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Discussion Wall Archives, ending February 17, 2006
Doris/NC 02/12/06
Hi everyone. Just wanted to check in today. Yesterday was so rainy and dreary here in NC. But we had errands to run anyway. Got them all done finally. Then we came home and stayed for the rest of the day. My nephew is spending the weekend with us. He is 7 and loves to play games on my computer...lol. Did I miss something about Linda? Why is she not on here anymore? I think I missed out on that somewhere or other. Just so much going on here I guess. My back is still bothering me so I think maybe it is the kidney stones but I am not so sure at all anymore. I just know that it's mostly on the right side which is where the stones are located. Got to see baby Jayden last night....he was awake some finally. Hopefully granddaughter Autumn will be over today for abit. Oh she is getting to be quite a little handful. LOL. Well, hope you all have a warm and safe Sunday. Tender hugs and smiles to all.
Sherri 2/12/06
Cher - Feb. 12, 2006
I am new here, but definitely not new to Fibromyalgia and CFS. I am only 37 and I've had it all for 18 years.
I've been through every drug therapy known (or so it feels).
I have no 'support team'though.
My husband tries to understand but in reality, it's hard for him and I know he's frustrated. But he's a good guy. No complaints.
I've got two beautiful daughters (12 and 14). The oldest is exibiting some signs of Fibro but I just pray it is those teen 'growing pains'.
I am currently taking Tramadol and Fioricet PRN. I'll be starting Lyrica this week too. Has anybody out there ever tried Tramadol and/or Lyrica?
I'm looking forward to hearing from you guys.
It's always nice to know you're not alone.
Thanks &
Blessings!
Doris/NC 2/13/06
Hi all. Welcome Ladonna and Sherri. Yes Sherri I am on Lyrica 75 mg twice daily now. I was on 50 mg twice daily but my rheumy dr. just increased it last week. He precribed it mainly for my restless aching legs but I think for the fibro also. It helps some. I've had fibro for around 4 years that I know for sure but probably longer. I worked along time with pain. Now I don't work BUT still have lots of pain........so no money but yes pain. Not a good story for sure. But I manage to get by somehow. We all do the best we can from day to day. Well just wanted to welcome the newbies so take care all and God bless for now.
Sherri 2/23/06
Thanks for welcoming me. And for the Lyrica info.
I am going to start taking it tonight. I think it supposedly makes you
sleepy when you first start taking it. Is that right?
I stopped working full time 12 years ago when I had my second child.
BUT - as all mothers out there know, when you are at home with your kids, you ARE working!
About a year and a half ago I started working again (only part time)
at the library where I live. We need the extra money. Mostly for meds.
I only go in about three times per week and then it is always in the afternoon (I can not do much in the mornings).
I only do 4 hour shifts at a time. They really work with me there. Nice people.
It's still difficult on certain days to get myself in there to work, but
I've only had to call in a few times because of the Fibro.
Sometimes I've noticed that just going to work relieves some of the
brain fog. Almost like I have to force myself to be as clear-headed as possible.
Can anyone else relate?
Good bye for now.
God bless us everyone!
Sherri 2/13/06
I forgot to ask - does anyone else have consistent low white blood cell counts?
2/13/06 Barb(Pa)
Hi FMily, Well we did our delivery here in California this morning and are sitting right outside Stockton waiting for a load home. July,if you still think you can handle this job,come on and give it a try :) . You said you had to lift on your van job,well I do too. Our tarps weigh around 65 pounds each and the chains about 45 pounds. Ya have to throw 30 foot straps over the loads(some 13 fet high) and winch them down with a 5 pound bar. You drive 10 hours a day and can take no pain meds. But we keep the store shelves filled.
Welcome Ladonna and Sherri,so nice to have you join us. There is a welth of information and support here.
Richard,sounds like your project is moving along again,hope it all works out.
Well gotta run,been a long day already. Gentle hugs to everyone.
