Bernadette June 1
GOod morning ladies. I read somewhere that people with fibro have low seratonin (the feel good chemical that antidepressants help boost) and that sunlight helps. Maybe that is another reason the tanning bed feels good other than the warmth. I would worry about cancer though.My husband had part of his ear removed from malignant melanoma. I get my seratonin from walking my dog, a double whammy since being outdoors and exercise both boost it.

As far as seizures go-I don't have them but parts of my body do twitch and spasm a lot. My husband has pointed out that this makes it hard to sleep with me. Taking neurontin at night has been a life saver.

Bestamor my thoughts are with you and your family and let me convey my thanks to your grandson in law and the rest of the family for making sacrifices to help protect us. We have a lot of military folks living up here in Alaska (it is considered an overseas post)and I see first hand a lot of moms raising their kids alone. They are brave and making sacrifices for their country too.


Blair 6/1/07
Hi I am new to this but not new to Fibromyaligia. Suffering for sixteen years Divorced female in South East Florida. Originally from new york. Looking to meet freinds for support.


Robin NC 6/01/07
Hello everyone. Welcome to all the newbies. Sorry I haven't posted in awhile. Been real busy with work. My days off are consumed in working in the yard and flower beds. I have read many of the posts though. Ray (my husband with FMS) had about a month of real bad days. He is finally getting back to normal (if you can call it that with FMS). He also has body twitches and spasms like you, Bernadette, mentioned you have. I am curious if any of you were on cholesterol medication before you were diagnoised with FMS. I know it can cause muscle damage and Ray was on it. When he started having problems thay took him off of it. But the doctors have since put him back on it. Just wondering if there is any relation. Well gotta go for now. Gentle group hugs to all.


Libby/TX 6.1.07
Hello to all on the wall....

Welcome newbies to the wall...no shame here...but we got game! Just so you know ... not all get a chance to post everyday. We all know too well that everyday is not the same with Fm...and somedays its just about getting done just what needs to be done.NOTE: If you post a concern and you don't see immediate responses...don't give up. There are days that most of us read, but our brains are in a fog and can't share...so wait...you will usually see a later post.

Blair welcome to the wall!

Well.. I'm fading fast tonight...so I must shut down all this excitement.

Warm fuzzies to all...and to all a good night! Libby


Bernadette June 1
LIBBY good points-also if someone doesn't get a response-say I really need to hear from you guys or my feelings are hurt or whatever because there are so many of us with so little energy and so much to say that it is hard sometimes to respond and frankly I forget really fast unless it is really pertinent to me personally, as I'm sure it is with most people. ROBIN so nice to see you again. I am sorry to hear that your hubby just went through a flare. No, I did not have a cholesterol problem. The best dietary changes I have made are to take a magnesium supplement (reduces spasms) B vitamins (energy) multi with iron (energy) and fish oil and calcium.I really do better on the days that I take my vitamins, avoid sugar, eat protein and veggies and drink plenty of water. It has been my experience that diet does have an impact on fibro. I just think that it is so neat that you guys are always searching for more solutions to your husband's fibro puzzle and I'm convinced that you will really improve his health. Have you figured out what caused this latest flare? Was he stressing emotionally (potentially HUGE impact) or overdoing or even underdoing it? Those factors are usually what I can blame for a flare.


cooperwayne_589@msn.com
JUANITA/TX doog morning everyone here on the wall. its almost 5 am here in AUSTIN and i just wanted to say hello to all my friends here on the WALL. HELLO BLAIR, how are you? welcome, i havent posted much lately due to carpell tunnel surgery on my left hand 3 weeks ao and am having it done on my right hand this coming MONDAY. so posting might be hard to do for a while. had a flare up a couple of days ago and couldn't do anything. my husband is a real outside kind of guy and wants me around even if i can't do much other than watch him work. but it wears me out to be outside so much. he says i am being lazy sometimes but we all know there is only so much we can do other than just lay on the couch and rest. YEAH like thats gonna get to happen. it has been real muggy here so it makes it hard to stay out side for very long. i just realized i wrote doog instead of good, please forgive me for my mistake. i seem to do that sometimes. dont know if that comes under fibro fog or not. lol well i better go and fix my husbands breakfast and lunch before i get him up. HAVE A GREAT WEEKEND AND GENTLE HUGGS ALL AROUND.JUANITA


Richard in Tucson June 02
Hi Good Saturday morning: I just thought I would make a short post to let you all know I am still alive. I have been overdoing everyday for the past two weeks, and I am exhausted and depressed.
"Welcome to all the Newbies" I hope to be able to chat with you in the near future after I come back from my temporary worn out state of mind. I hope everyone has a great weekend and gentle hugs to all from Richard in Tucson...


Debbie, TX 6/03/07
Hi Friends, Welcome Blair and to any other newbies I've forgotten to mention...I'm a newbie also...I've just been able to read Ya'lls posts lately. There sure are alot of good folks on this forum, and I'm learning alot.

Weird thing...I was cutting up some stew meat and it took every bit of energy that I had. I thought, "Wow..this meat is sure tough, and I still have to peel and chop the carrots and potatoes." I am serious...the meat whipped me bad, and turns out, it wasn't tough at all.

So, the next morning, I was gonna have coffee in my favorite Grandma mug, and my hand was trembling as if I was lifting a concrete block. So, I used a dainty china cup, sat down to read the Wall and decided to post. In doing so, I tipped over the light-weight cup...Yep, right onto the keyboard. End of story...end of a hopeful day...I really let that get to me. Even drying it off didn't help. Anyway, long story short, now I have a new "spill resistant" keyboard.

Someone mentioned sulfate and PABA...and I'm allergic to sulfa drugs and don't know what PABA is (yet). Try as I might, after all that I've read, I still can't figure out if sulfate, sulfites and sulfa drugs are related. Some kind of sulfate is in just about everything I eat. This is what's even more puzzling, it's even in my Sparklets water. I drink lots of water, use the bathroom all day, and still seem to retain alot! Any advice would be appreciated, and I will continue to read the labels of everything!

I hope we all have a restful night...no pain, nightmares, or sweats, chills, bathroom trips...just sweet sleep!




ettePau
5/3/07 My Doctor thinks I have FM but I am not sure.
When he poked me he poked my hard and I said it hurt but I am not sure if that was a good enough test.
I have bursitis in my hip, arthritis in my knee and pain below my knee, pains in my wrists some due to usage and sometimes no reason at all. I have had mono during my 1st of 2 pregnancies. I also have severe sleep apnea and have a CPAP which I am using, although I still have insomnia. I have high blood pressure and take pills for that.
Question--- How can I be sure he is right? EttePau


LIBBY/tx
Hello to all...

DEBBIE/TX - Hello...I was the one that posted about sulfate/paba that is in the soaps we use. I can't use any soap product on my body containg either one. I use a body wash from Walmart for sensitive skin...that leaves out all of the irritants. It's called Nightingale. I'm also allergic to sulfate! I get really bad yeast infections from it.

ETTAPAU - I have had FM for 25 plus years and I'm one that had EBV VIRUS...(chronic)also before getting my DX for FM. I had the virus throughout my lymph system and not just mono. It took me a long time to start developing antibodies to this virus. Next...all the full blown symptoms of FM. I do think this virus was related to my condition now...I was told this EBV is considered one that they link to FM.

I hope all had a good weekend. We had a break from the rain for a few days...but here it is again. I'm not complaining about the rain we need...but the mosquitos are real bad here in Texas. AND...I don't like the headaches that I get from the barametric pressure...I do everytime it rains.

Well...must close...Happy Monday to all!!


Janice (6/4/07)
Hello to all.
Happy to be joining "the Wall" and hope I can help others as well as getting support for myself.
I was diagnosed with trama indused FM 5 yrs. ago.
Most days are good and productive........but the bad days are awful.
I cannot take RX pain meds or many other RX meds so I have to resort to alternative treatments.
What seems to help me most is therapudic massage, which I receive every other week.
This keeps the more severe pain under control...provided I behave myself and don't over-do....something I have a difficult time remembering.
On the days when I feel good, I tend to do too much and then have a bad day.
The hardest part of this condition for me is not feeling the same every day.
Along with the FM, I have acid reflux, IBS, diverticulitis, and osteo-arthritis.
From the minimal reading I've done on FM, I understand that some of these other conditions are common.
Having never ventured into forums or any other support groups, I would love to have feedback as to what more I can expect to experience on down the road.
I am a very active 55 yr. old who walks 2-5 miles a day or rides a bike 8-10 miles daily; does yoga weekly; works out with weights to strengthen my muscles 3-4 times a week; and plays in my flower gardens 6 months out of the year.
I stopped working full-time in 2001 when my mother became very ill so I now only work part-time....on days when I feel good.
That has helped me a lot, knowing I am not stressed out by my job (I use to manage a law office).
I am fortunate in that I have a very understanding husband who makes no demands on me and we are financially ok.
Stress seems to have the most negative affects on me, causing my pain to increase dramatically.

Thanks to all for sharing and letting me verbalize.
I hope I can return the favor.
May you each have more good days than bad.


bestamor. 06/05/07
bestamor 06/05/07. Hello to everyone on this wall. I am a newbie but welcome to the newbies. I hope everyone is having a good day. I myself like to stay active. We have a big veggie garden which my husband and I work at. I can not handle the big tiller but can handle a hoe. But some days that does not happen. Yesterday I went to my fm doctor. He said the pain in my groin area was from the fm. He took xrays to make sure it was not my hips joints. Does anyone have that type of discomfort? And how do you help it? I really wish I did not have to work outside the home but that is not possible. Social security does not go very far. He the doctor wants me to try Ultram for pain. Does that work for anyone? I really like my new job. I am watering the plants in the garden center at wal mart. with all the plants they have that is a full time job. I just get done with one section and the other one needs water. gentle hugs to you all. Must close and see if I can get something done today.


