Dee ~~~Thursday March 01, 2007
Hello Everyone....for those of you who don't know me, I'm an oldie here at the Wall and do my best along with 4 other ladies to keep this place in working condition.
I come here a couple times a week to read and see how things are going and check out the Newbies and their stories. We have some of the most dedicated Wallabies on this web site. I just sit back and am amazed at how you all support each other and how you have made it possible for newly diagnosed FMS'ers to feel totally accepted and understood. Give yourselves a pat on the back, you're truely caring souls.
Well, I'll keep it short and sweet....just wanted to check in and let you all know that the "Ladies Behind The Wall" are still alive and kicking. Some of us are still recovering from other things and some of us are giving it the good fight, but we're still here.
We truely appreciate and love you all.....Dee
Lee Ann/MI 03/01/07
Hi, everyone! It sure has been a gloomy day but I have to say it kind of matches my mood today. With all of the drastic weather changes I have been in a lot of pain and feel very fatigued so I am trying to stay quiet. After reading the postings for the last two days I felt I had to respond. WELCOME, to the newbies. POIMAE--it is good that you found this site and I am sure that Richard will be happy to have another gentlemen posting. I am so sorry to hear of your troubles and wish that we all had an answer to your pain and suffering. Unfortunately, we can only hold each other up and try to ease the burden of having this horrible disease. Please come back and chat with us again, I am really interested in hearing from another point of view what you have experienced. DEE--oh, boy, is it ever good to hear from you. How are you doing, girl? My thoughts and prayers have been with you. If possible, please come back and chat with us. RICHARD--I was glad to see that you are slowing down a little bit. I miss you. YOYO--are you having any luck in finding other work? I am worried about you since you stepped out to take a chance and it didn't work out for you. I know you must be in a scarey place right now. Hurry back so we can hear what has been going on. BERNADETTE--I am so happy for you that the library job is working out for you. I think leaving the stress of substitute teaching behind will help you in the long run. BARB/PA--I you still stuck in Washington? I have been concerned because I saw that they have been having bad weather up that way. I know that getting home will be a relief in some ways. DORIS--have you had any news on your apartment? I know that will help you a lot once you get settled into one and can call your life your own. The adjustments to living alone can be kind of hard for some people but I found it was a really a relief. I find that it is my refuge where I can have a measure of control over my life and where I can find some peace from all the noise. To all the others who have posted (and because of fibro fog I can't remember who) I really appreciate your reaching out and joining us. Even though I may go a long time before I post, I do read the postings every day. Well, I have went on too long as usual. Gentle hugs, good thoughts and wishes for a peaceful night to all.
cheryl PA 3/1/07
Cheryl PA 3/1/07 Hi everyone! Have any of you posted and had the internet cut in and say you've been cut off? I waited to be put back on and it got all hung up. Now I see the post didn't happen. Is there anyway to get it back or is gone completely?
Help
Cheryl
Lynne from Minnesota
Finally hired a cleaning lady for once a week. My husband didn't really like the idea,he always promised to do things. I didn't want him to do more around the house because he does so much allready. I work four days a week. It takes a whole day to rebound from the work week.
I asked for a massage table for my birthday in December. My husband is "in training" with the help of books, DVDs and even a online site that demonstrates massage. I found that site on google "head neck and shoulder massage"
I feel really lucky because my husband is caring and supportive. What I struggle with is the fact that "I would love to do everything myself, I miss being able to clean the whole house in an hour/multi tasking to the max! Cooking up a storm, entertaining family and friends. (an old injury also has caused arthritis in my left knee and need for ankle replacement on the right)
I'm not feeling sorry for myself, but just frustrated that I have this to deal with all of this)
So, actually I feel better allready. Its like going to counseling. Been there,done that. Next time I'll be brief.
Lynne from Minnesota
March 1
p.s. Sorry I forgot the date
sharon IL.-3-1-07
I am sad tonight....about 1 months we have had this cat that showup on our door step...we slowly brought her in the house...we both said she can stay until we found her home....she going to have some kittens too...I watch her grow...Today I wasnt looking and i found the owners they have 3 childeren and a dog plus she had kittens before and one of her babies live there too..I wassss so hard to give her back..The childern was so happy to see her ,they said they been walking the streets looking for her....I was so lonely before she came into my life....Imiss her!!!it only been a few hrs...I cant stop crying...I feel lost without her...I didnt think I was that close to her..I know feeling this way is not good for me...I feel like going back and get her..but I keep think how the kid were so happy to see her...I so confuess... I miss her...
Robin
Hi, I am new to the wall. I live in NC. My husband was diagnoised with FMS 6
yrs. ago. He is now 50 years old. He had symptons of this for about 15 years
and was basicly told it was all in his head. His condition got much worse 6
years ago after he was diagnoised with testicular cancer and had surgery and
radiation treatment. The doctors won't admit it, but I feel the radiation
intensified his condition. He is now unable to work. I work full time. He is
such a great guy. He cleans the house and does the laundry. I don't stress
when the house is not as clean as when I did all of it. It keeps him active
and he works at his own pace.He is on Methadone for pain, and takes Tamazapan
to help him sleep. He gets relief from the Mehtadone, probably more than he
really realizes. Can't imagine what it would be like without it. He still
suffers with pain. He also has a rougher day when the weather is about to
change. I have read alot of your postings and I think it is so great how you
all support each other. Although I can not feel the physical pain each of you
go through, I try to understand. Keep up your spirits and bless all of you.
Richard in Tucson March 02
Good Friday Morning to you all: I just thought I should mak a brief posting to let you all know how much I appreciate you.
BJ in OK: I want to welcome you to the Wall, I hope you can keep coming back. I wanted to introduce myself earlier on, but my life has been too crazy.
I have been here at the Wall for over a year now I think, maybe two years. I have met many wonderful helpful people here, I really hope you give this a try. Please feel free to e-mail me, I keep in communication with another wonderful person from Oklahoma, maybe You could meet her, She has fibro too and she is a member of this Wall, she has not been here much lately because she has had recent wrist surgury. I believe you will find a medication and way to feel better. There are many people that can help here.
Bernadette: I just wantedto let you know I did e-mail you, I hope you can get around to reading it. Thank you for your concern about me and my project & your letting me know How proud you are about my exercising. I feel like doing it more and more. I feel like living because of your inspiration.
Congratulations on your new position at work, I am so glad it is working for you.
Rachel in Ohio: Welcome to the wall.Yes Fibro can go into remission, I have been there, I think it depends on your curcumstances, and how well you are taking care of your self. The Exercise classes do help me especially the Yoga class I take on Friday.
Poimae: Welcome to the Wall I hope you can keep coming back. I would Love to have another Male here to help me with all of these wonderful Ladies. In addition the Men that come here hardly ever com back for some reason, I hope you keep coming back I need to have your perspective. I will Like to E-mail with you when I have more time.
Dee: How wonderful of you to come back, I have missed you very much, Please keep coming back even for small posts to let us know how you are doing.
Lee Ann/MI: I miss you too, thanks for your concern. I am sorry to read you are suffering so much, I will be praying for you.
Welcome to all the rest of the Newbies, keep coming back.
I have go to get going now my Yoga class starts soon. Have a wonderful week-end, see you all next week.
Love Richard in Tucson....
sharon IL.-3-2-07
hello every one ,I know I been here alot lately,Its a good place to come...With my fm I maded myself sick all night....Today I am tired its cold but sunny out side..about my cat I know today it was the best thing to do...my boyfriend I have lived with for 4 yrs.said first time she get outside she'll be visiting again...plus now I can travel with him on the truck...when I do ,he takes me out 2week at a time,thats all I can handel....He was trying to teach me but with my sezers, and confuession, I didnt do so good..but I learn enough if I had to drive the truck I could...I wish I could work a normal job! I used to have this job that I felt inportion,well guess what the cat came back,:) .. she was crying on my porch and hasnt stop...I guess the family just need to let her stay here...:) well need to go, everyone have a good day...
Bernadette March 2
So many people I want to talk to and so little time but I wanted to give a suggestion to Sharon. My cousin volunteers at the animal shelter and it adds so much to her life. Maybe you could look into it. It would give you something to do and feel that you are contributing. It sounds like you have a lot of love in you and there are so many animals that could benefit. Just a suggestion.
Sharon (WY) 3/2/07
Sharon(WY) Hello. I would like some opinions. Of the doctors I have seen about my fibro the majority believe the substance P theory , where chemical secreted to our nervous system makes us feel pain when we should not, or at least not feel severe pain.
My question is why do so many doctors and so many articles I read suggest we take anti inflamatory medications ? That is confusing to me because IF the Substance P theory is true, our problem is not inflamation. I would appreciate your thoughts on this. Thank You in Advance.
Rachel in Ohio 3/3/07
Thank you all so much about the fibro remission info but my pain has not went away yet. Richard thanks for the welcome and the info, I will get into a yoga class at my local ymca. Hopefully it may provide a little to help me deal with all the pain. Welcome to all the newbies. Am in pain very bad and I am going to take a nap. Stay well and blessed be.
Yolanda Mia 3/3/07
Hello All! Things have been quite stressful for me b/c I'm not having much luck on the job front. There are no jobs. That's one of the reasons I stayed at my other job for so long, even though I hated it, b/c there is nothing available. I'm thinking of a lot of things that I may want to do with my life. It's rough right now though b/c I can't afford to pay the bills. Thank all of you for your support right now b/c I definately need it.
Bernadette, I stopped seeing my therapist awhile back b/c she thought I was fine, and now that I don't have health insurance, I can't go.
Welcome to all the Newbies!
Love ya all! Yoyo
LynnMn 3-1
Bernadette March 3
SHARON great question! I think that the reason anti-inflammatories are recommended is that fibro used to be thought an inflammatory issue and a lot of docs haven't kept up with the latest research. Also, they are not sure what to give us and are reluctant to prescribe anything that might actually (gasp-oh no!) provide serious pain relief because we might-god forbid-become dependent on it. So they just throw NSAIDS or some other such useless meds at us in the hopes that we'll just go away. I've tried antiinflammatories and they didn't do anything! There are a lot of docs who haven't done their research about this and it is up to us to be our own advocates. Anyway, that's my theory? Am I little bitter? Maybe?