Richard in Tucson Feb. 13, 06
Hi everyone; I don't know what is happening lately before I post no-one is here posting, than after I post you read all the posts from the last couple of day. Here goes. I hope I find where you all are hidding. I miss you all. Gentle hugs from Richard in Tucson..
Richard in Tucson 2/13/06
Hi all I was glad to see you are here. I don't know if this is happening to anybody else or is it just me. I see no new posts until after I post. Maybe it is my server. Any-how. I just wanted to stop by and just let you know how I feel. My life is more messed up than ever, I feel like I am on the roller coaster from hell. I can never seem to get a head. I have so much unfinished business in my life, that I can not do. I want to get off this ride. I am so tired. Let me give you a little example. I have been trying to find an engineer for the past three weeks, I finnally find one that will take my project, and he dosn't live in Tucson, he lives in Prescott. He has asked me to send, hime pictures of my Deck project , wich I have via e-mail. I have sent them five times, and each time there has been a problem with him recieving them. The last atempt I woked on it for an hour, and I got an e-mail form his server saying it couldn't be dilvered due to his mail box is full. I have just called him and left him a message to retun me call. I get knowwhere with this. I am sorry for giving this negative stuff. But I don't know who else to talk to. This is just one example of my life talk to you soon. Gentle hugs Richard...
July, on February 13
SHERRI, welcome to the Wall. I have been taking Tramdol for the pain for about a year now. It works well for me, but everyone has to find their magical pill. Nothing else really works for me; I hope you do as well on it. BARB, I guess I'll just take advantage of the shelves you stock and go shopping rather than drive your truck. I would have joined you back when I was driving, but I'm not doing as well lately! I hope you get some rest soon. HUGS to all.
Bernadette Feb 13
Hi everyone. I am going to go on vacation for a couple of weeks. I hope that the Wall picks up again while I am gone. Take care everyone and welcome to the new folks.
July, on February 14
BERNADETTE must be on her way to Florida! Have fun! There is an advantage, this time of year, to having Fibro. I watch the Olympics as late as I can, sleep fitfully for a few hours, then get up and turn on the replay. I can usually catch it right about where I left off! I love seeing people overcome, and even though the U.S. didn't do well at Pairs Skating, I was delighted to see the Russian couple overcome such a horrible fall and injury (and subsequent fear) a couple of years ago to skate again and take the gold. And the Chinese silver winners had a stunning fall during their skate, but were allowed to start again where he dropped her from a throw. It just does my heart good to see that kind of courage, and if I slept like a normal person, I would have missed it!
HAPPY VALENTINE'S DAY TO EVERYONE! And HUGS to all.
Richard in Tucson February 14, 2006
"Happy Valentines Day" I hope you all are having a wonderful day.
I have better news than I had Yesterday. I have found a Structural Engineer here near my home and he is coming over my house tomorrow to start on this project that I have put on hold for four weeks. I will keep you posted. What a relief to have this worry behind me. I hope you all are doing well I have to go now and get some work done. Take care, Gentle Hugs from Richard in Tucson.... 
Ellen - Alabama - 2 - 14 - 06
Hey All! HAPPY VALENTINES! I hope everyone is doing ok today. Welcome to the newbies. Richard I know how you feel. I have tried to get someone to come and work on my french doors, 3 guys have showed up but none has called back. I have called at least 6 and they call and say they are going to show up but they don't. It makes me so mad. In our local paper it always says shop in our town and give our locals your business. They don't just mean the businesses, they also mention the people who contract, ect.. Well, what are you suppose to do when you call and they won't show up. You have to go out of town. I have been trying since last summer. My husband has almost given up to do it hisself but he will have to take a couple of days off to do it because he has been working 7 days a week. He doesn't have alot of patience when it comes to working around the house either. Let's just say the nieghbors know when he is working on something around here. LOL... So to save him alot of stress and me too, I have tried to get someone else to do the work. I know what yall mean about the snow storm. We got a couple of inches here too and it was really cold and wet. It was the first snow we have had all year so it was a real big deal here. I think that is the most we have had in a couple of years. Well, yall take care. Big hugs.
