Barb(Pa) 3/16/07
Just a very quick post to say thanks Bonnie,nice to see you in here;and to say spring sounds wonderful,we are supposed to get 13" of snow today and into tomorrow.YUCK !!! I thought I had stayed away long enough to miss winter. I guess I was mistaken..LOL Thank God my son is here to help with snow removal if need be.I will be heading out again Tuesday morning.Jenny,I tried Tricor and could not tolerate it,so I keep looking for something that might work. Gotta run,God bless all of you wonderful friends.
Robin NC 3/16/07
Well the rain is here. It is about 11 am.. I have the day off. We are suppose to go to see Ray's parents, who live about 30 minutes away. Ray is having a tough time getting going this morning. It usually takes him until about noon each day to get his s*** together. Excuse the language. I feel for all of you struggling with financial problems. When Ray got sick and could no longer work, we sold our home in Virginia Beach, VA and moved to North Carolina. We cut our mortgage in half by doing this. A home is all about family and being together. It means nothing how nice it is if you have to struggle every day. I ran a paper route 7 days a week for two years until I found the job I am at now. It was well worth the sacrifice to be able to be here for Ray and go to his doctor appointments with him. It gave me much more understanding of his FMS. I only wish understanding the FMS, could cure him of this miserable beast. I try to be patient, understanding and loving and pray for a cure for all of you SOON! Keep your spirits up and until next time I post, have a "good day".
LynnMN 3-16-07
We are going to my "inlaws" to stay overnight. Its my mother in-laws birthday. Before I was diagnosed and knew what was wrong, everytime I went to my inlaws to visit I would come home miserably tired and aching.
I'm hoping this visit will be "stress free". Its a long story!
We had snow yesterday. Now today the sun is shining, in the 30's for the weekend. We'll get spring sometime.
I had to stay home sick weds and thurs, feeling better today. Hope I feel okay over the weekend. I've been doing much better, haven't had to stay home from work for a long time. (I usually just relax most weekends/ we are empty nesters)I work a four day week, so I should be greatful that I don't work 5 days.
Hope everybody has a good weekend. Let's make the best of it. Positive thinking, hooray!
Sharon IL-316-07
Hello everyone I am like you Barb (Pa) cold weathers back here too...The last 4 days...but The Sun back today....But you can tell Springs in the air........
I been reading how everyone with Financial problems...I know that feeling, I came here to get into a different way of like.and it helped...I used to have good health care,but now it sucks..cant work,Plus Don used me as a tax write off...so he dont want me to work...It would mess his taxes up...So my Health care isnt as good as it was...I had to learn different other stuff to keep Well...He pays for when I need to go to the doctor ..But With not making as much as he used to...So I take care of his home,yard,his truck,on my good days...sometimes in the summer i have no time...So when I get where I cant stand it, then I go, So I just learn to live with it..belive me its not easy...He said 4 years ago we was going to get married so I can be on his Insurance, I got my dress. and still waiting.:)...Meanwhile I cant have him spend his money on doctors,as we know it is very costly...I wantn't have him pay it, and go into bankrut for me, so I am on the Medince programs, that helps...I was going to file for ss but when I moved here with thinking I could finish it here, it mess it up,I spent 1000, of dollars to get where i was at,but I didnt know that my doctor was sick too..he didnt put stuff in my recorders that was nedded...to make this story short, there a new doctor, and I would have to go and pay all that money again to get where I need to be, to get it...and I want have Don spend that money plus it will mess up his Taxes...he saids I dont need it..I got him..save it when I really need it....well I dont want you to think I am complanting becouse I not,just I know how costly things are.. and i know how you feel about the price of stuff................................................Bonnie, thank you for the www line for medline...It help me alot...thanks again................well it cold and I am hurting so going to lay back in bed....take care...
Bonnie, March 16
Hello, Sharon and all, here is another good website for checking on meds and illnesses. WebMd.com You can sign up for newsletters by email regarding different illnesses. I especially like the fact that it tells you if a med interacts with others you are taking.
Will be back later, daughters are having a get together for their dad's birthday so gotta go.
Bernadette March 16
Sue I can't believe that you have signs of spring! Here in Eagle River (Alaska) we haven't had temps above freezing in 41 days. At least there has been more sunshine. We will probably have till May until the spring comes. I am so sorry to hear of your financial troubles but really inspired by your faith and trust that you will be OK. ROBIN you are such an admirable woman. It is so rare to see a spouse that is so concerned and supportive of their partner with FMS.
My husband tries to be supportive but once in a while something will slip out that shows how he really feels. The other day, after several days of pushing myself to accomplish things related to work and mothering and homemaking, I felt that my body was about to shut down and I was hurting pretty badly. I know from past experience that at those times I need to force myself to take a break. As we were parting for the day, I told him that I was going to make myself just rest and take it easy that day and he said "So, what else is new?" I started to cry. I try so hard to not just give in to this illness and accomplish as much as I can that it really hurts when I am just perceived as lazy. I wish that I could be with someone that saw me as brave and coddled me once in a while. Instead I have to remember to do that for myself. He apologized immediately and said it was very wrong of him to say that, but I still think that he must believe it at some level or it would never have come out. Anyway, enough self pity for today. I'll be more positive next time everyone.
Sharon IL.-3-16-07
thank you Bonnie .I have signup and there is alot of things going on in my area. where to go and get free stuff checked.this is good.thank you..I looked in it off and on tonight..again thank you again....
Barb(Pa) 3/16/07
Hello FM'ily, Today has been terrible...it's cold,we have 10" of snow, and its still snowing. I saw spring flowers ready to bloom Tuesday outside our cable office. :( Bernadette,maybe you read more into your hubby's comment than what was actually ment; Sometimes things come out totally different than the way it was supposed to sound. I'm sure your long winter adds to your feeling down,but don't be so hard on yourself and read more into a silly comment.
Gotta run for now,have a great weekend everyone.
Robin NC 3/16/07
Bernadette, I would like say that spouses struggle with this disorder in many of the same ways as you do, not the physical pain, but emotional pain. We don't know what to do to make it all better. We feel helpless. I wouldn't take it to heart what your husband said. We tend to hurt the ones we love the most because we feel we can say anything to them. I bet all your husband needs is a gentle hug and words of appreciation for understanding what your abilities are some days. My husband is always telling me how lucky he is to have me there for him. I need these words of encouragement, just as much as he needs understanding and compassion from me.
Jenny in Utah 3/17/07
Hey Robin, about the malic acid, you can find that in citrus fruits and apples.
Robin NC 3/17/07
Jenny-thanks for the info on malic acid. Great Big Gentle Hugs to all of you!
Bonnie, March 17
Bernadette, I know what you are saying. even as much help as my
hubby is, he still makes a remark once in a while that hurts.
Usually has something to do with the mess! LOL I better find that
cleaning lady fast.....Then again, he is always telling me to rest.
I know it's a big change for him to go from a very clean organized
house to mail and stuff all over. I just don't have the energy
any more. Look at it this way... I'm not nagging either!!
We just had a micro-brewery open in a town about 30 miles away.
Don't have many of them around here. Made me think of Alaska. The
neat thing about this one is it's in an old bank building that has
been restored to how it looked in the 1880's. I want to go more
to see the building than the beer. Will have to try the root beer on tap.
Barb, you just keep that snow in PA. It's too late in the season for
that much white stuff....will be very upset if we get more of it.
I know that we will...who am I kidding. Good luck on your trip next week,
hope you don't have any bad roads to drive on.
Sharon, maybe you need to get that dress out and model it!! Give
him a few reminders. Sure
would help some of your problems if you could get on his insurance.
My youngest daughter and husband have no insurance right now and
I know what a struggle it is. Have you tried any of the free
drug cards that are available online? I was surprised at how
much they do pay on meds and there is no charge for the card. Let
me know if you or anyone else wants the address.
Take care all, hope the sun shines on everyone all weekend.
Hugs, Bonnie
Cheryl PA 3/18/07
Cheryl PA 3/18/07Hello everyone,
Read all the posts since I was on. Wow a lot to catch up on.
Sue TN...A while back when my husband's overtime cut back I was really stressing when doing the budget. My faith needed work. My husband was concerned yet takes it in stride more and says God will work it out. So I prayed and asked that my faith in him would grow to just let go and do the best I could do. I practice a visualization of me and him in a boat in a storm just resting. He's in charge and I'm not. I noticed after awhile I saw I was different. Enough so that my husband said you really are different. Later we talked and he said something very insightful to me. He said (my husband) I think you just were in a grieving state of the loss in our finances and now in an acceptance mode. That clicked. I continue pay check to pay check to practice my visualization each week. It helps. Recently do to so many men out on sick leave/reasons there has been changes from high up to have casuals take bids on board. Forced more or less. So my husband now will be starting at 3pm till 12 midnite or later.(we hope b/c of getting overtime) This will be more dock work and less trucking. In late Spring he can look at bids again. So change is coming again. He usually goes to work around 8am each day now. The change will be for me also to work with this new schedule at home. Change usually brings stress and I need to remember to talk to me about it and take care of me during this time. I know though it's not always computed in me so I expect some stress and hope to deal with as best as possible. We have a good relationship and that's important.
Bernadette....I like that yr husband apologized immediately. I know I say things that I regret and also want to be sharp to apologize right away. We are human and working at remembering that when with each other and with others than ourselves. Thanks for yr honesty to share yr feelings. FM needs relationships that work that's the reason for the Wall. Common ground for understanding.
Barb PA...My husband & I prayed for yr sister Carol today and will keep trying to include her in our prayer times. Also I have been told my cholesterol & tryglycerides are genetic. I went to a nutrionist and have a changed diet for yrs. I have lost weight and continue to apply it. Yet the figures go up. I am 60yrs sooo I guess it's another thing to accept. I am on WelChol a non-systemic instead of statin. The statins I have tried gave me muscle pain. Certainly don't need that.
My husband's cold is bad yet it has taken days and he's blowing yet. A Z-pac helped and a day out of work. We found our grand daughter, my son & his wife were all sick with this same cold. I'm grateful not to have got it. Although I got a flare-up very powerfully like none I've had for awhile. Last Mon I started with neck pain which threw my head off that made me therefore nauseated. Tues got up not good to only go into #10 pain level in my whole back. Went to chiro. Helped some and he said we are having flip-flop weather that surely is effecting you. I have been there the last 3 wks. Later with pain continuing I called my masseuse for a chair massage appt. She beat me up & it felt good. I felt great. Wed I woke with stomach pain that continued thru the day yet felt like anxiety. I didn't want to call my counselor for I would not get an appt that day so I prayed what else to do. I thought of the Mental Health Group near my house & called to find out that nite there was a anxiety group mtg. There is I said! I went. I am hoping to build a friendship with someone to talk to when these attacks hit. I have had panic attacks since 17 yrs old. Also memory work on abuse that deals with seasonal triggers. I believe b/c Spring is coming I am having a trigger. FM has anxiety also I understand and I wondered about the days prior to this attack if that brought this on. Not sure. I am on meds for both anxiety and depression. I feel better for now except for usual pains I get that are every day occurrances I live with basically. We had about 6" snow after 80 degrees on Wed. Cold for the next days with increase in temp soon. The weather does play a factor I believe.
