"Happy Birthday to Louise/Goose" I hope your day is pain free & very special in some way.
I wish I could stay here & share everything I am thinking, but you all would get so overwhelmed, it would be catastrofic. I have an arsonal of information, that I have found over the last ten years about this Illness, but it is too much for anyone to take. I need to find out how to post some of this info somewhere on this sight, somehow it would not repeat anything allready here, but could be read by the Wallabies any time. The fallowing link is some thing I found today, check it out if you would like. It is an artical about
ADHD, Depression and Fibromyalgia By Petya Stoeva,From the Missouri Arthritis Rehabilitation Research & Taining Center. Anyway here it is.(http://marrtc.org/media/stories/060411fibroADHD.html) I hope this is interesting to you all, or at least some of you. I have to go for now , please take care of yourselves, From Richard in Tucson...
Happy Birthday Louise/Goose!!!!!
Welcome to all the "Newbies". Seems like there are so many. And such eloquent speakers we have here.
Not feeling real good at the moment, so will go lay down.
Hugs, Dee
Well I must get going now, just know I care about you all, I will keep coming back to the wall. From Richard in Tucson...
As time goes on, it seems really apparent that the fibro (and restless leg)is truly a problem in the brain. And I think the connection between a virus, exposure to pesticides, and heredity are also part of my condition. All those factors seem to have come into play at one time or another for me. Any one else take Requip????
Have a good one!
I will try to get back her today in the mid day if I get a chance if not have a wonderful week end, I will post sometime on Monday, From Richard in Tucson...
Good Morning,
I now it has been some time since I posted but I have been going crazy with everything that has been happening. I am trying to get ready for my next business trip out of country for three weeks. I have been taking my hydro-codone on a regular basis to help ease the pain that is always there. I have noticed lately that my lower portion of my throat has been really sore lately. I also get these shivers for no reason and I don’t understand it. Let me get to the point now. I called the rheumy on Friday at 1:45 knowing they closed at 2:00. What do you know… they didn’t answer the phone. So I called my PCP doctor… the receptionists answered the phone and put me on hold for ten minutes. I explained I would need a refill on a few prescriptions. I went through the list… albuterol, advair and then hydro-codone. I told her the hydrocodone was prescribed by the rheumy. She immediately cut me off and said the doctor would not fill it. I tried to be polite and give her a quick explanation only to be cut off again. I let her vent and then asked to speak to a nurse… she told me that she could handle this. I just stopped talking until she said to hold. She finally comes back on and I explain to the same women that I had fibro and that my doctor had seen me a week ago and that he was aware I was taking hydro-codone. I was just asking for a refill to hold me over four weeks. So she tells me to call the pharmacy after 5… I asked… you close at 4:30? She says yes… so I was like how am I going to know if the doctor signs off on it. So I call back at 4:15 only to be told that I needed to call the pharmacy after 5. So I go to the pharmacy today only to find my prescription of hydro-codone to be filled with 5-500 and not the 10-500 I am taking. To top it off I was given 20 pills…. I am ready to lose it. I am going to go back to bed and just sleep it off. Thanks for listening.
Greetings from Anne and Bear.
A happy, healthy, blessed birthday to all May Wallabies.
It's a beautiful day in the neighborhood, a beautiful day in the neighborhood...
Why am I singing? Because I'm not in bipolar depression, and everyday away from that is a day to sing. Now, fibro pain and exhaustion is something else again...It's been a very tough week in that regard. I'm hanging in there, though.
Dear Bernadette, you're one of the bravest people I've ever "met". I can't imagine how difficult it has been and must still be for you to go through this miscarraige with all the emotional struggling and ambivalence. Yet, you never ceased caring about the problems and concerns of others through your trials.My thoughts continue to be with you.
Christine, I know a breast biopsy is scary business. We'll all be with you in spirit, and God never leaves your side. I'l pray for peace of mind for you, as well as a favorable outcome.