Richard in Tucson February 14, 2006
Hi again I hope you all are having a great day, just stopping in again to read the posts. Richard in Tucson
cindysue
I am having trouble accepting the fibro/cfs diagnosis. I still feel there is no way something can be this awful with little medical understanding or input. Thanks to the WONDERFUL people on the wall, I don't expect coworkers and such to care and understand. I have clearly realized it's hard enough for ourselves and our loved ones to understand it, let alone mere acquaintances. It has affected every life around me. It is not out of my mind for one minute cause I always feel it. It is not supposed to be progressive but it is for me. I am much worse than I was 1 year ago. I have a kind Dr. and he called tonight. We are going to another Rheumy to see what he thinks. He is raising my cymbalta to 90mgs. How do you all feel about tramadol? I thought it was a sugar pill as I felt no relief? I am not a negative person, I just feel like every time I sleep and wake that someone has beaten me. I am thankful for so many things every single day. I just need to keep my eye on those things and not let the rest consume. If anyone has any effective solutions please share. For the record I was diagnosed, so to speak, 3 years ago and I continue to work 2 jobs everyday. I ask God often to relieve us from our pain and all that has come from it. Stay warm and sleep well. It's comforting to know that people we don't know truly care!
Barb(Pa) 2/14/06
HAPPY VALENTINES DAY !!!! On the move again here,left Stockton and am at a truckstop 72 miles from L.A. waiting to load home. Richard that is great news,I bet that helps your sress level.
July,you still would have needed a CDL with air brake endorsement to drive my truck,so I guess you are better off doing the shopping end of it. :)
Its late here and I'm off to bed,welcome to all newbies and warm gentle hugs to everyone.
Sherri 2/14/06
Hi Cindy
Regarding the Tramadol, it has been the only thing to help me a lot. What strenght were you on?
I have to take 100mg.(two 50mg pills) EVERY four hours to get the benefit.
Your doc may have instructed one 50mg pill and that is why you didn't feel anything.
I have taken it for over two years now though and I find that I HAVE to have 100mg every four hours throughout the day.
But it helps me.
Hi EVERYONE -
I took the Lyrica for the first time yesterday. One 50mg in the afternoon and another 50mg in the PM and it totally knocked me out!
I felt like crap all today. Like a hangover only worse.
The bummer is that I actually felt like it was maybe working a little bit on the pain the night I was on it.
But if it leaves me feeling like I'm in la-la land all the next day, I can't keep taking it.
I didn't take it today because I have to go to work tomorrow.
PLEASE someone give me feedback. Should I just forget about the Lyrica? Or would it be worth it to stick with it?
any thoughts from anyone?
Thank you all.
Blessings!
July, on February 15
SHERRI, if you think back to when you first went on the Tramadol, it probably made you loopy, right? You just got used to it. Give the Lyrica a chance, some time. I don't think you can really tell if something like that (or Neurontin, or Cymbalta, etc.) is working until it builds up in your system. CINDYSUE, SHERRI is right about the doseage, but Tramadol just might not be your "thing." Sometimes you have to try a few to find the one that works for you. Tramadol works for me; Vicodin does nothing. If you really want relief from your pain, quit one job. (I realize, that might not be possible, but it's still the truth.) Then, if you want more relief, quit the other one. I got laid off in December (even though I was only working part time) and my pain levels are way down. Of course, lying still (sleeping at night) causes a lot of pain too, so you wake up feeling bruised. It takes a while in the morning to work lose and let the pain recede. Then you go to work and cause more hurt! That's the story for most of us. It isn't progressive, but you're pounding yourself into the ground, Fibrowise. Very simple solutions, but not always easy to attain. I'm looking for another job right now, pain notwithstanding. Isn't JAIME's Rheumy appointment coming up this week or so?? Yea! And BARB, I'll just wave when you come through! LOL. HUGS to all.