Well enough for now as my back is getting worse doing this typing. Blessings to all! Cheryl PA
Cheryl PA 3/18/07
Cheryl PA 3/18/07Correction - I said my husband is bad. No he's better I wanted to say - just blowing his nose.
Amber SC...it's incredible that yr in the medical field and find the fact that docs just don't get it. I guess I think when someone works in that field surely they would know someone who knows about FM. Yet as you said it's not true. I just wonder what it will take - maybe a doc with FM! Sounds very frustrating for you and pray you do find direction in yr field as to put what you know into something fitting for you. Blessings to you.
Cheryl PA
sue Mar.17th
SUE in TN. Hi Everyone! I haven't been here in a few days so I read all tonight. I can't respond to anyone's letter because its all jumbled up, who said what. I am going to sound like the world's biggest baby but I think I can tell you all what is going on in my life. Right now,I am at my lowest point ever. And that includes my husband leaving me for another woman 2& a half yrs ago. Did I mention he was pastoring a church! I survived the heartbreak and the scandel and gossip and friends letting me down,etc.,etc. I got to keep my house because it was almost paid for. He got to sell about 15 acres of land so he made off like a bandit. I got a one time lump of money. Its gone. I am in debt to 2 credit cards for about $13,000 and they shut both of them off. My home is just a small country house but I've been here 20 yrs and don't want to move. If I do sell the credit card people will get their $$$ befor I get any. So after paying rent and bills, I probably could only live 6-8 yrs and be broke again...then have to live in the project houses. PLUS, it would stop my SSI...if I sold the house and had money. I was raised poor and still don't care about having a lot. But I am not looking foward to living without electricity & water & phone. I think my sister is paying this $254 electric bill but it will be back next month. Now,the subject of working. IMPOSSIBLE! I read that most of you work then deal with your pain & fatigue. I can not stay up much longer than 2 hours. Can not do a sit down job. After being on the 'puter for an hour I am miserable and I love getting on the internet. I take strong pain med. 6 times a day and 90% of the time can do very little. Without pain med. the pain would make me insane. I think there is something more than Fibro going wrong with me. I have dr. reports of spurs & diabetic neuropathy & arthritis & feet problems that needs surgery & back and neck disc problems & fatigue & depression. But I talked to some one about the lumps. Now I have one as big as a plate on my back and rib muscle. Can't even lie down on it.My tendons in my elbows and knees are huge and my muscles sag like I am 90. Man! I'm on a roll,aren't I? I just think if anyone who could work would sit around andwait for a little 5 or 6 hundred dollar a month SSI check...would work. Why can't my lawyer do something? Please believe me...I am not hinting for money. When my ex pastored, people called daily asking for money and he had our church help every body. There are hundreds of people who we were assoiated with in the ministry that could have offered to help me or even ask if I needed anything if I told people of my problems. I do not ask nor expect people to take care of me. I am in miserable shape in my spirit as well as body but I still think that God will take care of me. I might have to suffer in this world but this is all temporary. I am having a pity party and I don't like to be this way. I would like to ask any of you who pray to add me to your list,if you will. I probably have not made a lot of sense but I feel betterjust getting it wrote out. I am sorry for taking up so much space and for boring you! Next time I write I'll try to be in a better mood. I just went off my hormone pills b/c of $$$ and have had a headache for 4 days. I have enough complaints to keep God busy, don't I? Like thats all He has to do!!! I'm asking prayer for a boy hurt very bad in an accident..they said he might not make it.Well, my hour is up and I am sick of myself for writing this but I'm going to send it so you will help me pray.Thank you that the Wall is here and I can do my griping here instead of holding it all in. At times I am afraid if I tell anyone all I have just written down that they will think I am crazy or high on pain med. or begging for money or pity. I think I can sleep now
Sharon IL-3-17-07
well its almost 12am..restless cant sleep again...Dons not coming home again this week ..But its taxes time and he needs to stay out...After my dad finishes kimo in apirl after the doctors give a ok, he and my mom is coming out here then flying to Arizona and hes going to take that week off...so I can bare it ,but i am not used to him not being out this long..He was talking about maybe stopping about 30 miles from here for a quick lunch, you know the way i feel i dont even feel like driving there...but it a day or 2 maybe i will feel like it then...my right leg feels like a ice cub...hurt..i got heat on it tonight but its not working at this time......................I am so sorry you all having money trouble, I dont feel so alone. Yes it does feel good to get stuff off you chest, I dont know about you but when mu cups full it makes me feel worst....your in my prayers............
Bonnie March 18
For those of you who have no insurance to pay for meds, Please try these free drug cards before stopping something that you need to take. There is a place on these web sites to check if there is a drugstore in your area that takes the card. You can print out the card on your PC printer. I hope they help someone.
http://www.yourrxcard.com/
http://www.drugcardamerica.com/
christen, march 18th, 2007
I was just wondering if anyone has had success with certain mattresses. I have fibromyalgia and am thinking about getting a new bed. I've looked into the tempurpedic mattresses and the costs are much different than the regular mattresses. Does one help with sleep better than another one.
Thanks for all your input,
christen
Barb(Pa) 3/18/07
Bonnie, I went to the yourrxcard.com and the information sites would not open as to price or location of drug stores,is there a secret to it? :) I know several people who could use this help if I can get the site to work. The sun is shinning,the snow is melting and Dave will be back tomorrow,its a good day.
Can't stay,have to get work done here so I am ready to leave Monday night or Tuesday morning.
Have a great weekend everyone
Bonnie March 18
Barb, for some reason that feature of the web site doesn't seem to be working today. I am going to contact them about it. I know it did work as my daughter used it. She and her hubby both use the cards.
Robin NC 3/18/07
Sue in Tenn., there are energy assistance programs out there that will help pay for utility bills. You may want to do a search on the computer for "energy assistance TN". I don't know what part of Tenn, you live in or I'd look up the info. for you. I think you can benefit from this. Let me know if you need any help. Robin
Bernadette March 19
Thanks for the feedback on my hubby. I know that I can be overly sensitive at times. SUE can you advertise for a roomate? Even if you charge just a couple of hundred bucks, that might help you. BONNIE that brewery sounds neat. I love old restored buildings.
My pain has just been awful lately. I was bedridden yesterday.The burning is terrible, I feel that my limbs are on fire and a gnawing ache. I cried it hurt so badly. But I do not want to give up my job!! I even thought of trying marijuana, which I've heard is good for pain. It is legal up here and I have friends who smoke it. But because I am a recovering alcoholic I just can't bring myself to do it. I have too much at stake to get caught in the cycle of addiction again. I don't feel that I have a problems with my pain meds because they are not mind altering and I don't take them to escape my emotions, just my physical pain. I know from experience that pot alters my mind and though I sure wouldn't mind checking out once in a while, it is not worth the risk that I would start abusing it. I just wish I could find meds that are more effective. I have been wanting to try Lyrica and I have wanted to get a prescription for muscle relaxants but my rheumy doesn't want to prescribe them. Anyway, good luck to everyone. Sometimes it feels good to post here about the pain because I know that you all understand. I do have a question though. Is there anyone out there who has healed themselves of this ailment through therapy, changing their life circumstances, dealing with anger, etc. I am very interested in the mind/body link and wonder if I am creating this because of witheld anger and if I can cure it by dealing with it?
Bonnie March 19
Barb, the pricing tool on that site seems to be working today. I
tried a few of my meds and of course the best deal is in generic
drugs and also mail order. As usual it depends on what you take
whether it's a good deal or not.
Sunshine today, makes me feel a little bit better. Hoping to go do
some shopping later. I usually only have enough energy for one or two
stores. Need oil changed in car and to buy some cat food. Worried about
the recent recall on pet foods. They say just canned and pouch varieties,
but it makes me wonder about the others. Don't want Miss Kitty to get
sick.
Bernadette, I hope you find something for your pain. From
experience I know that Chronic pain
does nothing for our mental attitude. The reason why most of us are
taking anti-depressives. I've been taking methadone for pain for
several years now...either it's wearing off or not strong enough as it
only helps my back pain and sometimes not even that. Seems I've been in a
flare for several months now. Cheese, please....to go with the whine!
If you like your job try to stick it out....doing things we like has to help.
Sorry I can't help you with 'heal yourself therapy', would like to know
more about that myself.
Christen, I tried the Cuddle Ewe mattress pad. It was no help to me at all
and rather expensive. I felt no difference between it and my regular mattress
but some people swear by it. I think you can send them back within so many
days if you don't like them. I didn't get that done.
If everyone else is like me, we're sick of winter and it's not
making us feel any better. Can't wait to plant those tomatoes!! Or
have hubby plant and I supervise!!
Doris, havn't heard from you for a while. How are things going?
Have you moved yet?
Newbies, don't forget to put the Wall in favorites and post.
Sometimes we don't get back to you but that doesn't mean we don't
read your posts and keep you in our thoughts. New people are what makes
this old Wall tick. Also, don't forget to read some of our support and
info pages.
Again I have rattled off long enough...thinking of you all...hugs, Bonnie
Cari K. 3-19-07
Cari k. 3-19-07
To Bernadette,I know how you feel when you talk of the pain levels being so high.I'm currently taking Lortab 10/500 and I'm also using the pain patch Fentenyl 75mg.one every two days.I never see anyone else on this wall tell exactly what they are taking for pain.I also take 40mg.of Paxil a day for depression and I take ,5mg 2xs a day and 1mg at night of Ativan for anxiety.The pain patches work the best. And I can still do my job.Of course I still have my bad days when the weather changes and such.But you brought up the idea of marijuana.I will tell you the truth,I used to smoke it.And yes,it did help somewhat.But,the pain clinic I go to tests your urine for foreign drugs.And they have you sign a contract,that if you are tested and fail,they can stop your treatment.(Meaning you will not get your pain meds)So,you have to choose between smoking pot and legal pain meds.Of course I chose the treatment.They have already done the pain blocks in my spine.Now they want to try radio frequency facett injection.They say I have arthritus on my spine and that is what they are treating. I keep telling them that the fibro pain is much worse than the pain in my lower back.It seems like they are saying,"either let us do this procedure or we won't keep seeing you for any type of pain relief."So what am I to do? They do give me the meds that let me make it thru the day.Some times I miss not being able to smoke pot,but I think that is more to escape this painful,confusing condition.Please consider all other options before the pot.It doesn't help so much that it would be worth losing something that does help.Warm,gentle hugs,Cari K.
