I have bad dreams all the time about the years I was an active alcholic and feel so ashamed and angry at myself for the bad decisions I made then. Perhaps it is time for me to really look at that period of my life with compassion and forgiveness so that I can move on, potentially heal myself, and if nothing else move on to some more interesting dreams! Well take care!


Cari K. 2-1-07
Cari K. 2-1-07 This is to Barb from Ga.Look in your yellow pages under "Pain Management Clinics". Find one,make an appointment and run ,do not walk, to the visit!There is absolutley no reason you have to be in so much pain.They will evaluate your condition and will give you the medication you need.And if they don't,go to another one.Until you find someone who "gets it".And as for the ones who are afraid of the addiction to hydrocodone I say,I would much rather run that risk,than to spend my life in so much pain that I can no longer enjoy life!Tell them of your thoughts of suicide.Don't be afraid to let it all out.They have to know how bad off you are in order to help you.And PLEASE,let us know how things work out.We are here for you and we care.Gentle,warm hugs,Cari K.


JUANITA 2-02-2007
JUANITA/TX goodmorning all my friends. well i do have carpal tunnel it seems. i saw the dr. yesterday and she did some test but now they are going to do a nerve test on the 12th of this month and some more blood work for thighroid. i know thats not how you spell it but my brain has a mind of it's own lately. haha. and i also saw the new dr. for the sleep apnea. they are gonna try a bi-pac first to see if that works ok. i think i have found some pretty go dr. this week. they seem to realy be conserded instead of hurrying me out the room. i saw 3 dr. this week and i am not done yet. my husband is worried about surgery for carpal tunnel and I DON'T WANT IT. my feet are bad and now my hands. i always thought i could walk on my hands if my feet give out but i guess that's out.lol. just kidding. i am so tired of my body . NOTHING seems to work anymore. they gave me a new priscription again. NEURONTIN 300 MG. anybody know anything about it? well i better go. take care EVERYONE. JUANITA


Yolanda Mia 2-2-07
Hello All! I just wanted to say a few things to those that are very depressed lately. Seems to me that some of us have SAD, and with all this snow and horrid weather, it's making you depressed. Me, I've been angry all the time b/c of the lack of sun and good weather. I suggest a tanning bed for some of the help in this. I know I feel better after a tanning session b/c the light helps produce vitamins in your skin that are depleted during the winter months, which can contribute to SAD. Now, I'm only suggesting this as a step, but the most important step is to seek help. Call 1-800-SUICIDE. It's the national suicide prevention lifeline. I'm very worried about all of you that are highly depressed at this time. I know there are things in life that will drag us down, but please don't let it take you out. If you can get the help, please do ASAP.

Bernadette, you mentioned a good point. Forgiving ourselves, that's one of the hardest things to do. We are our own worst critic, and that could be something to look into. I know I tend to beat myself up over the past. It's hard to let go at times, but that's what we need.

I've been highly stressed lately over all the upcoming changes. I'm trying to find a place in Chicago, but it's hard b/c the landlords never call back. Plus, I need to find the time to look at these places. I have another week at my present job and then everything changes. I'm a little anxious b/c this is a major change for me. If only I had the ability to clone myself for a few days, so I could complete all my tasks I can't find the time to do.

Tomorrow is my nephew's 1st birthday. I'm excited, but then I realized here after this weekend I'll hardly see my family. Living so far away from them will be a major adjustment. It's a sad moment. No longer will I be able to make a quick trip to see them, or they come to see me. Now we have to make advanced plans, and with our schedules, there will be hardly any time to see each other.

This week has been difficult on me b/c of the cold weather and all the snow we have been hit with. I'm hoping it's gotten all this out of it's system b/c I don't want to make that 2 hour drive in this weather. Plus, for the first 6-8 months I'll be outdoors for the job, so I'll be dealing with a lot of pain for some time. But, it's the price to pay to get ahead in my life finally. Love ya all! Yoyo


Richard in Tucson 2/2/07
Hi my wonderful friends, "Happy Groundhogs Day" It seems the winter is supposed to be over soon Hooray!!
I really was wishing that this week I could find more time and energy to give each of you some kind of wonderful contributions. It would seem like I am always too busy to smell the Roses, and enjoy my life.
Bernadette: I really mean well You all Deserve more from me, I have lots of resources about fibro and CFIDS, But my brain doesn't work well enough to get the information on the wall. I Agree with you on the Turning the Volume down. I am also very sensitive to noise. My wife and daughter love to play Dance Dance Revolution & they turn the Music up, I can not stay in the room with them or I get really shaky and stressed. I wish I could come to the Wall @ that time, to escape from the noise. I also agree with you about holding on to the Anger, That is my worse enemy, I can't seem to shake.
RENA: Hang in there, it is OK to cry, it helps release those emotions that keep us frozen in this Illness, If I could cry I would, I need to watch a good tear jerk-er to release my emotions.
Sharon: We are here for you keep coming back.
MICKY2648@AOL.COM: & barb (GA): Please Know that you are such an important part of our family here, don't do anything that could hurt you more, don't even think of suicide, we are here for you.
Yolanda Mia: I hope things get better for you. Please Know that you are a very important part of this Family Here as well, I appreciate all you offer here.
I must go I have to go to my Gym and my Yoga Class.
Have a wonderful weekend, Talk to you soon. Love Richard in Tucson...


MARY 2/02/07
HI, I HAVE HAD FIBRO SOME A FEW YEARS. I JUST FOUND THIS SITE TONIGHT SO I THOUGHT I WOULD JUST SAY HI TO EVERYONE. MY NAME IS MARY. I AM 62 YEARS OLD AND I LIVE IN FLORIDA. EVEN THOUGH I HAVE HAD THIS FOR A FEW YEARS NOW I AM STILL TRYING TO LEARN TO LIVE WITH IT. THIS WEEK HAS BEEN A BAD WEEK FOR ME. I GUESS THAT IS ALL I HAVE TO SAY FOR NOW. I WILL READ SOME OF THE POST AND TRY TO GET TO KNOW SOME OF YOU BEFORE I WRITE AGAIN. HOPE ALL HAVE A WONDERFUL WEEKEND.


Mary 2/02/07
Hi, I came back to say sorry for using all caps in my first post. I am awful for doing that because it is easier for me to see. I will try not to do that again since I do understand some think of it as yelling. Once again I am sorry for that.


Sheilah 2/2/07
Hi. I am just discovering I have FM so I want to talk to the people that deal with it everyday. Its nice to finally find an answer to how i have been feeling. I would love to talk to people who truly understand. I know the people around me don't really have a clue or really even believe in this condition. So please feel free to contact me anytime. I'm new to this wall so i may need some help with it too. Nice to find all of you.


jen 02/03/07
I haven't been on here 4ever.....i'm still alive ;) but of course still being controlled by fibro... :(....i have it in my hips now(so basically everywhere).....i did however finally get disability...those trying, DON'T GIVE UP!!!...it took me almost 5 yrs but since then i think scientists are understanding more that this is a chronic disease and we need help!!!!!........anyhow for those of u that remember me "hi" and for those who don't.....i have a few poems on the front page of poems( you'll know i totally understand what ur going thru)....i've since wrote another poem about friends and will post it another day........hope everyone has a ok day.....fibrohugs.....JEN


July, on February 4, 2007
Good Morning, Everyone. Nice to see so many familiar faces here! I'm trying to read fast and catch up.
You can read my personal story in the archives (it's been a while!). I'm posting here because I'm DOING SO MUCH BETTER and I'm hoping to help someone else!
I was originally diagnosed with Fibro 17 years ago by a sleep clinic. They told me Fibro is "a sleep disorder," and I still believe that. HOWEVER, because of an additional bladder disorder, we found that I cannot take antidepressants. They tear my bladder up. And of course they're the best thing for sleep. (I've tried them ALL.)
Six weeks ago I FINALLY got my doc to put me on AMBIEN CR. (Rheymy wouldn't; she said it was "habit forming." Idiot.) This is the first good sleep I've had in 25 years! The fog is gone, most of the pain is gone. I feel so much better I want to just scream! I'm not irritable, and I don't feel like I'm on the edge of tears and depression all the time. SO MUCH OF WHAT WE SUFFER IS FROM LACK OF SLEEP. I knew it, but now I KNOW it from experience. With warm weather coming soon, this could be the best summer I've had in half my life.
I Hope this is helpful to some of you good people, and I hope you all do better all the time. HUGS, July


LuLu 2/4/2007
Hi everyone! Superbowl Sunday & I could care less. I am new to this site but was meandering around the FMA's links & found you. Reading all of your posts I realize that even though I was diagnosed with FM 2yrs ago, I've been searching for another answer, when in fact it's all right here...in your words. I guess I'll just sit back & listen to all of you for awhile & try to accept my limitations. Thanks for being here!


Cheryl R 2/4/07
Cheryl R (PA) 2/4/07

Hello everyone and to all who have arrived here for talk with those who understand(that is - been there - and either did it or are doin' it with FM)

Today my husband & I had said goodbye to our 1&1/2 yr old grand daughter. A joy to see and a joy to say goodbye. I am pooped. And my husband. We have her with us once a month from Sat at 4pm to Sun 6-7pm(which ever hour seems best for us).This is the one who's Mom(our daughter-in-law) had the fluid test for cysts found in the unborn child's(a girl)brain. The waiting is 10 days. Praying for good news and have a peace about it. Thank you to you who have prayed for her.

My back hurts right now even with my special cushion I have attached to this chair back-which usually helps. I woke with right shoulder pain starting after wearing a pain patch during the nite. My shoulder at the moment feels a little better. I'm doing it again tonite. I use to do this for my carpal tunnel. I'd put a pain patch almost every nite around my wrist until one day I noticed a difference. It's with me but not as painful. When it acts up again I'll do it again.

Barb(GA) I found my chiro helped my neck and back pain as well as my massages I get once a week. My muscles need it. There's hope for some relief I've found in most of my painful areas over time yet there was this journey each time. I didn't say it's gone completely everywhere - just more bearable. When weather acts up for instance, I see this fact and try to be compassionate to myself to know the fact and do what's best to help myself thru it. I sometimes have gotten very depressed by the pain that suicide wanted my attention. A feeling of hopelessness. Talking with someone and maybe walking or exercising got me in a different state of mind. It's like "move the body-the mind will come along". It has worked many times for me to think this and do it inspite of my body dictations.