Donna 6/5/07
Hello everyone. I haven't been on for a few days. I have been too exhausted and haven't been feeling too good. I am thinking that it is the weather that is causing the pain and the headaches. I shouldn't be getting the migraines since I take Topimax everyday. I take the Maxalt-MLT under the tongue when they start and that works great but I am really exhausted. 5 Migrianes in 3 weeks, I am going to call the doctor and increase the Topimax. It is interesting reading everyones posting on the wall and I am sure that the newbies like Janice (welcome) will find this a great place as I did, Janice keep up the reading and exercising. Libby - I agree the headaches are weather related. Debbie - I too am alergic to Sulfa and many other things. Bestamor - I did not find the Ultram any use to me but I also didn't get relief from Neurotin. This is the first time that I have read anything about the groin pain from anyone, I experience this as well but I also have started having what feels like staples in the area of the vulva (sorry but that is the only way I know how to explain it)Richard - I am sorry that you are feeling depressed, we know how that can be, I emailed someone personally at the wall this a.m. and I told them I was feeling down and usually I am the clown but not feeling that way lately, we need to remember that not everyday is like today or yesterday and that maybe tomorrow will be better. Love to all my FM friends.


Bernadette June 5
BESTAMOR ultram does help me to function and it has been a lifesaver for me. I hope that it does the same for you. ETTEPAU there is no specific test that proves we have fibromyalgia. There is the tender point exam, but like you said, of course it hurts when they poke us! Usually docs rule out other things with lab work, like rheumatoid arthritis and lupus, and if everything comes back negative, they diagnose us with fibromyalgia. If you have pain on both sides of your body that is worse in the morning, that very well might be fibro. My first symptom was pain in my wrists too.

JANICE welcome! It is nice to have someone so active on the Wall. I aspire to be as active as you are. I currently do yoga everyday and walk a mile or so 3-4 times a week. I take care of the house and an 8 year old son and work part time shelving books at the library and do volunteer work with my son's school and sports. I also garden. There are days when I carry this load just fine, and other days that I do nothing and the work piles up. SOmetimes I feel on top of the world and like I could add a lot more -I'd love to pursue a master's degree. But I am afraid to add more because I can barely catch up from the bad days as it is. My husband works very long hours and I don't have any family near by, so I wish that I had more support on the bad days. All I can do is park my kid in front of the TV and let the housework pile up while I lay in bed. I just have to remember that this too shall pass.


Robin NC 6/5/07
Hello everyone. Just wanted to let you all know that Ray spent a month in a huge flare. He has never had one last this long. He is now feeling better than he has ever felt. He can't believe it. He says he feels almost normal. Wow, it is so good to see him this way. RICHARD, hopefully this is what you are going through right now, if so there is light at the end of the tunnel. Sure miss reading your posts. I guess, because your were such an inspiration to everyone. Just to let you know, everyone here is for you too. Hope the sun is shining brightly on everyone else. BERNADETTE thanks for responding to my question, I can always count on you for info. Gotta go, Gentle Group Hugs to All.


Jenna K 06/07/2007
Hello, I am was just looking for a good support group to join.I just found out
that I have fibromyalgia 10 days ago. I have never been sick before.
I hope I did this right! Is it ok, If I hang around and try to find out more
info? Sincerely, Jenna K


Cheryl 6/5/07
Cheryl PA

Hello everyone,

Lots of posts I read. Busy here or just tired when on comp for other things to get to the Wall. Like hearing where everyone is at. Like someone said..it's understood here. Common ground of understanding otherwise others think it's in yr head.

I am as well as can be. Doing gardening and keeping up with some exercise. It helps. Changing focus and moving the body(when it can be moved). Do what's possible till next flare-up.

Someone mentioned sulfa drugs. They give me stomach ache so I don't take them. My doc knows.

My days with my body are what's up and then what do I need to do. I am a strong believer that stress is a factor and try to watch that to keep boundaries concerning things that would be stressful and yet know sometimes it comes for total control of stress is not possible.

I was talking to a friend at my bank who has FMS and she is in pain most of the time. Drugs don't work she says. Exercise doesn't work. She admits that stress in her job is a big factor yet can't leave due to bills. As we talked it's realized the lifestyle created in both mates working is hard to undo so she keeps working. Yet she's in pain and stress. What big decisions the FMS can bring like a lifestyle change. Yet if it brings relief to the body it seems worth it. I am not able to work without going backwards to all the extra pain I had then. In my reading lately on chronic pain it was noted that the nerves are more irritated easily in FMS and stress adds more irritation. All makes sense-reminds of the book mentioned here on the Wall called "The Big Whammy". I believe there is truth to it. Changing one's lifestyle is change which can cause stress so it calls for time to think it out and weigh the change.

/Tired now. We are important...to take care of...Cheryl


Libby/TX
wELCOME TO THE NEWBIES.....

Hi Jenna k- Yes ..you are welcome here and we are so sorry you had to join our group ...under the circumstances. Your posting looks fine. I remember in the beginning....if i understood how to post...too many instructions when you don't feel well.

Everyone...be careful if you get fluid on your ears. I am going through this right now and it is not fun. Apparently...the fluid can settle behind the our ears from the allergies and the FM swelling in the throat. The tubes shut off and down hill we go. I have nearly passed out three times. I'm on motion sickness pills, antibiotics, powerful antihistamines. I am home bound....because the one pill causes dizziness and the other takes it away. This takes a while to get over.

Well..I had my limit on the computer...it makes me dizzy.Everyone take care and have a good day.Libby


Eugenia-TX. 6/7/


Eugenia-TX.
Eugenia-TX.6/7 Hi,to everyone on the wall. I just finished reading the latest posts. I have not posted for a while.I want to say to all the friends,and newbies,this wonderful place has been such a great help to me.I have exchanged personal e-mails with several of you. I am a people person and since I found all of you I never feel lonely,like I did before because all of you are understanding and caring and very informative.Thanks to each of you. I am probably repeating myself about my health issues,if I am I am sorry. I have fibro,high blood pressure,thyroid desease,deteriational disc.desease,and a torn rotor cuff in my right shoulder,that is not fixable.The main reason I wanted to tell all of the above is not a feel sorry for me,but to let any of you that have same problems if you have qustions,maybe I will be able to answer from my experiences dealing with same things. I have some great Drs. I think that is just one of my greatest blessings. I will hush for now and I hope each of you are having a good day in everyway. Thanks to all from TX.


bestamor 06/07/07
bestamor 06/07/07. Jenna I know how it feels just getting a dx of fm. I think the worst part of it was the tests before the dx. Hope this wall can help you. They the doctors I think took every tests in the books. I went thru thinking I had Lupus, lymes disease, etc. When the doctor dx it as fm I was relieved that this thing finally had a name. It was ok this is what it is and this is what I have to learn to deal with. Must close and get my tired body to bed and sleep thanks to seraquel. soft hugs to you all.


Debbie, TX 6/09/07
Hi Friends, I hope each of you had a good day in some way. This FM stuff is crap...I mean, we're not supposed to "exert" ourselves. Well, on the "good days", I try to catch up doing chores that I wasn't able to do days before. The "normal" household chores are getting to be more than I can handle...thus, too much exertion again, equals more down time. Heaven help me, if the house is messed up more than usual.

Solution....I bought a small wagon (at a yard sale), and I'm loading it with the "whatever" that needs to go back to different rooms. That saves me a bunch of trips walking back and forth! I'm not lazy...I just hurt really bad...and my pain is making me "smarter". lol...

I am finding ways to laugh (even if it's at myself), and that has helped too.

I admire those of you that can still work, exercise (alot), garden & such. I too have other health problems, and I miss doing alot of things. But, now I focus more on what I can still do, and I do those things better now, than back when I took everything for granted.

I truly feel everyone's pain and/or sorrow. I also feel everyone's joy, courage and hope. I only wish that I could help each of you, as Ya'll are helping me.

Take care....


Libby/TX 6.10.07
HELLO TO ALL THE FM KINGS AND QUEENS... Well..even if our bodies don't feel important and special..at least we can tell our minds that we are V.I.P. HEY....we can be FM CELEBRITIES! Debbie/TX - Girl...I agree this is just a bunch of crap and another thing...I sit here in the house knowing all the symptoms and most of all the fatique that limits us at times and the government can't find a reason why FM CELEBRITIES can't get their benefits easier. They should just live with us for a month. I do contract work for the medical here in our home town ( deliveries; pharmacy, sugical and lab) and it's getting tougher for me. I'm really getting scared if I can no longer do this..WHAT IS NEXT AND WHO WILL EMPLOY ME. At least...now I can come home in the day when I'm not busy and rest if needed. Just like right now...I have been homebound for a week with my inner ear infection, paying someone else not myself. It is really getting tougher, the older I get with this Fm.

Hey I really hope everyone else is having better times right now! OH.. I would like to say..my heart goes out to the Kansas City, MO folks that had to experience the kidnapping. I have gone to bed angry/nightmares with the alleged person. If he is the guilty one...my only hope for this guy is to be a GOD fearing man.

To all FMER's out there...please be careful and pay attention to what is around you. As we all know our reflexes are not fast and I don't know if we could fight off anyone coming for us. Well...we could fight but we would tire faster and not win the fight. BE CAREFUL!! One morning about 6:00 am on a delivery I was suspicious of a man and I got into my van and left.

I really hope all has a good Sunday with your families. Warm fizzies to all!


Cari K. 6-10-07
Cari K. 6-10-07 Hi everyone.It's been awhile since I last posted.I've lost my job of 15 yrs. and have been so busy trying to find another one that I can do.So far,no luck.I think if it weren't for the arthritus in my spine,it would be alot easier.I just can't stand up for eight hours any more,so that limits my search.And I too wanted to welcome Jenna to the Wall.You have come to a great place where there are careing people.Also ,I was worried about Richard.I know he has been overdoing it lately and is paying the price,as we all do.Slow down,Richard,and drop us a line,ok?Anyway,I just wanted to mainly check in and to welcome all the new people.Today,I'm going to try to get my house in order.Gentle hugs,Cari K.


ms bean jun 10
anyone using cymbalta for pain? mine is localized to the hip area right now. pain has been much worse last two weeks, can't figure why. cymbalta had worked in the past but this time tramadol had stopped working and when i went back on the cymbalta the symptoms have not eased' also having unbearable fatigue'. my doasage os 10mg is that strong enough? sunday jun 10 ms bean.