Sharon IL. 3-19-07
I am so sick on my stomack...I just found out that they are recalling pet food,I found some of the cans they are recalling...i am going in crazy in my head ..I had to take a pill....I am going to take the mom and kitten to the vet...if any one wants to know more go to................ http://abcnews.go.com/Health/story?id=2963443&page=1...........I know it not FM but if i dont cam down it will be....
Sharon IL. 3-19-07
sorry for the ww line its about the cat stuff just go to www.ABCNews.com it has everything you need
Robin NC 3/19/07
Hello everyone. Ray (my husband with FM) has tried the marijuina for his pain. He said he would never try it again. He said he smoked a half a joint and his pain tripled, especially in his joints. He is currently on Methadone 10 mg.,13 pills a day. He has been taking this for about 3 years and he did start out taking less pills a day and it has increased over time. He still has days where he feels like it is not doing anything for him, but it is definitely the best pain reliever he has had so far. He has tried the patch, lidacaine injections, lidacaine drips, all kinds of different pills. Most of which I have heard some of you mention. He says he could use an increase in his Methadone right now, but won't ask his doctor for it until it is absolutely unbearable. Methadone is addictive and he doesn't want to take any more than he has to. He is also on Celexa 40 mg. for anxiety and depression. Temazapan for sleep. Zocor for his high cholesterol. He takes some over the counter supplements- folic acid, vitamin B with C, fish oil, magnesium and a baby asperin. No wonder he doesn't want to eat sometimes, full on pills...LOL I can't wait to see if some of the medications that are in the trial stages, become available and will be beneficial to all of you. What a miserable way to have to live! Hope you all have a restful night.
Sharon IL. 3-19-07
hello everyone sorry for freaking out, I feel better, I had to take some med....I want to say i am sorry i know this isnt a place for this...about the Marijuina...everyone system different, My aunt had eyes gotcoma( I know thats not how it spelt)....she had to used it ..the goverment gave it to her....Me I have so much trouble with my medinces becouse i dont like the feeling of not being in control..so i dont think i would..But like my aunt she had too...If it gets where it a must and the doctor said it ok....Plus around here they are hard on that stuff and going to jail want help my health any...but I have heard that some state used it for medince....If it control by doctors, it a must ,I guess it not as bad as some of the medince they give you......I praying for everyone who in need and their pain......
sue Mar 19
Sue in TN. Ladies and Richard...I want to apoligize for my crybaby letter the other day. I felt sooo angry. But I know by now that angry feelings and depression are things we all fight.Once I get use to not having any harmones I should be nicer. Maybe the dr. this week can tell me something about the thick stuff growing under my skin. I forgot to say that they usually turn hard,too, after so long. Someone said she has them but I forgot who. Could you tell me if yours do the same?
SHARON: I wanted to say thanks for saying that you would put me in your prayers.
ROBIN: Thank you for the info on energy ass. I got it but it ran out at the same month that my credit card did. I read where you said your husband did not want to increase his med. One way I think about my narcotic med. is that I will have this pain forever so I should try not to increase, plus it dries out eyes,mouth,skin and causes constipation. The other way I think,when the pain is awful, is to eat it by the handful and if it kills me, so what? I do take it as subscribed...they keep you straight about taking it. Tell him not to suffer too much. A little as well as a larger dose is still additive and he probably will be on it forever,too, won't he. I'm sorry if I sound like I am trying to be his dr. Just trying to make a suggestion. I wish everyones mate was as understanding as you are with your husband's illness. Mine WAS NOT.
CARI: My sister went to a pain clinic and they sorta forced her to take the steriod injections 3 times, then 2 in her facet joints. They did not help her at all. She thinks the dr. did them because he can charge big bucks for them. Did they tell you they can soften your bones if you do too many, too close together. She got a spinal leak with one that gave her a horrible headache and had to take another one to patch up the hole. Could you ask the dr. if you absolutely have to do the deeper ones? That the others didn't help. They did one in my neck and it hurt for 3 days. I didn't go back...found aRhumotolagist who gave me med. without the needle. I hope you feel better. Surely we all will get some better this summer! My sister did try the pot but it did not help her.
People who do not KNOW this pain can not understand how bad we want it to stop.
BONNIE: Thank you for for posting the medicine web-sites. I don't have insurance
and I will check those sites out soon. I hope they get you on the right heart med. and hope you feel better. Thats some scarey stuff when you heart acts up. I think my ex got his head messed up after he had open heart surgery and thats why he stopped preaching and got a girlfriend. He was scared of dying and wanted to start life over with a new woman who wasn't broke down,like me.
BERNADETTE: Usually everyone gets put on muscle relaxers. Did your dr. say why he did not want you to take them? Mine drops my blood pressure and I can't buy any more untill I finish all of these (money problems) so I hardly ever take them so I can't ever use them all up to ask for a different kind. Did that make sense? Does your cold weather make your muscles worse? My knee gave out in the grocery store,today and its raining so I am going to bed, even tho I know I'll toss and turn all night. Thanks to all for your kindness and understanding. I wish us all a good God-given HEALING! G-night!
JUANITA MARCH 20
JUANITA/TX good tuesday morning everyone. i hope everyone is feeling better. it seems there is alot of more pain and depression lately. i havent posted lately myself out of just lazyness or lack of energy. i do read but cant seem to keep up with all the new names. ido have a question tho. i have been having a stinging pain in my hip area like you get when you get a shot. has anybody ever heard of that. it has been happening only for about 3-4 days and just every now and then. i doesnt last long just like getting a shot. who knows what it could be. probly my imagination. i have to go back to the dr. friday for my sleep apnea. i am not snoring but i am still so tired when i get up and stay sleepy thru out the day. i don't take naps, never could so thats out of the question. well my husband is back to work after his trip to alabama for his mom's funeral. i realy miss her. i was calling her number just to hear her voice on the answering machine but of course it has been disconnected by now. my carpal tunnell doesn't seem to be getting better, after wearing the night splints all night sometimes i can't even turn the doorknob to get out of my bedroom. i have been having a lot of pain and weekness during the day, just trying to walk from one end of the house to the other wears me out. even taking a bath is getting harder to do without my husband helping me. well i have complained enough. RICHARD & yoyo AND ALL MY FRIENDS here, i have missed your posts. hope all is good. all my TEXAS friends please e-mail me and keep in touch. HAVE A PAINFREE DAY AND GENTLE HUGGS TO ALL. JUANITA
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JuneKaye (Ladybug) Ohio
Insomnia again---sometimes a bit of Atarax which is for itching helps. I am afraid to try prescription drugs to sleep---they have really bad effects on me---even the PM over-the-counter drugs do. I can take children's Benadryl. I use a heated mattress pad all year round and it helps with the pain as do heating pads and those assorted wraps that go in the microwave. I take hydrocodone(Lortab) liquid for the pain and use Blue Emu cream and Activon muscle sticks for topical pain. My former doctor shook her finger at me and limited my hydrocodone and said "Narcotics is not the answer"!!! She is no longer my doctor!!!!! I even brought in quotes I had copied from the Internet from prominent doctors who treat fibromyalgia stating that narcotics seldom become addictive to Fibromyalgia patients---we do NOT take them to get high, but to ease the pain. She could not be bothered to read them---one of THOSE doctors with a GOD complex. The sun was shining today and over the week-end it is supposed to get up in the 60's. Hooray for Spring!!
Cari K, 3-21-07
Cari K. 3-21-07
Good Wed. evening everyone.Today was a real doozy at work.My knees and calves are really hurting tonight.It feels like I have baseballs in the calves of my legs!When I bend them far enough, that's how they feel,weird,huh?They still swell so that's probably it.I know the last post I did, might have sounded like I was all for taking alot of drugs,but as was said earlier,we don't take them for the "high",we take only what we need to allieveate the pain.I,myself.just want to live a semi-normal life.Lately,I have been having flares and muscle spasms galore and that might have made me sound bitter.I hope not.Richard,it was good to hear from you.Yo-Yo,you too.Robin,I would just like to say that Ray really is one lucky man to have such a warm,loving,considerate,and understaning wife.I wish my husband was half as understanding as you are.He tries,but most of the time he still doesn't "get it".Well,have to go for now,warm,gentle hugs,Cari K.
Amber in S.C. 3/25/07
Hello everyone. Sorry i haven't posted for several days. My Fibromyalgia has been really aweful the past 2 weeks. Now on top of things my right lower abdoman is really hurting again. It started on Monday and has continued. My doctors last month when it first started ruled out appendicitis and only saw 2 small cysts on my ovary. They said that the cysts shouldn't be causing that much pain and are stumped for now and have refered me to an OB/GYN surgeon to try and figure it out. I think it's one or more of these things: abdominal adhesions from previous surgery, endometriosis with possible adhesions, or the ovary itself. I should here soon when i am supposed to see the surgeon-meanwhile the side pain continues-so pray for me please if you could. And to CHERYL IN PA., you would not believe how hard it is even as a medical professional to find a doctor who believes you or would give you a referral to see if that doctor believes you. I was told for 2 years that it was just my usual depression, that the pain was from some weight gain, and that in the end with one peticular doctor in the beginning i really think that she thought i was a hypochondriac because of the way she acted towards me. I got lucky when i decided to go see a doctor that i had recently worked for. She studied Fibromyalgia as part of her medical degree and is considered one that can diagnose in family practice. She then refered me to a Rheumatologist and she officially diagnosed me with Fibromyalgia AND arthritis in some spots. I haven't been able to see her the past 2 months because she went on materity leave and then had her baby, but hopefully here soon i can make an appointment to see her because i have really had a time with Fibromyalgia. Anyway- let me go for now-hands hurt from typing. Take care all!
Richard in Tucson March 22
Good Thursday afternoon all, I hope you all feel better soon. I would have posted earlier but I was in California since last Friday. We just drove back to Tucson last night, and arrived around 11:00pm.
Today I am so tired, from driving all day yesterday, & not sleeping very well last night.
Sue in TN: Welcome back to the wall, I am glad to read about how wonderful of a spring you are having, this does lift your spirits I am also glad for your attitude, we all need to count our blessings God does love you and will not forsake you. We will be here for you too.
Barb(Pa): Thank you for the information regarding the Tri's, I have read about the Genetic conections with regard to this problem. I will be praying for Carol, that her condition is not cancer & that she ishealed from this, also for your other family members that are also ailing, that there health is restored too.
To everyone else, I understand what you must be going through, and feel for you, I will be back here next week. I have our daughter Nicole home from school the next few days, she is keeping me very busy, I have to go buy some things for dinner, I am so tired I think I will get a nap first though.