Another new item for me is my blood work with high cholesterol and LDL. I saw my fam doc Fri. I'm on WELCHOL. Six tabs a day till the next blood test & doc visit. I have been to a nutricienist and do all other various things to reduce these levels but the doc says it must be genetic. I don't want muscle pain or weakness. Statins don't work for me for I have been on them. This is supposed to be different. If any of you have thoughts on this subject - please post. Thanks

Cheryl R


Doris 2/5/07
Hello precious friends.......Awwww my heart goes out to all of you BUT to BARB in Ga and ALICE and anyone else who thinks SUICIDE is the answer PLEASE know that it's not. I know we all suffer in various degrees and that pain can affect us to a point that we want to just give up BUT PLEASE DON'T!!!!!! We all must find the important things in our lives that we live for and I know we all have them. I love my kids and grandkids dearly and I want to be here with them and if it means I have to suffer some pain,I WILL DO IT!!!!! We all deserve to live and have some joy in our lives and YET I know there is so much pain and depression that stops alot of that joy. BUT friends,be STRONG with me and fight this monster called FIBRO and don't let it win and destroy our lives!!! We are good people and we must fight the fight and live our lives. ONLY YOU can take control of your life and stand up,realize it's worth fighting for and LIVE my friends LIVE!!!!! I am not gonna give up myself cause I want to live and I want to love my grandbabies and watch them grow. I want to wake up everyday that GOD allows me to have on this Earth. Also let me remind you my dear friends that when you feel down and out and all alone, GOD is always there....ALWAYS!!!! HE will listen, all you have to do is just talk to him. Many times, I have cried and cried and felt so lost until I talked to God and HE lightened my heart! If YOU ever feel like you can't go on, just reach out and HE will be there for you! Never feel like you are alone!!!! Today I will say a prayer for all of you...... Take care and please feel my love and concern thru these words .......Hugs and smiles and lots of warm thoughts to each one of you...............Love,Doris


Rachel in Ohio 2/6/07
hello everybody i'm back. i was in the hospital again. i have a 75% chance of having another neck operation. am just having lots of trouble with my fibro and my spinal cord injury. to all those who give me advice thanks. my divorce is going really slow but i am trying to keep my spirits up for my daughter. to everyone i hope all are in good health and are o.k. blessed be!


Alice
The last time I wrote I was at a crisis with my cat of 15 years. We had to put him down on Friday. We have taken it very hard. I have had 2 bits of advice I wanted some more opinions on. Get a baby kitten and enjoy him. Moping around is not helping anyone. We already have been window shoping. I believe a baby something is just what I need right now since I cannot see my new granddaughter that should be born soon in Hawaii. Remember while we were there visiting I had a heart attack. I'm scheduled for a knee replacement in March and they won't do it sooner because of the heart attack. Thanks for the concern for me you guys expressed. This waiting for major surgery is honestly about to get me. Hang in there guys. Thanks


JUANITA FEB.7TH
JUANITA/TX good morning all. WOW it seems that everyone is suffering more than usual.my heart goes out for each and everyone of you. HEART ATTACTS are nothing to play with, BE CAREFUL. both my brothers had heart attacts before they were 50. i turned 50 in oct. i feel ok. i am getting my bi-pac this friday and not sure what to expect. my husband says it is a waste of money because i won't wear it. any info on how haed it is to get used to it? and will it keep my husband awake with the sound? just wondering if i need my own room. haha.well my husband and i are thinking of roommating with a friend and her son, and my brother and sisiter in law who already live with us. we are looking at a house that is 2700 square feet. it has 4 bedrooms 2.5 bath, 2 didnning rooms and 3 livingrooms. it will only be 465.00 a month each. we already pay 1050.00 now. going to look at it this weekend. well i better go. my fingers go numb so quickly. i am having a nerve test done on monday. take care all.gentle huggs from me to you.JUANITA


July, on February 7
ALICE, when my cat turned 16, I rescued another cat from starving in the snow. I knew my Taz didn't have too many years left, and I didn't want to come home to an empty house after he was gone. He died a year later, and by then, my new Scoot cat and I were very close. It helped a lot. I think a kitten would help you through your grieving AND through your surgery. It will nap with you while you recover. HUGS to all.


alice
ALICE Thanks for the advice. Guess what, we already got a baby kitten today. I just needed someone to love. She has laid on the shelf of my boosom all day long. She looks like a little alien. We haven't named her yet. My youngest grandson is a good cat name. His suggest so far is cutester. We'll see what else he comes up with. Thanks


cheryl R 2/08/07
Cheryl R 2/08/07

Hello everyone!

I was reading thoughts of those about cats. As I speak my Abigail (my cat) is sitting on my lap. She was rescued from the street and house trained my a girl friend of mine. Later surprized me with her on my b-day. I had another cat who I had to give up to Humane. She was rescued on the street by me. She had lived there for awhile. She worked out in our home for awhile but wanted to be out. We lived in the city then and that was dangerous for me/for her. When I walked our dogs she would blocks with me. Her name was Susie. All the neighbors and those I didn't know watched her in amazement as we walked. She was not on a leash. She would climb walls and steps just trotting right along with us and returning home again with us. Being out one day brought a neighbor's complaint that Susie bit her. I wonder why the neighbor was so close to her. I talked with her and she wanted rabbies shot info from me. I proved that. She seemed alright. Yet later she became a problem with more complaints. Susie cried soo when I didn't leave her out. My husband & I decided to let her go to not be a burden to the neighbors and hope for a home for Susie. Then came this gift Abigail.

I am an animal lover so I have 2 dogs, 1 cat, and two parakeets. I grew up with them since born. They are a comfort. When I went thru my divorce my dogs then were always there to wag a tail and say "hi, how was yr day"? With our new puppy - Pumpkin our cat & the puppy are still working on their relationship. The other dog & puppy play a lot. This too was an adjustment for Sammy(our older dog) for he just lost his long time friend on Nov 9th. Sammy is 11yrs old and acts like a puppy when they play. Animals/pet are a great diversion to things that want my attention like pain in my body or pain in my mind.

My fibro flares have had me depressed much lately and also this cold weather for I deal with SAD. I'm a walker and that isn't happenin'. I go to Curves or my aerobic dance class yet it's not enough. My right shoulder has been greatly hurting. Took time last nit (after some great distress over it after my class) to rest & put ice pack on it along with inflammatory pill & tylenol. It feels better. I have to ice it more. It has been a painful burden on & off for awhile with x-rays taken to show brachial plexis inflammed and artritis. Recently I fell slipping & hitting a porch wall. I had a bone bruise to my right hand index finger and now wonder if I hurt that same side shoulder. Maintenance is on going yet trying to focus on other things & God is my endeavor. This is my medicine more than any other pill form.

Alice I pray things go well for you. You've had a lot to endure and sound like a trooper. Cheryl R 2/08/07


Lee Ann/MI 02/08/07
Hi, everyone! Its been a while since I have posted. I miss everyone and hope that all is as well as it can be. In regards to the discussion of pets, I sure miss my cats. Where I live we are not allowed to have pets and it sure has left a hole in my life. I always had cats and they were a great comfort. Well, I have got the ball rolling in regards to Social Security. I went and got a lawyer and so he has filed an appeal to my social security disability claim. I hope that it will be an easy appeal as I really hate being in limbo but I am also realistic and know that it could take a long time. I am having cabin fever right now. I have not been able to leave the house because of the terrible cold we are having here in Michigan. I have chronic asthma along with the fibro and just opening the door and letting in some of the air makes me wheeze. It is actually beautiful today as the sun is shining but the temperature is still very cold. I hope to be able to go out to the store tomorrow since it is supposed to be above zero with not so cold windchills. I see that life is very busy for some of you as I noticed that there are not as frequent postings. I do read and take comfort from the postings every day even if I don't post. This still continues to be a source of comfort. Best wishes to all and gentle hugs.


Barb(Pa) 2/8/07
Hi FM'ily, After sitting in Ca.for 13 days I am finally back to N.C. to deliver. Richard,came through your neck of the woods Tuesday morning but didn't have time to stop. Loaded in Long Beach,Ca Monday night at 10PM(pacific time) and delivered in Charlotte,NC today at 8AM. I enjoyed the weather while there,it hit 90 two days.

I talked to a friend and fellow company driver on Saturday and learned her husband has been given only about 3 weeks to live,he went down hill really fast since Thanksgiving when he was in California with us. I was spechless...what do you say that really helps. She has no income(they had to sell their truck and trailer for the medical bills and pending funeral)no medical insurance and don't even have a home,they lived in their truck.Please pray for her for strength to face the loss of her husband and the struggles ahead...her name is JJ.

Can't stay,but wanted to pop in and say welcome to any newbies and send happy thoughts and warm fuzzy hugs to everyone. All of you in the severe cold areas of the country stay warm.


Bex 2/8/07
HI FEB 19 07 it is Bex here, wow 10 yrs since iv'e seen you all, glad to see you up and as strong as you can be! 10 yrs, ago I hit the wall and met our proverbial dragon. this morning i woke in a night terror, common these days as as some of you i have lost everything to this monster, i was an R.N.. house, husband poof into his cave, i was alone in this. i understand it is hard on families when mom, the do everything person stops being that. But what selfishness, and that is our society today . I was dreaming my dog i had was licking at me, calling out talking to me, i was in happiness like never before. (a short, my ex did not let him out enough and he died within 1 yr of me going into exhile) it was incredible but i woke in tears crying "i want my life back", this road has been long and hard, i see the pain doc today, thank goodness, he is good.I need some trigger points a deep one in left shoulder! and my rx's, he is kind . in 01 I was hit by a semi to make life more interesting,46 surgeries and lost all but 6 teeth, praise an organization called donated dental, the rebuilt my mouth and nose, 32,000 free one hospital donated 155,000 to rebuild my left leg, kne and all!! there re good folks too! problem with being in pain 24/7 try giving me anethstics or pca's usaaly the dose of 5 people or more to put me to sleep and after an army of drugs to keep me sane, but i have a good doc folks, and in thhat i am happy. so there is a catch up if anyone remembers me, i will glad to see familiar names.