Robin NC 3/4/07
I posted my first comment the other day. I am the wife of Ray, who has FMS. If any of you have ever served in the military, you may qualify to go to the VA medical facility in your area for no or little cost. My husband served 4 years in the military and got out in 1978. After he lost his insurance due to having quit work, he applied for VA benefits and was accepted. Thought this may help someone out there. They prescribe him methadone for the pain and tamazapan for help with sleeping. This is working the best he has had so far, and believe me they have tried him on most every drug on the market, even the anti-inflamatories (he said that was like taking candy). He has good days and bad days, but he is finally learning to pace himself. I know this is very difficult for those of you who are working. He luckily had a job that offered him long term disability and he also applied for social security and was accepted, it is a long process, but definately worth it if you have someone who can help you out during this time.
Bless all of you and try to have a good week!
Robin NC 3/4/07
Hello,
I posted earlier, but it didn't go through, so I'll try again!
I am the wife of Ray. Ray has FMS. I don't know if this info will help any of you or not but I hope so. Ray spent 4 years in the military and got out in 1998. When he got too bad off to work, and lost his medical insurance, 6 years ago, someone told him if he had served in the military, he could be seen for his medical needs at any VA medical facility. So, he applied for the benefit and was approved. He also worked for a company that offered long term disability. This got us through, while he applied for social security benefits. He was approved for social security after about a year. Also his doctor has him on Methadone for pain and Tamazapan for sleeping. This has been the best relief for him so far. And believe me they have tried all kinds of drugs. He also was on anti-inflammatory meds at one time and said it was like taking candy. He has good days and bads days, but he is learning to pace himself. This is alot easier if you don't have to work a job. Bless all of you.
Cheryl Pa 3/4/07
Cheryl PA 3/4/07Hello everyone,
I didn't get any feed back to my question so I guess this didn't happen to anyone.
It's hard sometimes to post and talk therefore typing with a right hand that doesn't always feel good and a back with pain and not have it post. That's why the question.
I had flare ups recently and just dealt with them the best I could as we all do. Recently my chronic fatigue is kicking in. That intensifies my pain level and stress for the things I want to do that I can't. Best word given to say is "unpredictable". That's the pesonality of this illness. As yrs went by with this characteristic I did manage to get beyond-why plan anything? I do plan some things b/c this unpredictable illness may not happen on that day of the plan if this makes sense. Before I was in such fear I couldn't see any life to life and that was depressing in itself. I'm grateful to know now that there can be life with it and say this will pass too even if sometimes I say WHEN?.
My grand daughter was here and my husband or I wouldn't take on so much time with her even though I like too. She'll be 2yrs in May with her sister on the way in June. I'm pooped. Even with the laughs and kisses. Grandparents get to say good-bye. My son and wife got to go away over nite to Atlantic City. It was cold yet they say cold. My grand daughter sleeped good here and for most part good with behavior. Just when tired naturally would get cranky. I do to some times. I'll give in - she'll not till put to bed.
I take inflammatory drug once in morning and once in evening along with anti-anxiety med & depression med. Ice at nite works or just rest. My pain is with me sometimes high sometimes med yet always present. That's chronic pain.
Well I'll check in later. Encouragement is that we understand no matter who doesn't.
Cheryl
Laura TX
Hi,
My name is Laura. I am a wife and mother of two boys ages 5 and 2. A 1 1/2 ago I was diagnosed with Fibromyalgia and CFS. This has changed my life so much. I am greatful for the challenges it has presented. I feel I have become a stonger person from the problems associated with these illnesses. Yet, I still continue to have "bad days". I dream of the old days when I could do whatever I chose and stay up until 2 am and not be effected. I long for the days when I can play with my boys and not get overly exhausted.
I have had glimpses of these days the last 3 months. I have found removing all my harsh cleaning products out of my home has helped. I also have found some alternative dietary supplements that have given me hope and energy. If anyone is interested in these products please email me @ lspeight@iglide.net.
I would love to hear what everyone else does to give them hope and healing.
Please share your secrets. Thanks so much
Sheri, TX 3-5
Hello everyone. I am 48 years old. I was diagnosed with Fibromyalgia 4 months ago and I realize now that I have had this a long time. I had been to 5 dr’s for 6 months prior to the diagnoses. I had to hit rock bottom before I got it. I have heard that from others as well. I found a wonderful Doctor in San Antonio and I hope I never have to find another one. I take tramadol and trazadone. (Hope I spelled those names right) They are working very well for now. I have so many things going wrong and sometimes I want to crawl in to bed and not come out but I can’t. I work full time for now. I am retiring effective end of the school year. I am going to be a grandmother for the first time and I believe that it will be easier for me to watch my grandbaby than to come to a busy high school and multitask all day long although I love my job. One of the things that is so trivial but a problem none the less is my hair has just gone downhill. I have been told that that is due to FMS. Does anyone else have this problem and what do you do about it? I am also looking for a support group in San Antonio. Is there someone here from that area that can direct me to one? I really appreciate everything that you guys post. I am trying to read them all. I have learned so much from them. Thanks for listening.
sue mar 5,2007
Hi! I am having a horribly painful day and found this site and thought I'd check it out. I have Fibro and some arthritis in my knees but I think there is more wrong. Can't afford a dr. so I wanted to see if anybody has an answer to such awful pain. It is in every inch of my legs, front and back. I went up and down a flight of stairs yesterday and that has some to do with it. My back muscles are bad too, today. I have read a lot about Fibro but I would love to know if everyone has pain this bad. It seems that anything that hurts so bad must be some bad disease that will kill you. I know pain won't kill you but it can make you wonder if you want to live a long life. Will others with Fibromyalgia please let me know if their pain is as horrible as mine? I have read it is compared to a case of achy sore muscle pain like you get with the flu. My pain is unbearable. Would others let me know what sort of pain they suffer....just so I can compare mine. I am thinking that I have something worse than Fibro. Thanks in advance for answering this. Sue
Barb(Pa) 3/5/07
Hi FM'ily, Richard came through again Saturday night and stopped at the Triple T for a short break. Golly thats a nice place!!Got to meet a former wallabie and her husband lastnight in Dallas and had a real nice visit. I have been talking to her for years and finally got the chance to put a face with the name.
Gotta run...need a nap,drove all night.
Hang in there YoYo,things will certainly get better.
Welcome newies,and gentle hugs to everyone.
Lee Ann/MI 03/05/07
Hi everyone! WELCOME to all the newbies. I am so happy to have new people joining in to give us even more insite to this dragon we all have to fight. I wish it could be that none of us had to suffer but it sure does help to know you are not alone. To the person asking about hair, I have had my hair change in big ways. I don't know if it is Fibro but I have noticed that I have a lot of hair falling out and the texture seems to have changed also. I had read somewhere that this can be one of the symptoms of Fibro and not much can be done about it. I am having a really bad day today. Since the weather has taken another drastic change and it has gotten really cold again I am achey all over. I had to go out for a little while today and by the time I got back I was really done in. I just ran a couple of errands and it took all the energy that I had and made me feel worse than I did before. I can deal with the pain and the fatigue but when the depression symptoms kick in it makes it almost unbearable. I had been feeling really anxious about doing my taxes because of the many different sources of income I had during last year. I was afraid that I was going to end up owing a lot of money. However, I finally did them and I just owe the state $248 and am getting $348 back from Federal so it has basically washed. That was a great relief and lessened the anxiety. However, I am having a really bad time with just wanting to cry and for no apparent reason. I don't know if it is the pain or just everything finally getting to me. I am glad to have the wall and you lovely people to turn to during this time. Yo-Yo you are laying heavy on my heart. I am praying that you will have something in the line of a job soon. You are strong and can make it through this trying time. To all of the rest of you I need to send you good thoughts and gentle hugs.
Lynn Mn 3-5-07
This is my second post. I can relate to the person that said they fantasize about the old days when we could do any and everything. I'm 52 and tired of feeling like an old lady. I have terrible arthritis in my left knee and need an ankle replacement on the right ankle. The days when I actually have to walk slow like an old lady humiliate me. It seems like when I look "okay" on the outside I can tolerate things much better.
Several years ago when I was diagnosed I have physical therapy along with counseling and bio-feed back training. I remember asking the therapist "How do you know if I'm tired or just being lazy?" She said anyone that thinks about being lazy is not lazy. She said lazy people don't even give it a thought. That statement has helped me alot.
Also we can't overdue anything on the good days or we'll have more bad days. That's just crazy we have to live our lives that way. Everyday on the way to work I long for the day I retire.
My husband tries to understand but he just doesn't get it. He was talking about feeling tired this morning. I wanted to scream" hello!!!!!!!!!! I feel exhausted every morning. But I'm trying to be more empathic to his reality. How can we expect someone to really understand how our bodies feel. Like others have stated, they were once told it was all in their heads.
There's no support group available in my area. So thank you everyone for reading/listening.
Also I have alot to be thankful for. We often have to remind ourselves to be thankful. There's always something that we can be thankful for.
Have the best day possible! Talk to you soon.