Gentle Hugs from Richard in Tucson.....
Christen-3/22/06
Well I suppose no one has any input on my previous post on the 18th regarding mattresses. Thanks anyway. Good luck to all of you.
Sharon IL -3-22-07
the last few days have been confuessing,Had seizers for the last 2 days, had to take my medince.....Its been wet and damp.....My legs has been acking off..and the pain is up to a 8 and I have a headacke today ...I know the different,this time its spring flowers....but I am still in the fogy stage...I hate it, cant do nothing right,start stuff, before the house is the mess...now I got to clean up...I am a very clean person,I have to have everything in its spots, when I get this way I can found stuff,well it not working ....so I have to go slow get things back in order...It sucks being this confuess...but as I know this will pass...like it alway does....I guess I done to much...But that what happen with i swing one way to the other no happy med.........................Christan...sorry I over look you...a matress is very inportion...last year we bought one that like a pilliow top with a little bit of menory foam on top of it....I lay in this bed alot...it wonderful....what I did I layed on all of the , went back a few times, the man told me to take my time just lay there, so to know what kind you need or want is really how you feel when you test them out....I know the one you were talking about alot of people likes them...like i said it ready up to the person...I sorry this isnt much of a answer...but I would test them................My prayers for everyone today and also for Amber and Sue ,Robin,Barb (pa), Bonnie and every one I missed........welcome back Richard in tucson ..well got go lay back down...Everyone have a nice Day or Night, be safe....
Richard in Tucson March 23,
Good Friday Morning to you all.
I have been very tired & depressed lately, my van has not been working for like two weeks, I am not able to get to the Gym unless my mother lends me her car or takes me there. The Van seems to have a problem related to the wire bundle connection to the Engine control module, it is a computer board that if I have to replace it will cost more than $1,000.00
in addition, I know that the wiring harness end needs to be replaced.
I just paid my $2,000.00 mortgage payment for March, and owe like $1,000.00 in other bills including the car-loan payment for my wife's car. She has always had the good newer car. I really don't know what to do, If I have the van towed to the shop, I will probably get it fixed, but don't know how I can possibly pay the repair bill, I don't want to put myself in that position.
I know all this is not appropriate to discuss here, I am just frustrated with this because it doesn't let me accomplish all the things I need to do to get on with my life.
Christen: Welcome to the wall. I wanted to answer your question about the tempurpedic mattresses, I can't afford one at this time, or I would get one, I have a memory foam mattress topper on my bed, I feel it has helped me sleep better.
I think that if you can afford it I would buy one, but shop around and see if the one you buy has a return policy, so if it does not help your sleep, you can return it for a full refund.
Robin NC: I feel bad I have not gotten the chance to e-mail with Ray, my life has been ,really messed up as of late. Please let him know I have not forgotten, I will try a short one today.
JUANITA/TX: I am sorry for not posting too much lately, my energy level has been way down, my life is in shambles. I wanted to let you know that I get something similar in my hip, I think it is fibro-related, I also hurt my tailbone this past week-end sledding. I hit a stump in the snow, I am going to have it checked out next Dr. Visit in three weeks. I know I am not in Texas, but I would love to keep in touch with you by e-mail too, if that is Ok with you.
Cari K.: Thank you for your understanding, I like to read your posts too
you always make me feel appreciated. I am sorry you are experiencing so much pain in your Calves, can you get them massaged or something? I hope you get relief for this soon.
Sharon IL: I understand the confused foggy feeling, I deal with it daily, It is not to bad in the morning, so I try to do thinking tasks in the morning if I have slept well, but by the afternoon, I usually don't know what I am doing. Thank you for your welcoming me back, it makes me feel good, just to know you care.
I must get going now because Nicole is home from school this week and she says she is hungry. I also have a lot of housework to get done.
Have a wonderful week-end, Gentle Hugs from Richard in Tucson...
Bonnie March 23, 2006
Richard, you know that you can discuss any problems here, be it financial
, medical, life stress, or anything else. Usually it really helps
us to write things out. For me it seems to get rid of some of the
stress. I hear you talking about car repairs....I just paid over
$600 to fix what I felt to be a minor problem with my heater. All
this digital stuff on cars costs more money I guess. Have to have
heat when you live in Iowa. We have a pickup too but it's been
hard for me to get into it lately. Then they informed me that my anti
lock braking system was not working. Since it really isn't necessary
to have I declined to pay the over $900 that they wanted to fix it.
Now I find that I need to have new pads put on my brakes. Thank
goodness that isn't such an expense. My car is 10 yrs old, I bought
it new and it has only 65,000 mi. on it. I feel that some of these things
should not be going out. They dont make things like they used too!
I am glad to see you back also. Get some rest and hopefully things
will look better for you. You sound very tired, sore, and stressed.
Try to have some fun with Nicole while she is home.
Some time ago my daughter brought me a starter for friendship bread.
It's a bit like sour dough and we really love it. Have some going
right now in the bread machine. I put the ingredients in on dough
cycle for 2 hours, all the mixing and kneading is done for me. Then
I form it into a round loaf and bake it. So easy, something a fibro
person can do.
Yesterday we went for a ride and stopped at some friends for a couple
hours. Today I am so tired and somewhere managed to pick up a
cold. Woke myself up coughing this morning. Something I don't need
right now. So afraid it will end up in my chest and I will land in
the hospital. I tried to take a nap, managed about an hour...didn't
help me much.
Christen, I did answer your post on March 19th and also sent you
an email today. I only have experience with the cuddle ewe mattress
pad. Didn't work for me. Sorry you didn't get more answers..
Sometimes no one has anything to add as they are looking for
a better one themselves.
Sharon (WY) I missed answering your post on anti inflammatory drugs.
They do seem to help many of us and since this disease is seen to
be associated with arthritis I guess that is why so many doctors
prescribe them. There are a lot of different opinions out there
about what causes fibro. Whatever works is what we take. Sometimes
we even take things that don't work! LOL Not really funny but
tis true. I have a friend who swears that when she changed her
diet her fibro got better. It works for her. She works 5 days a
week and is involved in many community activities, looks like a
million bucks and is always cheerful.
Must go lie down again. Today is not a good one.
Hugs to all,
Bernadette March 23
CHRISTEN: sorry not to reply there is just so much to write on here. A while back (it would be in the archives) a bunch of us had a discussion about mattresses. I think that several really liked the temperpudic, while I swear by my down filled mattress cover and several down pillows in everywhere-between my knees and arms etc. Hope that this gives you some input. RICHARD so sorry to hear about your car. It really stinks to be stranded and limited any further than we already are. About the sledding-I think our kids are about the same age and I have hurt myself sledding before too. So yesterday, I found another sedentary friend with active kids and we headed for the hills. They went up and down like maniacs and we sat in our fold up chairs in our ski gear drinking hot chocolates, watching them. It was much funner! BONNIE hope that you are feeling better. It is nice to have you coming around more often. Can you tell us what your friend did to help her fibro? I myself have a bad reaction to refined carbs, which stinks because I love to bake.
Sharon IL.---23-07
Today I have been depress for no reason I guess it comes with the headacks and confuession...so I stay in..............Bonnie I was reading where you and Bernadette was talking about your dieted(Fibor.)....This is a promblem with me and I know If i loos weight even 10 (for a start) it would make me feel better........most of my weight comes from alot of stuff,(depression,bored,) I cant have much food in my Frig.or when i go on my bengens I eat everything in site..........I have stomack trouble(BS) it builds up until nothing works ...I am useing zelnorn but sometimes that dont work....then I have to go to the hard stuff....but I think My stomack can handel the food intake and if I was on a better diet that will fill me up and still loose maybe my stomack will feel better... every thing is small but my stomack, i look p.g.......so yes I would like to here this diet..................Babar (pa) we miss you...........Richard in Tucson I know how you feel about stuff, my mom always say when it rains it pours.....i think this time of year people place and things knows it tax time, things breakdown,repair time, people raise their prices knowning people are getting there taxes......on our fogy days it gets to be alittle treakie.:)....................................Brenadette about what you were talking about (the pillows) My pain sooo bad at times thats the only thing i can do...I can stand My legs to touch each other it hurts....It sounded like you had a very good day in the snow ...........well have a good nite or day
Sharon IL.---23-07
man went back to read it sorry my typing bad tonight, hope you can read it ....
Sue Mar.23
Richard: Thank you for responding to my letter. I am sorry that you are having such an expense with your van. I am in a terrible fix with my finances...make that NO finances. I have been at my lowest point for the last few weeks and thought I could find friends here but no one seems to write back to me. Maybe all of y'all are friends who have been in here for a while or maybe it's just me nobody likes. I did apologize for letting my feelings of depression show but I read that the Wall was the place to find people who know how you feel. I am very sensitive because so many friends let me know they do not want to be involved in my problems. I Never asked anybody for Anything but a kind word from people can make a body's day. I think I will just find something else to do with my time from now on. Like I said, I thought I could make friends here but since the ladies I wrote to commented to other people and not back to me... Well, I hope you all keep helping each other and wish you the best. Sue in TN.
Fri. Mar 23rd
JUANITA/3-24-07
JUANITA/TX. good sat. morning all. i tell you, sometimes i think i am losing my mind. i thought i had a dr. app. yesterday, but found out it is next friday. then i got a letter from the hospital telling me i was suppose to had a glucose test done 2 months ago and i had completerly forgot it so now i have to go MONDAY.RICHARD, i would be honored to receive e-mail from you. my e-mail address is COOPERWAYNE_589@MSN.COM. you DON'T have to be from TEXAS to e-mail me.i would love to hear from anybody on this wonderfull site to share our aches and pain and just to vent our frustations without worrying about saying something that might hurt or offend anyone as that is NOT anyones intentions.well its sat morn at 5:30 and i have to get me some COFFEE. HAVE A PAINFREE DAY AND GENTLE HUGGS FROM JUANITA/TX
Bonnie March 24, 2007
Sue, I am very sorry that you feel ignored. I just sent you an email that
I hope will help. We all seem to be feeling depressed right now.
I certainly am...feel as though nothing is going to "fix" me and
get me to feeling better. Wondering too if the anti-depressants
are even working any more. Seems like I need to change
meds every so
often.
Newbies...just because you don't get email or are not mentioned
in a post does not mean we didn't read what you wrote or are
not thinking of you. I experienced the same feelings when I first
came here...many moons ago! It takes a while to get to know some
one and if you did not write about something that applies to the
person reading they don't have anything to answer you about. Does that
make sense? We do try to welcome every one who comes here, but it
doesn't always happen. Most of us suffer from that old thing called
fibro fog.
Juanita, don't feel alone, I have missed appts, showed up the wrong
day just like you. Have trouble remembering something I was told
to do yesterday. Is that getting older or from fibro...maybe both
in my case.