Mary, my blood was boiling when I read about your experience with your rhuematologist, because I've been going through the same thing with my doc. Docs look at you and see a young blond who shouldn't have chronic pain. You know what docs see when they look at my chart? A crazy, a nutcase, a hysteric. Someone with a history of anxiety and bipolar disorder, someone who has in the past done harm to herself because of her emotional disorders. How much credibility do you think I have?
A couple of months ago, I walked calmly out of a doc's office, barely able to keep my face emotionless. Once I'd made it to my car, I sobbed for an hour out of shame and frustration. It was because the doc looked at my history, sized me up in two seconds and decided I wasn't worth his time. He practically pushed me out of his office. He'd made a lot of assumptions he never bothered to check out. He assumed I was trying to get out of doing my job (I never even knew anything about workman's comp until after the visit and my mother told me about it). He assumed the pain was in my head, despite the obvious swelling of the hand he barely glanced at. He decided I was "just feeling a little stress and depressed".
I was tempted to just give up and stop seeing docs, as I've done several times over the years out of frustration. I'm very unassertive and nonconfrontational as well. But some of these docs want us to go quietly away and leave them comfortably alone with their convenient assumptions. Why should we? No more!
I'm going to stay in their faces--as many of them as it takes for as long as it takes until someone helps me. This is my life! These are our lives, guys!!!
We deserve the best we can get from them because they are a gift from God.
Please forgive me for posting so very long, folks. I will be terminating my internet services effective Tuesday. Don't know when I'll be back, but I've gotta choose between internet and medications/doc co-pays. Cutting in other places as well. I wanted to say that in the short time I've been here, you all have touched me with your caring, mirth, creativity, and courage. You shine like multi-faceted gems. I wish the very best for each of you. Many, many blessings and little pain (oddly enough, pain sometimes can be or lead to a blessing, so I won't wish it all away).
Affectionately,
Anne and Bear
Hello, I am new to this site. I have been dealing with fibromyalgia for about 10 years now but was only "diagnosed" about 4 years ago. I thought I had rheumatoid arthritis. I was sent to a rheumatologist by my family doc. He drew a bunch of blood, pushed around on my body which was very painful and told me it was probably fibromyalgia. Then he told me to see my family doc for help and he then left the room. When the blood work came back negative for rheumatoid, it was confirmed that I had fibro. I felt devastated and alone. It was as though nobody wanted to deal with me. I went home and looked it up on the internet and found there was no cure and really nothing helped. I now understand that as I look back to my mid 20's that what I was experiencing was fibro and not just the process of getting old. I just thought everybody felt the way that I did. I have fought depression, memory loss, pain, sleeplessness, the fibro "brain fog" and it has debilitated me. I am an R.N. and have had to leave hospital work for a doctor's office where there is less stress mentally and physically. I took a big cut in pay to do so but I guess you give up one thing for another. I am just glad to know there are others out there struggling like I am to get out of bed every day. I have a family and it is hard to push myself to make it to functions and practices. My mother thinks I am lazy but until you are in our shoes, you don't know what it is like to live with constant pain and exhaustion. I don't remember what it is like to live without it.
I had to go to Motor Vehicle To get my Sons License plates. I also had an appointment with my Primary Doctor. I am in bad shape, My Triglycerides are @ 228, Cholesterol total is 158, Hemoglobin Alc @ 5.9, & my Glucose Plasma is at 115. My Doc. says I need to go on the South Beach Diet & Exercise. He calls my new state of health Metabolic Syndrom. I some-times think I would be better off with no Doctors in my life. He says I really have got to excercise & Deit. He also wants me to take the Lyrica 3x per day, I told him I can't afford it.
Enough venting for now.
Warm welcomes to the Newbies. I wish I could keep track of all your names in my head, so I can get them rite when I try to post.
Phillip: I agree with you about the Wall being our magic bullet, It is hard to except or bodies breaking down. We will together with knowledge & support from each other rebuild these broken bodies & spirits. Yes I too say hang in there "Troopers".
Kathy in Maine: You are speacial too, I am sure you have something helpful to add here if you really want. You are not alone this Wall Gives us all hope, as do your contributions of your time & caring.