June 10, 2007
I am so sorry that again it has taken me forever to trim the wall. It must have been a nightmare for some of you with slower service. I will try really hard not to let it get so big again.

Welcome to all the newbies. Hope I get to meet you all in the near future. To the oldies I send my hugs and hopes for better days. Of course those are for old and new.

I'm still having a devil of a time with my heart problems. It's been one year now since surgery and I feel a bit worse every day. New doctor so my hopes are up that he is going to 'fix' me. Might mean more surgery but I cannot live like this...no energy and breathing is hard some days. Will let you know what he says on Thurs.

Reminder to newbies, you do not have to start a new sentence each time, only if you want to start on a new line. The directions can be a bit confusing at times.

Love you all.......Bonnie

P.S. Check the archives for the earlier posts if you haven't read them all before June 1.

P.S.2 Tomorrow is my 50th wedding anniversary. How can that be? I know I'm not that old!! LOL


JUANITA JUNE 11TH
JUANITA/TX good morning to all my friends here on the WALL . hope all had a great weekend. mine was just fine. i am still trying to recouperate from my carpel tunnel release surgery tha i had on my left hand 4 weeks ago and the one i had on my right hand last monday. the right hand was more painful that the left. i need some input please, i got my letter telling me that my DISABILITY hearing is JULY 23 and i am wanting some info on what to do or say that can help me and if anyone has been turned down after their hearing and why. any advise will be most helpful and apprecated. welcome to all the newbies here and hope you enjoy the support here that i have. i have only been on here for about 6 months but the support i have received is 100 times more that i receive at home from family who just doesn't understand what we go thru. i have made some wonderful friends and and know you will too. well i better go for now. GENTLE HUGGS FOR EVERYONE.JUANITA


Bernadette June 11
Cari K I really feel for you and the stress you must be going through in your job search. I have tried a few different jobs before finding one that I can handle. Strangely enough, the worst job for me was an office job because it is bad for me to stay in one place. I only lasted a week on that one. The best jobs for me are ones where I can alternate walking around and sitting down. On my breaks I go somewhere quiet where I can be alone and do my stretches and eat protein.It also has to be low stress or I go into a flare. Substitute teaching worked for awhile but the noise and chaos took its toll. I work part time in a library right now shelving books and it is still all I can handle but I feel very blessed. I don't think I could support myself though. There is no way I think I could work full time. I could not have the strength to do anything else, like take care of my son or house. Anyway, try and brainstorm some jobs where you can sit for awhile and then get up and move around for awhile. Keep us posted.


Libby/TX 6.11.07
Hello everyone... Hope that you all had a good Monday!

Juanita - Are you filing for your disability for FM...or do you have other health problems? The reason I'm asking is for myself. I really don't know anyone personally in my life that has filed for their disability for Fm. Do you know of anyone else...and how hard is it to get just for FM? I do wish you the best in July. I really don't have any input on how and what to say. My sister has been on SSI/assistance for couple of years for slight austism...and she still had to go through the whole ropes. She was actually turned down for short time...only to get a back pay.

Not much else to say tonight...fuzzies to all!


Libby/TX 6.11.07
Hello everyone... Hope that you all had a good Monday!

Juanita - Are you filing for your disability for FM...or do you have other health problems? The reason I'm asking is for myself. I really don't know anyone personally in my life that has filed for their disability for Fm. Do you know of anyone else...and how hard is it to get just for FM? I do wish you the best in July. I really don't have any input on how and what to say. My sister has been on SSI/assistance for couple of years for slight austism...and she still had to go through the whole ropes. She was actually turned down for short time...only to get a back pay.

Not much else to say tonight...fuzzies to all!


JUANITA JUNE 12
JUANITA/TX, good tuesday morning everyone. its 5:40 here in AUSTIN and all i want to do is go back to bed and sleep forever. just so tired. my husband just left for work and wont be back untill 5:30 pm. his hours changed at work so i now get up at 4:00 am to fix his lunch and breakfast before he gets up at 5. i then cant go back to sleep because i am one who once awake stays awake.LIBBY, to answer your question, i have more than FIBRO. i first filed for my feet since i have bone spurs on both heels and have been told that surgery would only make it alot worse. then i was diaignosed with FIBRO after being told for almost 20 years that nothing was wrong. i also have OSTEOARTHITIS, HIGH BLOOD PRESSURE, SLEEP APNEA, AND OF COUSE THE CARPEL TUNNEL that i am recovering from now.and it doesnt help that i am overwight. i had surgery for that almost 10 years ago but it didnt help for long. i dont smoke or drink but i do love to eat.lol. i have to go to my dr today and get more samples of my thyroid meds and go and have some blood drawn and take movies back and then go and have my stitches out today. so i have alot on my plate today and dont want to do any of it.RICHARD, WE MISS YOU AND LOVE AND NEED YOU here on the wall. we are here for YOU.WELL i better go for now and get this old body moving. GENTLE HUGGS TO EVERYONE. JUANITA


virginia
hello it is virginia i have not been on here much but i have fibro but now my hand's have been going numb and tingling at nite mostly is that something with the fibro? it is in mostly my right hand and when the numbing feeling is gone my hand hurts so bad i cannot even pick up a gallon of milk or my gallon of tea some one please give me an answer thanks virginia email solardaddy@aol.com


BLTeam June 12
NOTE:

On Tuesday and Wednesday June 19th and 20th, 2007, between the hours of 2 and 6 am EST this site may be down because of maintenance our server has to do.

If you have trouble connecting just wait a while and everything should be back up and working. Thanks


Cheryl PA 6/12/07
Hi

Cheryl PA

I am dealing with a lot of neck pain the last few days. Went to chiro and usually helps. Still have it. Hard to turn my head. Waiting for this to pass. I get into what caused this? We have had one storm after another. After the first I thought I was done with pain down my back on Sunday. It seems to be alive and move around so now it's in my neck. Taken everything I know and nothing helping. Time I guess. Soon to bed. Take care, Cheryl


Beth in Ohio 061307
Hi, all. It's been awhile since I posted last. Lots of ups and downs. We are very busy at work, so I am working 4 days a week, with most Wednesdays off. I need a break every couple of days or my body protests more than usual. I'm considered part-time anyway, so it works out well. My shoulders and wrists have been acting up. I take prednisone when it gets really bad. For the little flare-ups I use Bengay or Icy-Hot patches. They feel wonderful and help me sleep at night. I can also use them at work because it is a dirty noisy wood shop where we all wear shorts and t-shirts and no one cares if you smell like Bengay, because they can't smell you anyway with all the paint and wood smells.

My doctor is still working on getting my blood thinners balanced out. He told me in November it would only take a couple of months, and then I would have to have it checked only every month or two. I still have to go in every two weeks and have blood drawn because the readings are different every time; either too high or too low. I'm ignoring him this week and will call next week. I have to go to his office for the test. It takes 15 minutes to drive there, sit and wait, 15 seconds for them to draw the blood, then 15 minutes back home. They are working on a monitor similar to the ones diabetics use, but it isn't very accurate yet, and it will probably be a long time before they can be used at home.

I am still going to Curves and have lost 32 pounds. I have hit a plateau, so I joined my cities Senior Citizens Center, and have started line dancing on Monday nights. It gives me a little extra boost and I have it helps me lose this last 25 pounds. It's a beautiful day out so I'm and going to get going. I will have to wrap my wrist again so I can get through my shopping. I wish you all pain-free days.


ALICE
Hi. Just wanted to let the lady applying for disability. I have been on disability for years. It was called Chronic Fatigue Syndrome then. My lawyer told me to say I was so fatigued I couldn't function. Now I have major pain and every ailment mentioned. I just had knee replacement. In November I had a heart attack. I'd be doing well except for the pain. I take every pill allowed. Just FYI. If you have questions, please email me. Alice


Libby/TX 6.13.07
Hello Ya'll.. Yep.... this is coming to you from Texas, and we really do talk this way.LOL!!

Well I would like to tell each of you that has had arm, neck,shoulder and hand and wrist numbing.MY ADVICE: change the elevation and postion of your pillows.you are sleeping in a position that is getting something inflammed. Depending on my pain in my neck, shoulders or arms...I have to change my positions and elevation. If I sleep on my side I sleep on a dense pillow with another soft one on top to keep my shoulder from curling, but keeping it to just touch the bed. I have just gone through 8mths of left shoulder problems with therapy from straining the bicep that moved into tendonitis in the shoulder. Just now able to sleep a little on this side. Hope this helps. The numbing and tingling are probably coming from your neck and back shoulder when they are inflammed and painful. When we have one pain it escalates into other areas.

I 'll close and go get some work done now.Fuzzies to all!


Dee ~~~ Thursday June 14, 2007
Happy 50th Anniversary Bonnie and hubby!!!

Thank you Bonnie for trimming the Wall. I know you do for us when you don't feel like doing for yourself. Maybe this new doc will be your answer for your heart condition. You know you are always in my prayers.

Welcome to all the newbies. I am going to try something new today. I'm taking my 8 year old grand-daughter to swim lessons. Oh how many years has it been since I last sat on those bleechers (ouch)? It's only for an hour and then her and I will go find her grandpa and let him buy us lunch.

Just a heads up on one of my medicines.....Ambien CR (for sleep) has been what I have used for a very long time now. I developed an allergic reaction to it which had manifested into "Sleep Seizures". I thought I was once again losing my mind and really didn't want to discuss it with anyone. I let it go on for months before I just couldn't take it anymore. They were paralizing and terrifying and very vivid. I thought they were night terrors. It took one visit with my doc and I haven't had one since. He simply changed my meds. Don't be like me and feel somehow ashamed of whats happening to you. In fact, it's was someone on here that made me aware of seizures and that got me to thinking.....thank you.