Time for me to get a shower and try to make something of this
gloomy, foggy day. Don't feel like it but am going to try my best
to look happy.
Hugs to all
P.S. Feel free to email me at any time. I will answer you.
bonnie40@omnitelcom.com
P.S.
This is me trying to look happy! How did I do? LOL
Robin NC 3/24/07
Hey everyone! Had a few days of cathching up on all the posts. When I have some days off and the weather is as lovely as it has been here (80's), you will find me outside working in my flower beds. Poor Ray, he has been trying to keep up with me out in the yard, and I know it has been really hard for him. He was so wiped out last night, but he was right back out there again today with me. I'm sure he is looking forward to me going back to work tomorrow, so he can rest. LOL He was having a lot of what I call body jolts last night. I guess they are just really big muscle spasms. They wake him from a sound sleep. He sleeps in a seperate room from me, because he would have so many body jolts, they would keep me awake too. We both get more rest this way. The question about the mattress. We went out and bought a new mattress about two years ago. Ray laid on all of them in the store and chose one he thought would be the best for him. No luck! I sleep on it now and sleeps on another one with a soft mattress on top of it. He uses wedges to elevate his legs. I wonder if there is any kind of mattress that will solve the comfort issue as long as all of you are in as much pain as you are. No wonder nothing feels comfortable. RICHARD,we got your email. I'm sure Ray will respond soon. I just want to say I feel I have been accepted on the WALL from the beginning and I am not the one with FMS. Good night to all and Sweet Dreams.
Bonnie - me again - still Mar 24
JUNEKAYE, Do you really think the Blue Emu cream helps you?
I saw it for the first time in the pharmacy when I went to pick up some
meds. Tried some from the sample bottle on my hands and thought maybe it helped some
of the pain. Have you used it for very long and where do you buy
yours? It was rather expensive at the pharmacy...do you ever
find it at any of the discount stores like WalMart, etc.?
I have bought so many different creams and none of them have much of a lasting effect. Most smell very strong and I hate to use them before I go somewhere, usually that is when I need it the most.
Lee Ann/MI 03/25/07
Hi everyone! Well, it is now 3:30 am and I am wide awake. I hate when this happens because it makes me so tired the next day. Oh well, we all have been there and have learned to live with it. SUE...I am so sorry that you feel ignored. I, myself, had a rough time when I first started also. I learned by reading that this is really a caring group. Please don't go away as we all need each other. If you would like to email me I would be happy to talk with you. I can't begin to tell you how much this site has come to mean to me. It sure has helped me through some dark days. I don't post all the time but I sure make sure that I read the postings from others every day. Hey, everyone, I sure am in agreement that this sure has been a stressful time lately. I am battling being afraid to leave the house. I don't seem to want to go out any more which is not good. I went through a period of time in my life where I was housebound and it was not good. I think maybe it is because I know I can control my environment when I am home. I also have been depressed and having a lot of pain and headaches. Richard...I am so sad for you to hear that you are having such problems. I want you to know that I am praying for you. It sounds like you have a lot on your plate. Bonnie...it is really good to have you posting more. I think you contribute so much and give us all a boost when you are with us. Bernadette...How is the job going? I hope that it is becoming a little easier for you. It was good to hear from you also. YOYO...I know that you haven't posted lately but I just wanted to let you know that you are in my thoughts. I hope things are working out for you in all areas of your life. You sure have had a lot of upsets in your life lately. To all the rest, I am sorry I can't remember names (that ole' fog thing) but I sure am wishing you good wishes also. I guess I have rambled long enough. Peace and gentle hugs to all.
Yolanda Mia 3/25/07
Hello All! Real quick post before I go do a promotion. I've been trying to keep up on my reading but have been unable to post. Things have just been insane with work and this new job is pure hell on my body. Plus, my allergies are inflamed, feels like my head wants to explode. I've been working on getting that assistance for prescriptions, cause that's why my allergies are so bad, I haven't taken any meds in like a month. Not good since allergy season is in full force and there seems to be somthing I'm allergic to at work. My area is near the plastics area, and one of the chemicals they use I must be allergic to. I do wish I had more time and energy to post. I miss all of you! Welcome to all the newbies that have appeared since my last post! Love ya all! Yoyo
Bonnie March 25, 2007
LeeAnn, Certainly don't like to hear that you are becoming afraid to
leave your home. Promise me that you will try hard to get out more
often. Take it slow, call a friend or relative to go with you.
I will be thinking of you and hoping you feel better about this.
I have trouble getting out a lot of days but only because it seems like I need
more energy than I have just to get dressed up to be presentable.
This winter it seemed like my only outing was to see a doctor!
We rarely go out at night, although we did visit hubby's sister
last evening. Found that little micro-brewery too....I was very
disappointed in the building, not anything like the newspaper
reported it would be. Very nice people running it though.
Thurs. I finally see my heart doc and find out the test result.
Still haven't decided what to do about the expensive Embrel the
rheumatologist wants me to take. A person should not have to
spend so much to feel better. The government wants to stick their
noses in everything else, why can't they do something to regulate
the cost of our medicines? I know so many of you are suffering
right now because you can't afford to buy them. Would all of us
emailing our congressmen have any affect? Worth a try.?? Need input on
this.
YoYo, good to hear from you even though a short message. I hope
that you are not allergic to anything at work. Know you need this
job to get caught up. We miss you too.
BarbPA,are you 'on the road again'? Haven't heard for a while.
Always interesting to learn where you are and how things are
going for you. I miss traveling all over the country....know I
have said before how I love Tenn. in the spring.
Sharon/IL and Bernadette, about diet. I know one thing my
friend cut out was sugar. She uses stevia and substitutes for
sweeteners, cooking and baking. I tried the real stevia ground leaves
and couldn't hack that but there are other ways to buy it. A lady
by the name of Mary Moeller, who lectures around the country claims that changing her diet also
made her pain free and healthy, no longer having FMS symptoms. She advises
avoiding Caffeine, sugar, refined and processed foods. I have her
cookbook and nutrition guide book. It's been a long time since I
looked at it but will try to look it over and scan some of the recipes.
The book also advises against refined flour and suggests substitutes
for that and other items we use in cooking.
I have taken up more than my share of this old wall today. (What's
new, huh!!) All of you
take good care of yourselves, you are important, Hugs around..
test
test
Bonnie March 27
Why do I not see any new posts here? Is something wrong with our posting program?
I certainly hope I didn't offend anyone.
Please someone email me if you can read but not post.
bonnie40@omnitelcom.com
Richard in Tucson March 27
Good Tuesday morning to everyone. I thought I would try a quick post.
"Welcome to the Newbies" and also welcome back to those we have known for a while, that have been feeling too bad to post, I understand what you are going through.
I have been trying to find the answer to my Van not running, yesterday I think we found it. My friend Joe came over agian, and checked it out and we eliminated all the obvious things, and found out that it is the Power Control Module, causing all my problems with the van. We took it out and had it tested and was found to be bad, now we are in search of a used one, but they are not easy to find, I might get one out of a Pheonix Recyled Car parts place. I am waiting for the man to call me to verify they have the correct unit, it will cost like $100.00 instead of $700.00-$1000.00, pluss shipping it to Tucson, then I have to pay $70.00 to have it programed to my Van, than hope it works.
Enough about me, I hope you all are having some good days.
Bonnie: Thank you for your compassion and understanding it sure is nice when you can say whats bothering you, and for the most part people will listen, and relate. It sure is good having you back here. I really missed you when you were so ill, please stay well and keep us informed and thank you for being here. I did have some time with Nicole last Friday we went for an expedition to the Library and Grocery Store on Foot, she liked it, we went through a secret tunnel under the Main road to the Library.
Bernadette: Thank you too for your understanding, so glad to read of your sledding adventures with your kids I should have just watched them while drinking hot chocolate too. My but is still sore.
Sharon IL.: Thank you for being here too, yes when it rains it pours. Tax time is fast approcing and I hope I get mine done soon. It is tough to accomplish all they thinking you need to do for this with Fibromyalgia.
Sue in TN.: Your welcome, I try to give advice when I see someone struggling with need of the advice. Please give the wall another chance, people here have a hard time responding to every need here it is not that we don't recognise a need it is that sometimes it may take a little while for a response, and this is normal for Fibro. sufferers. Please keep coming back.
JUANITA/TX: Please know I understand this kind of forgetfulness we experience, I know it all too well. I will e-mail you soon, gentle hugs to you too.
Lee Ann/MI: Thanks for being here, and for your prayers, I do have alot on my plate, thank you for your compassion.
I need to get a shower and finish the house-work before Nicole gets home at 12:30pm. I hope to post again soon, but I will stiil read daily.
Gentle Hugs from Richard in Tucson...
Jennifer 3/27/07
Hello I am Jennifer, 34 from Hawaii. I suffer with Fibromyalgia and Chronic Fatigue. I have read your letters, I hope it okay I am writing on your post. I want to share with you that my meds cost over $2,000 a month. I collect SSDI and I do not qualify for any type of insurance becuase I make to much money on SSDI and I won't be eligible for Medicare until March 2008. I found the Partnership Patient Assistant Program (888)477-2669 and they cover all my meds 100% It is amazing and it is really easy to do. Most meds are mailed directly to your doctors office and they mail you three months supply at a time. They also send substance controlled meds. I am on 13 meds and take 24 pills a day. I am also bipolar which is common with people with fibromylagia. I take cymbalta which is for pain and depression its kind of new. I did have one question, I cannot walk sometimes because of the time, if I do I need a walker, do any of you have this situation? It would help me to know I am not the only one, not that I want anyone to have this. Anyway, my e-mail was to share with you the prescription partnership, it is great, it free and it has saved me over $2000 a month. I hope you all have better days
Robin NC 3/27/07
Good Afternoon everyone. Welcome to the wall, Jennifer. I think you shared some very important info with everyone about the meds, thanks! Ray (my husband with FMS) has trouble walking sometimes and uses a cane when we go out, if he feels unstable. The weather is still great here in NC. I thought I was ready for it, but it is HOT today, 88 degrees. Ray cut the back yard today. He is trying real hard to pace himself, but he usually tends to push himself a little too far and suffers at night when he tries to sleep. Does anyone out there take sleeping pills and if so what do you take? Ray has been taking Temazapan and walks in his sleep. He got up one night and ate a whole half gallon of ice cream. The next day he was so mad because he doen't remember enjoying it.LOL He loves ice cream, but has to limit how much he eats because he is borderline diabetic. I worry about the sleep walking, and we plan to talk to his doctor about it. He was taking two pills a night and has cut back to one pill a night on his own. Well I must go for now. Almost time to eat. Shrimp stuffed with crabmeat tonight! yum yum! Take care and group hugs for everyone.
