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Discussion Wall Archives, ending February 11, 2006
Doris/NC 2/7/06
Morning friends. Yes, I am up early again. When will it end???? Fell asleep in my chair last night before 7:30 and Jason woke me up at 9. Took my pills and went right straight to bed...what a life huh??? I missed "Wife Swap".....grrrrr!
I like that show. But I would never want to do it cause I would tell somebody off for sure and then walk out.LOL! It's really wild to see how some people live.
Today is an anniversary of sorts for us. We count the months we have been together. It's been 3 yrs. 10 months today!!!! On the 7th of every month we tell each other "Happy Anniversary"! It's just a special little thing we do.
Every month I kid him and I say " Isn't this the month that means gold"? He gets a big kick out of that. In fact we laugh together. I do have a gold ring and a gold bracelet already that he gave me. I wear my ring on the right hand for a promise ring(promise of love and faith). The 7th is actually the date we first met in person. We met online as friends and talked for weeks. He actually lived only 10-12 miles from me. The first time we met was at McDonalds and I actually made my daughter go with me..lol. I was so nervous. It's so funny now when I think about it. Isn't love just grand?????
Well tomorrow I am off to see my rheumy dr. Maybe he will give me a cortizone shot in my back...it sure would help. It has been flaring up so bad lately. Still fighting this sinus mess but it seems to be somewhat better. This crazy weather we are having is making everything crazy on my body. I actually vaccumed the living room yesterday...such a chore. But it looks so good. Jason was impressed and he bragged how good it smelled. Working on those brownie points ladies...they add up and then we get the GOLD!!!!! LOL! Just kidding but it sounded good didn't it? LOL! Well guess that's a rap for me this morning so take care all and hugs to you. Have a wonderful and painfree day if possible.
Ellen - Alabama - 2 - 7 - 06
Good Morning All! I am on alittle early this morning. It has been really chilly here the last few days and it's not suppose to get any better. Boy is my body letting me know this. Richard, I seen where you were talking about your sugar. Make sure you get a good breakfast every morning. I know the dr. and dietitions have told you this but I have found that when I eat a good breakfast I feel better during the day. No gravy and biscuits, when I eat this I get really weak and shaky during the day. So I just stay away from it. Keep the nuts and fruits handy and even the peanut butter crackers. I am on Avandia 2mg but he is going to up that soon. It takes a couple of months for the meds to get into the body so you have to increase them slowly. Or that is what my dr has said. Welcome to the Newbies. Happy Birthday to the Feb.babies. Going to lay down for a little bit. Hugs.
Barb(Pa) 2/7/2006
Hi FMily, Not much time to post,have been soooooooooo busy!!! Since I left home three weeks ago I have been to Florida(spent a week),then to Norfolk,Va.,then San Diego,Ca.;then LA,Ca.,and back here to Atlanta,Ga. for delivery this morning. I will have to catch up on the posts later tonight,but am hoping that everyone is doing well. Richard,how is the project coming along? Be well and take care of yourselves. Gentle Hugs
Bernadette Feb 7
VICKY-do you mind emailing me the list of foods too? Although I do take tramadol at this point and may be starting on neurontin, I am into natural means as well. I do work out and yoga and lots of supplements. One thing that has helped me a lot getting to sleep is called "Natural Calm" it is like a powder that you put in hot water before going to bed. It is a magnesium supplement and also helps with regularity. I need to get some more because I have run out. I've gone ten days now without wheat or chocolate and no more headaches and I've lost 2 pounds. I didn't really eat alot of carbs usually anyway so it wasn't that hard, as long as I can still have oatmeal and popcorn.My regular diet is usually good, but I did have a tendency to binge on carbs when I was feeling blue. So the other day I resisted and just let myself have a good cry and a hot bath and chick flick, heating pad and fire. Learning healthier ways to nurture myself. One thing I am trying to decide is if it is better to have sugar or artificial sweeteners. I do have stevia that I use in my oatmeal, but I mean like sweetened yogurt, which one to go with. I find that I need to drink a ton of water too and do better when I do. Tried to quit coffee but it's just not happening right now!!!