JUANITA MARCH 5 2007
JUANITA/TX hello everyone, hope all are doing well. we have had a bad week here in AUSTIN. our house, not AUSTIN. my mother in law died yesterday morning and my husband flew to ALABAMA and i couldn't go. i really loved my mother in law, she was a great lady. she had been in and out of the hospital with pnuemonia and last week when she went in they said she had had a heart attact and the pnuemonia and then they found out that she was bleeding in her colon.she hung on for 4 days while waiting for family to get there. she is being bured on ed and i think my husband will be home on friday. so i havent had much sleep around here and it seems like i can't do anything lately. just wanted to do a BIG TX shout out to SHERI AND LAURA.welcome. finally got some of my blood work back and my thyroid is off wack. but other than the carpal tunnel, nothing new other than my ususal. FIBRO, BONE SPURS,FLAT FEET.SLEEP APNA,OSTEOARTHITIS. i think that is all.HAHA. well i wanted to say hello and send my e-mail address to anyone who wants to e-mail back and forth. it's COOPERWAYNE_589@MSN.COM. goodnight everyone and gentle huggs all around.JUANITA/TX
Sharon IL.-3-6-07
today was a quite day,I felt really good Sunday. My boyfriend came home,(hes a truck driver) so while he was sleeping I went out side got in his truck and started to clean...Well I am paying for it to day...I hurt so bad that I had to break down and take my pain pills..But boy it felt so good doing something...But like I know (about my FM and with my back disorder and my leg,seizer,fogyness,etc) this will pass...I have no Insurance too. My boyfriend pays for everything so becouse of this I cant let him do it.so I work with it,I listen to my body,I found out heat helps me.hot pads ,shower,hot tubs,anything that has heat..I rest, I walk most of the time,I very lite excerice(becouse the more I do the worse) so I remmber my old doctor tells me do lite only when your up to it...when I lay in bed I have the elect..blanket on...I have my on percussion massager(alot of times for me works like excericing)But I keep on trying,with me theres no happy Med...I go one way or the other...believe me it hard trying to control it...I have to watch myself...but when nothing helps then I go to the doctor....actually becouse of this I had to except things and remmber what I already learn...but today hahahah I mess up...but this will pass...I guess I learn to live with my pain, try :) another way is to get in a quit place ,reading,pitting, ... and wait it out............Juanita in TX..I am sorry for your lost...you and your husband is in my prayers..................Lee Ann..I know what your going throw,I just did ours, I work on it all year, then all he has to do is come home and do them.........Sue...I know about leg pain, right now even under my blanket its cold like ice,like this all the time, they say it from my L345,a nerve is pinch between 45 and a pin hole is L5, and I know there something worng between need to my foot....but the my old doctors said it my back...but one of theses days I will have Insurance get it looked at again... hope you feel better....Sharon in Wy...inflamatory Medications....aganist it 100 %.....at one time they must gave me something strong...It made me so sick...Plus I had a good friend who got hook on them, kill herself....so if you have to I cant say dont, just be careful.......hi all new comers, keep coming back...Bernadette.. thank you...I wish I could just around here is all I can keep up with..but its a nice thought:)........well I said enough got to try to go to sleep....or sorry if my spelling not right...(ps) my cat came back :) she had 4 kittens..30 mins.. after she found her way back to my house..you know those people knows where i live havent even came after her..they arent getting her back now...shes a keeper....good nite...
Cari K. 2-6-07
Cari K. 2-6-07
To Sue mar,yes,I have the bad pain in my legs that you speak of.Some days I just want to stay in bed and not get up because the pain is so bad.But that is the one thing you can't do.I've learned that getting up and moving is good therapy.I take alot of pain meds too, but you have to keep going.I work a full time job in a factory and there's no way I could without the meds.And as people have said,heat works also.Right now with all this cold weather it takes everything I've got to go out to work,but you have to keep moving.I have been diagnosed since 2000 so I've been through alot of doctors and tried alot of meds.And at the present time I have to find a new family doctor because the one I was seeing suddenly said he doesn't accept my insurance.That's ok though because I go to a pain clinic in my area too.They like to focus on the arthritus on my spine and not the FMS but as long as they are helping me,that's all that matters.Maybe you could look for a pain management clinic in your area.Some people don't like them,but the one I go to is ok.Here's hoping you feel better sooner than later,gentle ,warm hugs,Cari K.
Doris March 6,2007
Hello everyone! Well it's been awhile so I thought I better post just to let you guys know I am still alive...lol. Still having alot of pain on and off but I am hanging in there just like all of you. My fibro has really been kicking up something terrible lately also. My restless legs got real bad and the doctor changed me from Lyrica to Requip and Requip so far is wonderful. Also been having a hard time with allergies and now trying Zyrtec but not helping alot. Was on Allegra for awhile. It wasn't helping at all. May even have to try Singulair next, who knows? Just taking one day at a time here....what else can we do? Well,my neck and shoulders are really flaring so I am gonna go for now. Take care all and God bless. Welcome to all the newbies. Good to see you again
Dee, hope you are doing well. Hugs to all and will post again soon..............
smiles from across the miles.............................................Doris
Cheryl PA 3/6/07
Cheryl PA 3/6/07 Hello everyone!
I have read the posts and see new people again. How we all sound alike.....common ground. I believe this is healing in itself.
Laura TX *This will pass too* I say. It helps yet I know the times I wonder when but I still tell myself this b/c most of the time it does. Chronic pain doesn't pass it just has degree differences each day. Taking care is the biggy along with drawing boundaries of what I can & can't do. Today I took a day off of a routine thing I usually due on Tues. I slept in some, and then went at a pace I like without stressin'! It felt good. A St. Cheryl Day! All should have a Saint Day just include yr name and do it! There is time when energy level is more & I was taught by a chronic pain doc to do the things I can that day and just enjoy it. This works for me.
LeAnn MI - depression has been a new item for me yet I read it is included in FMS. When my pain intensifies depression usually sets in. This too I was taught goes hand & hand. Pain & depression. I think my body just gets down and wants to weep. I too was diagnosed last yr with SAD so I am on Welabutrin. It works. I would cry for no reason-even pain that day wasn't that bad. It did come with the change of Seasons.
Lynn MN-I too would feel old over the yrs when this FMS would hit and thru pain counseling I just got to a place to except that this is an illness b/c I feel like a kid inside and I mean it. I would like to do certain things kids do even though I know I can't. I turned 60yrs in Nov and it still works for me to think this way. There's life to live and I don't want to give to much power to this illness. I know I have to take care and I do but this is all part and part. When I sit in this chair to type I have a cushion attached to this chair from a special order. It helps yet sometimes like now my back just gets tired and painful. I do what I can some reasons are worth it like being here at the Wall. This day felt good to read, walk dogs, go to Curves, make pea soup, accomplish things on the phone-just enjoyment and accomplishments. Our area is forcast for snow accumulation for tomorrow - so will see what that brings.
Check in later husband home for dinner.
Cheryl
JuneKaye
JuneKaye March6
JuneKaye Ohio I lost this site for awhile DUH!!! My computer skills are
limited even tho' I've had one for 8 years. Things that plug in and I do not get along well. To those gals who find wearing bras soooo uncomfortable---I wear sports bras, too, but found that WalMart carries a bra by the company that makes dance clothes, Danskin, that is very comfortable when going out shopping, etc. and provides better support than a sports bra.
Today was a stay in bed as long as possible day---aches, pains, CFS, headaches--almost the whole 9 yards. Has anyone tried the HeadOn roll-ons for regular headaches and migraines---they work like a charm for me. Also they make Activon for muscular aches and arthritis--easy to roll on and no smell. Smells bother me because of my trach. Loud noises also so I keep a supply of ear plugs on hand. Richard, thanks for the advice about "the Home"---I will tell my husband about that. Good days for everyone or at least some better ones here and there.
Bernadette Mar 6
CHERYL, LYNN, LEE ANN and everyone else, boy it sure is nice to hear from you all! SUE to answer the question-yes the pain is really awful sometimes. There are nights I wake up because my legs and back are hurting so badly and I wish that there was some one to wake up and bring me my medicine but instead I lie there for a long time trying to muster up the strength to go into the kitchen and get it. Does anyone else's pain wake them up? Some days it is like an achy flu feeling, but other days it is has been nearly emergency room bad, or even I-am-so--tired-of-living-in pain like this I am thinking of ending my life-bad. Thank goodness for my tramadol and neurontin for times like this! But, there is always the possibility that something else is indeed going on. There was a gal here a while back whose pain sounded worse than everyone else's and it turned out that she did have something else too besides fibro-some rare kind of arthritis I think.
Well, I am trying to just keep my head above water these days. It is really ugly in Alaska right now. The temps are hovering around 0 and the snow is all old and dirty and gray. It is so depressing. I have marital problems going on (those of you who have known me for the last few years are saying, when has she not?)and we are talking of separating. We were supposed to go to counseling tomorrow but hubby got called for jury duty. Boy it is amazing how stress turns up the volume on the pain, isn't it? I'm sorry for going on and on you guys. Thanks for being there.
Sue
Sue from TN. Mar6 or 7 I don't know what day as a few of them has just run together while I'm waiting out the leg pain. I want to thank you ladies who wrote personally to me. It makes me feel like I have found a home and family and it sure is nice to feel included. My husband of 32 yrs. (A pastor) divorced me 2 yrs ago and I don't feel like I fit in too many places. So many people just avoid me because they don't want to get in the middle of it. But I finally came back to life from that nightmare and try not to think of it. I have read and read letters on this Wall and as I have had the Fibro for yrs. I see so many medicines I have tried and ways different people say they try to live with the pain and depression and fatigue. My only living sister has this too but she can't believe that it's not going to kill us. She brings me down and I try to fight the depression. What I am trying to say is I have seen here that there are soooo many people like myself and my sister and I hate that it has happened to all of you. It (Pain,fatigue,etc.) tries to steal your life,doesn't it? I have had to deal with yet another bad problem so with the weather changes and my sister's depression, I just about got down for a few days. But the good part is while I was digging for info I ran accross this Wall and just finding all of you people has made me see that some have it even worse than I do. I am doing better since I laid around for a couple of days and my spirit is back up a little and I thank all of you for posting on this Wall. I feel if you can cope, I can ,too. Maybe we can ease each other's lives a little with our 'common interest'! I really appreciate you who wrote to me so now I will try to check back in when I can. Right now my back is screaming for its bed! Bless you all!
Katie 03/07/07
I have had fibromyalgia for over 15 years. I have never had a seizer until
a few months ago. I was wondering if any one else with fibro has seizers.