Bernadette: Thank you for your relieving me of my own worry about the spelling errors, I am harder on myself than I should be. Thank you for sharing with us your feelings you will always be welcome here to share anything. Anonymously or not.
Anne: Please keep connected to the wall, even if at your local libray or a friends computer. well I have to go to the bus stop for our daughter Nicole, I will try to post in the Morning. From Richard in Tucson...
Have been having problems lately with ibs and alot of pain in my legs,so Dave is taking the next run alone so I can rest up.
Welcome newbies,sorry you needed to find us,but glad we are here for you. Its a great place with wonderful people.
Will catch up on the reading later,just wanted to pop in and say hi.
your fibro friend Richard in Tucson....
Welcome Cathy,you have come to a great place.
HAPPY BIRTHDAY all you May babies....hope you all have/had a wonderful day.
As far as all those meds go, my regular doctor is the one that prescribes the antidepressants and pain med, as well as the requip. When I see the Rheumy, I take a list of everything I'm on. I also see a Asthma/Allergy specialist who prescribes the asthma meds. It's been very helpful to print out the med list for each one; and I always ask each physician if he sees any interactions or problems with the meds. Despite being a walking medicine cabinet, they all agree on the meds, dosages, etc. I recently discussed going off Prozac (I've been on it for about 4 years) because of the parkinson like symptoms. He emphatically insists that I stay on it, so I will. I'm always looking for a way to dump one of them.
Glad everyone is hanging in there! Later alligators.
I had a fairly decent day, and was actually able to work some. Sure could use a good night's sleep for a change. The weather (colorado) has cleared up and it was nice and warm today. Seems like it went from winter to summer in 2 days. Later!
He is Extremely caring re: FMS pts. This is his article,
Richard, Happy Belated Birthday. Hope you have had a good birthday.
As for me lately, still dealing with the terrible back pain from the possible herniated disc. Went to the neurologist, for a recheck on the migraines, he also checked me with the back problem. He believes I have a huge herniated disc. On Wednesday I go for the MRI scan, been given Valium to help with it, although I don't think I'll need it. I just want to crawl into the MRI machine and find out how badly I got hurt. During this week I need to call and get scheduled for physical therapy.
Hope all of you are doing alright. Praying for all of you. Lots of hugs.
Happy Birthday Richard.!.!.!.!
Well I have said enough here, I have to get this small coner of my Patio roof done today that I have been putting of for two months, I have to go to my dads house to get his big ladder first. I wish you all a pain free, Fatigue free week. Richard in Tucson Over & Out...
Well I have to Go Have a wonderful Week-end. Gentle Hugs from Richard For the Ladies Phillup, you get a high five lol....
I used to post some years ago but my computer had to unloaded and reloaded, so I lost the address.
In 2004 I had a lower back disc go bad and the Dr. Using small titanium strips screwed them into the vertbrae. Again in 2005 the disc below the first fusion in cervical area wore out and had to do the same procedure as in lower back.
I hope you all feel better soon. Please take care of yourselves. Hugs.
I wish I could remove all the hurt. All I can do is let you know that we will have better days ahead. I have so much to be thankful for, espeacilly my family here @ the wall. Today I have to sweep and mop our kitchen floor. Then go to Nicole's Kinder Class for a special presentation of song & skits put on buy her Kindergarten class. After several weeks of waiting I finally am getting the Stucco work done on our back porch/ Deck combo. They were supposed to come this week-end, but their mixer broke down.
I have to go now, I wish you all to have less pain and inner peace. Talk to you soon From Richard In Tucson....
Suz, May 10th
Hi Everyone
I haven't posted in quite sometime. It seems my life if just full of other peoples needs.
It goes like this..Sunday my grandaughter fell off her bike, she was unconscious, an ambulance was called. Her mother went with the ambulance, my son stayed to call to see if I would watch the other 2 kids ages 21/2 and 9. It was an all day thing. Monday I take my Mom shopping. We went to 3 different places. I have to carry everything in and put it away and as long as I'm there, I clean her house. Tues my mother called at 10 to say she called the dr and has to be there at 11:30. I have to go get her and take her to the drs. Then I take her back home only to go get her 3 hours later to take her to the city for a cat scan. Today I had the same 2 grandkids, while my daughter in law took the other one to a neurologist thats 80 miles away to find out she has tourettes.