ELLEN good point about breakfast.MICHAL I use that same Tom's toothpaste. I had acne on my chin for about a decade and as soon as I switched toothpaste, it went away. I tried to take a low dose of thyroid but it made me feel to "speedy". I am now on a low dose of cortisol. JULY thanks for the suggestion on the melatonin. I am not taking anything but the SAMe so it may help with the sleep. I have been taking an occasional soma but my rheumy (as well as people on this board), has warned against it so I'll stick to my magnesium and maybe try melatonin.Hey, how do you think they like being called "rheumy" I looked it up and rheum actually means "discharge" (yeah, dis charge is for the office visit, and dis other charge is for the consultation).HOw long does melatonin take to work?? Why did you stop taking your Cymbalta? Money? Bladder? I thought that it was working for you. BARB You amaze me with how much you do.How do you sit still that long? YOu must have to stretch at every stop! I'm heading to Florida in a couple of weeks. I'm wondering if your fibro gets better there. I live in Alaska which is really hard on me with the constant cold and changes in barometric pressure so I'm hoping to have a few days reprieve.
DORIS I like "wife swap" too. It sounds like a nasty show from the title but I think that it actually is very positive and makes you think. I wonder sometimes what someone would think if they had my life.Who would be the most opposite from me that they could pick, since they pick opposites a lot. Maybe someone who lives somewhere hot, has a husband who is never at work,tons of kids, and lets them run wild.I like to think of the other wife substitute teaching or driving in the dark, snow and ice on the highway a half an hour each way to take my kid to school. It makes me feel proud of myself and brave. (If I don't think of it that way, I just think, wow this sucks, how did my life end up here???)I am such a wussy girl but Alaska has forced me to toughen up a little. Man it is noon and I could so take a nap! I find myself at the point where I could shut down and sleep for a few minutes several times every day.Then if I do take a short nap,I wake up sore and I'm up til midnight!Anyway blah blah blah.....have a great day everyone!
Deb 2/7/06
Hey all!
Now that I'm feeling better I decided to get back on trying to lose this weight. I was doing pretty good about going to the gym before the holidays, but the holidays got me off schedule and then the Vytorin started causing me problems so I haven't been in over a month. I went to the gym this morning and did a little work on the exercise ball and then a little cardio. Afterwards I went and got my hair colored and cut. Isn't it amazing how a trip to the hair salon can make you feel so much better? I change hair colors about every other time I go and I'm really happy with what my hairdresser did today. I just told him to have fun and do whatever he wanted with the color.
I also started my diet today and have gone the entire day so far without a Pepsi. I've usually had a couple by now. I forgot and ate the hershey's kiss the salon gave me before I thought about the fact that I shouldn't eat it, but other than that I've done what I'm supposed to. That means I should wake up tomorrow 20 pounds lighter right?? GRIN
Richard - I too am in the middle of changing my Lyrica dose. I was taking 75mg in the morning and at night. I am now going to 50mg in the morning and 100mg at night. Same amount per day but a little different distribution.
Vicky - Got the list. Thanks a BUNCH!! I will integrate that into the South Beach and see how it goes. I'm excited to see what happens.
Jaime 2/7
Hi all,
Well the other night I ended up in the ER again due to the terrible pain. I was in such bad shape that they almost admitted me overnight. It took 6 mg. Dilaudid, 15mg Valium, and some Pherengen for nausea. They couldn't get over the amount of pain I was in, especially with my blood pressure being so high and my heart rate up really high. They told me if it took another shot of pain meds I would have been admitted. Normally 2-4 mg of Dialaudid is enough to knock any one out, but I was still uncomfortable and awake asking for help with the pain. The muscle spasms were unreal. My shoulders were up to the back of my neck, and couldn't even get them to straighten out. Just trying to relax and take things easy. Gotta get the pain under control. Gonna go to bed here soon, I think. Take care.
alison in canada 7 feb
BERNADETTE I sometimes like to watch those shows too. It reminds us never to judge other people because we don't really know their lives. I get mad when people on the shows get self-righteous, etc. But you know, I don't think they could ever properly do a swap with a fibro person-- how would you make the other person hurt as much as you (and you to hurt as little as them)? Without the pain they would think we are lazy and not appreciate how much we actually get done.... Although if they could find a way to swap the pain, I think it would be a great eyeopener-- let's sign all the doctors up first!
Finally have a tiny bit of snow. Missed the storm here, but the wind has put me into a flare.
Dana 2/8/06
Feb.8,2006
Hi! This is my first posting so bear with me please.