My doctor says the seizers are due to stress. Any information will be appreciated. Thanks -- Katie in Texas
Misty K. March 7,2007
Hi. This is my first post. I was diagnosed with FM 2.5 years ago. I now look back and see that I have had the symptoms for years. My pain is way worse I am only 29 and I am a mom of 6 kids. I find it hard alot of the time to run and play ball with them. So now we basically go to the park ( I watch them play) put puzzles together and that sort of stuff. They are so understanding and they are only kids.
I finally found a doctor who specializes in this but alot of what he has done hasn't helped. I can't use an electric blanket because I have a seizure disorder, so for heat I usally have to stand in the shower. I deal with it mostly on my own. I get depressed so easy, and when this happens I feel alone. I try to not let it get to me but it happens, my husband is a great man and trys to help. We have looked for a support group like this for a long time and I am glad I found this one,I think it is great to talk to other people who know what I am going through. I hope to talk to you all soon. Thank you for reading this.
Sue Mar 7
Sue in TN. March 7th First I'd like to say Hello to Misty K. I am new here too and I was so happy that a couple of people wrote a few lines to me and I want to make you feel welcome. You have your hands full with 6 children.I am sure that you don't get much rest. I thank God that I didn't get dis-abled with this until my kids were grown. Remember when you do too much you hurt worse.
Now, I have a question. Do we have to scroll down all the way every time we want to read the new posts? This is to anyone who who knows the answer!!! It takes me a long, long time to get to the bottom of the page. I have read thru a lot of the letters and gotten some good info, but I'd like to skip right thru to the latest letters, if possible. Anyone HELP?
BERNADETTE in Alaska....I hope it is o.k. to address you personally here. It seems like I read your posts pretty often and I feel that I would like to talk to you. I am glad that your depression is better and I hope your pain is,too. I see that you come to post often and hope you will 'talk' to me.You have given info to others and tried to cheer them up and talked about your own problems.....I just feel sort of like I know you. Plus...you live in ALaska! What strength you must posess to endure the long periods of darkness. I have always wished I could go there (to visit.) LOL
One question to ANYONE! My sister and I have these lumps,usually near joints, and I have never read of this being Fibro. I have them on my ribs also. Large areas of thick or swollen placesSome of them have grown hard thru the yrs and they hurt worse as they are growing. Does ANYONE have this problem or can explain what it is. My drs. have not been able to. Sorry if my post is too long. I am hoping to make friends with fellow Fibromites. I have some web-sites if anyone wants them. My e-mail is.....Suehaa6@wmconnect.com... if anyone wants a pen-pal. My prayers are with each one. If God gives it to us, He will go through it with us. I'll be back one day soon. Blessings, Sue
bex
WOWI wrote 2 weeks ago and can not find it. so i'm lost in space. i have agreat doc, losy med tech. frustaed needing to get into surgery for epidurals, intrlaminals, rigger pointd ect. i HATE the needlig but i get such relif after a steriod high that is wild, but....i get relief. he is so good it is unreal. i went from not walking,stasying in bed to groovin around the home and yard! i am so thankful for a really good=great neurlogist/anethsialogist.so i hope i will show up someday and have somr nice converdstions! thanks BEX
Bernadette March 8
RICHARD I tried to email you but it keeps coming back and not sending. DORIS great to hear from you-have you moved out on your own yet? I am still thinking about doing the same and I'm really curious about how it goes for you. It seems like it would be impossible for one of us to survive on their own. DEE thank you so much for this site. I wish you could come here more often. ROBIN you are such a sweetheart to come and share with us. SUE I am so glad that you are here. As far as the long page, I just go to the bottom and scroll my way backwards to where I haven't read yet. It is a lot faster that way. WELCOME to everyone. Please keep coming back even if no one has addressed you personally. It takes a little while for all of us to get to know you and most of us have problems with memory and our brains working correctly!!! As for me, I don't email very often or go to web sites, but I have this site on my "favorites" and come here pretty much everyday. I hope no one gets burned out on me. YOLANDA are you OK? Well, got to go take my son to schoool. TTFN! (ta ta for now, according to Tigger.)
Richard in Tucson March 08
Good Thurs. Morning to you all here: I must admit I miss you all.
I have been trying to keep up to date on the posts, but have not been able to post myself until now.
sharon IL.: Welcome back to the Wall, It is a good place to come. I am so glad for you that your Boyfriend has taken you for trips on his truck. Don't think bad of yourself because of your limitations, you will get better and you are capable of learning, the process is just a little slower than it once was.
Yolanda Mia: You are special, you have what it takes to get that Job, You just need to knock on the right doors, I think you should pursue a job that relates to your college course work, I don't remember what your Major is, but it seems to me you could go places, perhaps even getting a job with your college or something. Please feel free to e-mail me. I would love to help you with this. You will make it, please don't worry.
Barb(Pa): I wish I could have been there @ the Triple "T" To have that break time with you, I actually have never been in that place, once my parents and I Stopped there to fill-up their Motor-Home a few years ago. I am glad you are impressed with the place. I hope you didn't have too much delay on I-10 as it goes thru Tucson, They are widening it from I think the Down Town area to I believe Marana Area it is a big project that causes a lot of weekday travel delays. Night time is OK though from what I understand.
Lee Ann/MI: I feel for you, and understand, what I have found is Anxiety will make this Condition we have, flare-up and all the symptoms will seem to be very active, our best defense is to try to reduce stress in our lives as much as possible and sometimes that's not possible, but we can react to the stress differently, It is the reaction that is what causes us grief and pain.
JUANITA/TX: I am so Sorry to read that you Lost your Mother-In-Law. I know what that is like. My Wife's Mother Died in 1993, of Terminal Pancreatic Cancer, I was involved in studying Medicine @ Our Medical University to try to save her to no avail, I am still grieving for her until this day. I am sure she was a wonderful person, your Mother-in-law, What was her name? You will miss her, but you know she is in a better place.
Doris: I am so glad to read your post, Even though you are in so much pain, you are alive, I am sure God Has a purpose for all you are going thru.
You are very dear to us here, Keep Hanging in there & Keep Coming Back to the Wall.
JuneKaye Ohio: I am so glad for your Post, Your welcome for the Advice, just don't tell your Husband who gave it to you. I am sure he might get a chuckle from it, but I don't want him mad at me, it was just a silly thing to say. Take care of yourself.
Bernadette: I am so glad to read your posts, I am worried about you, You are very special to me & our family here it hurts me to read that you are thinking of ending your Life, please know that we are here for you, you will survive, please e-mail with me I know what you go through and your anxiety of you separating from your husband is what is causing most of your pain to increase. You will find the Answers, stick with us please, vent what your felling here, but don't do anything drastic. I am sorry you could not send that e-mail to me, did you send it to (Sleepyrich51362@yahoo.com)? if so it should have worked, I at least know you tried. I could never get burned out on you, TTFN! Love Ya.
Sue: Welcome to the Wall: I think I can help you with scrolling the posts,
i don't know what computer your using, I usually Open the Wall to the Discussion Page I click on the re-fresh button, to get to the latest entries, than I right-click the scroll bar with the mouse and select bottom it will scroll all the way down for you, let me know if what I have told you helps, if not we can try something else.
"A Warm Welcome to all the rest of the Newbies Here to the Wall Keep Coming Back"
Well I have just written a book here, and it is almost 11:00am, I have got to go, I have a bunch of things to get done before Nicole gets home at 2:40pm Talk to you soon, Gentle Hugs From Richard in Tucson...
Robin NC 3/8/07
Hi all! Hope you are having one of your good days, as you call it. I am so thankful everyday I do not go through the pain you all are feeling. I am impressed with all the support you give each other. You are all a good group. Ray has had a bad week with his FMS. All these weather changes here haven't helped at all. He also gets relief from heat. He just loves the summer months. He will lay out in the sun for hours. We had a swimming pool and he enjoyed laying and excercising in it. But the maintenence got to be too much for him, so we no longer have it. I hope in the near future we will be able to get a hot tub, maybe this will help. He awakes at night with pain too. He does not experience seizures, like someone asked about. He does get alot of body jolts ( I guess they are muscle spasms) when he is sleeping. He used to be up and down all night. He takes sleeping pills now and it helps. Sometimes I wonder if he even realizes when he gets up at night, because he sometimes does things, and he can't remember doing them the next day. For example, he loves ice cream. One night he woke up and ate a half gallon of ice cream and found the container the next morning and can't even remember eating it. He was so disappointed, because he didn't even enjoy it! LOL Well enough for now! Hope everyone has a restful night. Just know I care and hope they can find some kind of cure for all of you!!!!
Sharon WY 3/9/07
Sue in TN. Hello. Just wanted to let you know that my mom and I both have the lumps , rib cage (mostly), shins, forearms, you name it. They are very painful. No doctors have really commented much when I told them but I have no doubt it's related to the fibro.
My mom has had fibro for over 40 years and I for 20.
I wish I could tell you I have an answer for the lumps but I don't have any answers for anything regarding this condition.
It's just awful is all I can say.
Take care of yourself.
Sharon
Jenny in Utah 3/9/07
Hello all. Thank you so much for all your support! Wow, it sure helps! I was able to get in to see a provider. Has anyone tried cymbalta? Does it work? I have only been on it a week and have lessened pain already. Although I am nervous it won't really do the trick. Has anyone tried lyrica? That will be our next step if the cymbalta doesn't work.
Sharon WY 3/8/07
Jennny in Utah.
Hi. I tried Cymbalta and the very first morning I felt less stiffness however after one week it came back . Increased the dose but no help.
My mom takes the Cymbalta and continues to have limited success with it. She says it's not a great improvement but enought that she will keep taking it. So my point is everyone is different and personally I think the most important thing is just to take it long enough to give it a chance. I hope it helps you. Guess I should have said my mom has fibro and so do I. She for over 40 years and 20 years for me :(
I saw a lady on local TV who went from spending most of her time in bed to being up cooking for her family, getting to go out some, etc. So it really helped her. I hope you are like her and find great relief !