Sharon/2-9-07
hello everyone,I am sorry thar everyone is fighting depression, I getting its the weather...cold,dark some days...with different things going on in our lives.. put the iceing on the cake..theres all kind of pain in our lives,which we handle it in different ways..we get so tirer of stuff!!! person place or things..the pain of not knowing how to get out of it....hopeless,sad,lost....so sick of pain ...not just in the body but in our heads...I know with me I have to much time to think..I used to work ..I lost it becouse of my health..that was so hard to ajust and today I miss my work becouse it not made me feel inportion, it was my life..where I worked they made you feel like family....with me being along ..I put every thing in it...then it was gone...what am i going do ..i said to myself and it wasnt a good place....but I found out that sometimes things are met to happen...I use to question it... ( which i call the whys).. got no where.... you see 4 years later things change..you fine ways to make things better,in a way to make things better..even if it takes change, and with our illness living in our fogness there only way out is one day at a time(one min..at a time)it not easy beleive me,but I am living it...Pets are good..I have a cat..she found me..lost cold and going have kittens..I took her in..she been a blessing to me...But pets are like people...But Its hard.... if they effect your health ,you have to do what you have to do...just like changing your lives...or get in a better place........My father is holding( he has cancer)..has lost his hair..tired...but holding..I am still going home ..just dont know when...yet..my mother promise me she will let me know when she cant handel it....we have pc to pc.. I call all day long...some days...well every one I guess it time for me to stop and let some one in...just alitle lonely tonight but I always feel better when i come in....all that new comers keep coming back ..it works...thank you for all your kind words..


Sharon/2-9-07
Bex... boy it sound like there is alot of wonderful people in your life...have a nice day...


Richard in Tucson February 09
Good Friday Morning to my family hetre.I have missed you all very much we have a lotr to catch up on. "Welcome to all of the Newbies, keep coming Back to the Wall!" Theselast few days have been tough.
I went to my Dr. on Wednesday, he prescribed me somthing called pyridoshgmine, (not sure on the speeling)It is supposed to stimulate the Pituitary glad to make growth hormone. I will keep you informed on my progress when I start this new therapy.
jen: Welcome back, good to see your posting.I read your poems they are very good, It is agreat way for you to let others know what you are going thru, and I am sure it is therputic for you. I will check back to see when you post the New one. I wish you well, peace and love to you from me.
July: I am so glad you came back for a visit keep coming back I have missed you. I am so happy for you that the Ambien CR is helping you, I have been asking my Dr. for ever for it, He has wanted me top try other meds. 1rst. and lose some weight first too.
Doris Good to se your posts, my prayers and thoughts are with you, thanks for being here.
JUANITA/TX: I am also glad to read your posts, When you said your getting a bi-pac this friday, is it not called BIPAP For treating sleep Apnea? Let me know how you are doing in this treatment, I support what you are doing, just tell your husband that it might just keep you from having a stroke. $ is not as important as your health. You will get used to it I got sort of used to my CPAP, it just takes some time.
Barb(Pa): I thought I saw your truck race by me on Tuesday morning, Maybe next time we can get you to slow down and have coffee with me. Be safe take care of you.
Bex: Welcome back, keep coming back here, I am a house husband too, I would love to chat with you.
Dear friends I have got to go to my Yoga Class I will try toPost again soon.
Have a wonderful week-end. Gentle Hugs Love Richard in Tucson...


Yolanda Mia 2-9-07
Hello All! Well, this is my last day at my job. It's surreal. I'm excited about the changes but also freaked out a bit. This is a huge change for me. I'll rarely have time to access the internet anymore, but I'll be reading your posts, just not posting as much myself. I'm still looking for a new place, which is very difficult. I'm hoping to be moved by March. My house I'm renting now is getting worse and making me sick with all the mold. No matter what happens with my moving out before my lease is up, I'm calling code enforcement on my landlord. I've heard from at least 2 people that she's a slumlord. I'm making sure she gets caught so she doesn't do this to someone else. I have a few places to look at tomorrow. I found out that I do have family in Chicago. My grandmothers brother lives not too far from where I work, so I'll have some family support, though I barely know the man. But, in my family, that's not an issue, family is family. I'll miss you all! As soon as I get moved, I'll have more time to access. But, until then, I'll not be heard from as often. Love ya all! Welcome Newbies! And, welcome back to some of the wall veterans.


Barb(Pa) 2/9/07
Hi FM'ily, Yoyo,best of luck with your move,we will miss you until you can get back with us.

Richard was that you I spun around along the sid eof the road? LOL Maybe next time I will get stopped in time for coffee.

Lee Ann,thank you for the uplifting e-mail. I really appreciate it.

For those who have discussed ending it all DON"T !!! Don't do it and don't even think about it !!! Come to us and vent,talk with us,cry with us,talk to others....but ending it all is not the answer.The pain we suffer here is nothing compared to enternity in hell if we take our own lives. We here at the wall have all been where you are and we understand what you are feeling and dealing with. I am in a funk now with nearly no income and bills up the wazoo I can't pay. I am in danger of losing my medical insurance and truck and trailer if things don't improve soon.I have a sister and a very close friend with terminal cancer and I have been in alot of stress and pain lately.I don't mean to complain,I am just saying we help each other through rough times and I have already received e-mails of encouragement.I would be lost without this room,it has been a eal blessing to me over the years.

Welcome back Bex...have missed you.

Gotta run,am spending the weekend at my son's in North Carolina.

Welcome newbies and warm gentle hugs to everyone...stay warm.




Starr in WV 2/10/07
It's been several days since I've been on. The last time I was here I was complaining about my crazy boss. I found a book called Living Successfully with Screw-Up People. It is really helpful (I saw my dad and my boss in that book).

I do not wish to offend anyone and I certainly do not wish to force my beliefs on anyone, but I feel that God led me to this book. I also know that God is doing things in my life - it is way too complicated to go into but my ability to handle the boss and the office has moved into a whole new stage

Several years ago I read Why Bad Things Happen to Good People by Rabbi Kushner. Recently I also read Where Is God When It Hurts by Philip Yancy. Both of those books have helped me to cope. I also gave a book my Dale Galloway. He talks about accepting things in your life that you cannot change. That does not mean you are giving up. It means you do not waste energy fighting against something you cannot change and instead you move on to the next phase. He also talks about forgiveness of yourself and he makes a powerful statement - God loves you. Who are you not to love what God loves?

My co-worker who just recently found her way back to God gave me a card the other day when I was really down. It said don't just tell God about how big your mountain is, tell the mountain how big your God is. I have it hanging on my desk

I do not mean to preach here and do not mean to offend anyone of any other faith, I just know that that I know that I know that God is taking care of me right now and things are happening in my life I cannot explain. The job and the crazy boss and the fibromyalgia and the diabetes and the arthritis are all still there - I'm the one who is moving on mentally and emotionally.

I agree about the sleep issue - I keep reading more and more about how important sleep is. Unfortunately for me I cannot take sleep meds. I am allergic to Ambien and some of the others so I am trying other things. I also agree about the "addicted" foolishness. I have to go see my doctor every month now to get my script for hydrocodone (because of her malpractice insurance requirements) but at least she is willing to prescribe it for me and I am grateful to her for that

I need to go. I was at the funeral home this evening. A 43-year old friend of mine died in surgery the other day from complications. Today was her 23rd wedding anniversary. It has been a very long cold week but at least we do not have the snow you have in other parts of the country. I admire all of you who are coping with whatever you have going in your lives.

About the pets - I have lost many loved dogs and cats over the years, mostly to old age, and I find great comfort in The Rainbow Bridge. Also, there is a book called The Littlest Uninvited One that is a great help. It is a children's book written by the same man who wrote The Littlest Angel.

Deep sleep and gentle hugs to all.


juanita 02-10-07
JUANITA/TX good saturday morning all. made it thru another long week. so happy it is saturday. i got my BIPAP yesterday (THANKS RICHARD). it wasn't as bad as i thought it was going to be for the first night. my husband wanted to try it this morning and he said it would keep him awake all night with all that air blowing in his face. haha. he is just worried i won't use it and it will land up in the closet. it won't. well we are going to look at a couple of houses today to possible move april 1st. as long as it has trees my husband will be happy. i just wish all the bedrooms weren't upstairs. maybe one will be downstairs. i hope so. i have been taking my medicine for the nerve pain and i think it is starting to help my hands some. i haven't been waking up as much with the pain. will find out more monday after the nerve test is done. good luck YOYO on you move. RICHARD was happy to hear from you. we get used to people and when we don't hear from them we are alittle worried and sad. we are taking my brother and sister in law to SAN ANTONIO to the riverwalk this weekend. they have never been there, so it will be fun. only going to the ALAMO and to ride the boats and have lunch. not interested in looking in all the shops. don't think my feet could handle all that walking anyway.i was real sad to read about all the troubles everyone was having. will keep everyone in my prayers.you all feel like family to me and i'm sure to everyone on here as well. nobody but my sister in law knows i go here. it is like MY own little santuary. keeping it all just for ME. and of couse you guys.well i better go for now. take care and GENTLE HUGGS for everyone from JUANITA in TX


Doris 2/10/07
Hello to all....newbies and old friends. Good to see the posts are picking up some. Guess they just slowed down cause of the holidays mainly. I got turned down for the first apartment I applied for....bummer! I think it was cause of my credit history. The lady wouldn't tell me on the phone ,just said I would be getting a letter in the mail. I think that's kinda silly! So I have now applied at another complex and I know it will be a little while before I hear from them. I have lived there before so my chances are good there I think. It's not really where I wanted to live but it's ok. At least there I won't have an electric bill....it's included in the rent. That's a good thing. So I will keep my fingers crossed on this one.

I am still doing hand therapy....have another 4 weeks that the dr. just added on. I think by then that my hand might be alot better. It has improved quite a bit already. Just having alot of pain in my legs...dr. says its restless legs but they sure do hurt alot day and night. Hope all of you are feeling somewhat good and staying warm. Hugs to everyone from me! Have a great weekend and take care. Will post again real soon...........................D


Rachel 2/11/07
hello everybody. i hope all have been well. i have not i have been in and out of the hospital for the last 2 weeks. i also had to have another mri to find out how soon it will be before i have to have surgery on my back again{a 700lb woman fell on me in 2004 and i had to have surgery in 2005. but my neck is acting up again. i was also diagnosed cfs on the 6th and added to my fibro and ptsd i am about to go crazy! i asked the doctor what else could go wrong but he had no answer for me. i hope all are well and blessed be. rachel in ohio




Nevan with no clue as to the date
Hi all, Sorry I have not been around lattly. Got a lot going on. Have to move, landlord desided to sell the house we are renting and gave us 30 days to get out. Not a happy camper. What is up with the meds they use to treat this. I was just on Lyrica. Love it. No pain for weeks. So good I made all kinds of excuses as to why I was turnig red and itching everywere. Had bumbs start showing up and becoming sores. Told everyone (including me)it must be the cats. Never allergic to them before but what the hell.Finally feet and hands swelled up and doc took me off med. Now he put me on Kepra. Ever heard of this one. First day on it and I fill like hell. I know that might go away. But it is flustrating. At this piont they could give me a bunch of codine and I whould just fade away over the years, but at least I would have a smile on my face. You can belive how bad I fell today well maybe you can. Every thing in me is just screeming for help and felling like noone can do anything. well guess I am felling worse than I thought. Got to try to get my shit toghether. lol Thanks for listening to me vent.