Doris/NC 2/15/06
Hello everybody! Happy Birthday to Lisa and Bonbonshortnsweet wherever you two may be!!!! Hope you have a great birthday today!!!!! Happy Late Valentines Day to all. I am feeling ok EXCEPT my back which always seems to hurt. Sherri, the Lyrica didn't affect me like it did you but we all are different. It doesn't make me all that sleepy or dragged all out the next day. Maybe you only need one a day. Or maybe it's just too strong for you. I am one of those people that it takes alot to put me out and alot to stop my pain so maybe that is why it affects me so differently. I am off this morning to see my "shrink" for my anxiety/depression disorders which have gotten worse in the last couple of months. So I had to increase my meds for that. Guess I will never get off them.
I have now come to the conclusion that my past marriage and my old job brought on these disorders over time. They were both causing me alot of stress and unhappiness on a daily basis for many years. And it all built up inside me and I never released it. Plus the fact I was sick alot during that time and trying to work all I could. Finally one day it all came crashing down on me and now I am not the person I used to be and I can't handle things like I once could. I do believe that stress can really mess a person up. But,we do go on as best we can day to day. Take care my friends and have a truly wonderful day. May God bless you all. Hugs and warm thoughts to each of you today.
Richard in Tucson February 15, 06
Good Wednesday Morning to all
"HAPPY BIRTHDAY TO LISA A. & BONBONSHORTNSWEET"
I hope you two have a wonderful "B" -day, The same to anyone else with a birthday today. Richard in Tucson....
Dee ~*~ Wednesday February 15
Happy Late Birthday to Deb on Feb. 13th. I recieved the notice too late to get it posted with the others but I bet you had your birthday anyway, huh? Next year it will be there.
Happy Birthday to BonBon and Lisa. Where are you two at? Hope you are still reading and would love to have you post again.
Jamie, it sounds to me like you are in a major flare and no telling how long it will last. The good news is, it will let up. In fact, it will let up to the point of making you wonder how bad it really was. My thoughts are with you as I know what you are feeling. I'm so sorry it's like it is but that's FMS.
Welcome to all the Newbies.
Barb: I'll be another one that just waves at you as you go by. I just don't know how you do it.
Happy Late Valentine's Day to all. Hugs and loves from Kansas.
Dee 
Doris 2/15/06
Here I am on again...wow twice in one day! Happy early Birthday to Maggie tomorrow in case I don't post. Hey to Richard and a warm hug to you cause you seem to have so much going on that I think you could use one....(((Richard)))!!
Also (((((Jaime))) you are on my mind alot these days, hang in there lady!!!!
Well I went for my visit to see my "shrink" and I told her how I am depressed alot and feeling down so she stopped the Lexapro and started me on Cymbalta, 60 mgs 1 daily. I think it is supposed to help with pain and depression.....am I right? I know several of you take it. Is it a good medicine? Guess I will be finding out how it works for me soon. Am sure it does different for everyone.
I just stay so exhausted and I keep getting up early between 3-5 am everyday and then I fall asleep in my recliner everynight around 7:30 or so. My sleep pattern is really messed up and I told the lady that today. My entire system is so messed up. Nothing seems to be on track anymore. Gotta figure out how to get back in order again. I am really,really tired. Can't seem to get rested enough.
Maybe this new med will help,who knows? Ok, take care all. Hugs to everyone.
Richard in Tucson February 15, 2006
Good Afternoon Everyone Welcome to the newbies; I have wondered if the format of the wall has changed, if it has that would explain the trouble I am having.
I liked it better when you could read the posts, than post myself, the way it is presently I don't know what people have had to say before I post, It is just to confussing for me. I love coming to the wall but lately it causes too much strees just to keep up with you all. I am not a lurker, so please try to make it like it was. Talk to you soon Richard in Tucson.... 