I have recently been diagnosed with Fibro and I have a friend at work that has also been diagnosed recently. I have had symptoms and problems from this for years but I was unable to get any support.
Now that I have been diagnosed I feel better-at least I am not crazy or a hypochondriac-but my doctor doesn't seem to be able to offer me any help. My worst symptom is utter exhaustion.
I wake up exhausted and go to bed by 7 or 8pm exhausted. I take medicine for depression and anxiety which does help me sleep but I still have to force myself to go to work and do the things that I have to do.
Quitting work is not an option. My husband has a neurological disease-syringomyelia- that makes it impossible for him to work and I have to help take care of him and we have a 15 year old daughter.
Does anyone have any suggestions on what to do about this fatigue. The pain is unbearable at times but it isn't constant like the fatigue. Also, I have been having headaches in the back of my head lately--is this a symptom or is it just tension?
Thanks-any feedback will be appreciated.
July, on February 8
Good Morning! BERNADETTE, stopped the Cymbalta because of the cost. Rent is up and I’m not working. But I’m miserable without; am picking some up this morning. The rent will have to take care of itself. Darrell takes melatonin sporadically. Though I put it out for him nightly, some nights he’ll fall asleep before taking it (it’s a gift!), but it does work better the longer you take it. So I would expect to experience benefits the first night, and even if you only take it a few nights a week. DANA, welcome to the Wall! Probably the best thing you can do for the exhaustion is take the highest level of antidepressant you can tolerate. I like the Cymbalta because it also addresses epinephrine. Now, if we take away all the restrictions you gave us (and we have them too!), the next best thing to do is quit your job, hire a caretaker for your husband and give your teenager away. But we understand. Got a call for a job yesterday, but just the thought of “M-F, 9:00 to Noon” made my want to cry. I’m going to rest unemployed for as long as I can and assume something with a flexible schedule will show up. I understand how Barb does it. The hours in the vehicle are easier than at a computer. I was working both jobs 3 years ago, and I’d rather go back to driver than processor. Especially if there’s somebody else with a brain in the vehicle to either do the driving or make up for the fog! HUGS to all.
Richard in Tucson 02/08/06
Good Wednesday morning to everyone.
Katielady: I am glad to read your post welcome back. I am sorry to read you are having such a difficult time with your lower back. I hope I don't still make you tired I didn't mean to do that. I am so tired all the time lately, that everything for me is a major chore, when I talk about it here I am just venting my frustrations a little, because I feel you all understand. I will lighten up if it bothers anyone, the last thing I want to do is make anyone here, more tired than they already are.
Welcome to the Wall FmsKaren: Thank you for the Michael More information. If I had more energy and less going on in my life, I would contribute to his endevore. Please keep coming back here, you will benefit alot from the information and support.
Deb: I am glad to read that you don't have the Sjogern's Syndrome. Thanks for the info. about Lyrica I have not had the blurred vision but I will stop taking it if that happens.
Welcome to the Wall Michal: Thank you for all the useful information, Keep coming back.
Just a little update for anyone interested, I had a Physical Monday. My Dr. says I am at a higher risk for Diabeties now, my Glucose, Serum panel came in @ 113 normals are between 65-99. My Trgliycerides were higfh @ 276, normal is 0-149, my VLDL Cholesterol was high @ 55, when normals are supposed to be between 5-40. My Dr. is Starting me on Metforman 500mg per day to help control my sugars, he also wants me to excercise and diet, cut down on sugar intake. He wants me to take Lyrica 100mg 1 @ night & 1 pill 2x per day then work up to 3xper day. I really hatge taking pills but I will fallow his instructions. He also wants me to go for a heart stress test, because I have been having some chest pains. In addition he ordered me a vission test. I also wanted to let you all know that I am doing a bit beter with my CPAP therapy, thanks to the fact that Monday I bought my Heated Humidifier for my CPAP Machine. I will have to experiment with it, because it is puting out too much humidity now. I wil keep you al posted on my progress.
I hope I have not bored you with this detailed post. Keep your spirits up and Genlt Hugs from me. Richard in Tucson..
Deb 2/8/06
Hey Guys!
Went in and had a mammogram this morning. I was all prepared to go to the gym afterwards but I decided to come home and try to do my pilates tape instead. I really don't want to push so fast or hard that I throw myself into a flare up.