Sharon IL.-3-10-07
Hello everyone, havent been on for a few days...been feeling better....so much better I started spring cleaning....all week....well The first night i was sore..took my medince...next day not so bad...wellthis is Thurs.or friday hahah see i am so tired I dont know...and when i was on i was rud to all the newbies, I am very sorry for my rudness.I am 50 and some days i feel like 100, but theres days where i feel like 30 or 40.....I have FM plus MPS..I had this for a long time...I have study this for 12 years I think( sorry I alittle confuess tonight)But from the books I read I think I had it when I was young..then when I got alittle I dint notice it as much,life was good....then with the rape,stress ,drovice,raising childeren by myself,I work myself hard to keep up...see I never had to work, husband didnt want me too...so when our marriage ended..I found jobs , any job as long as i could take care of my childeren...Life was hard..I got hurt...with all that happen to me plus this my fm and MPS came back on me...and it hit me hard...I dint care about myself at all...I hit botton hard...but I had to pull myself together on my own. I kept wishing someone would fix it...I always had to explan to people why I did this and why I did that....oh you look fine...I hate that...pressure of everything was killing me....Now things are change for me...I am very greatful my boyfriend came and got me...he save my life...I think it couldnt happen, things arent easy but it different and I leaned and i am learning to deal with stuff that i couldnt before...still today I still do this restless thing where i cant make decedtion( I know spelling worng hope you can make it out)...I make myself sick before i give a answer I dont want to give...you know hard stuff ,inportion stuff....I get so confuess....but after the fogy lifts.. I can but there time I have to say to my boyfriend please help me, I cant,,,It gets so bad, I have seizier...it where my eyes roll back i go into myself and very confuess(big time)...It takes me min's... to day to weeks... to months or never becouse by that time I am so ate up with depression, confuession, pain is so unbearable....from head to my toes.....but to make this short...It good to have help..I done alot of reading throw the years,I found out this is normal for FM and MPS..(plus my other problems)......and it ok....I am sorry and dont want to scare you and I hope you never get the way i am, but if it gets to the point as its is at times with me, your going to need some kind of help..life changes to com it down...but with reponse-abity...you just have to go with it...do the best you can,what you can,and dont be scared to ask for help,becouse it will help you in the long run....All of you who young, thats wonder ful, for me its harder beeing older with this....My mom is in her 80s and has it...real bad...she didnt know she had it until 2 years ago......thats another story..................................
Starr please try to eat...I know its hard my boyfriend has it....I have a hard time cooking for him too......................................
Yoyo.....Roomate I agree payup or get out...it not going to be easy...be strong.....or go get help getting him out....................
Lorraine ca. what is hyaluranic acid...sorry its a off nite.. i done to much this week becouse it been beauiful this last 3 or 4 days....................
Barb(pa) your in a good spot.. right now ...I love fla this time of the year.............................................................
Doris...hope you a speedy recovery.....................
Juanita TX.......I know the flue makes me worse....speedy recovery to you too......hey i love about the washer... i do it too...stove too....alittle scarely sometimes...then if its not to bad...then you have a good lauf.......
Katie....yes i have sizers too......................
Mity K..............i thought i was tired raising 3.... your in my prayers.....
sue yes i had lump but they are in my legs......I had one cut out..it was a solf tumor..be careful...............anyone else sorry i miss you tonight I think this is long enough......to all of you be good to yourself, and keep coming back, becouse the wall is a wonderful place to be...
Sharon IL.-3-10-07
Sorry I didnt know I was that long winded.....:) try to watch myself....better...I got tirer reading it myself...hehe haha....
Anne
Florida, USA Dr. Thomas D. Harris, Orlando, FL is accepting new patients again. He was short on staff for a while. This is my PCP and THE Fibro doc.
Contact info under MY DOCTORS on www.FibroFix.com
Anne
Robin NC 3/10/07
Hey all! Ray woke today feeling like he could conquor the world. He decided to rotate the tires on our truck. Well he has rotated two of them and just came inside for a break. He took a little break and looked totally exhausted. He is now out there rotating the other two tires. I have to let him do it because this FMS makes him feel so much less of a man. I know he will be down for a week, but he will feel better about himself for acomplishing this. It is about 70 degrees here today and I think that is lifting his spirits too. Warm weather is almost here and he feels better then. Hope all of you have a wonderful weekend.
Yolanda Mia 3-10-07
Hello All! I am making a quick post, didn't have time to read, so I'll catch up later. I start a new job on Wednesday. I'll be working in a factory as a temp until I find something better. Things have been crazy for me. All those that were on here awhile back and remember me talking about Josh, the guy that is legally blind that I loved, is back in the picture. We talked for the first time in over a year last night. He apologized for what he did to me and told me that he has missed me and wants to see me really bad. So, I'm thinking he wants to try again. A lot of people are telling me not to take him back but I have never stopped loving him. He told me that he's not entirely sure why he did what he did, but that it was the biggest mistake he ever made. I've gone beyond being angry with him, and have already forgiven him. He told me that he would have called but was afraid of how angry I might be b/c I had every right to be mad at him. He even says he deserves worse than what I said to him after things fell apart. I seem to be the only one that wants Josh back in my life. Everyone else says I shouldn't, but isn't love stronger than anything? Just needed some advice and someone to listen. Love ya all! Yoyo
Sharon IL.-3-10-07
good after noon everyone,I havent done nothing today but sleep.....
Yoland Mia.......I ready dont know you but I will say this...I would think it out very carefuly...what he done to you...if he comes back in your life will if effect your health? are you getting rid of one problem and getting another? Are you scared to be alone? is this the reason you want him back.... how was it before, you know him, can he change? see been there done it...I cant answer you question, becouse this is something you need to decided yourself...I would used you head and not your heart , to find your answer.....sometimes your heart fools you...I had a friend tell me if i cant decide on a question,write your question on a piece of paper.... then draw a line in the middle......write on one side whats good about it, whats good about him, what you like about him,etc..the good stuff about him and you...........the other side the bad stuff all of it.... how would it be if it doent work...which out weights the other.....is it worth it ? will it be good for your health or not... these are what you need to ask yourself...sleep on it....if its a yes....I wouldnt let him rush me, becouse if this is worth it, he will respect it....I would take it slowly, to see if yal can get alone....again...date......but if your confuess about it...if its me I would think real hard......I sorry i cant give your answer you like to hear....I wish you all the best.
sue in TN. Mar 10@ 9:30 or 10:30 or 8:30 o'clock
Hi All. I just accidently found a way to get back to the top of the wall so I can post. I hit the wrong X and shut The Wall off....then opened it back up. Hope this info. helps someone.
RICHARD: Thank you for helping me with my question about scrolling down. It takes so long my lumpy old finger gives out. You seem to be a person who tries to write to everyone on here. Did you set this Wall up? My mind will not work good enough to remember everyones' names but I do ask for everyones' needs be met when I pray. I have gotten encouragement from a lot of the posts. So many brave people going on thru their own pain, trying to help others!Thanks for making me feel that I am not being ignored. I will try to help other newbies sometimes.
BERNADETTE:Thanks for your advise to go to bottom and scroll up. I'll try next time. I have read a lot of your posts. I hope you are doing o.k. Never give up! We don't know what tomorrow will bring! Hopefully, some muscles will relax!
Sharon in WV: Bless you for telling me about your lumps too. Someone mentioned brown cysts...mine are not that. It just feels like some meat or fat under the skin but they are not round or like a ball.And they come up on each side of the body at the same time. Some turn hard. My rib is worse now but I have them in the back of neck...inside wrists and elbows....above knees...in joint where leg meets feet in front. And then there are all the muscle lumps and bumps over the entire body. I've never had a dr. to pay any attention to what I say. I live off pain meds and have tried most everything that people have written about on here. Pain level in legs and back now is a 14...with med. See what a big help I can be to others...I ended this with such a positive note! lol I am positive I have to go lie down or start screaming! Thanks everyone. I hate that you suffer but it helps me to know that others are fighting this monster,too.
Barb(Pa) 3/10/07
Hi Everyone, Sharon,Illinois,you are a few weeks behind dear,I was in Fl. 7 weeks ago. I have been to California,Seattle,Washington,back to North Carolina,back to California,Georgia and finally back home to Pa. Yoyo,sounds like you have a tough decision ahead..take your time.
Thanks to whoever trimmed the wall,it sure was getting long.
Can't stay,have granddaughter here tonight. She reminded me that she hasn't seen me in a long time and wanted to stay. She is soooooooooo cute,she thinks she is all of that since she can come alone now without her sisters. Gentle hugs to all. REMEMBER TO TURN YOUR CLOCKS AHEAD TONIGHT !!!!!!!!!!!!!!!!
Sue in TN.
Hey Richard! My computer did something and now the posts start on March 1 of this yr. All the other times it was backed up to January or February, I forget which month. But there is not so many posts on here now that it starts with this month. When I'm able I will read all of them now that there are not 7,000
on it. If you fixed it, I appreciate it. I'll be back!
Bonnie March 10, 2006
Hello all. I didn't take time to read much, but can tell there are a lot of new people here at the wall. A big welcome to all of you.
Since the last time I posted that I was feeling better I got Worse! Had a nasty reaction to a new heart med, thought for sure I was not going to see another day. My heart is not getting much better, I could say that I feel worse since the bypass and it has now been 9 months.
Monday I will be going to Abbott-Northwestern Heart Hospital in Minneapolis, MN for some tests. Hoping that will be my answer.
I did manage to trim the wall, ashamed that it got so long before I could do it. I do hope that no one was posting at the same time and lost your post. I will try to get some archives up one of these days. That involves a bit more thinking and that is something I am not doing too well lately.
Also, it really helps the trimmer when you add the date to your post so keep up the good work.
Richard, I did notice you are still here keeping everyones spirits up. And yoyo, you go with your gut girl on your relationship with Josh. Barb(PA) still running up and down those roads. One of these days your wishes will come true and you can stay home. Although I know you will miss the places you see and the people you meet. I know I do since I had to give up driving pilot car. This is the time of year I would like to be in TN.