Sue Mar.27
Mar.27 Sue TN. The very first thing I want to say is I apologize to each one of you for letting my hurt feelings show and I promise to be nice from now on. I will only post when I am feeling well and things are going good. I have no excuse to bother any one with my problems. I am not trying to excuse myself but I have been close to having a nervous breakdown. I know you all have your own problems and I would like to come back here and read because there are always some good suggestions about medicines...how they work and how to get them and other useful things like that. My sister borrowed money to keep my electricity from being turned off and that has taken such a load of stress off from me and lessened my pain, also.
BONNIE: Thank you so much for your kindness. I did not receive an e-mail from you but I am sending you one tonight,when you feel like looking at it.
LEEANN: Thank you for writing to me. I would like to e-mail you but I did not see your address. I lived in MI. for a while. If you want to e-mail me,its....
Suehaa6@wmconnect.com
RICHARD: You are a kind man and I thank you for showing that kindness to me. I try not to gripe and complain most of the time but I messed up and think I made some of the ladies mad at me and I apologized. I have being having a terrible time lately but So does just about everybody, right?
I am sorry I took so much space but I wanted to say I'm sorry to the ones who I made mad and say thank you to the ones who asked me to come back. Sincerly, Sue
Cheryl 3/28/07
Cheryl PA
Hello, I posted a message and wonder where it went? Does anyone know how to retrieve it?
Cheryl
Bernadette March 28
SUE just RELAX I don't think you made anyone mad. You can come here and vent all kinds of feelings, happy and sad and angry, and we will still be here for you. It is important to be able to express all kinds of feelings. Just remember too, that everyone is going through their own stuff too, and that may be why they don't respond. I am glad too that you have decided to stay. Thanks for the info JENNIFER. ROBIN I take gabapentin to help me sleep but I still wake up in the middle of the night in pain. BUt ambien and the others I have tried make me too groggy in the middle of the night. Muscle relaxants have been the most helpful to me but my rheumy wont prescribe them. Hi to everyone else and I'll be back soon.
JuneKaye March 28 (Ladybug)
JuneKaye Ohio March 28
Bonnie---I've used Blue Emu since it first came out--before I knew I had fibromyalgia. I worked nights at a KMart store stocking freight and went home in the mornings in pain. I blame the job for my fibromyalgia!!! Anyway I tried other balms, creams, etc. ,but because I have a trach menthol smells are a no, no and Blue Emu has no smell. It seems to help most when the pain is sort of a "hot" pain. It is expensive, but Walgreen's often has it on sale and I buy 2 or 3 jars then. The cheapest price is at WalMart--$13.42. I recently found new products I mentioned earlier---Activon roll-ons--solid roll-ons with a very slight menthol smell. There are 2---one for muscle pain and one for arthritis---they really help me. There are also two called HeadOn for headaches--one for regular headaches and one for migraines. I had almost daily migraines when the fibro hit me almost 3 years ago and I was eager to try anything when I saw the commercial for this. It works wonders for me and several people I told about it have had good results also.
The weather change here in Ohio which has been drastic---typical for Ohio has put me into one "fibro flare" after another. I am so lucky that my friends and family are so understanding about this condition. I take an R and R vacation for a few days to a week every month at my daughter and son-in-law's home just resting, relaxing, reading and occasionally thrift-shopping if I feel like it. My husband stays home being a "bachelor" and I can recuperate and "recharge my body" before another flare comes along. That helps so much. Let's keep our fingers crossed that "Spring has sprung". Good days to all!!!
Bonnie March 28
I have to say that you all had me going for a minute or two. Didn't see
any posts and thought I messed up the wall when I trimmed. Then
I started to think I offended someone in my posts and/or email
and was being boycotted! LOL Oh dear, how ones mind can think of
all sorts of bad things.
The assistance program that Jennifer was talking about can be found
at Bonnie
Oops, I really messed up that web site address...hit the wrong key. Trying again.
https://www.pparx.org/Intro.php
Thanks for the Emu Cream info.
JUANITA 3-28
JUANITA/TX good wed afternoon to all my FRIENDS on the wall and i mean EVERYONE. WE may have certain people we mention often but EACH and EVERYONE of you are IMPORTANT to us and yourself. i may not get to answer each person but i di try to read each and every post.sometimes it is all i can do is to read and hope for a day when i have the energy to answer. well this weekend was horrible for me. i went to some garage sales with my sister-in-law and had agreat time looking for bargin which i found a few but by the time we got home i was bearly able to walk. as you all know i also have bone spurs on both of my flat feet so walking is hard on me anyway. well i thought i had walked tooo much because across the top of my left foot hurt so much that i had to wear my BOOT AND A CANE. i did that thru monday morning with no relief and didn't go for my GLUCOSE TEST like i was suppose to. but by tuesday the pain had gone almost away. at least it was tolerable. so this morning i went to have the glucose test done. they take blood and make you drink this sicky sweet stuff and recheck your blood every 30 minutes for the next 2 hours. i had 5 differnt places on my arms and hands where they drew blood and i tell you i have a hard time giving blood as it is. so now i have to wait and see if i am diabetic. like i need another thing added to my list of ailments. my husband is already teasing me about trading me in for a faster and younger model. well i hve talked to much so i guess i will let someone talk.GENTLE HUGGS EVERYONE. I AM WAITING TO HEAR FROM YOU ON MY E-MAIL ADDRESS. JUANITA/TX
Wed 28th day March Bonnie again & again!
Oh dear, if I am not having a terrible time today. LOL Now my entire post disappeared????? trying that again too.
Cheryl, Sorry but there is no way to retrieve your message that
I know of. I'm not even sure how my last post got so messed up.
LOL....will fix it at the end of the month. Who knows, maybe I will find
yours too.
Sue, you feel free to talk. This is a
place to vent frustrations. My email was telling you that some of
us did respond to you. I think you just missed it. Many of us feel
that way when we first come here. I know it took awhile for me
to get responses.
Thank goodness your sister was able to help relieve some of your
stress about the electric bill. Keep holding on, things have to
get better for you. Spring is here so hopefully some of our bills
will lessen.
Richard, you are such a busy person. No way could I keep up with
the things you do. You sound like a great father and husband. Hope you
get your vehicle going soon.
It's raining here today, the grass turned green overnight, and the
tulips must have grown another 4 inches. Can't wait for them to
bloom and put some color in the yard. Hubby has been picking up
branches and sticks that we lost in the big ice storm of winter.
He's spent 2 days doing it and hardly made a dent. What a mess,
we didn't realize how bad until all the
snow melted.
There are also branches hanging from trees... they didn't break
all the way through, but will have to be cut off.
Some of our birds are back, I can look out my window to see
robins busily looking for
food. Nice sight
Will say good-bye for now, take care all..
carol happy 3/28/07
I haven't posted here before. I'm not too internet savy, and I'm kinda of shy. I am glad to read other people's postings. I don't feel so singled out when I realize there are alot of people going through what I am. :) Right now I'm in the process of trying to find a new doctor. I had a really good one ever since my diagnosis, and of course, he moved. The doctor I went to tonight told me fibromyalgia was not treated with narcotics. She talked about addiction. I told her I thought addiction was when you took some and sat on the porch and chilled, kinda like drinking a beer or two to relax. I told her I take my pain medicine because without it I hurt so bad I can't think, work, function. She finally chilled out about the pain meds (I take 2 to 4 50 mg vicoden daily), but if she feels that way about treating my pain I don't feel too safe with her. She also asked me if I'd had counseling. I told her counseling costs me $50 a session WITH my insurance, and that 4 monthly sessions were about my grocery bill. I'd prefer to eat. Plus in my rural area there are few decent counselors to be had. I have to work at least 8 more years before I can draw retirement, and sometimes I don't feel like I have 8 more days left in me. There are so many things I want to do that I am just too pooped to attempt. I still have a child at home I'm trying to raise, I have two wonderfur grandchildren, a husband and a full time job. I feel like I do a pretty crappy job of all of it, but I know pushing myself too hard just makes it worse. I guess one good thing about getting fibromyalgia is learning to treat yourself better. Thank all of you for your postings and for giving me hope. I look forward to reading the new posting every day. If you would like to e-mail me I would like to hear from you.
Robin NC 3/28/07
Good Evening everyone. Welcome Sue Happy! You were saying you were having a hard time finding a doctor, where do you live? Maybe someone here on the Wall knows of a good doctor in your area! Well, Ray told me when I left for work today that he was going to do nothing today, but take it easy. Well that didn't happen. He is trying to get a garden going for the Spring and Summer. He planted squash, pumpkins and cucumbers today. He just enjoys being outside. The warm sun feels so good to him. BERNADETTE...thanks for the info on sleep medication. I just wish Ray could find something that works for him. I am finding out more and more each day as I read all of your posts that there are soooo many similiarities in all of you. Ray deals with the chronic pain, muscle spasms, sleep disorder, fog, restless leg syndrome, and diabetes. I don't remember reading any research that suggests diabetes is part of the problem with FMS. Am I having a FOG myself or does anyone have any info to share about this? Also how many of you deal with diabetes with FMS. Ray is borderline diabetic, and is not on medication yet, he is just watching his diet, the best he can. I work for Food Lion ( a grocery store in my area) they carry Blu Emu. I will check on the price of it if I remember and pass on this info for you. I am going to get some for Ray to see if it helps him and I will let you know. Well one more day of work for me this week and I will be off Friday and Saturday. I don't think there will be any working in the yard this weekend. We need a break. I think I'll check the newspaper for yard sales in the area, that sounds like my kind of fun and there should be a few here since the weather is starting to warm up. Talk to you all later. Gentle Group Hugs for all!
Robin NC 3/28/07
OOPS! Carol Happy I am so sorry I put Sue Happy. I don't have FMS but I sure have the FOG tonight....LOLimg SRC="sm-shout.gif" height=15 width=15 border=0>
Cheryl 3/28/07
Cheryl PA 3-28-07Hello again, I am trying again to post. I read the posts earlier today and will try now to write what I wrote. Here goes....Richard I appreciate your sharing - it was so real. I gain from real. I realize we need support and info. Sharing your experience (whatever it is) really helps and gets it down to earth for me. I recently sat in a garage with my husband's van for 3hrs(part at a rest. near by)for inspection. It ran over $600. Then I had to come back again to sit another time for two hours. I didn't want to leave it over nite so I could use the car. My husband took mine to work. Paying this was better than buying another car. About three payments and done. It's 1994. We think to buy another used car yet this will do for now till an affordable time. Hope things work out for youl
I remember some talking on depression. I recently had an emotional as well as physical bad flare ups. Three different days. I wanted to question my meds yet this has passed before without doing that. I was concerned the mood change I experienced would set off my husband & I in our communication so we talked it out for him to know I knew I was in a bad place. I wind up getting angry at me which really sets me off when I'm like this. Tues was the physical day where I felt like I was in a basement or thick layer of mud & couldn't get going. I made my mind up I was going to step one foot at a time & push. Often these things pass yet when is the question. I went to Alanon Mtg and 3/4 way thru I felt it leaving. These thoughts are also for the one/ones who find themselves staying in their house and feel trapped. I find this push works. Also like going to Curves when I don't feel like it - it helps. I know it is Spring and this is usually a biggy for me. Weather period. Changes. So I am considering this to be a factor. I just know it was awful and I'm glad it has passed. For now. My grand daughter comes this weekend. She is soon two. She loves playing with our puppy and the puppy likes her. Well I'll go now and blessings and healing to us all.