Dee ~*~ Wednesday February 15
Richard...nothing has really changed with regards to posting on the Wall. If you don't have current posts to read until after you post...try to REFRESH your page when the Wall first opens. If you save this web-site to FAVORITES and open it through Favorites, it will open at the place it was the LAST TIME you were here. REFRESH (F5 on your keyboard) will update it to the CURRENT posts.
Did any of that make any sense? I do hope so. 
Jaime 2/15
Hi everyone, Went to the new rheumy today, not only do I have horrific Fibro, all 18 trigger points were flaring. But I also have psorisis, and psoristic arthritis. I go to the dermotologist on Monday,and have to get blood work and Xrays of my back and hands. Needless to say I'm scared to death. The doc said that psoristic arthritis can be crippling. He also stated that between the fibro and arthritis I am very near debilated.
Due to the severe agonizing pain he gave me a script for stronger percocet until he gets the results and we decide on treatment plans. He told me if the pain meds don't work and I need to go to the ER to just let them know what I have and that he's taking care of me. He is a wonderful doctor. Everywhere he touched hurt. The office staff said normally it takes 3-4 months to get into the dermotologists office, but they are getting me in on Monday! That is how worried my doc is!
Heard we're to get at least 4 inches of snow on Saturday, and a bigger storm on Tuesday. Yikes, I hate snow.
July, on February 16
JAIME, I CAN'T TELL YOU HOW GLAD I AM YOU FOUND A GOOD DOCTOR! I KNEW there was something more going on with you than just Fibro; you were in too much pain. I'm so sorry that it sounds so serious, but I'm so relieved that you found someone to treat you properly. It WILL help a lot at the ER to have this diagnosis and your doctor's name. And now you and your hubby can research and learn all that can be done to help you. AND another doctor on Monday. I'M SO GLAD! HUGS, July
Doris 2/16/06
Hey all. Jaime,finally you have some answers! I agree with July that you have found a good dr. BUT am sorry to hear how serious your problems are. My thoughts and prayers are with you as I know you have been in so much pain lately! I hope you can soon get some relief my dear friend! As for me, my back and now my stomach are really flaring up today! I am on Zelnorm for IBS BUT it can affect the liver so am wondering if that is happening to me cause it did start to bother me the last time I took it. BUT if I go off the Zelnorm, I suffer so from the IBS unless the dr. has something in place of the Zelnorm I can take. Gee, we always have to sacrifice something, don't we? Living with depression is bad enough plus fighting all these physical ailments on a daily basis. Somedays it's just so hard cause I want to feel "NORMAL" again! But I won't go there cause I know I must accept my problems and live with them and take things one day at a time. So God bless you all and take care. Will post again soon. Hope Bernadette is having a blast in Fla.!!!!
Richard in Tucson February 16, 2006
Good Thursday Morning to you all.
"Happy Birthday Maggie"
I don't have much time to post today as I am heading out the door to do some maintenace Items at my parent's Daycare business. I have to be back to pick up Nicole today by 2:15pm & I have to drive over an hour round trip. I just wanted to report that I finnally got the Engineer to come over yesterday and Start on my Deck plans, I'm so relieved. Thak you for the special hugs Doris. I will try to post tomorrow. We are Going to Mexico this weekend so I won't be able to post again until Monday or Tuesday. Gentle Hugs from Richard in Tucson....
Diana 2/16/06
Hello everyone! I haven't posted in a long time and I've been feeling rather guilty about my previous posts. I tend to open my mouth (fingers) too much and I feel as if I may have offended some people by sticking my nose & opinion in too much. So I have decided to hopefully just tell stories and keep my opinion to myself. I'm truly sorry if I did offend anyone.