Bernadette Feb 12
Gotta make it quick because I have been out of town for a week and have lots of catch up to do but I had to say JULY!!! So great to hear from you! I agree that a lot of it has to do with the sleep deprivation. My only prob with the ambien CR is that I am really groggy in the morning. Does this bother you too? Are you still using your tread mill? So glad that you are doing better and that you came back to share that with us.


Cheryl R 2/13/07
Cheryl R 2/13/07

Happy Valentine's Day to you all! Love with grace make good medicine. To love myself as God loves me and to give myself grace when I don't get it or wonder how to fix it.

My daugher-in-law's DNA came back good. So my 2nd grand daughter will be born healthy on June 23rd(or around that). Thanks for yr prayers.

Rachel I read about divorce and that's a trauma let alone a stress. Trauma kicks it off most often-FMS with CFS. Divorce is like someone dying but they're up walking around. The ending is long and too drawn out especially on the nerves. I went thru one with the finalizing in '89. Free is what I felt and then to focus on me and learn to enjoy my new life. About four yrs and then I met my current wonderful & understanding husband. A gift from God which tomorrow I will let him know.

I have been experiencing a lot of right shoulder pain. Been to chiro and using heat in am and ice in pm. Helps some. Also pills. Exercise is my other help. The chiro said do it. Today lots of snow with wind. I do believe like this storm and it's passing so will the storm in my body pass. I just want to fix it and get on with life and that's where patience comes in with grace. Some close friends remind me too. I have had some gastro yuk too. It went eventually with anti-acid and gingerale. Like a storm in me this morning it passed. I feel much better. Had this a few wks ago. Hear others are dealing with it also.

I read the posts and see a lot of pain. My prayers are with you. Cheryl R 2/13/07


Sharon/IL.--2=14=07
Hello everyone..I feel alittle ruff tonight..I know its the weather...but thats ok...just want to spread alittle cheer to wish every one a Happy Valentine's Day! a big huggggg!!!!! have a nice day!!!!


juanita 2-14-07
JUANITA/TX HAPPY VALENTINES DAY EVERYONE. i hope EVERYONE has someone to spend VALENTINE'S DAY with, even if it is a puppy or kitten or anything furry. lol today is my daughter's 27th birthday. HAPPY BIRTHDAY CRYSTAL LOVE MOM. well back to why i am posting. i have been wearing splints on both of my hand for carpal tunnel. i went for the nerve test and boy was it painfull. the shock was enough but then they put needles into my muscles. i thought i would die. i have had 8 surgeries and never felt that much pain before. the dr. says i have it in both hands but my left one is worse than the right. i am right handed. you should see me at night putting on my BIPAP and the wrist splints. i wear them mostly 24 /7. makes my hand hurt more. a friend of mine says i should donate myself to science because there is so much wrong with me. i don't know whether to laugh or cry about that. i have been reading alot here and my heart goes out to each and everyone of you. they pain we all go thru is unbareable sometimes. i will be praying to all of you. well i have to go for now and in a few days i have to go for a glucose test for diabitis(ms). thats all i need but my mom and grandmother both have it so maybe i won't. TAKE CARE AND GENTLE HUGGS EVERYONE. JUANITA/TX


rachel in ohio 2/14/07
cheryl r -thanks for the advice, i am so tired and hurting and its nice to know it will pass eventually. with everything that is going on i feel like my body is in a state of emergency. i hope all are well and having a great valentine's day!! i will post more later. blessed be.


Richard in Tucson Wednesday February 14
"Happy Valentine's Day To All of my friend's here."
I just thought I would stop by here to let you all know I am still hanging in there, I have missed coming here and missed you all, I only seem to find the time to read the posts. I am now going to the Gym three Days per week Monday Wed. & Fri. I have lost around 4 pounds in the last two weeks. Hopefully Fri. I will come back in the morning to visit some more here. I want to tell you about my new meds, but I have to Run and pick up my teenage daughter in a minute. Have a wonderful week-end If I don't make it back until Mopnday or Tuesday.
I will be back soon, Gentle Hugs to all and remember we are together in this, I won't forget how important this friendship is.
Love Richard in Tucson...


Linda Feb.15.07
Hello to all, 2/15/07 I stumbled on your website lastnight and have been reading all your posts and it seems there are sooooo many caring people here it brought tears to my eyes. So glad I found you all..... I have been trying to self diagnose for some time now and finally broke down and went to the Dr. Still waiting for the results, will be next week, may as well be a year.... I think the waiting is the hardest part of all, thats where all my anxious thoughts kick in.I find it hard to get through a full day without all the horrible thought kicking in and go into a funk of sorts. I haven't heard anyone speak of dizzy spells though. Has anyone else had these? They come on for a few hours and then go for a few hours among all the other hurts. I'll keep this short being my first post and all. Looking forward to hearing from all and thanks for having a great place to vent and be heard! Linda


Barb(Pa) 2/15/07
Hello FM'ily, Just a very quick post to welcome all the newbies.

Richard came through there Wednesday night and golly was it busy. I realize it was 6:15PM,but darn people drive crazy there.

Pain level has been very high lately,but we are still on the run. Need to deliver in Oakland,Ca. in the morning and Seattle on Monday morning.

Stay warm...gentle hugs


JuneKaye 02/16/07
Ladybug, Ohio 2/16/07 I am a "newbie" to the site, but not to fibromyalgia. I self-diagnosed and then went to a specialist, Dr. Marc Pellegrino, here in Ohio and I have tenderness in all 18 points. I am so thankful that this did not become full blown when I was younger. I am 68 and retired for three years and more able to cope with this condition than if I were younger. My husband and grown children are very understanding as are my friends. They know that some times I am unable to go shopping or out to dinner,etc. when a flare-up occurs. I have tried many pain and anti-depressant medications and have found that Cymbalta works amazingly well for me as does liquid hydrocodone for the pain. The pill made me loopy, but with the liquid I am able to function well and the pain is quickly relieved. I use a heated mattress pad and have various neck rolls and mittens to put in the microwave to relieve specific pain in the neck and hands. I need to start exercising, but tend to put it off. I would love to swim, but I have a tracheotomy so that is a no-no. My husband teases me about the "fibro fog" when I can't find something or while grocery shopping I get overwhelmed by too many products on the shelves---he says it's time to put me in a home.


sharon/IL---2-17-07
hello everyone.. i went to the doctor today ...i cant sleep....she started me on trazodone.50 mg..have any one took this ..http://en.wikipedia.org/wiki/Trazodone#Occupational_Hazards this is all about it...the question is she giving me this to sleep...I need to know what you think...I alittle bit scared taking stuff...i dont want to get hook on it....but she saids i need to sleep...i look ruff...i take it at night..tonight i only took a half of a pill...They say 1 or 2 as needed..just scared to take ...thank you for listen...




Amy 2/17/07
I have a question about Fibromyalgia. I have been dealing with this syndrom and it has gotten worse over this past year. I know that the strss in my life has increased the pain associated with it. However, have any of you had hair loss with your FM? I am beginning to have a significant amount of hairloss and it is really bothering me. i also know that hairloss can be a symptom of stress, but I am wondering if it is FM related. Thank you for your help.


Amy 2/17/07
Sharon, I h ave taken Trazadone and feel fine. I am one who has not slept for years and now take trazadone and restaril and am beginning to sleep at night. I cannot say it is a cure but it has done a good job for me.


sharon/IL.--2-17-07
hello Amy....about your hair....yes stress can make your hair fall out....a few year ago my hair started to fall out...I had moved to a different state...water different here...well I still have hair, but just scared me...too..I talked to my doctor and she told me that every so may years you loose hair...also some Medince does make your hair fall out...I did every thing from changing my shampool.....the crazy thing I went and got a good hair cut..and you know it stop..I lucked out there...I never hear of your hair falling out from FM but i have heard from the medince we take....and stress...but if anyone know let me know...I like to know too...also thank you Amy for your comment on Trazodone...my boyfrend uncle used to take it...he has FM too....well I hope every one is have a good day...Yal are in my prayers...


Cari K. 2-17-07
Cari K. 2-17-07 Hello all,it's been awhile since I've posted.Amy,yes,you most certainly can lose some or alot of your hair due to stress.I've had it happen to me too.Ladybug from Ohio:I'm glad that Cymbalta is helping you.I took it for about 6 months and it made me lose about 20 pounds.My doctor made me stop taking it.Linda:I've never had dizzyyspells but please keep coming back.I'm sure someone here can help you out. They are a great bunch of caring people.Richard:it was nice to hear from you.If only a few lines.Nevan:Lyrica helped me too ,until my feet and legs swelled to twice thier normal size.So let me know how the Kepra works for you,ok?Gentle,warm hugs from here,Cari K.


Doris 2/18/07
Hello everyone. I decided to read the postings and write a few lines of my own. I have been busy with dr. appts. lately and taking mama where she needs to go also. I am having alot of problems with my legs.....the left one is alot worse. I know I have restless leg syndrome BUT the last 2 weeks my legs have started aching all the time. Sometimes the left one is almost unbearable. I haven't had them checked lately cause I have an upcoming appt. with my rheumatologist in the next 2 weeks. He is the dr. who said I have restless leg syndrome. So I am gonna approach him about this problem. I am on Lyrica but it seems to be not working at all for my legs anymore. I just know I must have some relief soon.

I have gotten approved for an apartment in the same complex where my mom lives. The only thing is I have to wait until one becomes available and wait until my name is at the top of their list. I have lived there before. I am hoping it won't be long BUT it could be a few months. In the meantime, I shall stay here with my now friend and ex-boyfriend. He is fine with that. He understands how I have to wait on the apartment. We are very amicable and plan to remain good friends after I move out. He still treats me good and we talk and get along. We both know that it's over and we are only good friends now. I just have to do what I feel is best for me. He is not very happy about the choice I have made but he says he understands. That's all I can ask,isn't it? Well hagd all,take care, and stay warm wherever you may be. Hugs and warm wishes to everyone from across the many miles......................Love,D


yolandamia2002@yahoo.com
Hello All! It's been a rough week for me. With driving two hours each way to work in all this snow and the being outside going door to door in this biting cold, it's been rough enough. But, then my first day my tire exploded on the toll raod and something is misfiring in my emissions equipment. My mechanic told me the emissions problem doesn't need to be fixed right away. Thank goodness b/c I'm broke. The next few weeks are going to be rough b/c I have no money and it costs about $150 per week to drive back and forth to work. I'm still looking for a new place but it's been rough with the lack of time. My body aches all the time now b/c of all the walking and driving. Doesn't help that I'm hardly able to eat. I'm hoping advancement happens quick at this job.