I think I am going to collect all of the pictures from the doctors of my guts, bones, boobs, etc and make a collage. I really think I have had xrays of everything except my head (I told them, no brain, no point in taking pictures trying to find one). I will make a self portrait out of all the pictures and hang it in my room. Don't know why, but that's what I feel like doing today.
Allison and Bernadette - I am hooked on Wife Swap and Trading Spouses too. Some of the swaps they make are pretty crazy. Vegetarian swaps with the people who kill crocidiles (sp) was a fight waiting to happen.
Bernadette - I personally would go for the regular sugar, but cut it down a tad. I've been trying to use cinnamon instead whenever I can. Not the same but it helps. It works pretty good on oatmeal and even in my tea. Of course you have to remember that I always have bad reactions to fake sugars so that is the main reason for my decision.
Dana - Welcome to the board. I too am fighting the fatigue. My doctor and I have worked and gotten the pain level down quite a bit but I still fight fatigue. The main thing we are working on now is trying to make sure that I can go to sleep and get a GOOD 8 hours. One of the problems we with fibro have is that our quality of sleep is not always so good. We have had many discussions on here about sleep and the consensus seems to be that getting a sleep study done is definitely worth doing. Ask your doctor to refer you to a sleep specialist and go from there. I personally have had one done and am going in for a second one now that I am on Fibro meds to see what has or has not changed. I am trying really hard to go to bed at the same time every night. I go to bed about an hour before I want to go to sleep in order to have some wind down time. On some nights, when I know I can definitely get 8 hours of sleep in, I take Lunesta, which is a sleeping pill. At this point I am planning on using the Lunesta to get my sleeping habits set up, then I am going to quit taking it altogether and see if having a habit set up will take care of some of the problem. I also have Restless Leg Syndrome so I may start taking Requip to deal with that, as it also interupts sleep. Hope this helps.
July - Talk to your pharmicist about your situation. I've heard that there is paperwork they can help you fill out that may help you get your medications at a reduced rate or possibly even free. Your doctor may also have that paperwork. The Montel Williams show also talks about something called Partnership for Prescription Assistance. The number is 1-888-4PPANOW if you want to check that out.
Bernadette Feb 8
Dana my heart goes out to you, what a tough situation. I deal with the fatigue too, it is pretty severe, and haven't found any real solution to take it away, just ways of coping with it better. One thing that does seem to help is if I can find a quiet time in the middle of the day for half an hour or so.Ideally, I take a small nap, but even just laying still in the dark or doing yoga stretches seems to help a lot. Is there somewhere in your office where you can just lay down for lunch in the dark and quiet? Maybe get a watch that the alarm goes off on in case you nod off? I really hope that your husband and daughter take care of the housework. Is hubby able to help at all with his disability? Could you look into getting government funded in home health aid for him? Are you letting go of perfect standards in house keeping (which seems to be part of the fibro acceptance plan)? Rest up as much as you can on weekends. Spend it sleeping and spending quality time with your family with something that doesn't require much energy like board games or movies.Please remember to take care of yourself if possible. Take vitamins, eat protein with every meal and see if your insurance covers massage therapy. Too bad your doc won't help further because there could be things other than fibro that you can tackle that are contributing to the fatigue. Mine checked my iron levels (I had anemia) and my cortisol levels (I was low in them too). Also, you should get your thyroid checked. I've been working on all of these and am better but still exhausted a lot though, so it just must be part of the fibro. Please continue to come around and keep us posted.
Jaime I just don't know what to do. You sound in such pain and I wish that I could help but I don't know what to tell you. Have you seen your rheumatologist yet? I don't know if fibro is the only thing you have because I have never been as far in pain as you often are. But, it could also be that you have a worse case of it than I do. I wonder if there is a big variation of fibro, some people having it mildly and others strong. I bet there is because I have seen stats that show people describing their pain on a level of 1-10 and also describing how much it interferes with their life and some being able to still work and somewhat function and others not. And some were highly funtional. I guess that there is a temptation when you are highly functional to look down on those who are not as not doing something right, and that isn't right.I hate it when people who supposedly have fibro that are doing better than I look down on me. I would say that I am somewhere in the middle with my fibro. My pain usually varies between a 3 and an 8. It is always with me, but sometimes it flares up. I am able to function at about 1/2 to 3/4 of what a "normal" person would do in a day. ALISON you're right, if I did "wife swap" the other person would have to get beat up every morning after having run a marathon to see what it is like.