OK, I'm getting really tired..its been one infection after another. Last week I found out I have thrush in my mouth, a sinus infection and my knee is shot. There's nothing left between the patella and the bone under it and there's burrs on both sides.
SO..I need some ME time and I said this to my friend, my coach, my motivator and will share it here..maybe some of you can use it for yourselves.
I have a new rule. One day a week of my choosing, I dont ever answer the phone on a day I dont want to do anything. I just let it ring and let the answering machine get it. If its an emergency, they should have called 911. If its a death, they aint going no where. If its the lottery, I have 180 days to respond. So my new rule is, if I dont wanna I dont have to, on my day off......lol
Sending love and light to ease everyones pain.
Debbie 5-10-06
Hello everyone, Debbie from Kentucky here. This is my first visit to this chatroom and it is nice to meet all of you.
I would like to tell all of my symptoms and see what you think as to whether I might have FM or not. My primary care doctor says I "probably" do, but has never said for sure. He gave me Cymbalta last month which I take and it seems to help some but it leaves me in a definite fog.
I have Pain in my wrist, elbows and shoulders. My lower back is very stiff, weak and painful all the time, especially when sitting or standing. I cannot go up and down steps, partly due to osteoarthritis in my knees, which are very weak, unstable and painful all the time. I get tingling/vibrations in the bottoms of my feet and my left thigh gets numb especially when lying down. I have a dent in my thumbnail, facial pain in the eye/cheek area and my jaws get tight and have to be stretched regularly. My calf muscles and behind my knees get and remain extremely tight and painful especially when standing up or walking. I have discolored skin on my right leg from the thigh to mid-calf. It is a red/white blotchy looking skin, no itching or burning.
And that about does it. i am so very uncomfortable all the time and it keeps me from being able to enjoy the things in life that should be a big part of my life. I am 53 years old and am currently staying at home because of not being able to work because of all this. Ihave applied for SS disability but it has been 15 months and we are still working on it.I have a long history of anxiety disorder and I was diagnosed with MS in 1980 via MRI and again in 2000. My first symptom being a bout with optic neuritis.
I appreciate the chance to put my symptoms down for someone to review. Thanks for listening and I would appreciate any and all prayers.
Deb
Richard in Tucson Thursday May 11, 2006
Good Thursday Morning to all of you. I hope everyone is doing better. I will make this short because I have the building inspector coming to give a go ahead on stuccoing my deck columns.
"Happy Belated Birthday To Rose, I hope your day was special"
Phillip-WV: Thank you for the information about the Medicare low income exemption.
Cathy: Warm welcome to the wall. Sounds like you have alot on your plate, I understand, I have five kids, only three @ home. You have found a wonderful place here @ the Wall, keep coming back. Good Luck with your appointment with your Rhuematologist, I suggest you insist that your FMS Doctor communicate about your meds with your other Doctor, even if only by Fax. You should not have to drive three hours to get them to get it together.
Barb(Pa): I am glad to read you made it through your Kinder/Truck tour Smothly, now rest up.
Suz: I understand your situation. I hope your grandaughter is OK, this must have been a difficuld time for you & your family. I need "ME Time too" I find I have to work it into my day or I get so stressed I turn into this horrible person. Lately I have to Get a short nap in the afternoon before my wife gets home, or I can't cope with any-thing going on in the family.
You need to take care of yourself, find your ME TIME & relax and enjoy music that calms you.
Debbie: Welcome to the Wall. Your symptoms seem Fibro like, although some of these could be your MS symptoms, I don't have an MS diaognoses, but I would ask your Doctor about the differences, if he does not know find a new Doctor that does. You have come to the right place, you will get lots of useful information here and loving supporting friends.
Well I have to go friends. May you have painfree days & nights & be well.