This week was also hard on me b/c I realized I need to get out of my place NOW. My roommate and I got into a huge fight and he attacked me. I called the cops on him and they made him leave for the night. Being at home has been strained b/c of what happened. So, it's not such a bad thing that I'm hardly home. Thank goodness that he's working most of the time that I'm home on the weekends, and when I get home during the week he's already asleep. Things should improve soon, hopefully. Love ya all! Welcome NEWBIES!


Bernadette Feb 18
AMY please get your thyroid checked. Often times, thyroid disorders have the same symptoms as FMS and hair loss is a big sign of thyroid problems. DORIS it is nice to hear from you and get an update. YOLANDA hope that things get better for you. Sounds like tough times right now.

As for me, I am still doing OK. No nicotine gum still (remember-my eight year habit).It has not been easy. For the record, I don't notice any difference in my symptoms, but it saves money and must be doing some good, so I am keeping it up. Now I am looking at eliminating sugar and aspartamane from my diet. Eventually, I would like to give up my morning coffee too. Well, it is getting lighter up here in Alaska, thank goodness. Take care friends.


Rachel in Ohio 2-18-07
hello all and a big welcome to all the new people. LINDA-I also have dizzy spells and that worried my doctor because of my spinal cord injury, and he perscribed anivert and it has seemed to help somewhat. AMY- I have problems with my hair falling out but, i also suffer ptsd, so hang in there. SHARON- I took trazadone for awhile because I suffer from severe insomnia but i didn't seem to respond to it. my doctor then perscibed seriquel and that has helped in combination with my elivel. sometimes it just takes trial and error in finding a combination to work. I hope all are doing o.k. I am going to go, my hands are very painful 2day. stay well and blessed be.


Richard in Tucson February 19
Good Monday Morning to you all.
I only have a couple of minutes. To make this post, but I just wanted to pop in & let you know I am still here with you.
Barb(Pa): I am sorry you have to deal withour crazy drivers, most of them I think came here from California & Mexico. I am a careful driver, I take my chances everyday with them.
Welcome to all the wonderful Newbies, keep coming back, we care here and will help you in time, give us a chance. I will be back on here tomorrow morning.

I must get going I have my daughter Nicole home sick today from school, & she needs me. Until tomorrow Gentle Hugs from Richard in Tucson...


Linda Mullins 2-19-2007
February 19, 2007 Darlene in Iowa, USA I am a 10-year sufferer of fibro. I just found out about a product called Fibronol & FibroBoost. Does anyone out there have any experience with these products and if so, how long did it take you to have any success with them?


Jenny in Utah 2/19/07
Hi all, My name is Jenny. I am 34 years old and was diagnosed with FM in 1992. My mother and my sister have FM, although worse than I have it. I have had a relatively mild case of it until recently. When we moved to our current place of residence, I called around to see what doctors were open to treating me and found one, but when I went there, she really had no idea how to help me! I have other conditions that she is great with, but I really struggle with the fibromylagia. I am a nurse and work for a nurse practitioner that I am considering asking for help. I have not really been treated in the past, except once in a while. I really need help now. I wake up in the mornings and my feet hurt so bad I cannot walk! And when I am sitting at my desk for a few minutes, it hurts to walk then, too. I also teach nursing at the college here. I used to work in a nursing home, but due to how hard it was for me, I stopped. Teaching is much easier on my physically. I don't think I can ever go back to working the floor. Taking my students to clinical is very hard, and I only do that two days a week. I am taking ibuprofen round the clock lately and I am concerned because it makes me so nauseated. Silly question for the ladies, I hurt so bad when I wear a bra. Does anyone else have this problem? Also, I have a real hard time with loud noises. I get very anxious. I have a parrot here at home that I love dearly, but he is so loud and it upsets me so much. Would it be a good idea to maybe get him a new home? Thanks for all your help! Sorry this is so long!


Pam Feb 19, 2007
Hello all. My name is Pam(Okla) I am a 37 y/o mother of two. I was diagnosed with FM 3 years ago. I have had continuing pain since then...I have had no remissions or easing of my pain, in fact my pain has tripled since ect..I ahve chronic fatigue, IBS w/constipation, unbearable pain to my entire body, some days it hurts to wear clothes..Iknow my family gets tired of hearing me say I hurt. I used to pride myself on my pain tolerance...I had both of my kids without pain meds for peets sake and now I am on so many pain pills I live in a fog....I have problems sleeping at night but I can sleep all day if I am at home..I rarely leave my house anymore. My husband does all of the shopping, laundry and takes our kids anywhere they need to go. They know it's no use to ask, as I am usually in bed...It feels good to say this to someone who totally understands what I am going through, instead of thinking I couldn't possibly say all of this to someone who wouldn't understand or think this is all in my head.....Thanks for the ear...


Jenny in Utah 2/19/07
Pam, I am so sorry you are in so much pain! I may not be in bed a lot, but I also had a condition called hyperemesis gravidarum with all five of my pregnancies. I was lucky to be able to walk from my bed to the couch. It was so hard on my family. The worst part of FM, I think, is people don't "see" it. I grew up watching my mom in so much pain that she could hardly move as well. I can so relate with you. Sending you big hugs! Hang in there!


RENA 2/19/2007
RENA, Florida. JENNY IN UTAH: I also have a very hard time wearing a bra and so have switched to sports bras for 90% of the time. They also hurt and I cannot wait to take them off at home, but they are better than a regular bra. I am also noise sensitive. I can actually get dizzy and nauseous from loud noise, forget that it also gives me a head ache. As for the feet, I used to feel like I was walking on hot coals all the time but the Hydrocodone seems to have relieved the foot pain unless I stand up for too long. I have found nothing to help the noise problem except quiet. I hope this makes you feel less alone and different.


Barb(Pa) 3/19/07
Happy Monday from Seattle,We finally got here and got the load delivered and are now waiting for another load back. Yesterday was a beautiful day,sunny and warm,but today is cold and wet and you all know what that weather does for us. I am looking forwatd to getting back home since its been alomost 5 weeks since I've been there.My step-daughter and new granddaughter will be back home on March 13th,so it is a MUST be be back by then.

Bras are a bummer for me too,but when you are well endowed it is a must when you are out here.I also have been having a terrible time with my feet,they are soooooooooo dry and cracking and nothing seems to help.

Welcome to the newbies and please keep comng back,its a great group of people here.

Genrle hugs and warm sunny skies are sent your way.


Lee Ann/MI 02/19/07
Hi y'all! Hey, its been a little while since I posted so I thought I would drop in and say hi to everyone. Richard, it was good to hear from you again. Please drop in as often as you can so that we know you are still with us. Doris, keep your head up, the apartment will come open when you really need it. I am so happy that you have at least got your acceptance. Jenny in Utah, I too have problems with wearing a bra. When I am home I live in my housedress with no bra. I had posted a little while back regarding this issue. I, too, was finding it hard to wear clothes. FYI--I also have trouble with noises. Some days it is so bad that I have to keep the tv off and not use anything that produces a lot of noise. Just one more thing to deal with, I guess. Barb/PA---its good to hear that you have gotten your loads delivered. I hope that you will make it home and enjoy the time with your grandbaby. WELCOME, to all the newbies. Please keep coming back and this is a really great place to come even if you want to just read the postings. It really is a great place to dump all that is bottled up inside you because we all know what you are going through. There is nobody here that will think bad of you for complaining, etc. We all need a place where we can all feel safe to really discuss what we are experiencing every day. Keep you heads up and your know that we all care. Yo-Yo, it sounds like your are being pushed in too many directions. I hope things settle down for you soon. I agree, from what you have posted you really need to get out of that situation with your roommate. It sounds like you have a lot on your plate right now. Bernadette,it was good to see you posting. I miss your views. Well, I guess I will close for now. Gentle hugs and tons of good wishes to everyone.


Richard in Tucson 2/20/07
Good Tuesday Morning to all: I am trying to post more often now, but I do have a lot going on in my life so forgive me if I seem disconnected, and some days I'm not able to post.
I wanted to let you all know about an article I just read in our Arizona Star Newspaper Entitled "How advocates energized chronic fatigue research" by Mike Stobbe of the Associated Press It describes How since 1990 The Centers for Disease Control & Prevention & National Institutes of health has received $178 million for Chronic fatigue Research. In just 1998 $13 million of this Money was spent on other research. The CDC's Dr. William Reeves emerged as a whistle blower about this. If You all are interested in this article I think I might be able to scan it onto an e-mail and send it here, I was so shocked at how our government was so careless.
JuneKaye: I want to welcome you to the wall. I am so glad for you that you are able to go to Dr.Marc Pellegrino, I have heard many good things about this Dr. I also am so glad your meds help you. About what your husband says. Just tell him to put you in a home with Young Handsom Male Masseuses. & see what he says to that. Keep coming back to the wall.
Cari K.: I will try to keep coming back as the fatigue allows me as well as my life, I am always busy, I need to finnish things that I put off, so that I can be here. Thank you for your kindness.
Doris: Hang in there, I think things will get better for you, you are a good person and are very sweet to us and understanding, it will just be a mater of time, I'll be praying for you. Keep us posted.
yolandamia: I understand your struggle, you are also very special to me, please know I am praying for you, please e-mail with me If you need to vent I would love to hear from you.
Warm welcome to all the Newbies keep coming back to the wall.
Lee Ann/MI: Thank you for your kindness and compassion, I will keep coming back as often as I can.

I must end with this thought, I feel we all are capable of many things in our lives lets just keep our heads and hearts together we can accomplish anything we want or need.
Gentle Hugs from Richard in Tucson...