Enough for now. Take care all and I will try to be here more often.
Bonnie
blteam member
For those of you who are not aware of the when, where, and how comes of the wall I will attempt to give you a bit of info.
The wall was started in 1996. Since then hundreds of FM sufferers and their kin have passed through our doors. Many have been here the entire time!
The past several years the wall has been maintained by a group of volunteers who try their best to keep things running. They, like you, all suffer from FM and other ailments so you know that there are times they can't be here and have to let things go for a while.
This team of volunteers helps to maintain the pages. Another team, known as the BLTeam (Bottom Line)decide if posts are not appropriate and other guidelines for the Wall are carried out. Two of them do the trimming. As you know these two have been quite ill and the Wall went for many months without this being done.
If you are interested in volunteering and know how to do web pages we would
like to hear from you. Drop a line to the webmaster.
We do have to pay a host for our little spot on the Internet. We will be doing a fund drive to help defray expenses. More on that later.
Meanwhile, everyone take care, be kind to yourselves, and know that you are loved.
Bernadette March 10
THANK YOU BLTeam and Bonnie!
Richard you dearheart, I am not suicidal in the least (thanks to antidepressants, that is!!)Thanks for watching out for me though. I just meant that in the past, there have been times when my pain was so bad that the thought did cross my mind as a way out. I have been in that dark place before, and I hope that anyone who is there right now keeps trying to find answers. There is hope. I still get bummed out about my illness and my life is still limited by it, but thank goodness I have found lifestyle changes and medications to help me manage better.
Yolanda-you don't want advice-you just want advice you want to hear :)! Seriously, I do remember how much you were in love with Josh and the romantic in me says go for it, while the cynic in me says stay back. I am the last person in the world to be offering romantic advice, so I'll just say that I'm here for you either way!
ROBIN I continue to be impressed with your selflessness and compassion for your husband and others with FM. He is a lucky man to have such an understanding spouse.
JENNY Cymbalta doesn't work for me but MANY of us seem to have good luck with it. I take Effexor which is in the same class of drugs and it has been good for me.
My husband and I have started counseling, so we'll see how it goes. Anyway, my new part time job is great, thank goodness for that. Take care everyone.
Lee Ann/MI 03/11/05
I would like to add my THANK YOU to the BLTeam and Bonnie. I think you have done an admirable job even though you have been battling physical issues. I hope you find help to continue doing the excellant job and give you some support. I wish I knew how or I would volunteer. Richard...it was really great that you have finally come back to the wall and posted. We have all missed you and your support. WELCOME to all the new people. Please come back and join us as we all know that we need you as much as you need us. I truly believe that I would have not made it this far if I would not have found this loving group of people and having a place to air my grievances and celebrate my achievements in battling this dragon. Yolanda...it sure seems like you have had a lot given to you on your plate lately. I remember the struggle you went through when you lost your boyfriend and just want to add my two cents. Take things slowly and do what you feel is right. Also, I am so happy to hear that you are going to work even though it is not what you wanted it will at least take away the pressures of not being able to keep body and soul together. I wish you well in the job and the continue search for your dream job. Bernadette...I hope for you that you will find some kind of compromise for your difficulties with your husband. It is a really hard place to be in and I wish you well. I am so glad that the new job has turned out to be good. Maybe this will be a blessing in disguise. I don't know if I had told you before but I really enjoy your sense of humor. It always gives me a lift which isn't very often these days. Barb/PA...glad to hear that you are home. Enjoy your time there and your kids and grandkids. I really enjoy the things that you send to me. Doris...I miss your postings. I hope things are going ok with you. Well, I guess I have rambled on enough. I hope the time change hasn't messed up everyone. Lots of hugs and wishes for a better day.
Anita Kluna
Anita Kluna
Bonnie March 11, 2006
Cheryl, in answer to one of your questions, if your post didn't go through and at the same time you had Internet problems then chances are you will not be able to retrieve it.
Sometimes it looks like a post didn't go through, before you post again try refresh/reload on the Wall page. That might be why you don't see it the first time.
One thing I do is write my post on notepad, then copy and paste it to the box on the posting page. That way if your post doesn't go through you still have it on notepad. When you are sure it worked simply delete the one on notepad. You can also be looking at the Wall page when you write on notepad, makes it easier to remember who posted what.
Bernadette, I hope you get your problems with hubby fixed. Know
this has been going on for quite some time now and am sure it
hasn't helped your pain any to be frustrated a lot.
Lynne, I am thinking of getting a cleaning lady too. Just cannot
keep up with things. Have no idea what the going rate is now days.
My hubby helps out a lot but he is not a house cleaner! Does pretty
good with the vacuum and washing dishes.
Sharon, is the kitty still there? We had a dog do the same thing.
Kept taking him home but he kept coming back. We had him for many
years. One of the best watch dogs ever. Can't imagine why the owner
didn't take better care of him. THey moved and never bothered
to inquire about the dog.
I have been on Cymbalta for several years now and think it helps
with both depression and pain. One thing about Cymbalta, don't
just stop taking it without consulting your doctor. I was
without it for 7 days and had extreme withdrawal symptoms.
I am also on methadone for pain. Think someone else mentioned
that too. Ray's wife I believe. Right now I take so many meds I can
barely gag them
down. Rheumatologist want me to start on Embrel injections for
RA. It costs $1600 a month and I sure cannot afford that. Who on
earth can? The Osteoporosis pill he wants me to take is $60 for one
pill and that is with insurance! When are these drug companies
going to be regulated so the average person can afford to take
what they need. Sorry, I'll get off my soap box now. It's just
so depressing to know that help is there but too expensive to get.
Sue, Fibro pain can be really bad when you are in a flare, but don't
hesitate to find out if you have other problems too. Such as
rheumatoid arthritis, disc problems in your back, osteoporosis,
just to name a few. If you are in a flare it should calm down
at some point. I am hoping that warmer weather will be my salvation.
Mornings are the worst for me. Do you all feel that way too? I
never feel like I got enough sleep, even if its been 11 or 12
hours.
I believe that I have used way too much space. It's been so long
since I have felt like posting I can't seem to stop! LOL
Many more I wanted to talk to...will save you for next time.
Take care and know that U R Loved.
Yolanda Mia 3/11/07
Hello All! Bonnie, so good to hear from you! So sorry that things aren't going well. I hope that you get better soon!
Welcome to all the Newbies!
I finally read the posts I was behind on, but there was so many I can't remember all that I've read. It's been a rough couple of days b/c of all that I've got going on in my life and the weather changes. I've been in a flare lately. I'm glad that I have a job b/c I'm flat broke, but I'm not looking forward to the work. So I'm a little stressed b/c I'm not sure how long before I can get a decent job. This one I start this week is only temp b/c they are only needing someone right now for about a month or two so they can catch up on orders. After that I have to find a job again, and I still have no insurance.
I wanted to address the one person that suggested that I'm one of those women that can't be alone, that's simply not the case and never has been. I've been alone most of my life and prefer it that way. I want to be with Josh b/c I Love Him, no other reason than that. I have never stopped loving him since we parted ways, even when I was angry at him, I still loved him, and hated myself for that, but love conquers everything. I appreciate everyone's input on the subject. But, I've realized, that the only person that matters in this is me and my feelings on the subject. My mother and sister don't want me to get involved with him again b/c they don't want me to get hurt again, but I'm not going to let that happen, I'm smarter than that. The first time around both him and I screwed up, this time I refuse to screw it up again. Also, I refuse to let him hurt me again, I'm going to be very cautious. It has taken me 26 years to finally find someone that I can let in, and I'm not going to let that go. It's not a matter of being alone, b/c I'd rather be alone than unhappy. This is about love! Right now I live with my roommate b/c we were trying to help each other financially (though that's not been the case), not so I'm not alone. I prefer the solitude when I'm home alone and he's at work. Besides, my life is so busy I never was home long enough to be alone.
Love ya all! Yoyo
Cheryl PA 3/11/07
Cheryl PA 3/11/07Hi everyone....read recent posts. A lot of new people with interesting posts. Pain is so unpredictable sometimes for me. It's here and then there but continually in my right shoulder which then effects my right hand. It will fall asleep or tingle. Sometimes just burn. I too wonder how much I am to do or not to do. I read some articles from WALL and see this in the information. I know exercise has helped me a lot and yet how much and what kind is always a challenge. I go awhile not effected and then I am. So some days I'm not sure what to change. I just plainly go with the flow of the day and do what my pain dictates me to do...like ice and etc. It also gets me in a depressed state which I apply some things that work generally to re-focus to come up and out of the depression. PAIN is depressing! I guess by all this you can guess I'M in PAIN today. The weather is cold/damp too so I know this can be a factor. My husband is sick today with a bad cold and pray not to get that.He's on antibiotic. I found out after having our grand daughter last weekend she was sick and out of day care 3 days and her dad(my son)is sick along with her mom with a sore throat. Soooo I guess that's where my husband got it. Warmer weather is on it's way and pray to enjoy it on my walks.
Thanks Bonnie for yr info on lost posts. My comp learning is small so what you said is foreign to me and I'll get posts done as I can. This is a comp given to me (with no printer) that I am grateful to have. Some day hope to have the money to get updated. Thanks again, Bonnie, I appreciate you took the time to hear me.
And to all a good nite.
Cheryl
Sharon IL. 3-11-07
Good evening everyone, This time change really got me messup...With me overing doing it last week I have done nothing but sleep feeling tired...good tired...its been a warm day, but I havent felt like going out...yes i not feeling good,leg hurt, like a ice cube.....acke all over,
chery Pa. hope you and your husband feels better.take care of each other
Bonnie and blteam... yes I am happy on how you all are doing things, I glad your here for us and I know your feeling bad like us, I thank you for explaning...I wish everyone a quick recovery.. I wish i could volunteer but I dont know how to do web pages.. but I hope you find someone soon..