Richard in Tucson.....
robbi May 11
Hi All. It's been a long painful week for me. I think I caught some kind of bug (or lots of allergies!) Saturday, and have been up and down all week. I am up to the maintenance dose of Requip as of today. I'm still having muscle spasms (?) in my arm and leg, and the twitches are with me but not quite so strong. I've been having spells of pain and migraines off and on. Advil gel caps, midrin, tramadol, cyclobenzeprene, and amytriptyline help with the migraines and pain, but I hate having to take all those meds at once. Better living through chemistry...?
Barb(Pa) 5/11/06
Hi FMily, Richard,my rest was short lived....we got a team load and must be in Redding,Ca. Monday morning. Dave is loading Friday morning in N.J. so it will be one of those stop only to fuel and go to the restroom runs....the real stressful ones.Can't stay but a minute..have laundry to finish and get packed. I'm kinda rushed since I had planned on staying home. Gentle hugs
Doris 5/12/06
Hi everyone, just dropping in for a short post. Wow so much going on here. I am sorry to hear so much pain but of course I have my own share of it too. Still haven't heard from my MRI yet and my back sure isn't getting any better. I had an appt. at Social Security Tuesday and when I got there, they had moved to another building. Oh great I thought,but luckily I had my cell phone so I called them and got their new location which was easy to find and made it there ok. My appt. was at 10 but my worker was tied up with another guy so she didn't get to me until 11:20....geez was I a happy camper! But at least we got everything all done and I am actually getting a nice backpay from SSI as well as disability. This was a very unexpected surprise! But like I always say,"Good things come to those who wait" and I truly believe that! It is happening to me.
It took me over 2 1/2 years but I am getting a sweet reward now and I am feeling so blessed. I am going to be able to pay off my car.I am actually thinking of getting a SUV. It's the Saturn Vue. We went and looked at them and they are very nice. It's midsize and that is what I want. I will let you all know more about that later. Hope you all are having a good day with little pain.
Sending you warm hugs and lots of smiles across the many cyber miles. May God bless each of you and supply your needs. I will be be again real soon. Love to you all.
Richard in Tucson 5/12/06
Hi all, must make this short because I am running out the door. Have a wonderful weekend. I hope to post real soon or Monday wich-ever comes first lol. I will miss you all until then. Love Richard in Tucson...
Janet May 12
Janet May 12
It has been quite a while since I posted on the wall.
Since I was just diagnosed with FMS last December, I have been going through denial and a lot of anger.
I think I'm now past denial and I think the anger will just come and go as necessary.
I have been keeping up with the wall and all the posts. So many of you are going through such tough times.
I am so sorry and will send lots of positive thoughts your way. I am very fortunate to have a loving and compassionate husband. I do fear he will eventually get tired of my complaining or me not being able to be on the go all the time. We shall see!!! I was just diagnosed with a herniated disc, so I am now in physical therapy. I go to acupuncture every two weeks and try to get a massage once a month. I am still working full time, but it is getting harder as the months go by. Luckily, I am an administrator at a private school and the year is winding down. I get the month of July off to recoop and then we start again. Anyway, I thought I would write and wish all of you lots of pain free days.
Debbie
Hello everyone, I went to my ortho doc yesterday and he was shocked when he saw the condition of my back. I have a vertebrae which has been broken for some time which I believe was from a fall in my driveway in 1999, my spondylothisis(pars defect) has gotten worse since 2001 and I have spinal compression and spurs at different areas. I am having an MRI on both knees on the 18th. Doc thinks I have meniscus tears in both of them so I guess surgery is in the near future. At least I know what is going on with me other than the MS and continuous pain.
I hope everyone has a wonderful painfree weekend and Mother's Day! I know there has been a lot of rain thruout the country which has an adverse effect on so many of us.
Until next time, take care and God be with you all.