Amy , IN 2/17/07
Hi Everyone...and THANK YOU to all who have responded to my e-Mail. I am home today with a horrific migraine and hurt all over. This posting will be breif due to the light from the screen, but I appreciate all of the help. I have been tested for thyroid trouble many times...it always comes back ok. Also, I too have trouble wearing a bra. After 5 years I have been accepted by insurance to have a breast reduction surgery which will help relieve a little of the pain. I am a special education teacher and lately the stress at school seems to be overwhelming. It is not the students. It is the demanding parts of paperwork, and administration. I Do not know how much longer I can do this. I love my profession. I have never wanted to do anything else. But the stress is literally killing me i think. By the way...does anyone know if there is any positives for living in a warmer cliamte vs. a colder climate for people who suffer with FM? I get so much worse in the fall and winter, and in the summer I am better, but that is also when I am off of school. However, I have considered actually moving to a different part of the country if I could be healthier and happier in a different climate. My partner has been offered a nursing position in management making 2x what she makes now. We are from northern Indiana. The offer was from Naples Fl. Just Wondering! Please everyone take care. I am going to lay down and close my eyes. Amy


JUANITA 02-20-07
JUANITA/tx GOOD EVENING EVERYONE. sorry about that. i have been fighting something all weekend and the last couple of days. a nagging cough and i couldn't use my bi-pap last night for the first time since i got it. kept coughing and couldn't go to sleep.RICHARD, so good to hear from you again. WE MISSED YOU. well this will be short, it's time for my bath and i get up early 4:30 am and it is already 8:30pm. take care. and gentle huggs for everyone.JUANITA


Barb(Pa) 2/21/07
Hi FM'ily, Amy,My sister and brother-in-law say they feel ALOT better in Fl. then they do at their home in Pa.;so much in fact my B-I-L has moved there full time and my sister spends her winters at her home there in Englewood. I have to be honest and say I usually feel worse when I'm down there,I have found I feel best in north central California. I guess its different with all of us.

I'm in Tacoma,Wa tonight and its cold and wet here. Had heavy rain and snow here today...YUCK !!

Gotta run for now,but wanted to address Amy's question and welcome the newbies. Gentle hugs everyone


Barb(Pa) 2/21/07
Me Again,Amy I forgot to mention my sister suffers from both RSD and Fibro and my brother-in-law has terrible arthrtis.


Cari K. 2-21-07
Cari K. 2-21-07 To Amy: you asked whether it would be of help to move to a warmer climate.The thing about this fibro is that yes,the warmer climates do feel better,but you need the dry warm climate.I don't know about you ,but alot of fibro sufferers can't handle a high humidity. I myself am one.I live in Ohio so I know how the seasons play havoc with how you feel.I vacation in Florida almost every year,and it is just wonderful as long as the humidity is low.These past few days with warmer weather but chilly damp days are also hard to handle.All I can say is to try it.I know it should make your pain lessen,but there's no way to tell for sure.To Richard:Hi guy!! It was just great hearing from you!I know what you mean about the fatique. It takes everything just to make it through the day and do what needs to get done.My heart is with you.Just send a few words when you can,we understand.Also,I had heard of the CDC's money problems with "our" research money.They just don't understand that millions of peoples lives depend on this research.Maybe they would if one of thier loved ones had FMS or CFD.Ya think?Ok,time to go for now,Warm gentle hugs,Cari K.


Rachel in Ohio 2/21/07
hello everybody i hope all are well. TO JENNY IN UTAH-I WEAR SPORT BRA'S THERE IS SOMETHING ABOUT A REGULAR BRA-THEY HURT ME SO BAD!!! TO BARB IN PA- MY FEET ARE THE SAME WAY AND MY DOCTOR SAID TO USE VASILINE ON THEM AT NITE THEN PUT A CLEAN PAIR OF WHITE SOCKS ON FOR THE NITE-SO FAR MY FEET ARE GETTING BETTER BUT ITS SLOW! I hope everyone is well, i had a mri to see if they need to put a steel rod along my spine any feedback would be greatly recieved.RICHARD-I AM GLAD TO SEE YOU POSTING AGAIN-YOUR ADVICE IS ALWAYS SO HELPFUL-GLAD TO HAVE YOU BACK.Well i am going to close- having a painful day. i am also wondering does fibro ever go in remission? Thanks so much. Stay well and blessed be.


Rena 2/21/07
RENA,FL - AMY, IN: I moved to Florida 7 years ago because of my back problems. I was from upstate NY, way upstate in the Adirondack's and was afraid of falling in the ice and snow. I have found that the FM is much better here than in NY. Yes, we have humidity, but you can stay in the house on those days. From late September until May, the humidity is occasional. It is only really bad in the summer. The pain from my arthritis is also better here. Since you are a teacher, and Florida needs 10,000 more teachers in the next 2 years, a job would also be no problem. Don't fall for the "it's cheaper to live in Florida" song and dance though. It is no cheaper than NY, except there is no state income tax...yet.
RACHEL, OH: I have a rod and four screws in my lower back. I was in a wheelchair just before my surgery. That is the only reason I allowed the surgery. I can stand upright and walk but both in moderation. Do not expect the surgery to "cure" you. Make sure there are no other options..the surgery is no picnic and neither is the slow recouperation time. I was in a body brace for 7 months post surgery. The pain is the same as I had before surgery, the only difference is the walking and standing for short periods of time.
I hope all you folks suffering in the cold and damp find ways to relieve the pain.


Bernadette Feb 21
Welcome Jenny. I'm originally from Utah and just spent vacation there. If I wear underwires, it is painful, so I switched to camisoles with built in bras or bras with no wires. Big difference. Think getting rid of the parrot might help. I don't like loud noises either. LEE ANN great to hear from you, always. Thanks for posting. RICHARD you are such a gift to all of us ladies. Thanks for always being there. AMY glad you've been tested for thyroid. Can you do part time teaching?

I myself have just gotten a part time job at the local library shelving books. I have been substitute teaching for the last two years part time and the noise gets to me more than anything else. I am REALLY, REALLY, hoping that I can handle this new job. It is pretty physical, but lower stress so I really hope that it works out. I'll keep you posted. Now that I am past the nicotine gum withdrawal phase (it has been a couple of months), I would really like to quit caffiene. I has a new book about reversing fibromyalgia and it says that you should quit caffiene and take lots of various vitamins. I can't afford a lot, but I did get magnesium because it is said that magnesium deficiencies can lead to muscle spasm and sensitivity to noise. Love, you guys, it is time to take my son to piano lessons.


sharon/22/07
I have had Fibromyalgia & chronic M.P.S. plus my s1 and my L345 is bad..my L5 has a pin hole in it...I have know about this for12 years...I was in a wheel chair..around 2000 i was walking but pain was still there..My feet and right leg hurts all the time..Most of the time the pins and needles is in the morning..At night is the worse(restless leg isnt fun) keeps me up alot...plus what ever the problem is for the day...it gets pretty painful.... Yes,Jenny Bras hurt me sometimes, cloths too...with me being by myself most of the time..sometimes even sheets hurt... nights is my worse..when that happen I pull off what i can...some times all I can do but cry( inside)..Yes noise hurts, I have to be careful...some places I have to wear ear plugs..some times It dont work...music,childern sounds,horns,etc...If it hits the right not I have seizers....not the kind where I jurk around, I just get confuess, and only can see whats right in front of me, hurts big time...thoses days i stay home..dont drive ether.. some months every day.. some times weeks before having one...I ready dont know when its going to happen...But I take Zomig 5mg...works in 7 min..they have some that sprays in your nose but i cant aford it.... Beleve me I fought doctors on my Medince.. Constipation...Is part of condishion...beleive me this is normal...My Doctor gave me Zelnorm 2mg..wonderful,Pam I feel for you and myself.ahahah Rena...hope your feet feel better Rachel in ohio...thank you conment ,I already had it change..made me sick... hope your hands feel better...this weather doesnt help....pray for warm weather.. Barba(pa) I will pray for your family..... Rena(fla)...I live in fla moved here 4 years ago...(there humidity) I found out with me humdity,it depends what time of the year hurts me...but some cold hurts me too...I dont know which I dont like hahahaha...but I do good with heat, wish i was there now.but weather my worse....cold puts me in bed... cari K, yolandamia,linda mullin, leeAnn,Amy,Richard in tuson,Rena,Juanita...didnt want to leave you out...hope your day is going good. your in my prayers.... all the Newbies my prayers are with you...pleases come back it works... I wish you all a good day or night....


Cheryl R 2/22/07
Cheryl R 2/22/07

Hello to all!

Read posts.

June - what is hydrocodone for pain? How is it used? Over the counter or prescription? I use Bio-Freeze. Been pretty good. My right shoulder has been inflammed & have been to Chiro & doc. Heat in am & ice at nite. Inflammatory pill in am & pm. Some difference I feel.I exercise at Curves so I'm not to do upper body work for 10 days. I also do dance aerobics and along with fun it's been good to help my mental fog. Yet tonite I had pain with depression while doing aerobics and just wanted to escape to cry for that's what chronic pain does to me. Felt tears yet didn't cry. Called for my counselor. Will hear tomorrow from her. I'm trying to figure where I am sticking it out for good reasons or bad due to pain and the depression. For the most part exercise has helped me alot.

Amy and Sharon - my daughter lost hair for awhile due to stress and was told to take biotene. We found it at Wal-Mart. Thyroid is another possiblilty yet I heard that was checked.

Jenny - I find the bra hurts me at late evening. I always think my back muscles tire or even swell the way they feel. As for pills I was told my doc recently again as a reminder to be sure I'm eating when I take them so as to not agitate stomach lining. Also I've gotten up some days and felt like a Mac Truck hit me. It's better lately yet in flare-ups this is a possible.

Pam - I am glad to hear yr trust and honesty. Thanks

Barb/PA - I found Vicks works well on feet(heels & etc. also my nails for fungus thick nails)

Cari - I too dislike very much the humid weather. It's a blanket laying on me and the ac is where I hang out.