Well, must get ready for my grandmotherly duties. I'm gonna enjoy myself .... ya'll do the same.


Bonnie June 14
Thanks Dee, you are such a sweetheart to mention our 50th. We had a good day after I got over my usual morning sinking spells and breathing problems. About 4:30 in the afternoon we went to the casino and everything I touched turned to gold. LOL Won enough to get the new windows I've been wanting!

Have an appt. today with the heart doc. He wants my daughter to come too, the one who is a CCRN. Probably thinks she will tell him more that I do. LOL

It's getting very hot today and my RA is telling me the humidity must be high. Hands are beginning to swell and become very sore again. I went off prednisone June 1st. Do not want to start taking it again. See the Rheumy the end of the month. My big outings LOL Go to the doctor or lab. Big deal, huh!!

Richard--Where are you? Missing your posts and hope you are doing all right. I see a lot of others not posting, hope it's because you are all busy.
Welcome to all the new people who have found us.
Hope everyone is enjoying summer. Hubby finally got the deck cleaned and treated for another year. Put the deck furniture out so we enjoy coffee outside every morning.
Much love and hugs to all.


4dogspal
I have been blogging about my little dog Bama. She inspired me to continue working, despite my fibromyalgia, because of her determination after a devastating accident. If you are interested, you can read Bama's story at www.bamasmiracle.blogspot.com . Perhaps she will also inspire you.


Libby/TX 6.15.07
Hello Wall.... Well..not so good here in Texas right now. Forgive me...but I'm still in shock! I have some bad news...after eleven years with one of my clients...they had to let me go. I don't remember if any one here on the wall remembers that I have a small delivery service. This account I speak of was really good money. I will need to replace this account to be able to still provide service for the other accounts. This was about half of my income and this also helped pay for the contractors that help me.

I was just thinking how odd it is that so many of us on this wall has more bad news lately than good! What is going on with us FMer's. I pray our lives will change soon to give all a relief. I have think about the stress factor with this and I will fight it hard. I can't go down right now...especially going through the inner ear infection last week. I feel really good right now with all of the steriods and antibiotics left in my system. I hope it lasts awhile.

Hey...have a good weekend everyone and enjoy your families. Love right at you and catch the warm fuzzies that I'm sending to all! Libby


Kathy
Hi, I'm trying to find a good Pain Mgmnt doctor in the Charlotte, NC area. Thank you for you time.


Richard in Tucson 6/15/07
Happy 50th anniversary Bonnie and Hubby.
It has been a while since I posted, my lifestyle has been such that I am too busy and too tired to post here at the wall. I miss you all so much talk to you soon Love Richard in Tucson....


Richard in Tucson 6/15/07
Happy 50th anniversary Bonnie and Hubby.
It has been a while since I posted, my lifestyle has been such that I am too busy and too tired to post here at the wall. I miss you all so much talk to you soon Love Richard in Tucson....


Anne Hillebrand 06-15-08
New MySpace Group. www.groups.MySpace.FibroFix.com/index Am posting Symptoms Tips on the Topics and Forum part. All are welcome. Annie www.FibroFix.com


Beth in Ohio 061707
Happy summer everyone. The hot dry weather here is good for my bones. I can feel the heat penetrating and it feels really good. I have to stay out of the sun, though, because of all the meds I take. Wednesday morning I am heading out by myself to Clay's Park here in Ohio for the Christian Alive Festival. It's been going on here for 20 years, and it is so close to us, but I've never gone. After my illness last fall I told myself that I'm going to do everything I'm able to do and have wanted to do. It lasts for 4 days, but I can only afford one. It costs $40 each day just to get in the gate. People come from all over the country and camp out for all four days. I'm really excited about going.

We are having a quiet Father's Day here. Hubby is watching golf. I bought lunch. My pain has been at a minimum the last couple of weeks, so I just keep my fingers crossed when I get up every day that I don't do anything stupid to cause a flare-up.


Amber in S.C. June 18,2007
Hi everyone! It has been so busy at our house the past 2 weeks. I have been keeping up with the posts on the wall and reading them,but haven't been able to post anything until now. To RICHARD....i am so sorry to hear that you won't be able to post much on the wall anymore...everyone here loves to hear from you and we will dearly miss your posts. I wish you well and will continue to pray for you. I have read posts of a 50th anniversary....HAPPY 50TH!!!!!!!!!!!!!! Our anniversary will be on June 20th (this Wednesday!) and we will be celebrating 15 years of marriage. Since our anniversary is in the middle of this week...we are going out of town to the beach this weekend. We haven't been able financially to spend an anniversary weekend by ourselves in 5 years..so this will be a treat! My sister agreed to keep our 4 kids for us while we go on our anniversary weekend and i am so excited. Trying to get someone (even family) to watch 4 kids for even a day is difficult and i am so appreciative of my sister. She has 3 of her own..so they can play with their cousins and won't be bored.I did tell my sister that one day when her and her husband want a weekend together..i would watch her kids for her so that she can also have a fun weekend away from the kids as appreciation for watching my kids. Hopefully i won't have the pain i had from last week this weekend. I think i just tried to do too much last week from volunteering to help with my churches vacation bible school. I loved every minute of it, but when i got home each night i would have a lot of pain. I helped with the games part of vacation bible school...which took a lot of energy and moving. I think next year i'll help with registration so that i'll be able to sit down as i need to. Anyway, i wish everyone well this week. I'll probobly post again after i get back from our anniversary weekend. Have a great week everyone!!!!!!!!


Lynn in Mo 6/18/07 (I think)
Hi! Been a long while since last posting. Left my employment and went out to San Francisco to care for a dear friend w/ brain tumor. It is all over and I am back. Best thing I have ever done.

Since then I have applied for SSDI and been approved. This was for Fibro only. There is hope for all. I have no idea why i was accepted. Got it in 2 months w/o denial. I guess it just depends on who get. Thur my travels I found out that if my bedroom is on the east side and the shades are up...I wake up earlier and feel better. The sunshine waking me up seems to help me. I have no idea whether or not it will help you. just reporting.

My humor will return and I will be mucho lighter in the next couple ofpostings...just don't feel it right now. hope all are well!


bestamor 06/18/07
bestamor 06/18/07. Hello to all. My husband and I just got done planting some more peppers, cucumbers, tomatoes and another trees. He did most of the digging that hurts my arms badly. We have a big garden. we are planning to sell most of it at a farmers market. Maybe help with the money situation. I do not know how much longer I can work at this temp job. I feel so bad after a day at work. arms, hips, and ribs hurt bad. It is so hard to make ends met with just social security. with the co pay on my meds. glad to read all your posts. nice thoughts to you and yours.


bex june 12 07
BEX JUNE 18 Well i torn my left rotator cuff something bad. it was my first summer with plans!!! i refuse to give, i am going to yosemite,lake Tahoe, my little favorite spots. Until then it can wait. i have a great pain doc who never fails to cover the pains. we stared a new program and it works along with a long term medication we added a 30mg qiuck reacting morphine tablet giving me the ability to get up and slowly ease into my day "quickly". what a great combo after 12 yrs of trial we found the key.i am able to live, i feel "normal" for once. i cry with gratitude that something works, in the last 3 yrs i have been with this dr. he is amazing! he does not play the minimizing game he medicates to you pain and illness. he has change everything in my life. there is life wallers. don't give up! i believe all of you will find that dr., and doors!!!!


Bernadette June 19
Lynn it is great to have you back! Thanks for your words of hope and thanks to everyone else who posts on here.

Greetings to everyone from the land of the midnight sun, Alaska. It's true, right now the sun is only going down for three hours or so and even then it looks like twilight, not dark. Everyone up here just goes, goes, goes in summer time and it is not unusual to see people in their yards or at the grocery store with their kids in the middle of the night! But don't worry, we all pay for it in winter. My challenge is to keep moving enough in winter and not get depressed and hibernate, and to make sure I rest enough when it is crazy light like this and no one wants to stop!

My best wishes to everyone out there learning to live well with this illness and words of encouragement to those in despair. This too shall pass. Thanks to everyone.


Donna 6/19/07
Hello everyone, I was going to wish each of you your very own personal anniversaries but now I can't remember who has celebrated and who is getting ready too, Happy Anniversaries anyway. I wanted to let Virginia know that I agree with Libby...I also have tingling in my hands and feet and I need to change the position that I am in, if I am sitting I get up, If I am in bed I reposition myself and I have various size pillows to put either under or between my arms and legs. Sometimes you just have to experiment. I have been having terrible pains in my chest that come and go and I keep thinking that I am going to have a heartattack but since it has been happening for months I guess I am going to live forever. I did read that FM can also cause this with the muscles in the chest area, so just one more thing for everyone to look forward to. Lynn in MO ... it is great that you got your disability, that gives alot of other folks a ray of hope. I am loving the great warm weather that we are having here in Vermont right now but the high humidity is getting to me and my doctor warned me that it would but I was hoping she was wrong. I love to just lay in the sun (regardless of how bad that is for the skin) it feels good in my muscles and I like being tanned. I hate winter and with any luck at all I will be out of New England in about 5 years. Well I better get some work done, Love to all of my hurting friends, warm soft hugs to you.


Cheryl 6/20/07
Cheryl PA

Hi to all,

Thanks Libby TX about the pillows and tingling talk. My neck pain that truly was very painful just flew out like it flew in yet not without ravaging me. A chair massage,chiro and a body massage along with pills kept me going. My arm tingling to fingers the same. I use a pillow prescribe by a physical therapist with a wide edge and opposite narrow edge. Figure which one according to my need. Have a small pillow for between knees or at ankles. Feels good.

I too had an anniversary-17yrs! Second marriage and a great husband. We went out with a couple to a play. Fantastic!

I am a grandmother again. Yesterday at 12:21 a girl 8lbs & 6oz and 20 1/2inches long. Katelyn Marie. Looks like my son. Visiting hosp to get my holding time in. My husband(grandpa)goes tomorrow with me to hold her. Her sister is 2yrs & 1mo.