JULY glad to hear that you are going back on the Cymbalta, I think it is definitely worth the money.>br>
Well I had pizza last night. My first wheat in several days and guess what-woke up with a sinus headache. So know I now for sure that I am allergic. Started the neurontin last night. Didn't notice any difference. Was warned not to stop abruptly because you'll go through withdrawals. I really hate the idea of being addicted to something but if it will take away the constant burning gnawing pain that I have it will be worth it. It is weird, the tramadol takes it from an 8 to a 5 and takes away the sharp stuff but the background ache and burning is always there. If someone asks you guys what fibro is like what do you tell them? I say that it is a neurological dysfunction that I see a rheumatologist for. I tell them it is chronic but not progressive and that it means constant muscle pain and fatigue. I'm always afraid when I tell people I have it that they have already heard about it and think it is a scam, especially my friends in the medical profession, isn't that ironic? Well, off to drive to school. THe other day instead of a snow day home from school they called an "ice day" people were slipping all over the place! Have a good day!
Deb 2/8/06
Dana - You might also ask your doctor to refer you to a Rheumatologist that works with Fibromyalgia patients (be sure to ask specifically about Fibromyalgia). They would be able to help you determine what medications you might need to be taking.
Kaysee 2/8
Hello everyone. I've been gone and taking care of my father. He had another "relapse" which I now associate with an injection they are giving him to boost red cell production. It's called Aranesp. The doctor told us it didn't really have any side effects. I researched and found that everthing my father is experiencing is a side effect of this shot that he receives every other week. Also, the half life can be up to 123 hours. Oh, I'm so angry. At the same time, I know he's in good company with all of us. How many times have we each experienced this problem? I think that being a FMS patient and experiencing all the associated problems makes us very empathetic caregivers. Maybe that's our blessing.
So, I'm happy to be back -- but I'm in very bad shape -- in a lot of pain and my asthma is full blown. I'm also sleep deprived. My father would yell and swear at the top of his lungs starting at 2:00 AM. He'd then sleep during the day when I was awake. I'm going to try so hard to not drive down to see my father for two weeks. Let's see if I can do it. Nice to chat with you all again.
Barb(Pa) 2/8/2006
Hi Everyone, Bernadette,my job is very demanding and stressful and when I finally get a break it catches up with me and I am in soooooooooo much pain. July,I don't know what kind of driving job you had,but I can assure you this one is NOT a piece of cake. We run long hard miles,fight idiot drivers and D.O.T. inspections,are sometimes forced to pee in a test cup(at any time the law requests it)throw heavy tarps,chains and binders and run in every kind of weather. I'll trade the computer with you for a week. :)
Richard,maybe your chest pain is coming from stress from the work you think you are not getting done on your house. You are a hard worker and I bet you stress easy when you can't get done what you feel you should.
We are sitting in Temple,Ga. right now,but will be loading in Birmingham,Al. for California in the morning,so it might be a couple of days before I get back. Take care of yourselves. Gentle hugs to all.
Dana 2/8/06
Thanks to everyone who replied to my introduction today.
Bernadette, you are so sweet and thoughtful I started to cry when I read your message.
I don't want to be a burden and complainer so let me just say that I work for a pharmacy and have about 6 years of pharmacy tech experience if you have questions that you need to ask-maybe I could help or ask the pharmacist that I work with.
As for taking meds, I take 80mg of prozac a day(thats max)and another medication for anxiety every night and then I also take something to help if I am going to be in a situation that makes me panic.
I only take minor pain relievers-nsaids like naproxen and Lodine which only take the edge off.
Well, its after 7 and time to go lay down and read. Thanks again for the welcome.
Jaime 2/9
Hi all, Wow it is so cold. The pain is just unrelenting. Slept a lot today, then again Jim is on overnights right now, so I'm trying to stay on the same schedule so we can spend time together. Heard that this weekend we may get snow, oh well, we've at least had a good warm winter so far. Trying to be positive. The dogs have been really clingy, and the cats don't want to be bothered with. My friends are helping to get the house cleaned. They got two of the rooms dealt with the other day, and it looks great. They should have their own business cleaning houses. Just trying to wind down and relax, pretty tired so I'll probably go to bed soon.