Bernadette May 12
DORIS I continue to feel joy at your long deserved benefits. I remember a time when you were wishing for enough spare money to go thrift store shopping and here you are looking at SUVs! So happy for you, and glad that you share your life with us here. JANET I remember you from a while back. It is good to hear from you again. Six months sounds about right for the denial phase! It sounds like you are taking good steps to take care of yourself. BARB I loved hearing about your sharing your truck with the kindergarteners! What a neat experience. I think sometimes in life we have to go for it even though it is painful because we'll make such good memories and serve others. I envy you going to Redding. That is where I used to live before moving to Alaska. SUZ love your new rule!!! DEBBIE, welcome.
Well, I am doing OK. I took off this week to kind of recover from my miscarriage and I start work again next week. I allowed myself some time to grieve and now it is time to move on. I am noticing that the mornings after I take a walk with my son are easier and less painful. I wonder what it is about exercise that helps so much but I have to get better at discipling myself to do it everyday. Well, gotta go.
Kathy in Maine May 12th 2006
Hi all, Thank you to Bernadette and Richard in Tucson for the kind words of welcome. BJ Many doctors have brought me to tears with their insensativity. Keep your chin up and continue looking until you have one who genuinely listens. They (are) out there. That's half the battle. I'm so lucky that I finally found one! Also a great neurosurgen for my degenerate spine... Suz Great Rule! I've had to set limits with all my friends and relatives. You're taking an important step. I truly hope your granddaughter is okay though. I never use to stand up for myself with doctors and other people, but I guess I've had to learn to be my own advacate with my health. It took me a while to convince myself that I had to get tough. I have fired at least two of my doctors for failing to do their jobs. I know that may sound funny; but it's true. I wrote a letter to one of them explaining how he had failed to do what I expected of him, and just a few years later I learned from my primary care doctor that he was no longer in practice. I'm sure that it wasn't just me who had a problem. There must have been more. You all need to stay strong and fight for the right healthcare for Fibro, CFS, RLS, and all the other related problems that we endure. I'll get down off the soap box now and say that I hope you all have pain free days and nights. Again, thanks for the welcome back, Kathy P.S. By the way; This is FMS Awareness Day. Spread the Word...
robbi-May12
Hi All. Bernadette--Glad you're working through the miscarriage. I've also had a miscarriage. Takes a little while for the hormones to get back to normal (if that's even possible with us fibromites!). Doris--congratulations--its wonderful to finally have the funds you need to live. 2 1/2 years is a long time to wait and make do. It should make dealing with the fibro easier too. Less stress about finances! Barb--glad you are taking a break from the road.
Phillip
A little diversion for us Wallabies: What am I talking about? --Celestial Blue--
A ship of deep blue, eternally at sail
Creaking and cracking along the way
No port to dock --
Sailing in circles
Sun rises, then to fall
Turbulent storms each cycle --
Peaceful waters respite its journey
Sun shining brightly
Calming spirits --
All on board, none to command
This graying ship sets its course
No port to dock, never to rest --
Stars are fixed along the way
Repeating night and season
Marks the journey to no destination --
Empty vessels filled; set adrift
Messages of good tidings
Never answered, never returned --
Generation to generation...ride
Sailing a marked course
Never to stray --
This graying ship
Old but true
Precious cargo, it does carry --
No port needed
No dock required
Home is our ship, our port --
This deep blue ship eternally at sail
Creaking and cracking along the way
Suz, May 12th
Hi Everyone
Just wanted to let you know, my grandaughter is fine. The headaches from the concussion have left her and the Tourettes is mild enough that the dr beleives it should be left alone since it doesn't seem to bother her. Her mother had to rule out the adha medicine wasn't causing the *tics*. She was on another medication that made her leg kick out when she was sitting or her arms fling out. She was given a different med and it stopped. On Reiki Demo night, my grandaughter was on the table while we did Reiki on her and you could feel the tics or twitches thru her body. It felt like they were coming from the inside out. We asked her about it and she just blew it off. Thats a kid for ya...lol
3 out of 6 of my grandkids have problems..she and her brother both are adha, he had PDD (a form of autism) and is bi polar. My other grandaughter had cancer at 4 months old. 95% of her liver was full of cancer. She survived but is blind in 1 eye from the chemo and has hearing loss and is also adha. The other 3 grandkids are 2 young to really tell yet.