I've had terrible low back pain for 2 weeks now. It started when I got my period so I figured maybe the fibro was making it feel so bad but when my period stopped the pain continued. I finally made it to the dr's yesterday, he feels it may be related to constipation. Has anyone else experienced this? I am not a regular kind of person so he wants me to take metamucil & mineral oil. I took the oil at bedtime as recommended- oooo yuk!! It is odorless & tasteless they say but it's still slimmy to swallow! The doc also said my hamstring on the right is tight & a ligament from the spine to the back upper pelvis is strained which causes the pain as well.
I started taking lexapro, lyrica & provigil each about a week apart. I haven't had any weight gain & this mixture has lessended my fibro pain immensely! Some people have told me that these meds work well at the start but tapper off with continued use.
Has anyone ever had their legs waxed? No I'm not asking for Richard's opinion! I was just thinking boy do long leg hairs hurt in bed! So I thought briefly about getting my legs waxed to avoid the endless nubby syndrome but the thought of having multiple hairs yanked out at once sounds extremely painful!!!
Well, everyone have a great day our Lord has made! Spring is right around the corner! God bless us everyone!
Jaime 2/16
Hi all, Welcome newbies, and Happy birthday to all the birthday girls and boys. LOL. I was so scared as the rhemy was finding all the problems of the psorisis. As he went through the exam I started to freak out thinking oh my is this something like lupus. My aunt has both fibro and lupus. So I was so scared that it was lupus. But when he told me that it wasn't lupus but something else then I got more scared wondering what I was facing. I have found 3 books about Psoritic Arthritis. Also went to the arthritis website and found a few more books about fibro but none on Psoritic Arthritis.
I got to crying both due to pain and being so scared dealing with this disease. Why does this have to happen? What have I done to end up in such pain like this? Will I be able to continue being an EMT?
Thankfully though at least like you all said I do now know why I am in so much agony, and that it's not all fibro. It does give me relief to know what I am up against, but I am also so scared.
Sorry so long.
Katielady 2/17/06
Hello FM'ily-Gosh, I haven't posted in ages! I have been reading though.
Jaime-I am glad that you got some answers, sorry that the news wasn't better. I remember feeling so devastated when I got all my ailments diagnosed. My husband told me that I was that same person that day as I was the day before. You are too! Keep that in mind. It is unfair that some people have more burdens to bear than others, but the Jaime that is you is still there. I hope that now that you have a diagnosis and blood work planned you can start getting the proper meds and feeling more in control of your life.
Doris-Sorry you are having such a bad day. I woke up this morning feeling like I had "fibro flu", but I just couldn't have it today b/c of the days events and fortunately it seemed to pass.
Diana-When I was diagnosed with Irritable Bowel, my GI doc had me use sugar free citrucel 2x a day, Milk of Magnesia at night, along with Colace. Also he said using generic was fine. That was helpful. The Milk of Magnesia is gross, but has to be better than mineral oil.
We are having such wonderful spring like weather today. Still have snow on the ground too!
Hope everyone is having a good day. Hugs, Katie
cindy sue
Thanks SHERI and JULY for your replies on Tramadol and work. I was prescribed 50 mg 1 or 2 pills every 6 hours as needed. I have not followed that cause it causes drowsiness and we all have way too much of that already. One of my jobs is school bus driving. I have only been confident to take this on the weekends or at night for fear it will make me too drowsy. My doctor knows my jobs but I'm not always sure he is real up on the side affects of things. SHERI, do you get any side affects from taking Tramadol regularly?
Sherri 2/16/06
Hi CindySue -
When I first started the Tramadol I did feel a little bit 'fuzzy' when I took two at a time.
That doesn't happen anymore though. The feeling usually lasted about an hour
and then just the relief would kick in.
It's nothing like the 'fuzzy', doped feeling like the first time you ever
have Vicodin or any of the Opiate drugs. More of just a 'strange'
feeling. But not 'drugged'.
Then, there's always the possibility of constipation that comes along with taking any pain meds. \
It never really bothered me in that way though. And,I do get very thirsty when I take it.