July, on February 9
BERNADETTE, I would go for the sugar over artificial too. I saw in this year’s seed catalogues (Thank you, LINDA C), that you can grow stevia to chop and throw into your cooking! I’m going to put some in my herb garden and try it. Let me know how you do on the Neurontin. DEB, Lunesta is just the BEST! A friend gave me some samples, but my rheumy will not prescribe it for me. Says it’s “habit forming.” Which I don’t understand; after two weeks of coming off the Cymbalta, NOTHING could be more of a habit than antidepressants! I did apply to Prescription Partnership and was denied for all 3 meds by 2 companies. Go figure! I agree, JAIME, I’d bet money there’s something more going on with you and I can’t wait until you see the rheumy. (I like that nickname, I don’t care what the dictionary says!) I’ve corresponded with lots of Fibro people and only seen one as bad off as you. She finally went on disability with a “non-specific sleep disorder” and got it first try. I know your mind isn’t ready for that, but your body seems to be. (She was lots better after disability went through; less stress, I think.)
Oh, KAYSEE, I hate this for you! Doctors! If we could just weed out the lower half of the class, you know? PLEASE rest all you can. BARB, I didn’t drive a truck, just a van, courier for banks and pharmaceuticals. It was a lot of lifting, but a lot of “in and out” of the vehicle, which helped. Plus cranking the music and not being hovered over by a boss. But I quit when I started getting too fatigued behind the wheel, and I’m glad I did, because the fog soon followed. I still think I’d like to drive your truck. Pick me up your next time through! LOL.
DANA, it sounds to me like you have an excellent regime. I can’t think of anything more helpful except aggressive rest therapy (ART), which no one who works can practice, and most who don’t can’t either! Thanks for offering to share your knowledge. We’ll take it! HUGS to all.
Kaysee 2/9
July -- I grew Stevia one year. It's very easy to grow. I didn't cook with it because I didn't know what to do with it. It is wonderfully sweet. I always thought it would be good in a fruit salad. Please let me know if you cook with it -- I'd love to hear about it.
Today, I'm wrestling with thinking about moving in with my father. I think this is the end. My first instinct is to run down there and give my life to him. A small part of me is very, very worried about myself. So, I'm going to give myself some time to think this over.
I wish everyone a happy day. It's amazing -- even in the midst of all this, I still laugh. It is the best medicine.
Doris/NC 02/09/06
Good morning all! Yes, I am still surviving down here in chilly NC. It's 34* this morning. I am sure that is not as bad as alot of other states right now.
Actually NC has had a fairly mild winter this year and not one snowflake I tell ya! We just don't get much snow down here so when we do ,we all go crazy of course! As soon as I see snow falling,I start making homemade soup. I just feel like they go together for some reason. Maybe it's just me. LOL.
I went to see my rheumy yesterday. He gave me 2 cortizone shots in my lower back for the pain I have been having in it. Also he upped my Lyrica dosage from 50mg twice daily to 75mg twice daily. He told me that the pain in my legs is mostly muscular and there is not alot that can be done for it. I am thinking "Just great!". Then he decides to check my trigger points on my neck and all over my back and EVERYWHERE he touched was PAINFUL and I told him."Dr.
Agha, you are killing me! and he said I am so sorry but I need to check your trigger points!." I think NOW my entire back and shoulder area is covered with trigger points, more than I had before. They are so sensitive to touch. He also told me my sleep pattern is not right and I should discuss it with my neurologist next month. Geez, so many problems we have to deal with daily.
Welcome Dana to the Wall. Jaime, so sorry honey that you have been in such pain lately. Kaysee, sorry to hear about all that is going on with you and that you have to struggle so with your dad. I know it's so hard at times. July,I pray you can find a way to get all the meds you need dear. Richard, YOU just need to slow down fella!!!! You better take care of yourself cause you have alot of medical things going on. We don't want anything to happen to you!!
As for me, I am just gonna do what I can, rest when I have to,go as long as I can go,and GIVE up ONLY when I can't fight anymore. But I am not expecting that to be anytime soon. I have 2 precious grandbabies I wanna see grow up!!!! So for now I am gonna go saying God bless each of you and May His love and grace watch over you all today and everyday!!!! Special hugs for everybody!!!!