Cheryl PA
carol happy 3/28/07
Well, I just read what I wrote, and I really do sound like a drug addict. I take 2 - 4 FIVE mg tablets of vicoden a day, not 50 mg tabs. Hmmm....sorry to be such a goof.
Bonnie Mar 29
Carol, welcome to our little place on this big Internet. Your
doctor is like many others who seem almost afraid to prescribe
pain meds. So many doctors are being sued these days for the
smallest of things....I just think many are running scared of it.
Thank goodness I have a doctor who doesn't believe people
should be in pain 24/7. Personally, I don't believe that people
with chronic pain become addicts. Have also read this
I have been taking methadone
for several years and do not feel I am addicted....some days I
don't take it at all, it doesn't give me a "high", it just takes
away some of the pain....not all.
Robin, Your Ray sounds like me with wanting to be in the sun and
planting a garden. Takes me longer than most but I manage to
get some things planted. We love fresh veggies and herbs. I can't
wait to buy tomato plants.....going to the greenhouse always
lifts my spirits. Days without sun put me down...the last two
days have been like that...gloom and doom and misery. LOL Who
used to say that on TV??
Cheryl, I find myself being angry at me a lot of the time. It's
depressing not to be able to do things I did with ease before.
Again, the sun has a lot to do with my depression and anger. When
it's shining I always feel better. Do you find that true with
you? Right now I am so angry that my house is such a mess...
I am still thinking about hiring someone to help but after I
found out how much they charge now I decided to give it more
thought. If I could get two rooms straightened up I think I could
keep it that way. If I wasn't such a pack rat things would be
better! Also I had so many hobbies and h obbies mean more 'stuff'
around. I'm short of closets to store everything.
Have doc appt. today so need to get ready to go.
Hugs to
all and wishes for a better day.
Richard in Tucson March 29
Good Thursday Morning to everyone here @ the Wall.
Welcome to all the wonderful Newbies, Keep Coming back to the Wall.
I am trying to make a spread sheet for all the medical expenses for my 2006 Taxes. I am going to the Tax Person tonight @ 5:00pm, so I have a lot to get done today.
Sue TN: I want you to know that I feel that everyone I meet here at the Wall I treat with kindness, respect & as much understanding as I can, because that is how I want to be treated. You are deserving of all the best I have to offer, please don't be so hard on yourself. You can come here any time and gripe, cry, show your feelings what ever you need to do, as long as you don't try to hurt anyone in any way, that is what this Support Wall is about.
JUANITA/TX: I sent you an e-mail today I hope you got it, talk to you soon.
Bonnie: Thank you for the wonderful complements I wish I could make myself believe they are true, I do the best I can, under the circumstances.
I hope you get to see yourtulips bloom soon, you seem to enjoy nature, I do too but it seems to be always the last thing I get to spend time looking at.
I have several plants inside and outside of my home that I have been caring for, and I do enjoy seeing them bloom, turn green or whatever they do, because I do have soom that don't flower.
I must end my post, because as usual I have too much work to do, and not enough time. Have a great week-end, Gentle Hugs From Richard in Tucson....
JuneKaye March 29
Hi Carol---I had a doctor as I mentioned in a previous post who shook her finger at me and said "Narcotics is not the answer!" She was too full of herself to read material I had copied from doctors like Dr. Bennett who is a fibro expert so she is no longer my doctor. I take liquid vicodin (hydrocodone) every 4 to 6 hours on fibro flare days. I tried other pain meds like Ultram, etc., but they did not work for me--they made me loopy and vicodin does not.
What anti-depression meds do others find effective? I tried Paxil, and Lexapro, but Cymbalta helps both with depression and pain so that's what I take.
Bernadette March 29
It hasn't gotten below freezing in like 60 days straight and I am ready for the spring you all describe. CHERYL I can really relate with you when you describe an "emotional flare-up" which of course makes the fibro worse, which came first, the chicken or the egg? When you describe it like being under a thick layer of mud that sounded just like what I have been going through the last few days. And it is hard to be a mom those days because I just want so much to hide in my room but I have to show up for my son. I know that he can tell when I am not doing well. The other day he said "It is miserable having a mom with fibro, she doesn't get up off the couch". My husband told him he hurt my feelings and he said he didn't mean to (if ya'll notice my poor husband and son have to be careful not to upset poor mama and make her cry-walk around on eggshells esp.if it is that time of the month and look at each other bewildered half the time now what did I say?). But I told him that I know that he still loves me and that even Moms that don't have fibro don't always jump around and play with their kids every second of the day or take them everywhere they want to go -I just have a really good excuse :) Thanks to barb and robin for helping to get perspective on my sensitivity.
ROBIN to my knowledge there is no official coorelation of diabetes with FMS. From what I've read though, there does seem to be a lot of us with reactive hypoglycemia or postprandial hypoglycemia, some fibro books talk about and some don't. Before I read anything about it, I realized that whenever I would eat white bread or sugar on an empty stomach I would feel faint and break into a sweat and even blacked out once at the grocery store. It is very important for me to eat whole grains instead of refined, and to always have a protein at every meal and to eat frequently. I always carry nuts in my purse. And there is this stuff called Nustevia that is a natural sugar substitute that is like stevia with the bitterness taken out.
I have noticed a very destrutive pattern in myself. When I am stressed out, I like to binge on sweets, especially chocolate as a way of comforting myself. THis of course, leads to worse fibro symptoms which leads to more stress which leads to more eating and it just spirals for a few days usually until I say enough, go for a walk and back to my usual good diet. That's where I am today. Thank goodness for sunshine and the birds. My job is still a total gift and I love it and I am still considering separation from hubby but other than that, nothing else. Hope everyone is enjoying your spring.
Sue Mar. 29
SUE in TN. Mar.29 Hello to everyone and I want to say Thank you for being so forgiving and for the kind words from the ones who wrote to me. Someone asked where the words ...gloom,despair and ???...came from. That was way back on HeeHaw with Archie Campbell and two other men singing, "Gloom, despair and agony on me. If it weren't for bad luck,I'd have no luck at all." Remember? That seems to be my song lately. I am so glad that someone mentioned putting the meds we take on here. I have found that the drs. have tried to dr. me with a lot of these but now I have to go to the pain clinic for the strong stuff. I have read that the med. goes to the brain signal IF you are in pain and that you do not get high on it because of that. The Oxycontin around where I live was called Hillbilly Herion...however you spell it. But people were dying of overdoses and they were sniffing it up their noses...why I do not know. Someone said walking hurt the top of your foot plus you have spurs. I have the spurs and my sisters dr. said that it is a tendon that hurts us so bad, right where the foot meets the leg on top. I apologize once more for letting my problems make me so emotional the other day. I understand now that there is no way I can keep up with Who said What on here unless I write it down. And I see that we all feel comfortable talking about our pain and problems and give help and hope and advise and I will try not to write so much next time but I feel a connection with everyone and want to jump in and talk but my head is scrambled so I will not try to write to any one individual unless you write straight to me. I thank you again for accepting me and hope everyone has more good days than bad. Thank God for Spring! And friends. And pain medicine. lol
Robin NC 3/29/07
ME AGAIN! You guys keep me on a roll wanting to continue to research FMS. My mom sent me an article today about Cold Laser Therapy. Has anyone heard about it or tried it? I think you would go to a chiro. for it. Would like some input if anyone has any? Thanks, sweet dreams.
Bex
BEX FROM NV. Hi guys again i let a month slide by, i had the weirdest thing happen today, over a year 1/2 ago i had siezed broken my neck, upon going home from hospital my daughter was hit at a standstill on the hiway then turned around and hit someone else! of course i went easy on her insurance but the kid admitted to not paying "anyattention and hit us" so i was given 10,000. not enough he had junk ins. well my daughter rates went up, told if she could "get off' she could reverse that so she purgered herself said i was not hurt, though she had stated it in reports and i lost teeth at the dentist the next day!!
the attorney general brought me in for questioning, i passed, but he said he had a hard time finding me! actually i never moved ect he put out a warrant do to my daughter...get this he did not retract this and after 9 yrs disabled badly i was told i was beig cut off becauseei have a warrant from them! a whole year later i got my mail aftr 5 so this is a sleepless night to wait to call to get things fixed, it has to withdrawn officially, i have been here all this time if it was real i surely would have been contacted. the guy was rude from the ag's office and i am scared i did nothing wrong and legal stuff has me nearly suicidal. i have struggled to regain my life as small as it is, after 6 yrs i finnally 2 months ago got teeth, 3 dentists did a make a wish, pulled all but six, they were all dead and broken from the accident i know have a pretty smile, but the dragon attacks and my brokeness everywhere has got me finaly stuck. i have a sweet friend but he is to poor to marry, besides we clash, but he is always here...i can't explore. i feel ready after all the healing for a relationship, camping, some dancing, a simple but love filled life...i feel i can't my friend falls apart at the thought i am 50 he is 67 3 cancers and on ss.
i would lose all my benifits and we would be poor. he is kind but nagging, it just doesn't feel like love or a compatible relationship. so what do you do.
a hateful adopted child out to make me miserable, after a good life, as a R.N. a "good" life i said "no" to money once and this wreck and she has sought to
destroy me real evil stuff. i never thought it would turn out this way. so as the dragon roars in my head and the confusion makes it worse i ask.....why do we keep doing this, the trying to get up and put on a happy face, make feeble vacation plans . so many days in bed this winter staring painfully at walls. i had my 47th major surgery hopefully the last. there is a glitch in my reconstructed left leg, the whole thing......tell me someone, my pain doc likes me and thinks i am cooperative ect. why is it they always undermedicate just that much so your short of comfort? what is the deal? i was at a pharmacy and some guy had an rx for 500 oxycontins 60's he said he did well and got about..my dropped jaw was hard to pick up. i have an appointment next week and something has to change, or what is the point? up's and downs. i never get "high" on anything barely pain controlled even with 4 month epidurals, intralaminals, trigger points"when he remembers to do them, even is i remind him, too busy, next time. so next time is next week in the office without the sedation i had in the or, nice. sound depressed i finnally am, after 7 yrs. i
am, i do not want drugs, more mess. i just know i have lost my will to go on.