Since you have the kind of job that you have (driving a school bus) you're smart
to just ease into it.
Here's my suggestion - do what you want with it - my feelings won't be hurt!
#1 - Just take half of one of the 50mg tabs in the morning. #2 - Then in the afternoon, take one whole tab.
#3 - Then when you're done driving for the day, in the evening take two whole tabs.
Try that for a few days and see how you do. Taking just a half before work probably won't bother you at all-
But, like I said before, it works best when it is in your body continually and has a chance to build up over the course of the day.
You'll have the most relief in the evening of course, but whatever relief we can get we'll take - right?!
After you've done that dosing schedule for a week or two or whatever, you will have adjusted to the medication and
you may be able to tollerate taking a whole one in the A.M.and eventually two during the day
without any side effects that would be compromising for you while driving the bus.
How does that sound to you? Do you understand what I'm saying or did I totally confuse you?
Does anyone else have any thoughts on my idea?
By the way, I was just wondering, since I'm new to the wall, do you guys all know each other personally or met each other before?
You all just seems so close-knit. Am I missing out on something, or is it
just that we all share so many of the same difficulties?
How long have you all been posting here ? ? ? I'm curious.
Blessings to everyone!!!!!!!Good night.
Sher
Doris 2/17/06
Good Friday morning to all! Sherri, I have never met anyone here in person BUT yet I feel like they are my personal and close friends cause they understand what we all are going thru. We all have alot of the same problems and take alot of the same meds so we share and compare notes and feelings for the day. It's like having a close girlfriend to confide in BUT here you have alot of them plus we have Richard too,he is a bonus...lol.
Hey,I got great news yesterday!!!! I got a call from a lady from
Congressman Bob Etheridge's office and she has been following my disability case. She told me that my hearing is scheduled for April! Woooohoooooo! Thank the Lord! I have been waiting 3 long years!!!!! Right after that, my lawyer's office called and told me also. They called me 3 times in fact to talk to me about some things. The last time, they told me the hearing was set for April 18!
I am so excited BUT so nervous too. She told me I had one of the good judges too. Hope that means all goes well. Please keep me in your prayers all that this goes thru for me. I been waiting for such a long time and it's been hard.
Going later to get some meds filled and go see Mama awhile. Then on the way back,I am gonna pick up a few things at the grocery store. It's gonna be in the 60's today with some rain showers on and off. But tomorrow is supposed to be colder like in the 40's......brrrrrr. So thought I would do my errands today. Take care all and have a blessed day. Hugs to you all. Hope you all are feeling less pain. Keep your chin up and keep smiling!!!!!
July, on February 17
DIANA, welcome back. We're a very forgiving bunch, and what we don't forgive, we've forgotten! LOL. CINDYSUE, I like SHERRI's idea with the Tramadol schedule. I get loopy if I take two, but not if I only take one. You will get used to it in a week or two and be able to take a whole one. I do, AS SOON as I wake up! My doc only gave me enough to take 3 a day, but if I have enough to take one every 4 hours, it helps a lot more. Though not working is the best pain relief I've ever had. I have to keep myself moving so I don't get achy from "underactivity." (Is that a word?) JAIME, hang in there. Your doctor will find treatment specifically for you and you won't hurt so much. I consider your arthritis just like the Fibro: It came because you've had a very traumatic life. Our poor bodies have been through way more than they should have to take. But you're going to treat it very well now, and it will respond! HUGS to all.
Barb(Pa) 2/17/06
Hi FMily, Still sitting in the mountains of California but heading for the valley today since the forscast is calling for up to a foot of snow here.It has been in the 20's at night,40's during the day and I have been suffering with alot of pain up here,I guess its because of the altitude. Welcome to the newbies and welcome back to those who tok a break from us.
Doris,that is great news about your court date....BEST of LUCK to you!