Deb 2/9/06
Hey guys,
Didn't do so well on the diet yesterday but got up and went to the gym today. That's two days this week so far. I want to go again on Saturday. I'm wondering if I'm trying to do too much at once. I'm thinking about using this week as my reintroduction to the gym and cutting down on the Pepsi, then dumping the Pepsi completely next week while I start a food journal. Then start hardcore dieting the next week. Seems like it takes so much time to eat right, exercise, blah blah blah.
Kaysee, Is there anyone else that can help you at all? I know it has to be tough trying to figure out how to do everything you want to do for your dad without completely giving up your own health. My thoughts are with you.
Richard, Is your doctor going to send you to a dietician? Mine is sending me next week to get a pre-diabetes/hypoglycemia diet. My sugar levels are up but are still quite a ways from diabetes so the doctor would like to keep them from getting there.
July, The Lunesta is helping. I actually went to sleep last night without it and slept for a little over 7 hours all by myself. Felt halfway decent when I woke up this morning too. Found out the hard way last week that they are dead serious about that "don't take these unless you can dedicate a full 8 hours to sleep" thing. Bummer that your doctor won't prescribe them for you. Mine gave me 30 of them with no refill for now. I'm hoping to make them last at least 2 months on the routine I'm on with them. After that I'm hoping that it will just be an occasional thing. Who knows. Did you tell your doc that sleep is addictive too? Grin. I got turned down on that thing too. Did you do it online? If so, you can look at the information and if you are close maybe you can call them directly and see if you can talk them into it. There was one of them that I'm thinking about calling directly.
Dana, do you have any information on how the perscription help programs work or what things are available to those who are having a hard time paying for all of their medications?
Bernadette Feb 9
Kaysee I have a lot less experience with this than a lot of others on the Wall, but your Dad sounds almost abusive and I don't think it would be a very healthy situation for you to live with him. Where are your siblings to help you with this burden? It doesn't sound like he appreciates all you do for him so would it really help that much for you to be there all the time? Man, what a bummer situation! I'm glad to hear from you though, you disappeared for awhile there.
Dana I'd say make one lifestyle modification at a time. Otherwise you are setting yourself up to feel badly about yourself if you slip.Anyway, that is what I do. Change takes time and I think that maybe just working out for awhile would be good enough. I don't know about you, but I've always had better luck taking one thing at a time. And working out will make the biggest difference in the fibro too. Make sure to pace yourself when working out. Remember we have a delayed reaction to things, so we might feel great going for it in the moment, but it will come back to haunt us. Check how you feel the next day and if you are OK, then up the reps, or the time or whatever. I learned the hard way!!
July, on February 10
Good Morning! KAYSEE, I'm kinda with BERNADETTE on this. As I recall, your father is the reason you recently made the big move to Chicago, right? For some distance. But, again, if ever he dies, you in your heart will want to be content that you did everything you thought you should, both for him AND for YOU. You don't want to resent him afterwards either, if you crash hard and long. It's a tough one; listen to your heart. DEB, yes, I filled out applications for Prescription Partnership online, but then I had to print them out because they needed doctor's signature and license number, etc. So her office sent them in, and even called me a number of times about them.
I went and got some Cymbalta. It was just too miserable to be without; I missed having energy. I'm sure the budget will work itself out. HUGS to all.
Dana 2/10/06
Has anyone tried the website Needymeds.com for patient assistance programs? They list several different programs.
Also, your doctor almost always has access to some programs.
Hope everyone has a good day today!
Richard in Tucson 2/10/06
Good Friday Morning to you all,
Where is everyone, usually there are at least 10-15 posts since I last posted. I hope not everyone is in a flare @ the same time. Today I find myself with a little more time than usual on my hands, so I thought I would attempt a decent post. I miss you all, mylife as busy as I usually am, is @ times very lonely. I have very few friends, and they are working.
Today I have several bills to pay starting with my auto Insurance, don't quite know how to do this because money is so tight. I also have to get copies of blue prints for my structural engineer, for the Floor trusses that my deck is attached to. I have finally found someone to help me with this delema in my life. I hope you all are doing well & having less pain & fatigue. I am slowly getting to the point that I am getting better sleep thanks to my CPAP Machine.
I wish everyone here a wonderful pain free weekend. Gentle hugs, until I can post again, probably on Monday morning. From Richard in Tucson...
Richard in Tucson 2/10/06
Hi everyone I thought I would post again, seeing now that you are here, I don't know what happened one minute there were no posts than there were several.