Next Wed the 27th I have foot surgery to correct a bunion and 4 hammer toes. So 5 all together. Taking pieces of bones out and putting a screw in. It's time. Genetic in the family. My turn.

Time to go. Cheryl


Bonnie - June 20, 2007
Hello everyone, I haven't had much time to write lately so most of the newbies probably don't know me. Welcome to all of you. Had a bad time for the past year, but think I might be on the road to better times. My heart doctor (new one) finally decided that it could be the beta blockers that were affecting my breathing and switched me to an old med that is a calcium channel blocker and it seems to be working. I'm also on large dose of prednisone so that could be what is doing it too. Anyway, I feel better than I have for a long time. Also going in July for angioplasty. One of my by-passes is no good and they think they can open it.

Enough about me...
Cheryl, good luck on your foot surgery. Sounds painful, but I know you will feel better after you heal. Happy Anniversary to you...glad you had a good time on your special day. We did too.
Donna, I am a lover of warm weather too. The thought of cold, snow and another winter makes me sick thinking of it. Wish we could go somewhere warm this year. Humidity is as hard on us as below zero temps. Also, Donna, get those chest pains checked out, never, never, let something like that happen or think it's something else. It could be a lot more serious.
Bernadette, I love Alaska in the summer. Makes me sort of sad that our daughter moved back here. Love having her here but now have no reason to visit your beautiful state. I was hoping to meet you too.
Bex, sorry to hear you got hurt. Good luck with your summmer plans. Sounds like a fun time. There should be more doctors like your in this world.
bestamor, hoping for your success with your garden...I love going to the farmer's markets. We have a lot of them around here, almost every day of the week you could find one somewhere close. I do have a garden this year. Daughter is helping plant and hubby does the tilling. I plan to eat the goodies. LOL
Lynn in Mo, WOW, you are one of the lucky ones to get approved so fast. Wouldn't it be nice if everyone's applications went through like yours. There would be a lot of happy people on this board!!!
So many others I would like to note but this is getting rather long and my hand is hurting. Thanks for the anniversary wishes and take care of your selves...You are all important.


Debbie, TX 6/20/07
Hi Friends, I hope each of you are having the best of days! I haven't posted lately, but I've been reading. I'm still so happy to be here. I am learning sooo...much and I don't feel so alone.

I have some good news...we have been "given" a mobile home...someone just wanted to give theirs to a "family in need", and we qualify! I'm taking one day at a time though, as I know I don't have the strength to do a move. I plan to only pack just what we really use, and the breakable stuff. Our old trailer can sit here until we can slowly move everything else. Oh yeah, this kind gentleman is even leaving the appliances and furniture in the new (old, but not as old as ours) trailer. Some one is really looking out for us and I'm so appreciative.

I realize that my pain will be horrible, but it's so worth it.

We have had damaging storms, floods, and deaths lately, here in north Texas. I am so sad for the hundreds that became homeless just overnight, and for the loss of life. My family didn't receive any damage and I'm thankful.

I wish the best for everyone here that has a need, and Congratulations to all those who have had Aniversaries, new Grandkiddos, new Docs, better meds, and pain relief.

Thanks for all the tips and have a great day !


Yolanda Mia 6/20/07
Hello All! It's been quite awhile since I've posted. Things have been really rough with working 10 hour days in the heat. Yesterday was my birthday and it was much better than last years. I took the day off work, though I still had some work to do for a promotion. It was a quick visit to a Wal-Mart (that's about a half hour from my house) and needed to take a few pics for the client to prepare for a major event next Friday. I was chosen as the lead ambassador for this promotion, which is a huge deal b/c this is a celebrity event. I will be meeting Sara Evans, which to me is not big deal cause I don't listen to country. But, this is a great opportunity for me since I love this type of work and it will help plump up my resume. After that I had an interview for a store manager position at a high end clothing boutique. I got a 2nd interview and hope that I get this job b/c it seems like something I would love to do. I'd essentially run the store b/c the owner lives in Minnesota. After that, my roommate took me to the park and bought a bottle of wine to toast my birthday. It was very romantic and sweet. The cards he got me almost made me cry they were so sweet. Things between him and I are much better, in fact, we are a couple now. He still drives me nuts at times, but for the most part I love him. Then my mom came up to take me to dinner for my birthday. We went to my fave restaurant here in town. It was great b/c she brought my sis and her family too, since my sis's b-day is Saturday. It was really nice to see both my nephews. I was very fortunate to have many calls and messages left wishing me a great birthday. So much diffrent from last year where no one remembered and I spent it all alone crying. So, so far, this age hasn't been so bad. Hoping that life improves b/c this past year was a struggle.

Things have been highly busy for me, so I've not been able to read or anything. Hoping all is well. Welcome to all the Newbies that have appeared since I last posted. Love ya all! Yoyo




Joyce June 21
Hi, was diagnosed today with Fibro. Had to look on the web to see what it is. The doctor just touched two spots on my hips and 2 on my thighs-I nearly went off the wall! I also have agoraphobia, panic disorder, totally alone and left with a large place that used to be an inn with me working it alone now for 5 years. I do not want to sell it but cannot do it anymore, the tractor kills me, so do the stairs. He gave me an anti depressant for this, very afraid of them as I have had terrible reactions in the past. My sleep habits are terrible, go to bed at 6am , wake at 12 to 2pm. Tonight I was so upset that I went to bed at 10:30 and woke at 1am, now will be up all night and day. This stinks, do I really have this?????


Jenny in Utah 6/21/07
Hello all, It has been a while since I have posted. I have been very busy with graduate school this summer. Also, my four year old is being evaluated for autism and it has been a difficult road for me to go down. Last year, right before her third birthday, she had hardly any words, and though she has been working with speech therapy, it is now only very minimal. She is showing other signs, too. It breaks my heart! I have another child with severe learning disabilities, but she has done pretty well. It just breaks my heart to see other children the same age as my little one and doing so much more. I think we have gotten on top of my sore feet. I still wish for the cymbalta, because it did so much better, but the current therapy I am doing is still good. Well, I have to go. Lots of studying to do! Jenny


Barb(Pa) 6/21/2007
Hi FMil, Finally a minute to jump in and say hey. My son and I have been sooooooo busy working on the house and getting ready for a house full of guests the week of the 4th. Dave got home for a few days and I am with him in Florida now on a team run.Did an overnight run from Pa to Tampa; I hated to leave my son alone to work,but money talks. Will be heading home tomorrow.

Hope everyone is having a great summer.

Bex hope you have a great time on your outing and the pain isn't to bad for you. PLEASE,think long and hard about srgery...I had it done 15 years ago and my shoulder has never been right since and I still have ALOT of pain in it.

Richard sorry to hear you won't be in here much,you are such a gem we will all miss you.

Bonnie,good to see you back in here.

Gota run for now,stay well.


Yolanda Mia 6/21/07
A huge step for FM was made today. The NFA posted an article that today a drug was approved by the FDA for the treatment of FM, Lyrica. Progress is being made! Love ya all! Yoyo


Bonnie June 22
I haven't done any research on the drug Yolanda is talking about, but here is a web site that tells something about it.

Lyrica


Bonnie
Sorry, for some reason that page didn't copy correctly. Just type Lyrica in the search box at the top of the page and you should be able to get the options for reading about it.


JUANITA JUNE 22
JUANITA/TX TGIF.well friday is finally here and i am so tired. had a 24 hour bug yesterday but feeling better today. havent posted alot lately due to the surgery on my hands. i have my hearing with the disability judge next month and nervous as can be. WHAT if i am turned down, that is what i think about. then what do i do.try again i guess. RIGHT. YOYO wrote about the article about LYRICA, i tried it some time ago an it didn't help me but hopefull it helps others. at least there is a drug being uesed to help some people with FIBROMYALGIA. maybe now people will now understand that it is real and not just in our heads. or any other part of our body for that matter.lol sorry RICHARD isn't here to keep all us lady spirits up. he sesms to have alot on this plate right now like all of the rest of us do.WE MISS YOU RICHARD. we are supposed to get some more thunderstorms today like yesterday. maybe this weekend we will have some sunshine. i sure hope so. well i guess i will go and let somone else talk. HAVE A GREAT WEEKEND. GENTLE HUGGS FOR EVERYONE. JUANITA


Richard in Tucson 6/22/07
Hi all; I am going to Montana for the next two weeks. If I have time while I am there I will try to post. Hope to talk to you soon gentle Hugs from Richard in Tucson...


BEX NEWTON 6/22
BEX 06/22 WOW I KNOW ALSO YOU CAN GET SSD FOR FM. I GOT IT IN 4 WEEKS. MY TRICK WAS TO WRITE IT MYSELF, SUPPLY RECORDS UNTIL THEY GAGGED, AND JUST SAID "HELP" IT WORKED. WE HAVE TO HAVE HOPE AND FAITH. NO LAWYERS! I AM SO HAPPY ONE AT A TIME MIRICLES ARE HAPPENING. OFF TO CAMPING, THIS IS A TEST, I KNOW I WILL HURT, BUT YOU CAN NOT STOP LIVING!! PS YOU MUST WEAR A LIFE JACKET IN LAKE WATERS ECT. OUR MUSCLES REACT WEIRD AND UNDER I GO....I WEAR A SUPER PROTECTIVE THAT WILL KEEP ME UPRIGHT IF I PASS OUT, VIRTIGO.. THANK GOD MY FRIENDS KNOW IF I AM FLOATING COME GET ME!! ARF ARF.... LOVE ALL BEX


Lisa 6/21/07
6/22/07 WoW! I was just recently diagnosed. I am 41 years old and a single mother of four (two live with me) children. My youngest is 3! I am amazed to read your posts and to see myself and my aches and pains reflected there also. I appreciate all of the gentle huggs that I see.... I do miss those good old bear hugs! I am going to go back and read more of your wonderful posts. Sweet restfull sleep to all! ~Lisa


JuneKaye June 23
JuneKaye Ohio June 23 I had a computer glitch so my computer was down for several days. Hello to all. Today is a somewhat cool day here after some really hot days. The sunshine is nice and we did have a couple really food soaking rain showers. I'm still taking liquid hydrocodone for the fibro pain and my doctor knows it works best for me. I don't get dizzy or loopy or "high"---it just takes the pain away so I can live a fairly normal life. I also take 30 mg of Cymbalta which kicks the depression and helps with the pain. 60mg made me too tired in the afternoon. I use Blue EMU cream when the pain is kind of warm and Activon when arm pain is really bad. Heat is a must and I have all kinds of things to plug in or put in the microwave to use on parts that hurt. I do agree the "poking" hurts, but that's really the only way a specialist can diagnose Fibro. I have pain in all 18 points---did I pass the test or fail? As I mentioned in an earlier post, we are fortunate to have a Fibro expert in our area of northeastern Ohio---Dr. Mark Pellegrino. He has fibromyalgia himself and has written several books on the subject and attends conferences about Fibro. Although I had figured out from internet research that I had Fibro, my doctor sent me to him to get a professional diagnosis.