Sharon IL. 3-11-07
Yolanda....Hope you got my email...I wish you the best of luck, it sounds like you really love him.........................................Barb Pa yes I am alittle slow, hahahah...hope you had a nice day with you grand childeren at home....................Wish everyone a nice evening.....
Yolanda Mia 3/12/07
Hello All! Sharon, I recieved your e-mail, hope you got my reply.
I wanted to express to everyone, I'm sorry if I sounded more upset than I meant to yesterday. I realized that it may have come across that way. I posted more b/c I had realized that I was very vague before b/c of lack of time to post, so I posted more about Josh yesterday so no one had the wrong idea. I wasn't upset with anyone, just trying to be sure that everyone understands the extent of my feelings. I do appreciate all the support and feedback from all of you.
Cheryl, I have the same issue with my right arm and hand. A few months back my doctor gave me a trigger point injection on that side. He said that it could help permanently, temporarily, or not at all. For me, it was a temporary fix, but only for my right side. It actually caused my left side to flare up worse. It was worth a shot though. And, this weather has been a pain lately, literally. The pressure keeps changing along with the temps which is causing great pain for me. Not good considering I'm starting a new job in a few days.
Bernadette, I'm sorry to hear that your marital problems are flaring again. I hope that everything works out for the best for you.
Over the weekend I worked a Tylenol promotion. We gave out grocery bag holders along with the samples of pain pills. I was sent an extra kit, so I have tons of left over bag holders and DVD's on arthritis tips as well as samples of Tylenol Arthritis. If there is anyone that wants me to send them a grocery bag holder, e-mail me your address and as soon as I can afford to mail it out, I will. These are great for those that do have artritis b/c it helps lessen the stress on the hands. You hang the plastic bags on the hook and carry it by the handle. So, if interested, let me know, I've got plenty. Love ya all! Yoyo
Sharon IL 3-12-07
I could sleep last nigh so I read like i always do, read a old book on FM....This part I for got...it saids that the studies of fm the notice
people had momo( kissing desease), or the had it in younger years...They say when you had it in younger years you have alot of trouble in school...quite,different fom others,learning problems, legs hurting,(like growning pains) ....any one had this too............Yoyo yes I got your
letter thank you, for your kindness....
JuneKaye Mar.12
Hello---I lost this site again and it's taken me 3 days to find it again--Fibro Fog? or just DUH!!! Fibro Fog is a good excuse. Today was a baaaaad flare-up day, strong aches and pains, insomnia last night, IBS-----the whole nine yards. OUCH!! OUCH!!! OUCH!!! Hope others had a better day. I have my fingers crossed about tomorrow.
JuneKaye Mar.12
Hello---I lost this site again and it's taken me 3 days to find it again--Fibro Fog? or just DUH!!! Fibro Fog is a good excuse. Today was a baaaaad flare-up day, strong aches and pains, insomnia last night, IBS-----the whole nine yards. OUCH!! OUCH!!! OUCH!!! Hope others had a better day. I have my fingers crossed about tomorrow.
JuneKaye Mar. 12
Just got back to the Wall and noticed some messages about Cymbalta. I've been on it for almost two years after trying 2 other anti-depressants. I was a "guinea pig" for my doctor at the time who had just gotten samples. It helps lessen the pain during the day, calms me down and no depression. I was on 60mg, but went down to 30mg on my own and find I am not so lacking in energy or tired as I was with the 60. Everyone's body chemistry is different so what works for one person may not work for another. I can't take anything prescribed or even over the counter for the insomnia so am going to try Calms Forte which is homeopathic.
JuneKaye Mar. 12
Just got back to the Wall and noticed some messages about Cymbalta. I've been on it for almost two years after trying 2 other anti-depressants. I was a "guinea pig" for my doctor at the time who had just gotten samples. It helps lessen the pain during the day, calms me down and no depression. I was on 60mg, but went down to 30mg on my own and find I am not so lacking in energy or tired as I was with the 60. Everyone's body chemistry is different so what works for one person may not work for another. I can't take anything prescribed or even over the counter for the insomnia so am going to try Calms Forte which is homeopathic.
Richard in Tucson March 13
Hi Everyone Good Tuesday Morning to you all.
I have not been here in a little while. I had such a hectic week-end and Monday was not much better. I have been having major Electrical problems with my Van that I drive mainly for doing small construction jobs. I am still stranded and feel so overwhelmed, when I have so much to do and can't drive anywhere, in fact I have not been to my exercise class since last Wed. morning.
I am glad how-ever to get time to read the Wall & make a contributiion here.
Robin NC: Welcome to the Wall, I am sure you are a wonderful wife, always being there for Ray. Please Let him know I would like to e-mail with him if he is able or wants to, I have had Fibromyalgia for about seven years & CFS since 1995. I know what being a man with this illness is all about.
Sharon WY: I have not had the lumps that you talk of, however I know people that have them on there arms and legs, It could be part of Fibromyalgia.
I hope you start to feel better soon it sounds like you are having a real hard time with this Fibro. & your other conditiions. I will be praying for you.
Yoyo: I'm so glad for you that your Josh is back, If you love him it is up to you, and for some reason he is here for you, be careful not to let him hurt you again, but it is worth another try. True Love is hard to find, Love is very strong and we need it in our fragile lives. Iwish the best for you.
sue in TN.: I am glad to help, welcome to the wall. I had nothing to do with setting up this Wall, I wish I could take the Credit, but, The Credit goes to Bonnie & Dee and some others who help keep it going. We all kind of help keep it going, just being here. I try my best to be of help to as many people here as I can. I will do so as long as I am able to. I did not fix the wall the credit goes to the BLTeam.
Bonnie: I am so glad to read your posts. I have missed you so much here. I wish your Heart Medicine was working better for you, I wish you the best of luck in your visit to Abbott-Northwestern Heart Hospital in Minneapolis. I sort of understand what heart medicines are about, my Father has had two Pace makers put in. He has had a heck of a time witjh his heart meds. It would be so great if the Doctors really knew what they are doing. Thank You For Trimming the Wall, you are so good to us, even in your condition.
I have been trying to keep up everyones Spirits Up, but it is getting hard to keep it up, my spirits have not been up very much lately.
Bernadette: I am so glad to read you are not suicidal in the least, I was worried there for a while. I will try to e-mail you again soon.
Lee Ann/MI: It is good to be back Although not for long, my life is very hectic and the Kids will be out of school next week and I don't have a working Vehicle to take them anywhere. I thank you for your kindness.
I have almost written another book here again, so I must part from here, and it's already 11:00am Gentle Hugs to all. Love Richard in Tucson...
JuneKaye March 13
JuneKaye So sorry for the duplicate posts--Fibro fog again? No, just computer illiteracy!!! My daughter says my fibro messes with computers--too much nerve electricity on the surface of my hands. Could be true---I have trouble with mine and also with hers. I get stuck on both and cannot move the arrow!!! Fibro just a little better today. I was browsing on the "Cafe Press"site last week and found fibromyalgia stuff---Tees, sweats, stickers, mugs, etc. I ordered a tee that says Fibromyalgia---not for sissies, a sweatshirt with Fibro Flare Day both on front and back and a sticker that says Fibromyalgia, been there, done that and bought this stupid sticker. Hope for better days and less flare-ups for all.
Barb(Pa) 3/13/07
Hi FM'ily, Well had my long over do Dr appointment today and he gave me some new drug to try to lower my triglycerides. My HDL and total cholesterol readings are fine,but the tri's are VERY high again or should I say still. Richard sorry to hear you are stranded....what happened to that new SUV you bought last summer? My sister sent me an e-mail last night and she is worried because the Dr discovered a lump in her breast,please add her to your prayer list.Can't stay but a minute because my son is here and my step-daughter and baby are here from San Diego,her first visit back home in 6 years. Gentle hugs to everyone.
Robin NC 3/13/07
Hello everyone. Hope you are having a good day. Well, Ray survived rotating the tires on the truck. He has been having a good week. I was off from work today and we worked in the yard. Another 70 degree day here in NC. Ray has been dieting and has lost 10 pounds in two weeks. He is also walking about a half hour each day. He said the walking is killing him, but he is not going to stop. He rode the exercise bike throughout the winter months, but now he is enjoying getting out for exercise. Barb-our prayers are with your sister and all of your family. Richard-Ray does not touch the computer, but he would like to email with you through my email address. I will be happy to send the reply to all of your emails for him. My email is robinkd@gmail.com. Hope everyone has a restful night and a good week.
Sharin-IL-3-13-07
Hello everyone,Today is a fair day..Don came in ( hes a truck driver) for a day, hadnt seen him in a couple of week..Boy I am tirer, I had to drive 30 miles to see him..It felt good getting out....But I am paying for it tonight, cant sleep, to much on my mind, Body hurts, some reason it hot...(weather) they say theres a cold front coming in...Plus I had over worked last week....my leg is killing me....Barba (Pa) sorry to her about your sister...I know what it like with the ups and downs of family...My Dad doing kenmo for his cancer(in the kinnie) , My mom has FM. had 3 bypasses, eye promise, now they say that she might have something worng with her liver...They will retest her this week,Took her off one of her medince to see if it was that....so I know about how your cups full( as they say)...I know how you feel and for me this effect my FM ..big time....yes I will put her on my prayer list...with my parents....and for all of us....
Sharon-IL-3-13-07
Sorry I dint have my glasses on miss type my name
Bonnie, March 14
Good afternoon, I have been so tired since my trip to Mpls. on Monday.
Can't get my rear going until afternoon and then its dragging a
lot. They tell me I won't get any results for up to 10 days about
the tests. Sure was hoping to know something sooner. The people
there were so nice, pleasant, and helpful, but of course they are
just tech people and can't give you any info.
Richard, thank you for the nice remarks. I can always count on
you to try to raise spirits and answer questions. So glad you joined
us and Stayed! The only man who has ever stayed very long before,
during my time here, was
Carlton. I wonder how he is doing now.