Barb(Pa): You are probably right about the chest pain resulting from the un- finished work. I am trying to pace myself more. Thanks for your concern
Deb: My doctor has tried to set me up with dieticians before one problem was my insurance was only going to pay for just a small portion, I could not afford it.I know what I have to do I have reseached alot on the subjuct of diet for Fibro. my main problem is willpower. I am going to make my best effort to cut sugars out of my diet as hard as it is going to be, I have know other choice. Thank you too for your concern, I wish you the best in your diet.
I again wish everyone a pain free weekend, Gentle Hugs, talk to you soon
Richard in Tucson...
Kaysee 2/10
Hello everyone. Thanks for your input -- I really, really appreciate it. JULY -- I moved to Chicago so I wouldn't have to drive. I need to go back to work -- in Chicago, there's plenty of work and I can take public transporation.
I have one sister. My dad lives on her farm (separate house). When I'm there, she basically leaves us alone. I've asked for help when it comes to getting him to the bathroom, but I can't get a hold of anyone when I need them. My nephew and brother-in-law are out farming and don't have cell phones. When I explain my situation, they respond, "Just do your best". I'm starting to develop some resentment. My sister works during the day and has plenty of night activities -- for example, she bowls on Thursday evenings. She'll pop in for five minutes here and there. I need help, though, on demand -- not when they have the time. They seem to think that this is all temporary even thought we are in week 10 with having to help my father stand or even sit up. Some days he's better and can get up -- some days he can't.
I'm in trouble. The last time I was there for five days. He didn't let me sleep through one night. I was so exhausted when I left that I was hoping someone would run into my car so I wouldn't be able to go back.
While at my father's, I can't post or even call anyone. I'm cut off from the outside world. Yesterday, I wanted to run down there, but made myself stay in Chicago.
Sorry for this morbid post....but it is honest.
Bernadette Feb 10
Kaysee have you looked into in home health care or putting him in a home? It sounds like it is time. Recently my family got together and moved my grandma into a home. It felt bad at the time, but everyone still visits her and she is OK now. She needed to be somewhere where there was trained care. Everyone pools together to help pay for it. Just because you are not willing to sacrifice your entire life to be yelled at by your frustrated invalid father doesn't mean you are not a good daughter and you don't love him. It sounds like you feel guilty about attending to your own needs. You are a human being. Not super woman. You have limitations of how much you can give and that is OK. Gosh it sounds like you are dealing with alot of guilt and shame about this. If you do decide to take care of him, I think you need to provide for your own needs at the same time. Schedule time out for yourself. Find a way to hook up on line, or join a local gym or something. Sis is going bowling-you find something too. We are no good to others if we are burned out ourselves. I still think that finding a home for him is a better option, especially if you continue to visit him regularly.
My last post when I said Dana and talked about fitness, I meant Deb. Sorry, fibro fog! Do y'all think I should email Linda and ask her to come back, or leave well enough alone?
ladonna 02102006
I would like to talk with others who suffer from fibromyalgia and the treatments they have found to be benificial
Jaime 2/11/06
Hey ya'll,
Been a rough week, now a snowstorm. Yikes, hate snow. My friends are over with their kids, helping us get the house cleaned up. I don't know what I would do without them. They are so special to me. From what we heard we supposed to get anywhere from 8- 15 inches of snow. Needless to say I hurt all over my body. My left arm is a mess from all the IVs I have had to get with going to the ER, been there 3 times in the last week. I'm so tired of being in so much pain.
July, on February 11
Welcome, LADONNA, you've come to the right place! You'll find lots of helpful info by reading the posts and the archives, but ask if you have questions. KAYSEE, I just feel so bad for you. Hired care sounds like the solution to me. After all, what would your sister and her family do if you weren't available? If you moved to Chicago to work, aren't you supposed to be working like they are? Maybe you could present that to them? Because I agree with everything BERNADETTE said. The snow here is so beautiful, it's absolutely worth feeling like all my bones are going to crack! We took lots of pictures; I'll try to download them. It feels like we're hundreds of miles away from everyone and everything, and I love it.
BERNADETTE, I really don't think LINDA would come back. I e-mail her every day. She's not mad, I think just staying "out of the way." For the record, I understand that she and JAIME correspond frequently too, so that came out well. HUGS to all.