Bernadette June 23
Hi everyone! A big welcome to Joyce and Lisa. Everything is going to be alright. There is the possibility of a good life with fibro. When I was first diagnosed I had a lot of feelings around it, including relief that we finally figured out what it was and that it was chronic, but not progressive. Then my rheumy told me that 25% of fibro patients felt better, 25% worse, and 50% the same over time. I vowed to be in that first 25%. It will take you some time, because what works for some does not work for others, but experiment with medications (ultram, cymbalta, and lyrica seem to have the best odds),nutrition (avoiding refined carbs because many of us have blood sugar issues), and exercise (yoga and walking work great for me and really improve my quality of life). In fact, I was reading my journal a while ago when I first decided to start walking. I was so proud of myself for doing 15 minutes twice a week. Now I do a half an hour to an hour 3-4 times a week! But start SLOWLY! Watch for the after effects because we feel fine in the moment, but afterwards we pay!

I can say that overall, I am blessed to be better than I was four years ago. That is not to say that I don't struggle. I have really rotten flares, where I feel super depressed and in pain all over. But I usually remember that it will pass. I know that there is a huge correlation between stress and my pain. I am also lucky to have less stress in my life than a lot of you. My heart really goes out to you JENNY. You are in my thoughts and prayers.

BONNIE great to hear from you and so glad that you are doing better. It is too bad that your daughter isn't up here anymore-I would have loved to meet you. The one time that I did arrange to meet someone from the WALL went really well.

YOLANDA great to hear from you and so glad that things seem to be looking up for you too. Thanks so much for the news about Lyrica. Maybe now that there is a drug for it, docs will take fibro more seriously. BTW if Lyrica is too expensive for anyone, Neurontin (or gabapentin) is an earlier version of it that is available in generic form and has mostly the same effect. I take Neurontin to help me sleep and when I am in a bad flare it really helps reduce the burning sort of pain I get. Anyway, I'm off to work. Have a wonderful day everyone and hi to those I didn't have time to respond to. I am glad you are here and appreciate reading your posts.


Caran6/23/07
Hi all on the wall! My name is Caran. I was diagnosed with Fibro a couple of months ago, after a very difficult emotional time, both personally and at work. For me, I was relieved to finally find an answer as to why I kept geting so sick and even when I wasn't sick I never felt "well". I've been looking for a support group that was more positive than not (because that's who I am). I am very pleased to find you! I've applied (and received) short term disability through my work, and now we're working on the long term disability. I am amazed at the way the disability insurance company is handing this! They are being so rude, and asking for the same paperwork over and over (each time threatening to close the investigation). Luckily my doctors are on board- but even they are amazed. It seems to me that if I was having real difficulty even functioning at home, I'd never be able to jump through all the hurdles! Anyway- More power to all of you1 I'm so glad I found you! One question though- how do I get my husband to stop giving me bear hugs?!!! He means well- he just keeps forgetting it hurts! Caran


~Lisa 6/23
As I said before I was just recently diagnosed. I do have a question; does the pain have to be worse in the morning? I have significant pain in the morning and it usually does not change thoughout the day.......unless I put myself into a bad situation and then my pain is off the scale.

When my doctor "touched" our tender points I only reacted to 16 of 18!! I was feeling pretty smug when she didn't hurt me on the second set, until she hit every other one and I was left holding myself and wishing the pain away.

Currently I have given up on over the counter pain meds. I have been attempting to use them for months with no relief. My doctor has just started me on Nortriptyline for sleep. Does the Nurotin help with the general pain? Oh, and I have bad headaches throughout the day and migraines quite often. Is this normal? I have to muscle thru them because I cannot just curl up in a ball however much I want to.

My children are the ones that I have to work on educating. Anyone have any words of wisdom to help me out?

Ohhh my yard work is catching up to me. Time to lie down for a while. ~Lisa


MJ 6/24/07
Hey, MJ from S. Texas with a question for everyone. I found out that I had fibro about two years ago and am dealing as most of you are. However, I had an accident in March--was going 60 when someone pulled out in front of me and I could not avoid hitting her. Fortunately both of us were fine but I seem to be having a hard time getting over the aches and pains and wonder if the stress of the accident is making things worse or if I am just being a wuss. Just seem to be so achy and tired all the time and I hate giving into it and feeling that I am not in control. Had to give up my job as my company would not let me return until I was 100% and now I am being told I will never be 100%. Any input or ideas would be sincerely appreciated. Thanks so much. MJ


MJ 6/24/07
Hey, MJ from S. Texas with a question for everyone. I found out that I had fibro about two years ago and am dealing as most of you are. However, I had an accident in March--was going 60 when someone pulled out in front of me and I could not avoid hitting her. Fortunately both of us were fine but I seem to be having a hard time getting over the aches and pains and wonder if the stress of the accident is making things worse or if I am just being a wuss. Just seem to be so achy and tired all the time and I hate giving into it and feeling that I am not in control. Had to give up my job as my company would not let me return until I was 100% and now I am being told I will never be 100%. Any input or ideas would be sincerely appreciated. Thanks so much. MJ


Starr in WV 6/24/07
Hi everybody. It's been a ton of time since I've been on. I didn't get all the back posts read but welcome to all the new people.

I just heard the news about the Lyrica. I've never taken it so I don't know much about it.

JuneKaye, I see where you take hydrocodone? I take it in pill form and it seems to help me also - it doesn't make me high, it just makes me more "normal" in that I am able to function. For some reason pain meds seem to act more as a stimulant on me than as a depressant

Ettepau - I also have a CPAP for apnea and I also still ahve insomnia. Some nights I'm up more than I'm down and I feel like I'm locked in a batter with my bed. I usually sit in my recliner for awhile and drink either hot milk or sleeptime tea to help me relax

On a personal note - I lost my job in May. The end of April my boss put me on low earnings because business was slow, which it was. Of course - she also told me I hadn't done anything to improve business, which I had to wonder about since I was a secretary. I asked her what I was supposed to have done to help business but as usual she ignored me. Then two weeks later she told the staff person (there were only 2 of us in the office) to tell me I was not to come back and to turn in my keys, etc. She told her to tell me that she was doing that because (1) I had been rude to her sister on the phone (I have no idea when that happened or what I supposedly did) (2) I had been rude to a client (ditto on knowing about that and (3) I had told a client I was on low earnings and that was embarrassing and if my boss heard about anything other comments I had made she didn't like, she wouldn't get me a reference. I can't say I'm surprised about all this - I don't have time or space explain - but it was probably all the best. The stress of that job was starting to overwhelm my life. Now I'm trying to figure out what to do.

How do you apply for disability when you need your unemployment and you need to have some kind of income so you need to find some kind of job? I'm about 4 years from being eligible for retirement so what do I do? I'm actually well enough to work some but obviously I can't handle a high-paced stressful job anymore? Any help is appreciated. Thanks.


Bernadette June 24
MJ -my fibro was initially triggered in a car wreck that sounds very similar to yours.I don't know if there is something about that kind of accident that does it or what.Can you work part time for a while? LISA I've said it in here before but the main way I've dealt with my son and fibro is to explain that I only have so many energy "coins" in my bag I can use everday and I have less than most people, so I have to be very careful how I spend them. I've also explained that the volume control is turned up on my body so that a little bump like this, feels LIKE THIS when it touches me. Reading together has been a strong bonding activity for us at bedtime, and there are some days when I decide to spend my "coins" on a walk with him rather than have a clean house. Hope this helps. I've had a tremendous amount of guilt over my inability to be the perfect parent over the years, and people at the Wall have helped me tremendously with this.


Donna 6/24/07
Hello everyone, I have taken Lyrica for a year now and it works better than any of the other medications that I have tried and it is now the 1st drug that has been approved for patients with Fibro. Here is a site that tells about it http://www.fda.gov/consumer/updates/fibromyalgia062107.html I wouldn't be able to get out of bed in the a.m. if it wasn't for the Lyrica. It isn't a cure all but it worked for me when nothing else was working. Good luck.


Eileen Lewis
Hi, to all. I have had FMS for over 20 yrs, when doctors believed and told me it was all in my head. I finally was diagnosed in 1993 and was told I have a a classic case w/all tender points. If that isn't enough my arthritis has been getting worse, my fingers are becoming very deformed; some very swollen w/ large nodules (ugly). Well, now the topping on the cake, I have been newly diagnosed w/breast cancer; surgery is scheduled for 7/09/07. I also have other diagnosed disorders, ask me, I will tell you. I could go on and on w/ more poor me stories. I, only know, even with ups and downs I am working very hard to keep it together, stay positive and pray. If anyone needs my support, I am here for you. In addition, If anyone can offer me any infor, support and prayers, contact me. Blessing and have a peaceful life, going thr w/ joy and ease. Leenie from Lititz PA


Starr in WV 6/26/07
I was reading some of the posts and I saw some about tingling. I have that too, especially in my hands. Part of it is from the carpal tunnel but sometimes it is just the way I am holding my artm.