Richard,try to stay calm,everything will work out...maybe not as fast as you would like,but it will be great in the end.
Sherri,I have met some wonderful people from here at the wall and even though some do not post here any longer I have remained friends with them. I have a job that allows me to get to all areas of the country so it makes it easier for me to meet FMily members.
Gotta get a shower and pack up the truck to end down he mountain,gentle hugs to everyone. Have a great weekend!!!
Diana 2/17/06
Good morning everyone!
Katielady- thanks for the imput. I'm suppose to take 30cc's of mineral oil at night until I see oil in the toilet, then I can cut back to 15cc's. The second 15cc's is the killer, I can tolerate one "shot" of the stuff but the second time my mouth wants to say no way Jose! I've also added prune juice daily, I happen to love that juice because my mom used to give it to us, so it's kind of a treat- boy is that messed up!
Doris- I've gotten my first regection for disability & filed my reconsideration. I initially filed in Aug. 05. I hope it doesn't take me 3 years as yours did. I will pray for your April hearing that all goes well!
July- Your comment really gave me a good chuckle! All you guys are so kind!
Sherrie- I've only been posting for a few months now. I can't imagine life without all the wonderful people who contribute. I've never met anyone personally but wouldn't it be neat if we could all get together for a fibro party! I live in New Jersey and I was just diagnosed in Nov. 05 after a series of injurues to my neck.
It's very windy today with a few sprinkles here & there. Temp. is suppose to be in the upper 50's! All our snow has melted from last weekend. We were visiting my in-laws in Delaware & returned home Sunday night. I was wearing a long jean skirt on the way home & on my way from the van to the house I lost my balance & sat right in the snow!!!! OOOO that was a chilling experience! It took me awhile to get up because I was laughing so hard!
Ok I gotta' go try & get something done around the house. Love & prayers to everyone!
Richard in Tucson February 17, 2006
Good Friday Morning or TGIF; I am going to have to make thgis short both because of time limits & that the wall needs trimming.
Thank you Barb Pa); For your understanding & inspiration. Doris; congrats on your Disability hearing, thanks for thinking of me as a bonus, I feel good knowing that I fit in here. Today I go to the Home Owners Associatiion to turn in my Application & Drawings for my Deck project. I am also trying to get packed & ready to go to Mexico, we leave this Afternoon.
I wish you all the best of pain free days & nights, have a relaxing weekend. Enjoy your life, be glad you have one, as painfull as it is. I hope to be able to post on Monday sometime. Until then GENTLE HUGGIES & Best Wishes to all. Love Richard in Tucson.....
celeste
Hi my name is celeste I have fibro for 3o4 years thanks to a fall on my head and neck i have been reading your postings and see all the meds that some of you take i cant help feeling a bit too overmed compared to some and i wonder why maybe if that is why i sleep all the time.
Lisa 2/17/06
Hi everybody. I hope its a good day for everyone. I havent posted in ages, sorry. Its been an "up and down" last few months. I have gained 30 pounds since my Fibro diagnosis last fall. I cant seem to get any of it off since I get tired so easily. Current Med's - Citrucel for constipation, Norco for pain, Xanax for Anxiety , Deseryl for depression and insomnia.
Newest problem - Long QT syndrome. Med for that now is a beta blocker.
Boy, I never thought I'd be in such poor condition at 42! I am coming to grips with the fact I cannot do all the things I used to. But It sure is hard at times. The family got tired of hearing any complaints. So, I don't say anything anymore.
I go to counseling every two weeks for support. I does help me out with the depression. I am still not working and am starting to wonder about my future.
Well, thats enough of me. Have a mild Fibro day!
Cindy Sue
SHERRI Thanks for the info on tramadol. I think I will try it although I have capsules and not pills that can be cut. I'll play around with it as I have a week off at the end of Mar. JULY I would love to be done working but it's simply not an option and I get very negative feedback about disability and I am clueless as to what that all involves. Anyone have any good info?