I didn't have anything to do with starting the Wall, but have
been here for many moons now. Our dear Louise was in on the ground
floor. She has been so ill the past months (years?) and it is too difficult
for her to type with her hand tremors. I miss her and her input
about everything pertaining to the Wall. Dee, Anne, and Janie do the
most work trying to keep up with mail and web pages. I encourage you
all to check out some of the links at the top of the Wall.
There are some good items in the support pages, good recipes, and the photo
gallery gives you an idea of what some of us look like!!
Gosh, here I go rambling again....someone pull the plug and turn
me off. LOL Love to all, Bonnie
P.S. The archives are posted for Nov 2006 thru March 9. They are very long right now, will divide them later, but they are there if anyone wants to read.
Amber In S.C. 3/14/2007
Hello to everyone.
My name is Amber and i am new to this site.
I have been looking for a site like this for a while now.
I am newly diagnosed, but have been having all the symptoms of Fibromyalgia for a few years now.
Being in the healthcare field- i knew a lot about Fibromyalgia.
The thing that surprised me the most was finding a doctor that listened to me and that believed me and all the pain that i was having.
You would think that from one healthcare professional to another that they would be more likely to believe you since you know a lot about health and diseases.
It wasn't until i started going to a doctor that i used to work for that i got any results in my journey to confirm my suspicions.
I am thankful that i have a doctor that is willing to believe and help treat me with this condition.
But as all of you know treating the syptoms is not that easy.
We all have our own degree's of pain and have some medications that work for us.
I am taking Elavil and a few other medications right now.
Sometimes it helps and sometimes it doesn't.
I am allergic to a lot of medications that most people can take and that really sucks because i would love to take something that helps more than what i am on now.
My husband is great with all that i'm going through with this and understands.
He helps out a lot with housework and other things that are hard for me to do.
We have been married for almost 15 years, have 4 children, and i'm now going back to school full-time.
When i decided to go back to college- i really thought i could handle all the walking around campus and the stress of the courses which make me hurt so much.
I'm not so sure anymore about continuing school and even if i do i may not be able to go into the feild that i want to which is Surgical Tech.
I have been having a lot of pain and sometimes gripping problems with my hands-which is a strange symptom.
I would have to use my hands all the time with a job like that not to mention standing on my feet for hours at a time.
So right now i'm just trying to decide what to do on that subject.
Anyway- i know that i'm being long-winded with this post so i'll say bye for now.
I am glad that i found this site and look forward to talking with everyone.
Richard in Tucson March 14
Hi all Good Wednesday afternoon. I just thought I would drop by the Wall and make a brief post.
JuneKaye: Welcome to the Wall. This Wall is not too hard to find if you lose it again. Just use your search and type in "fibro support Wall" I have found it will come up in the search every time with any search engine. Regarding the Homeopathic remedy Calms Forte, I have taken it, I found it helped me relax and it takes the edge off when I am just stressed or over-stimulated, but did nothing to help me with my insomnia, but each person is different, give it a chance, I went to several classes about Homeopathy, it is an interesting science of medicine.
Barb(Pa): I have been taking Gemfibrozil for ever for lowering my Triglycerides, I have felt it has done very little to help. The Answer it in our diets. I am glad to read you have gotten to spend time at home and with your family. My Wife Drives Our SUV I have always had the used cars since earlier on in our marraige. I'm also concerned for your Sister's Lump What is your Sister's name so I can pray for her as well?
Robin NC: I will send out an e-mail to Ray very soon, thank you for the e-mail address, I will make the first one kind of brief, and It will probably be on Friday morning If I get the chance.
Bonnie: I only say nice remarks to sweet wonderful Ladies such as yourself, as well as many others here. I amkind of sorry how I had mis-information to offer about the people who started the Wall. I forgot or was not exactly aware of the Whole story, I will try to give more credit to the correct people involved in creating this Wonderful Place in Cyber-space.
I have got to go for Nicole I will be back on here Friday. Gentle Hugs from Richard in Tucson..
Sue Mar 14
Sue in TN. We are having a wonderful Spring! Flowers and trees blooming and birgs singing! It should help my Fibro but I have hurt myself digging in the dirt& flowers,I guess. Oh,I forgot.This is Wed. night,Mar.14th. Thanks to everyone for the info about who takes care of the Wall. Everyone is just praising each other and giving the credit to others. I am so glad I found this! I cannot remember who all wrote a word or two to me but I feel that I am welcome and you are all nice people. I would like to say Hi to AMBER who said she was new. Just keep on writing and I think we new people can get to know who others are andmake friends. Plus everyone is so good to share what meds they have to help them and some offer their prayers and I am going to keep coming back because I need some friends! Good luck with your decisions about work and school. Thank You BONNIE for writing to me and for your work on the wall. I hope you feel better soon. ANYONE who Prays: My leg and feet pain is so bad narcotic pain med doesn't help much. Part of the trouble is diabetic nerve pain.Stress is my constant companion. My credit card maxed out & now I can not pay my utility bills any more. My electric and water and phone and internet will be shut off in a few weeks unless God performs some sort of miracle. I have had major problem one right after another but somehow,by the grace of God, I have survived. My faith is about gone although I believe God loves me & will never leave me. I won't go into all of my horrors except to say it ain't no wonder I hurt! I have all on this Wall in my prayers and sure would appreciate yours. Life can get rough, can't it? But I am going to count my blessings and remind myself that I have more good than bad and twice more than I deserve! SUE
Barb(Pa) 3/15/07
Good Rainy Morning FM'ly, Richard,my Dr said my tri's are inherited,not from diet. I also have been on many different types of drugs for it for about 9 years and like you,not much change. This new one is supposed to work on just the tri's (Omacor)and be more user friendly to the liver. My sisters name is Carol and I appreciate all the prayers for her and all my ailing family members...Cheryl,Brenda,Janice and Bob. Sue I sure can relate to the credit cards maxed....these past few months have been terrible in the trucking industry. We have had only 7 small pays since the week before Christmas and our health insurance is almost 2,000 a month,so guess how I paid it.
Welcome newbies and warm gentle fuzzy hugs to everyone.
Jenny in Utah 3/15/07
Amber, I also work in healthcare and have found it difficult to find doctors who are believing about my FM. I just recently changed, went to a nurse practitioner that I work with. She says she does not know a lot about FM, but she is willing to help me. It is nice to have someone to help me! We have lived here in a small town for three and a half years, and the provider I went to said they would help me with FM, but they always just shooed it away. I am finally getting some help. I worked in a nursing home for many years, and finally decided to do something different because I was on my feet for hours and hours and running all the time. When I got home around midnight, I could not sleep so I would stay awake until two or three in the morning. Then I would sleep in. I saved all my energy just for work. The house was a mess! I went into teaching. I am working on a master's degree in nursing education. I love my new job as a nursing instructor, although sometimes I do sit at the computer for quite a while doing lectures. The rest is not so bad.
Barb, my triglycerides have been really high, and also due to genetics. I have been on tricor now for four months and it has brought them way down.
.
Thank you to all about the cymbalta. I have still had a lot of pain, especially in my left shoulder, but it has decreased some. The biggest thing I have noticed in just the last few days is the change in how I feel emotionally. If anything, it is helping the depression and mood swings!
Bonnie, March 15
I hate to read about depression and what it is doing to all of us.
Chronic pain is the cause of so much stress in our lives. My doctor
told me not to be stressed. What a hoot. Thank goodness that I
don't have the money problems that some of you do, not that I am
rich, we have enough to get by, pay our bills, buy groceries, but
not pay the exorbitant price for some meds. I checked on the Embrel
and with insurance my cost would be $440/month. Add that to all the
other meds I take and it almost becomes a joke! I thought it would
be the answer to some of my pain. Guess that won't be the case.
Barb, count me in on the prayers for your sister and other family
members. I'm happy you can be home for a while. Hope you get those
tri's down with the new med. Talked to a man at cardiac rehab who
had a genetic problem no matter how he tried to regulate his diet,
etc. he couldn't get those numbers down. Already had more surgeries
than I would want to have. Must be tough. My cholestral is down and
have never had a problem with high tri's, knock on wood. Hubby is
the same way , doc says he got the right genes. If something happened
to him I would be in a pickle. Right now I depend on him for about
everything. We celebrate 50 years this June, hard to believe, I
don't feel that old. LOL Hope things look up for you soon Barb,
you deserve some good luck.
To all the newbies, I'm glad you found us, keep coming back, we can
all learn from each other. My doctor gave me this web site to
look up things medical,give it try.
http://medlineplus.gov/
Lots of good info there.
Sue, where do you live that things are blooming? Sounds lovely. Sure would like to
see some blooming here. Lot's of snow has melted but we still have
huge piles scooped up by the tractor and now mud everywhere else.
Hate having to let the dog out, have to practically give him a bath
when he comes back in. Not easy as big as he is.
Don't worry if you make duplicate posts, it happens to all of us at
one time or another. Sometimes these
computers don't do what we want them to do.
No one pays much attention when it happens.
All part of being a fibro-maniac. *grin*
Hope everyone is having a fairly good day. So gloomy here ...need to see a
bit of sunshine. Feel free to email me anytime. Just put the cursor on my name above to get the address. Hugs to all, Bonnie
Robin NC 3/15/07
Spring has sprung here in North Carolina too. Well for this past week anyway. It has been 70-80 degrees. But like they say all good things must end. Tonight is suppose to rain and drop 30 degrees. The daffodils are blooming. The birds have been feeding in our yard. The trees are budding. Ray has really enjoyed the warmer weather, it has helped with the depression and pain. I have also noticed a change in his energy level since he started taking Vitamin B complex and magnesium. I found a web site that stated these are some of the main things FMS patients are lacking. They also mentioned Malic Acid. I haven't found it in the stores here yet, but I need to get to a Health Food store and check there. I am a bargain hunter so I tend to look other places first. My prayers are with each of you daily. Funny some times how things have a way of working out. Hope the sun shines on all of you soon!! Gentle Hugs to all of you.