It's late and onto another day soon. Thanks for everyone sharing. Always room to learn something new or be able to pass on some experience. We are all in this together. The language is understood. Cheryl R 2/22/07


Bernadette Feb 22
CHERYL I read your post with much empathy. I have been trying since my diagnosis to keep up exercising because they say it is so good for us, and because it does help. Often times, I actually experience what it is like to feel no pain again, and it only happens during exercise. That is why it is so hard to pace myself-because during it I feel so great!! But as I am sure you know and I am just reminding you, we have to build up gradually and measure what we can do not by how we feel in the moment, but how we feel hours afterwards. The times I have felt pain WHILE exercising have been when I have been doing too much or too often and need to rest more in my life. I can so relate to what you are saying. I too did dance for awhile, and loved it, but found that it was too much and cut it down to half a class (then I would cool down on my own). For seriously, three years on and off I tried to figure out how to do the Nautilus machines at my gym without them hurting me. I kept injuring my-you guessed it-right shoulder. Now I do a few light weights at home, just to remain toned. THe important thing for me to always keep in mind is that I SHOULD NOT EXERCISE LIKE OTHER PEOPLE and I SHOULD NOT EXERCISE LIKE I USED TO DO. Whenever I do, I end up hurting myself. Letting go of the desire to do so is really sad and frustrating and I have cried a lot about not being the active person I want to be. BUT, the good thing is that if I do take it easy and do less than I think I should be able to and stop before I feel the burn I can still do everything, and that is a blessing. I am still an athlete, just an "athlete lite". I can cross country ski (for half an hour), I can go hiking on trails (for half an hour)and sled and bike and most everything. How wonderful that is!! SOrry to go on and on but exercise and fibromyalgia are topics that are dear to my heart and I so want to encourage you not to get discouraged and to pace yourself so that you can still enjoy it. Have you tried yoga, or the book "Strong Women Stay Young" by Miriam Nelson. She is a physician who has worked with fibromyalgia patients and she has an easy eight moves of weight lifting that I am having success with. Have you read Stacie Bigelow's book "Fibromyalgia: Simple Relief Through Movement"? OK enough from me, and the timer's up-time to wash the dye out of my hair!


Barb(Pa) 2/22/07
Hi Everyone, Thanks for the info on feet care,I'll give it a try.

Cheryl,I'm sorry to hear a mac hit you,but golly I'm glad it wasn't a Freightliner,it might have been me. :(

Loaded today and heading for L.A. for a Monday delivery,then I hope to be heading for home.

Welcome newbies,gentle hugs.


Yolanda Mia 2/23/07
Hello All! I have had a rough week. Turns out this new job was not all it was cracked up to be and I quit it this morning b/c I couldn't afford getting to and from work. I spend more in a day than I make. Turns out the work is strictly commission, which they lied to me about before I accepted the job. Also, I was promised insurance, and I don't get it until my position changes within the company, which is an indeterminate amount of time. Having this dragon and no insurance is not a risk I can afford. So, I'm looking for work and am very stressed out b/c I have no money for anything right now. I'm working a few promotion jobs, but it's hard to say when I'll get paid. It takes anywhere from a month to 45 days to receive pay, and not always then b/c of something on their end. In fact, I'm still waiting on two checks from last year. I'm hoping for something positive soon to happen b/c right now there isn't anything going well.

Amy, where in northern Indiana are you located? I'm near Notre Dame. That was another problem with the job, I was driving 2 hours to and from Chicago everyday, if not more, so about 4 hours of my life was being spent just driving everyday.

Welcome Newbies! Love ya all! Yoyo


Rachel in Ohio 2/23/07
Hi everybody its Rachel. RENA FL- THANKS SO MUCH FOR THE ADVICE, I WENT TO THE DOCTOR YESTERDAY AND I AM GOING TO HAVE TO HAVE THE SURGERY DONE IT IS BASICALLY THE ONLY OPTION- OR I WILL BE PARALIZED IN 6MONTHS TO A YEAR. MY SPINE IS AT A 45 DEGREE LEAN TO THE LEFT. THANKS FOR THE ENCOURAGING WORDS. To everyone else I hope all are well, going to cut it short am having terrible back pain. Stay well and blessed be.


Alexandra OH
2/24/2007 Alexandra / OHIO-
Greetings everyone. It's been about four months since I last posted on the WALL. After reading current postings, it is good to see some of the same names. In October I moved from a condo I owned to a rental house on Lake ERIE. Financially it was the only choice I had as the condo took so much money to run. I have been on my employers long term disability since June 2006. My income has been reduced by 20%- just enough to hurt each month.

After moving, I had a flare up of Fibro and have been doctoring ever since. One thing led to another. Depression, Agoriphobia Diabetes, Heart and Kidney problems. I have been counseling with a psychiatrist and phisiologist. I've been on Wellbuteron for over a year now. Since moving, the Psychiatrist put me on 3 different medications that didn't work. I went through the allergic reactions with each. Now I am on Wellbuteron and Sertraline. The Sertraline, after 4 weeks, is giving me a constant headache, and feeling like I could pass out any minute. I am scheduled to see the doctor on Tuesday so, we will inevitably begin another medication.

I never realized I was so sensitive to chemicals in my youth. I am 52yrs old and was diagnosed before anyone knew what Fibro was - is, 1999. Its been a struggle as all of you are aware. I have felt much worse since my move in October. Did you ever feel like every organ in your body is broken and beyond repair?

It sounds hopeless however, I am content staying in my home. The lake is frozen right now and the sunsets are magnificent. I became agoraphobic since November. I haven't talked with my family since July 2005. That was my decision. So, by myself, on the lake, I've been writing, reading and attending to my two cats. Its not ideal living but, it is all I feel I can handle. When I go to the doctor's it is so much stress to go outdoors that I can't sleep the night before the appointment. Strange, I know. I feel if I can contain what goes on around me in my home--I won't feel as stressed and depressed. Not sure how that is working though.

Well enough for now, but wanted to say hello and say--I'm still out here.

And in the end, it's not the years in your life that count. It's the life in your years.
Take care everyone! Alex


Cari K. 2-24-07
Cari K. 2-24-07 To Alexandra: Hi neighbor!I just read your post and I wanted to let you know that I live in Warren,just 60 miles south of you and that I know how you feel.I too am getting to the point of agoraphobia.I still work,but I can feel the differance. I absolutely hate to go anywhere.All I want to do is stay in the house. I don't want to go out for anything.Alot of it has to do with the weather. The cold hurts so bad.So I know how you feel up there on the lake.I know how much more bitter it is up there.I also have a step-son who lives up in Lakewood.But I have only been up there once to his house.There is just one thing I have a question about.And I see it alot in peoples posts so please don't feel you are the only one,but where is the pain medication when you tell what all you're on? There is no way I could go on without the pain meds I have.Maybe it's because I still work and it takes a greater toll on me" I just don't know.Maybe you can help clear it up for me.I have been diagnosed since 2000.I hurt constantly.And to the point of screaming if I have noting to take to help it.Is this just me? I remember back years ago,that it didn't hurt all the time.So the idea that this is not a progressive disorder is bullhockey! I am also sorry that you have no contact with your family.But that is your decision.But I know how hard it would be on me if I didn't have mine.And I know that if I need them,they would be here in a heart beat. But right now it is just me and my husband living here.He has copd and is on disability.So the money I bring in is our main sorce of income.So I have to keep working as long as I can and the pain meds allow me to do that.OK,I've rattled on long enoug.I hope you are doing well up there on the lake.Gentle,warm hugs,Cari K.


Rachel in Ohio 2/25/07
hello everybody. I also suffer from agoriaphobia and believe me it is no picnet. i spelled that wrong oh well. i am having problems with my back and fibro- its raining here in ohio. i hope all are well and doing o.k. i have to make arrangements to go to cleveland my uncle passed away but i don't know if i can handle the trip.its about 150 miles away and my doctor said to go 1 hour and then stop and walk around for a half a hour to help me not hurt so much so i hope that works. stay well and blessed be.


Sharon/IL 2-25-07
Today has been a long day for me..Everyone has been talking about agoraphobic...Its hard to say.. becouse feeling the way I feel some days,Its best to not go anywhere...Theres Days that your so fogy and confuess, it best to stay still..or you might go down the worng street(one way) Like I did hahah ,well the end of that story ,I still alive...I have found out I do better in small groups,and beleive me some days I cant handle them ether...But I learn to shop..I guess I am lucky the town I moved in is small..alot slower (then living in Fla).But I found out being by myself is ok,at times its a must...(for me)Becouse I dont have to hear ..oh you should...oh why or how come,Or see people get up set with me...or have to answer them..What I do is pick 1 place to go into and smile and say hello to everyone..(even one)until I work myself to the store...But when I have my fares,(one days different from the other)..I need that (staying home) to get my thoughts together,let face People dont understand..Plus it hard ..on a well person ..to see ..what they cant see...In this book I read, they say people place and things can upset you. The weather change ,we the ones who know it effect us,loud sounds,crows,learning new stuff,driving in a car,strange towns,strange places..That whY ..I have learn.. what keeps me feeling like myself ,becouse know one know me like me..I like taking walks,laying on blanket looking in the sky,seeing the birds...or seating on the porch for a min...or looking outside at the snow,reading a good book..I even went back to school( homestudies).. on my confuess days I just stay still..I feel theres nothing worng with it...Its the other person problem...But you know when people dont under stand ...sometime they it makes everything worse..(for me),even if they dont mean too....To put the word agoraphobic on me or who ever... is worng..I sorry ..its worng..Yes I take Medince too..Wellbutrin 150mg 2x a day...it helps...been taking it for 5 years..Beleive me, I have tryed everything... It control smoking and even some people weight...I guess it how its used for...I sorry for taking to long but it up set me ,when the world has to put tittles on stuff,to make it sound worse then it is...Life isnt fair, But I will keep trying to work on myself,so I can feel better,so I can smile with the best...Take one Day at a time...Becouse thats the only way I can do it...Well I am going to go for now I think I said enough...Keep trying ..never give up...I will be thinking of all of you and all of our pain,but remmber you have friends here,we are all alike..Hugggggggggggg


Richard in Tucson February 26
Good Monday Morning to all here; I have missed you all the last 4 or five days. I have been busy with my family, we had our Rodeo Days Break, the kids & wife had a four day week end.
I am tired, my wife took this oppertunity to put me to work painting the inside of our house, I had promissed her I would do it since we moved into our house in 2004. The paint was flat white and showed everything, finger and hand prints and all.
JUANITA/tx: I understand about the cough keeping you from using your BI-PAP, I have bveen having alot of trouble using my CPAP Mask, because of excessive saliva and some coughing, I find if I take Nyquil I sleep better with the CPAP, but the saliva is because of a new med I'm on. Thank you for your concern about me, I feel important and loved.
Barb(Pa): I hope you are having safe driving conditions, I pray for your safe traveling so you getback to your home safely.
Cari K.: I feel so happy Knowing that my family here cares about me, you are so wonderful and I miss you when I am not able to come to the Wall. I will try to pace myself with a few words every other day.
Bernadette: Your welcome, I post as I can, you ladies deserve the best, I only have the gift of trying to be nice, understanding, patient,positive ect. I would love to e-mail with you, please let me know if that is OK, I know e-mail can be exhausting for us, but would appreciate short ones now and then. I am sure if you pace yourself in the new job you will succeed, Library work is much quieter than subing any-day.
I wish I had the time and energy to greet everyone here and help support all your needs, it is my wish that you know that is my intention, but have little brain power left to accomplish it all. Your all in my prayers though.
Yoyo: I know these seem like real hard times, but you are a smart lady and will make it, who knows a beter job might be just around the corner. All you need to do is open the door, I care about you and know in my heart you will be OK, Please feel free to e-mail me.