I have a question. Last February and again just yesterday I ran a slight fever accompanied by a horrible horrible headache. The first time in February I thought I had the flu but it didn't last long enough, only a couple of days. Yesterday I started by chilling - had to turn off the AC and lay down with a blanket and it was almost 90 here - and then the headache hurt. Today I have a slight headache, no fever yet. Any ideas?


juanita june 26th
JUANITA/TX wanted to respond to STARR. sounds like the fibro just got to you. we have good days and then bad days like you just described.(flu like symptoms) thats classic fibro. i too had a bad day last thursday,but by friday i was better. i had headach,chills and fever plus stomach pains and of course our little friend called diarreah (ms). but all better the next day. fibro. isn't just aches and pain, its is alot more that is for sure. i got a great surprise friday. my best from from ok came to visit me after not seeing her for 2 years. she didn't understand why i couldn't do as much as we used to do untill i explained how much the fibro had limited my activities now. so for thoses who says it doesn't progress, just hasn't had it long enough to know that it can. well it is still raining here in austin. don't know when it will end. i was suppose to go to dr. for my blood pressure today but changed it to monday. o my gosh, i have forgot to take my blood pressure and thyroid meds that i was suppose to take this morning. i better go and do it right now before i forget again. GENTLE HUGGS FOR EVERYONE. JUANITA


Starr in WV 6/26/07
Juanita - thanks for the response. I've had fibro since 1993 and I've had a ton of different problems but never the fever. You could be right though. I did get very tired the previous Saturday and then Monday morning I was very tense over a financial problem that I finally got resolved. It is always something.

Have any of you tried the Croc shoes. I have an imitation pair and I like them really well. I've been having toe trouble and these are the only shoes I can wear for any length of time that don't hurt. I know they are recommended for diabetics.


Libby/TX 6.26.07
HELLO TO ALL ON THE WALL...

I wish the best to all that are having several different problems right now. E.Lewis my heart goes out to you right now...I pray that this cancer will be taken from you and never to return. We are all here for you! The fibro is enough and then new things always gets in our lives. EXAMPLE: I have recently gone through inner infection and now the doc wants me to see specialist, because they think the tubes in my ears are not working. After going through rounds of the meds...I'm back on them prednisone and the whole works. I began having all symptoms again. I probably will find out it is the fibro and if not I will probably need tubes put in my ears. The doc said it is not unusual for adult to go through this. Well...I can blame this on my allergies due to Fibro, they just keep getting worse the older I get.

By the way...I havn't been on the last week. I took some time after losing one of my $20k accounts/with my delivery service, to get some rest and try to get rid of the stress and shock. My husband wants me to take it slow right now...and not put so much on me again. It really seems to be working and my fibro has been good until this week.....but the steriods will kick in again and keep some the pain at bay.I have so musc more to say....but the old back feels like it has had enough...must shut down and go to bed. Sending warm fuzzies and star dust...so all will get a good nights sleep! Libby


Donna June 27, 2007
Hello to all of you, if this message ends up a little shaky it is probably because I have just had to use the inhaler and it makes me really shaky. I haven't had to use it in months but this humidity is making the breathing really difficult. I don't like to complain as I hate the heat but the humidity is killing me. I talked to my doctor about 2 hours ago and I have to increase all of my medications as the pain from the weather, first all the rain and now the increased heat and humidity is really taking its toll on my body. I am not comfortable standing or sitting. My hips are giving me so much pain right now that even walking up a flight of stairs brings tears to my eyes. I know that with the increase in the meds I won't even be able to function, I will be a zombie, I have such a low tolerance for all of it. Oh when will it end. Okay I've whined enough. I hope that the rest of you across the county are doing better but I see that some of you are getting your share of the rain and some are fighting fires. Let's all think positive thoughts and hope that we can get some pain free sleep. Love to you all.


Susan


Susan
Hello all, I 'm a newbie to the wall because I just found you guys. I have been diagnosed with fibromyalgia for several years now. It is a rough little bugger to have move in on you. I read some of your posts so I know you know what I am going through. Although I hate that there are others suffering, I am glad that this wall is here in which we can share are news. Although my husband is supportive he has no clue what we really go through. I have been on Lyrica for over year and a half. It Does help the neuropathy and the feeling of my nerves being on the top on my skin. I does not completely relieve this part of the beast but anything that helps even a little can make the difference in whether the depression sets in to stay . I have been blessed with a good family doctor. HE IS WELL EDUCATED IN FIBRO . This helps cut down on the "doctor go round". I am sure you all know thaty feeling. Thanks for giving the opportunity to join this supportive group. I look forward to meeting and sharing with you all.


Susan
Ms Bean, re: Cymbalta. I am currently on it along with the Lyrica because there were studies that the two worked together in treating fibro. I have also been using it for antidpressants properties. I agree with you. I do not feel it is helping at all. I am currently truing a new med for depression and mood stabilizing so if it continues to work as well as it has so far, My doctor and I plan to see if I can just do away with the Cymbalta. I am talking about Lamictal and it must be titrated very slowly. Please keep your fingers crossed and if are a praying person, keep me in your prayers as I will you all.


bestamor 06/27/07
Hello this is bestamor. 06/27/07. Susan, I have been on Lamitrol for a couple of years and it really helps. But I was on it before I found out I had FM. I was also started on Cymbalta when the fm doctor dx me with fm. the lamitrol helps keep my moods at an even mode. Unless it is something really upsetting. My sister-in-law is still in the hospital. No sure if she will even get to go back to her home. She made be in a nursing home for a while if she is lucky. they the doctors are taking all types of tests on her. Her blood count was down to 2. yes I typed 2. she was all most dead. OUr lives are pretty full with both of us having a job so far. And keeping up with 5 kids and their kids. but i do like this wall. I have been having some really bad days with the fm. I ask my husband if he saw that train that hit me the other morning. I know that you all now that feeling. I hope and pray that no one feels that bad. well had better close and get my shower. warm fuzzies to you all.


Dee ~ ~ Wednesday June 27, 2007
Good evening everyone....
Welcome back Starr....missed seeing your posts.

I see we have a few more newbies. Welcome to all of you.
Caran....It is a relief to finally get diagnosed isn't it? I can remember when I was filing for my disability and all the questions that were repeated over and over again. In fact, I felt like they were trying to trip me up by asking the same question but just in different words and different places on the same forms. And I found that when you are trying to get disability, that's no time to be tough. Now about your husband...lol...mine took a lot of training in the "Hug" department. But it can be done...gentle reminders work the best.

Lisa....My pain is the worst in the evening and morning. Mid-day is the best for me I think because I'm more active then. Evening is bad because I've usually overdone during the day and morning is bad because nothing has moved for hours and it's all stiff and hurts. Neurontin has helped many FM-ers with pain. I tried it and just can't take it. Put me out in left field mentally.

MJ....Sorry about the car accident. So scarey to go through. I don't think you are a "Wuss", maybe it has increased your fibro pain. Trauma will do that. Ask your doctor about it and get some input there. I would be interested in what they say.

Eileen....Your plate is full. I'm so sorry to hear about the cancer. Prayer does work and I can certainly pray. He won't mind if I add one more name. I'll be thinking about you and waiting for you to let us know how you do (if you want to).

Susan....I also have been blessed with a good family doctor. Yes it does help to be able to talk to him and know that he is on my side. I wish everyone had it so good.

Richard are you reading? I miss your posts. How's Montana? Drop us a line when you find time, but enjoy yourself first.

Well I'll close and leave room for someone else to post. Keep all your chins up...I keep all mine up...lol.


JUNE 28TH JUANIT
JUANITA/AUSTIN TX well i think we need to start building the ARK here in central tx.lol a town 40 miles from here got 20 inches of rain in 8 hours. i am not kidding. all this rain is giving me a headache. my fingers are killing me and my sister in law feels like i do most of the time. this is definantly not fibro weather. i just wanted to say hello and GENTLE HUGGS FROM TX. JUANITA


Donna June 28, 2007
Welcome to Susan and to any other newbies that I have missed. Juanita, I have been wondering about you as I have been watching what is going on in Texas as I too used to live there. I know what the weather can do to the fibro as I have been in a flare due to the humidity, my lyrica dosage doubled yesterday and I have already noticed the difference. I will feel a little dopey and tired but at least the pain is more bearable. The husband huging thing, good luck everybody and if you figure out how to get it through their thick skulls and get them to remember that it hurts let me know. love and really soft gently warm hugs to all of you.


carol
Carol, Fl 6/28/07 Hi everyone..I am new to the wall but not to FMS...was diagnosed (after many misdiagnoses) 15 years ago and, while reading all the posts, realize I have experianced about every symptom at one time or another...I pretty much had figured how to control the FMS and not let it control me until this last year.

Last August my eldset son was in a motorcycle accident that eventually took his life....October 19th he died....since then I have found 2 lumps in my breast (thankfully not cancer!), fallen off a ladder onto a concrete floor at work (can't even begin to describe that pain) and discovered I have tumors on my thyroid (which I just got biopsied today)...needless to say, my FMS is in full blown flare and I'm suffering mentally and physically.

Stumbling onto this site has been a godsend for me today and I wanted to say thank you to all of you...reading all of your posts has made me feel better and realize(again) that I'm not in this alone...Big gentle hugs to all Carol


samtx 28 june 07
hello! i'm new here but thought i would give it a try. curious to see if anyone here has a history of fibromyalgia since childhood. most people i meet do not fit this discription and i am looking for someone to share with. i am now an adult in my 30s and have managed my condition since early childhood. looking forward to meet some new friends.


JuneKaye June 28
JuneKaye Ohio June 28 Hi to all---I can feel a cool breeze as I type-- Hooray!!! It has been so hot here the past few days. For you folks in Texas that flooding looks awful--I cannot imagine that much water. Lisa---I had daily migraines when the fibro symptoms first started, but they have tapered off in the past three years. I found a new product last year called HeadOn and it works really quickly for me. There's 3--one for migraines, one for simple headaches and a new one for sinus headaches. It comes in a tube--you roll it on, lie down for awhile and the headache is gone---at least for me. I always carry a tube in my purse because sometimes bright sunlight even with sunglasses on triggers a headache.