i could go to bed and not get up. i am on 12 hr medication, but it says it is often 8-10 for some, we already know my tolerance is high, i was to suggest a same drug short acting to plug in in the 2 low spots to see if that works, instead i am given tyl with codiene or vicodin yuck, it has to change. the same medication with a boost after 10 hrs. if i can't get this done i just feel i can't handle the stress. this is real stress. i can't deal with being threatened to be cut off ssd for someones mistake! it feels like a mountain, i cannot climb. i see mental health, maybe they can help fiqure it out, i just talk with them since the accident i have a severe case of post traumatic stress. you guys it is serious i feel like giving, i lost everything my family, home everything. the person who hit me was 19 driving a semi with no ins my husband dropped our unisured motorist to 10,00 from 100,000. but 2.6 million in
medical so far. the money is gone, but i do not face any major stuff. that's why i said i could move on into a loving relationship, but who wants damaged
goods? my face was untouched! other than teeth. but zippers everywhere to
repair the mess. i can dress nice to hide things but...guys are shallow.
hate to be a bummer but i am confessing this depression maybe it will go away
it sounds awefull only if he goes away will i breath. i mean he haunts me tells me what to do, not to even drive my own truck somewhere to get flowers or things
he wants to drive it! i want to! it is a mess i felt sorry fed him took him
places and now he even sleps at my place "to be close" his place is 5 apts
down! he is lonely i get that. so what the heck do i do. i am so tired
tired of pain, tired of not being heard, until you are sick and injured
a person really does not understand! they can't they run we stumble along.
what do i do? i was the upbeat one, i am beat. i love and care for you all,
i know it is tuff. do not get this far down, there is no way out it seems.
JUANITA 3-30
JUANITA/TX i DON'T HAVE DIBITIES, YEAH. but might have to have capal tunnel surgery in the near future. anyone ever had it and what is the sucess rate?RICHARD, i din't get your e-mail. can you try again. my e-mail address again is cooperwayne_589@msn.com i might have put a dash instead of an underscore. the sleep disorder dr. put me on PROVGIL because i am still having trouble sleeping and yawn all day long and am so tired. he did say it could be just the FIBRO. WELL I HAVE TO GO FOR NOW. GENTLE HUGGS AND HAVE A PAINFREE WEEKEND. sorry about the caps. i forget to switch. JUANITA/TX
Richard in Tucson March 30
Hi I have a few seconds to make a short post.
Jaunita: I am glad to read you don't have Diabetes. Sorry you didn't get the e-mail. Maybe it is case sensitive I think I typed all caps, let me know if you get this one.
I hope everyone has a great week-end gentle Hugs from Richard in Tucson..
Bonnie March 30
Juanita, so happy to hear that you don't have diabetes. Such a
terrible disease that affects all other parts of your body. My heart doctor was fussing at me as he thought my numbers were too high. He was looking at a test from last Dec. Had more blood testing done today...will get results when I see my family doc on Monday. According to the heart doc I can't eat much of anything!! Gosh, I might get skinny again!!...Our family doc has had extra training in diabetic issues...will leave that subject up to him.
My sister-in-law had laser surgery on both hands for carpal tunnel, she got along great. Did them both at the same time.
Hello Bex, I haven't had a chance to meet you yet. You must have come to the wall when I was off for months after heart surgery. Sounds like to have an awful lot to deal with. There is always a way, try not to let yourself get so depressed and maybe things will look better. If this man is bothering you so much, causing you to feel worse, then tell him to get lost. I would never let someone else control me to the extent that I couldn't do what I want with my own things. ie. drive my own vehicle!
We need happy stuff in our lives right now.
Fog has moved in here, going to be bad after dark. Sure glad I don't have to go any place tonight. I keep telling myself the sun will shine tomorrow...
Take care all and have a nice weekend if you can.
Jenny in Utah 3/31/07
Hello everyone! I had a tough week this week. My feet have hurt so bad! I had a long day with my students doing clinical at the nursing home and was on my feet all day long. Then I had to go to the store to get some stuff for my lecture. When I was there, I was in tears because it hurt so much. I had some heavy stuff on the bottom of the cart and left it there. I have never had a problem with that before. But, when I got to the checkout they told me it had to be on the counter. I was so upset! I couldn't do it! The tears came this time. I am so glad my son was there to help me, or I probably would have just walked out! Anyway, the cymbalta helped that first week and has only helped with depression since then. So I continue on it, but my feet hurt so much, I called my NP yesterday. Well, she gave me some zanaflex. It is a muscle relaxer. Has anyone tried this? I was asleep within half an hour of taking it! I slept very nicely and my whole body was relaxed. I was able to walk on my feet for once in a long time. Although they still hurt a little, it was not real bad. I just don't know if I dare take it during the day the way it made me sleep!
Bernadette March 31
I have to go to work so I can't talk much but I read this morning that ZELNORM HAS BEEN TAKEN OFF THE MARKET it causes cardiac problems. I know that many of us have IBS and so some of us probably take it. Gotta go now.
JUANITA 3-31-07
JUANITA/TX well hello everyone. well i just spent the last 24 hours in the hopital. thought i had a heart attack but is only the new meds. the dr. gave me friday. sent my blood ressure off the chart and made me sick and dizzy. since heart problems run in my family they thoght best to keep me overnight for test. i had a stress test that you lay down for and i really felt like i was having a heart attack. but all was ok onyl cant take the new med. will i am exhausted from all of this so i will go for now. take care and gentle huggs.JUANITA/TX
Cari K. 3-31-07
Cari K. 3-31-07
Hello everyone.I haven't posted in awhile but I still read every day.I too am soooo tired of watching people pick up very strong narcotic drugs at the pharmacy,while I'm there to pick up some measly pills that don't last like they're supposed to and a pain patch that is supposed to be for long term pain but only makes me want to sleep.I tell my pain doctor that the pills don't work and that the patches make me sleepy and all he has done is increase the dose of the patch.I've almost fallen asleep driving my car to work more times than I can count.But I have to work.This time,when I go to see him,I'm going to tell him this.Maybe he will understand that I don't want to kill someone else on the road.I just want to be free of pain.They keep talking about this radio frequency procedure where they burn the nerve ends in my spine to stop the reception of pain to my brain.This is to help with the athritus on my spine.I've asked them,what is this going to do for the fibro pain and the chronic fatique? They give me some bull crap answer that it should help with that pain also.I say,they are just trying to get me for a procedure that I don't really need but I have to go through just so I can still get te pain meds.What about you? does it sound like a money issue to you all? I just don't know what to do.My family doctor has advised me that he no longer accepts my insurance so either I pay full prices or find a new doctor.So I am looking for a new doctor too.It is so hard to find someone who will take you with fibro.The last reumy I saw,gave me a prescription for requip and told me to come back in a year! So,I won't be going back to him.Lordy,this has to be the longest post I've ever written.I guess I'll go for now.I've vented enough for tonight.Pray for me that I find a doctor who "gets it",ok? Gentle hugs,Cari K.
Yolanda Mia 3/31/07
Hello All! I'm sorry to hear about all the pain everyone seems to be in lately. It's this darn weather. Everyday it fluctuates and has been throwing me into flares as well. To those that are depressed, please seek help ASAP! If you are contemplating suicide, call someone right away! Don't let this dragon take you down. It is sad to see what we all go through, and I've seen the studies of those with chronic pain disorders commiting suicide. It scares the crap out of me to think that anyone of us may actually go through with it one day. I hope that never happens and that when you get low, you know we are all here for you. I don't mind if anyone e-mails me personally, so please do if you think it may help. I'm not on as often as I was anymore, but I will try to get back to you as soon as I get the chance to check my e-mail. I try to get on twice a day, once in the morning and then again when I get home from work.
I want to welcome all the newbies!
I tried to use the free drug assistance cards for my allergy meds, which I desperately need cause I'm sick from all the pollen, but they don't cover any of my meds at all. Combined for three meds would be about $300. So, I asked the pharmacist (the one with a brain) what meds I could use that are OTC that would be similar to my prescription meds. Thankfully one of my meds is an OTC med, I had it as a prescription so it would be slightly cheaper. The other 2 are the most important though. She did suggest some meds that have helped some. They aren't as good as the prescribed meds, but they will have to do for now. They make it so I'm not completely miserable, though I have lost my voice. Not good considering I have promotion gigs.
One good thing about the new job is that I bring home as much as I made at the law firm. So that's about an extra $75 a week, if we have a full week, which we haven't had but one since I started. They've already started slowing down. I'm hoping to make some money to catch up on some bills before I get laid off. But, I'm glad to be making some money to help me get caught up, though the job may kill me with the pain and the hours. My body doesn't like to get up as early as I need to, so I am constantly struggling to stay awake as I drive to work everyday. It's very difficult b/c it's an hour drive. I'm fine once I get to work, just not wanting to function quite so early in the morning. I do hope I find a more permanent job soon that will be better hours and will get me insurance again. Til then I will struggle with the hell of this job b/c I desperately need the money. My roommate sees me struggle, and hates to see me so miserable everyday. He tries to help all he can, but he can only do so much for me and my pain. He has been good at giving me massages every so often. It would be nice to get them daily :D. I am anticipating next weekend, for I will finally get to catch up on some needed sleep. I've not had a day off in weeks b/c of promotions and this job. Also, I have an appointment with a chiropractor that I desperaltely need cause this job has made me wrench my shoulders b/c of the air tools. It is reasonable prices too b/c he's Amish and they are not allowed to charge, he only accepts donations. He does have a recommended donation of $20. That's still a pretty good price for a visit.
Well, for the whole Josh situation, nothing has happened yet. We have talked a few times, and I haven't spoken to him in 2 weeks. I left him a message, but he's not responded. I'm very confused by all this b/c he doesn't know why he wanted to talk to me after so much time, so he says. I know that's bull, he just doesn't want to tell me why he wants back in my life all of a sudden. And, to make things worse, my roommate tells me that he's in love with me. I had already suspected, but having it confirmed is completely different, cause now I can't ignore it. I finally told him I was talking to Josh, and he told me that if I went back to Josh, he'd never speak to me again b/c it would hurt too much. So, now I am torn. My roommate and I are trying to start an online business, and all that would deteriorate if I followed my heart to Josh. But, I don't even know if Josh wants to be with me again, or if he just wants to be friends. Also, I may have started having feelings for my roommate, but it could also be me clinging to something when everything else in my life has gone awry. I'm quite confused. Sorry to lay all that out, but I needed to sort it out in writing, to dump it all out of my head and hopefully relieve that stress for the time being.
Love ya all! Yoyo