I must get going I have my Silver sneakers exercise class at 10:45am I must get ready to go to it, and I need breakfast before I leave. Take care, be well, Love Richard in Tucson...


sharon/IL-2-26-07
Good morn....sorry for last night for expressing myself to much. My heart reaches out hurts when others hurt.. I am alittle tirer today,body hurts speally my leg and foot..slept better...well I wish every one a good day.


BJ - In Oklahoma - February 26, 2007
Hello. My name is BJ and I just recently moved to the Tulsa area of Oklahoma. I was diagnosed with myofascial pain syndrome in 1992 and with fibromyalgia in 1996. This was after close to thirty years of being told that I was "crazy" and the pain was all in my head. If I looked good I must feel good. My late husband's job took us to several different states and in our 33 year marriage I found 3 very compassionate doctors who admitted they new very little about these syndromes but they were willing to learn with me and use a trial and error method of medications. For the past eleven years I have been on certain narcotic medications as well as mood stablizers to deal with the debilitating pain in my body, the RLS and the CFS. I am a licensed minister and gospel singer and do a bit of traveling. Since moving here to Oklahoma I have seen only two doctors and they are both "opiaphobic" and I fear that I will be headed back to the wheelchair and the fetal position on my bed as I once was. I used to be on a support group in the Atlanta area and there were three people in that group that took their own lives because they could no longer deal with the pain. It seems that most doctors would prefer you be dead than "addicted" even though clinical studies have proved that less than 1% of people who are in true chronic pain and use COAT for pain relief ever get addicted. Eleven years ago I could not even go to the store or a mall without being in a wheelchair are electric cart. I can hardly stand the thought of having to go back to that kind of life style. Are there any suggestions out there so I won't go "crazy" in Oklahoma?


Bernadette Feb 26
RICHARD by all means, you may email me. I do warn you though that I am better at keeping up with the Wall than I am with my email for some reason. I hope the painting goes well and I am so proud of you for exercising. YOLANDA I am routing for you too. Are you still seeing your therapist? It sounds like you could use the help right now. BJ can you ask that your records from your old physicians be forwarded or have you already? I understand your frustration about the meds. My pain meds help me function, although so far I am hanging in with the ultram (the non narcotic pain reliever docs seem more likely to prescribe) but I hope that when and if the day comes, I can get access to more powerful medications. ALso, my nurse friends recommend a pain clinic for real pain relief. Maybe that is your best shot. SHARON your post was absolutely beautiful. Don't ever feel badly about speaking from the heart. I enjoyed it very much, especially your description of quiet ways to enjoy yourself.

Well guys, today was my first day on the job and I LOVED it. I had to come home and crash afterwards for a couple of hours, but I feel much more relaxed mentally. I SOOO hope that I can keep it up. Take care friends.


Alexandra OH February 26, 2007
ALEXANDRA/OH - CARI K AND RACHEL -HELLO. AND EVERYONE!
YES,I DO TAKE PAIN MEDICATION ONCE IN AWHILE. I TAKE DARVOCET OR VALIUM HOWEVER, I HAVEN'T NEEDED ANY IN AWHILE. I AM ON HEART, BLOOD PRESSURE, ANTIDEPRESSENTS, AND AMBIEN CR AT NIGHT. I BELIEVE WITH ALL MY OTHER AILMENTS--THE PAIN IS SUBDUED BY THE OTHER MEDICINES I TAKE. OF COURSE, WHEN I HAVE A FLARE UP --- I AM ON DARVOCET EVERYDAY.
Take care everyone! It's BRRR cold in Northwestern Ohio.


Sharon IL-2-27-07
Good afternoon everyone, over the last few week its been snowing and today its Beauiful..warm..in the 5os.after thoses days of cold this feels good..This cat came to the door during thoses day and going to have kittens....well shes living with us. Ben a blessing to me,But Last night, with her was ruff, I think shes getting ready to have her kittens...I block a few places and on the back porch i maded a Box cut a hole in it put a flat pillow and a towel inside...hope she used it...well to make a story short I didnt get much sleep...see I feel I dont need my medince all the time(to sleep)..I guess I should of.ahaha, Well just beening silly, it doesnt hurt to lauf, when things borthers you..Makes the day goes by easyer...............BJ. in Oklahoma,I am sorry your having so much trouble....Been scared is not easy,speally in a new place...Fear can eat you up,effect your health big time..Our illness feeds on fear, stress,changes,etc.....it not easy..I really cant tell any thing to fix it,but I can tell you how I made things easy for me...I am in a new place,I had to change doctors,and still working on it..The doctor I have doesnt agree on the way the other doctor treated me..It freak me out,I began to get in the what if mold...playing on the pass on how I used to be,its a scarely thing believe me...But this is all new to alot of doctors,We got to understand this,Like me,I didnt,But its all I had,see I have no INsurance,and this doctor willing to help,so what I am saying for me is excepting was hard, but I am working on it...changes is hard ....put me in my what if's..I had to work on me...I am so scared of drugs..so what I do take the most inportion one thats my wellbutrin and the rest I take only when I need it...not the way i should, and for me it works...Making a new life for myself was scary. not knowing anyone here, but I found a surport group, and started to work on me,I quit the what ifs( well I am trying) and just keep trying and not worry about others,becouse if I do I will put myself in their place and we know what happens from there...its not easy believe me...but for me to stay alive its a must!!!! Some times I just have to do things on my own...The key to my health is keeping mysef as peaceful as I can..I live 1 day at a time ,1 min. at a time some days..if I want something I look around,I try,accept things as is.....and go on...I hope things get better for you..........Bernadette, thank you your very nice..Have a nice day or night. everyone else,I know we all are hurting in one way or another,but remmber to keep coming back,becouse it sure has help me been in this room..... wecome all the new comes... Last words,love yourself,becouse your inportion...to yourself


Sharon IL-2-27-07
Ps...my try not good today..hope you can read it....have a nice day or nite...


Sharon IL-2-27-07
sorry i was saying typing.ahahah alittle confuess today sorry..got lauf it off.


Sharon IL-2-27-07
I was sitting her reading my new book Natures "cures" revealed by Kevin Trudeau....and I got ideal...Bj in Oklahoma...in big towns the have big college, and Doctors there who studies health,and they want give up until they make you as comforable as they can...My mother goes to one too...she saids she likes them...maybe it will help


Rachel in Ohio 2/28/07
hi everybody its rachel. i have a question-does fibro ever go into remission? mine has been non-stop. to everyone with all the advice thank you so much. i can't stay long my back is killing me along with my fibro, we are expecting rain here in ohio and with the weather change i feel like i am dying. RICHARD-DOES THE EXERCISE CLASS HELP WITH THE FIBRO? I WAS JUST WANTING TO KNOW.stay well and blessed be.


Poimae 2/28/2007
Fellow sufferers, This is my first "post," so I know my post will not be as smooth as some others. But it will be real - that I promise. I was diagnosed with Acute Fm about a year ago. I had no idea what it meant. All I knew was that everywhere the Rhumatoid Specialist touched me, it hurt. At the end of the examination, he told me I had "all points alive and well." I asked him what that meant. He replied, "You are living in a realm of pain that I can only observe, but never will be able to really appreciate." Then he told me that FM was primarily a woman's disease. "Then, why do I have it?" I replied. "We can only guess," was his reply. I am a military man - 100% service-connected combat veteran from the Vietnam War. I am on the Agent Orange Registry, since they found my system filled with the poison they used over in Nam. I have severed severe damage to my immunity system - the mylene covering on the right side of my nervous system has degenerated to nothing - leaving an open highway of pain. In 1986, I was struck with paralysis which swept over me like a tidal wave. I was on fire, yet I was a quod and blind. After almost two weeks of watching me go down fast, the doctors identified this onslaught of agony as GBS: Guillean-Barre Syndrome. Over a period of six months, I fought against death. My sight slowly recovered, the quod status was down-graded to a paraplegic status. I was finally released from the hospital (the second of two)in a wheel chair. I was told I had suffered much damage to my nervous system, and the probability of relapses were high. Great news, huh. I have had two relapses since - each lasting about eight months - during which time I fight to regain what use of my body I can. My current status - apart from FM - is tolerable with a load of pain and nerve medicine. Then the FM hit me like a sledge hammer. I thought I knew what pain was. I soon realized that all I had gone through before was only preparation for what I live with in FM. Never have I experienced the pain levels - the intensity, the sharpness, the suddenness, the absolute hell of pain as I do NOW with FM. In the Vietnam War, I suffered many hardships because of the type of missions I was a part of. I have been knifed several times in hand to hand battle. So when I speak of the sharp "stabbing pain" of FM in my hips, ankles, shoulders and ankles, my reference of experience is Nam. The crazy thing I have learned about FM is the way that sudden change of weather - changes in temps of shifts from 30's in the morning to 60's and 70's in the later day - leave me reeling in agaony. I know you understand. I close with this: my respect for any of you with FM is beyond description. I love each of you, though I do not know any of you. I can't tell you what it meant to simply get this off my chest. To know there are other people who understand what I have said - and understand what I haven't said, means everything in the world to me. I love you guys and gals. Sincerely, Poimaie wakodaie11@yahoo.com


Cari K. 2-28-07
Cari K. 2-28-07 TO Poimaie.I was surprized to read your letter.I am so sorry that you are here but please know that we are here for you.You articulate the pain we feel very well.I was diagnosed in 2000 and live on pain meds.I still work a full time job but not for much longer.This FMS is getting the better of me no matter how hard I fight.Plus the chronic fatique,arthritus,restless leg syndrome,raynards syndrome,a sympathectomy in 2000 that has left me unable to sweat on my left side from my armpit up.That may sound good,but it's hell in summer and your whole left side of your face turns beet red and stings because you can't sweat in that side.My arm doen't sweat either.They say I have arthitus on my spine and my feet and hands.All this and I still consider myself lucky to be able to go to work.My brother is a life member of the usmc so I would like to tell you that I am extremely proud of your service to our country.No matter where or when.Please feel free to e-mail me if you would like.


Sharon/2-28-07
hey Rachel....answer to your question..The books I read said it can go into remmission..but sometimes it goes the other way ..I am just like you I still wishing.. All the New comers welcome...