~Lisa 6/28
Lisa 6/28/07

For the last year I have been walking around in a fog and didn't realize it. I know it wasn't pain medication or sleep aids that was causing it.....because I never took any! WoW! I have started paying attention to my daily life the last two weeks and things that I took for "getting older" are not that at all.

Every night I go to bed earlier trying to get the "rest" that I need. I have been going to bed at 8pm! (I have my children convinced that we have always gone to bed then) I wake up (all the way) on an average of 10 times per night. When I get up at 4:30 I feel like I haven't slept at all and can barely walk. I must really look comical taking those itsy bitsy baby steps.

Been pretty sore the last couple of days and from reading your posts I understand that it is from the humidity and rain. Oh joy! My thoughts and best wishes to all of you!


Vanda
Sorry guys I just need to vent a little. My hands hurt so bad and so do my feet. I have been so tired today no energy at all. I have so many things I need to do but pain once again robs me of getting any thing done. Sounds like I am having a pitty party. No vacation this year. It takes too much energy to get things ready for a trip. I wish I could just zap myself to the beach. I have had fibro for 15 years and I am at my all time low. Sorry again for all my complaining, but it seems to help if I tell some one who I don't know. Family & friends just don't understand. I usually just suffer in silence. I am so thankful for this place that I can say just how I feel. Extra soft hugs to you all, Vanda


Starr in WV 6/28/07
After reading our posts I'm beginning to think that people with FMS are a lighting rod that attracts other misfortunes.

Carol - that is so so sad about your son. I cannot image. And now all those other troubles ***. Bless you.

Lisa - many many people with fibro also have sleep apnea - I do. As much as I dislike having to sleep with that mask on my face, I do sleep much sounder and for longer stretches at a time. Plus, one of the side effects of using is that you don't have to go to the bathroom every time you wake up change positions. Frequent bathroom trips are also a symptom of sleep apnea.

Samtx - if you do some online research you should find some material on fibro in children. I remember a few years ago reading an article by an 11 year old who had been coping with it for a while and how they had to miss out on things. My friend, whose mother has it, thought her son had it but when they tested him it tured out he had juvenile arthritis

I just saw a public service ad for a new web site - aarda.org - for the American Autoimmune Related Disease Assocation.

I have to work Friday at a temporary job - should be mostly typing. Wish me luck.

hope everyone gets some rest tonight.


carol 06-30-07
Carol, Fl 6/30/07 Sam, Tx...I wasn't diagnosed with fibro until I was 30, but am pretty positive I've had it all my life. I can remember having migraines when I was 10 or 11 and being rushed to ER when I was 12 for a "heart attack" The pains in my chest took my breath away...the Dr.s said I had plueresy...I had "pleuresy alot as a kid....also was told at about the same time that I had juvenile arthritis, that was what was causing the pains in my joints...when my periods started (around 13 or 14) I was told I must have endometriosis that was what was causing all my lower abdominal pain.....every Dr. had a different diagnosis, finally my mother (on the advise of our family doc) took me to a shrink because they figured all the pain was in my head and I just wanted attention! So I can relate....I consider myself very lucky to have finally found someone who knew what fibro was and diagnosed me when they did...by the time I found this Dr. I had had 3 operations to remove "diseased" organs...I was running out of spare body parts to give up!!! If you ever need to talk just e-mail me...Hugs Carol


Richard in Tucson 6/29/07
Good Friday morning to all here: I though i would make this small short post.
I have been so tired as well as so busy since coming to Montana on my summer vacation. Please know I miss you all, and hope to be able to post again soon. I have been trying to keep up on my reading of the posts. I will be back. Gentle Hugs from Richard in Tucson/Montana


Donna 6/29/07
Hello everyone, so glad to see all of the newbies coming to the wall, now I can call myself and oldie. I remember how excited I was when I found the wall and I couldn't wait to share with my husband the joy of being able to talk with others who understood how I felt. Carol and Sam I want to welcome both of you and it appears that Carol you have already been able to relate to Sam so that is really nice. Richard, it is nice to hear from you again and we are all glad that you are having a good time on your vacation. Vanda, as far as not taking a vacation because you get too tired, I don't take one for that reason either but I do take 3 day weekends. This works really good for me as it gives my brain a rest from work (god knows it needs it) and then I am lucky as I have a seasonal site in a campground with a camper that is all set up all the time so all I need to do is go along for the ride and just relax. I have to say that since my mds were doubled on Wednesday I am feeling so much better and I am out of my flair, the meds are not making me as loopy as I thought they would. I hope everyone has a good weekend and has lots of gentle warm hugs.


Cheryl 6/29/07
Cheryl PA

Hello everyone,

I am sitting here with my foot up on the comp tower. Doc said ice every 30 min and keep it up.

There are so many posts. I've read and wow so much similarities we all share. It's great and yet it's not fun.

My surgery was Wed and it went well. I didn't like the wake up from anesthsia. Chills and shake. The nurse it was normal for the type of surgery I had. Bones were cut from 5 toes and a bunion sliced off. My husband was with me Wed & Thurs. Today he's at work. He was here this morning to vac and etc. My great help and blessing. I had over #10 in pain with my carpal tunnel arm/hand after surgery. I found muscle relaxer pills worked. That pain was worse than the toes. We too had high humidity and storms. Now it's calm and so is my carpal tunnel. Sooo was it the surgery or the weather? Hmmmm. I am in a wedge shoe hobbling around and see the doc Mon. It's an 8 week lay up. No driving and no curves. I don't sit well so I have a list of things while sitting I can do to keep me busy and focused while this healing takes place.

Welcome to Joyce. I take clonipine for anxiety attacks and it works fine for me. Had attacks since 17yrs old. Also wellabutrin for depression. Another known fact for me. Thyroid got serious yrs ago so I'm on synthroid and doing well. FM started after that. All kinds of muscle aches and spasms. Very painful. Many in flammatories to find one for me that works. I am much better now while applying all I've learned yet flare ups come. Stress is a big one so I work on keeping that minimal. My world now has things in place that work well for me and therefore can't go back to the way I use to do things or live. Hope for you in time things will fall into place for you.

Juanita...hand surgery and court coming all sound stressful and hope too for you that you will be good to you staying in the day and in the moment for healing and timing for both of these. I say go with the flow or the flow will go over me.

Sitting and typing start to ache my back so off I go. Cheryl


Cari K. 6-29-07
Cari K. 6-29-07 Hi all,it's been quite some time since I last posted.I've been so busy looking for a new job,(with no luck)which has depressed me more which made me go into a flare like I've never had.And YoYo,I've tried the Lyrica,it was like a miracle drug the first three weeks. Then the dragon symptoms slowly crept back in to the point where they were before.My doctor raised the dosage several times but with no luck for me.That's not saying it won't help someone else.I pray that it does.At least the word is getting out there that FM is a real disorder,and not"all in our heads".Richard,it was good to hear from you.Please know that my prayers are with you and that we hear from you again soon.ok,people,gotta go,gentle hugs,Cari K.


Starr in WV 6/29/07
Carol - it was interesting to read about your experiences as a child. I too suffered very severe migraines starting when I was about 11 or 12. I still remember the first one I ever had, it was on a Sunday evening and it scared me. My mother didn't know what was wrong with me either. It wasn't until I ran across an article about migraines that I figured out what I had. They were extremely severe until I got into my 40's. Also - I too had really severe menstal problems - one time I fainted in school and fell out of my chair - scared the teacher to death that time LOL

I also had very severe motion sickness, probably because of my eyes, I have had thyroid problems most of my adult life (until I had it destroyed) and now I have Type 2 diabetes and carpal tunnel in both arms.

Cari, I am job hunting also and I really know how you feel. I have had one response from all the resumes I have sent out and that was a negative one. I am working for a temporary service and got 2 days work this week in a very nice office that had such a pleasant atmosphere and such nice people. It was a good experience.

Hope everyone has a good night.


Sue June 29
Sue June 29th Hi, I am trying to help a friend get some info about a medication and thought someone might be able to help. She needs to know about a pain med called OPANNA-Er. The er stands for extended release and the medicine is somewhat like Oxycontin as much as she can find out. She doesn't know if it is new but I can't find it on the web anywhere so I thought it might be b/c it's new. If anyone can help, it will be appreciated. Thank you, Sue


Carol 6/30/07
Carol, Fl 6/30/07 Good Morning all....hope everyone is having a semi-pain free a.m.

Starr..its funny you should talk about the thyroid...I never had any thyroid problems (that I knew of anyway) but recently had a CT scan of my neck (for a fall I took) and they discovered "numerous nodules" on my thyroid...not sure what that means...anyway I just had the biopsys done Thursday and am waiting for results...I've had alot of problem maintaining my weight lately (I'm 5'10" and am now down to 114 lbs.) but I kept blaming it on the loss of my son in October.....I also have had problems swallowing...unfortuneately having FMS for so long I tend to just assume everything is just another symptom LOL...I hate running to the Dr. everytime a "new" symptom shows up sooo...anyway, could you tell me a little bit more about what kind of problems your thyroid caused...thanks, you know how it is, any info is good info...hope the day is bright for everyone


Beth in Ohio 063007
Hi everyone. The weather here is wonderful! Had some thunderstorms last week, but we needed the rain. Now the humidity is down, so my joints feel better. I did too much housework on Tuesday, so I was hurting for a couple days. I tend to do that. I let the housework go for months because I know I am going to hurt afterwards, but then I have too much to do when I do decide to do it. LOL! But now I am feeling much better. Just got back from Curves. I have lost almost 35 pounds. Have about 15 more to go.

Then I went outside and took some pictures of our lilies in our front garden. They are in full bloom and are wonderful. Red, pink, yellow, white, orange. And then I printed them off on my Kodak EasyShare. It's kind of expensive printing them this way, but it is fun having the pictures right away.

We think the doctor has finally got all my meds at the right levels, and I am feeling pretty good. Still working on getting a full nights sleep without waking up, but it is better than it has been in a while. Hope everyone has a good day.