It's an awful thing to say but I often wonder if the parents had more patience..would my grandkids still need to be medicated? What I don't understand was neither mother ever worked..which is the envy of most working mothers, yet they couldn't deal with their children. No one is a perfect parent, and I'm not casting any stones but why do so many kids these days have so many problems? Is it unusual that 3 out of 6 grandkids so far..have problems? Any thoughts on this anyone?
Kind of a change of topic but, I suppose in the long run..gramma can you, mom can you, all weighs on the FMS.
By the way..I did let the phone ring today..it felt soooo good not to have to deal with anyone elses stress.
Love and light to all.
Christine\May12
Hi everyone.Thank you all for your prayers and well wishes.I was supposed to have my biopsy today but I'm having other health problems that caused them not to do it.I'm rescheduled for Wednesday.I found another lump last night,know I'm scared out of my mind.This has been an extremely bad week.All these stupid med's do is eat up my stomach.I haven't slept more than an hour all week.My muscles have been spasming really bad.I'm to the point that I can't stand the pain!!I't sounds like everyone has had a terrible week.Thank God for all of you who understand this disease.Lately all I want to do is cry.I'm so sick of being told the pains in my mind or because I'm overweight.I wish every idiot that's told one of us that we have nothing wrong could trade places with us for just one day!!!!Well thanks for letting me vent.All my love and prayers are with you all.
Lee Ann/MI 05/12/06
Hi! I have had a really bad day today. I have been in so much pain and had a series of headaches that I just wanted to cry. I went to the library to get a fresh batch of books and by the time I got home I was all done in. I ended up taking a boatload of meds and sleeping off and on all day. I am still in some pain but at least the headache has quit for now. I am glad that some good things are happening for some of you. For those who are struggling, I can certainly empathize with you. I guess I am in the state of mind that isn't real good right now, I just want to pull the covers over my head and stay there. Sorry, I did not want to sound so bad that it will bring someone else down also. I just wanted to send my prayers to those in need and praises for the ones who are getting rewards right now. Got to go and try to get some more sleep.
Noralyn
Noralyn
Wow! I really blew that one.
I put my name and email but nocontribution.
As many may know, today May 12,2006 has been
another FMS Awareness Day gone by. The following url
will take you to an article by Dr. david Saul in Canada.
enjoy:
Support fibromyalgia sufferers by listening to their concerns
http://www.medicalpost.com/mpcontent/article.jsp?content=20060501_185119_5640
google brings the page up. I have a few other articles>br>
by Dr. Saul and they are so wonderful.
Noralyn
DORIS 5/13/06
HAPPY BIRTHDAY RICHARD!!!!!! HOPE YOU ARE HAVING A GOOD WEEKEND AND A GOOD BIRTHDAY! GUESS YOU ARE 39 AND HOLDING, HUH? LOL.......HAVE A GOOD ONE!
robbi -- may 13
Good day all. Suz--I have always thought being a mother was the hardest job of all. And just because you can reproduce and stay at home with the kids doesn't make you a good mom! I stayed home with my little nipper till he was 3, then worked part-time, then full time when he got older. Much easier to deal with a boss than a cranky 4 year old! There has been a lot of speculation about childhood immunizations causing autism (not that I believe they should be skipped). Also, I believe the food we eat causes lots of behavioral difficulties in children--all the additives,sulfites, high fructose corn syrup, food colorings, dare I say "crap" that makes it's way into the processed foods and soft drinks. No wonder the kids can't sit still. Just my opinion guys--cause and effect if you will. You are what you eat.
Later alligators!
Phillip
Lee Ann -- Try a nice warm bath and let the warm water relax your muscles and clear your mind. Try some aroma therapy too.
God Bless img SRC="sm-sleepy.gif" border=0 width=25 height=20>
Suz, May 13th
Happy Belate birthday Richard. Belated cause you won't see this till Monday.
I agreee Robbi, and have read so much about poisoning our bodies with all these additives and preservatives. The hormones they use in the cows and so much stuff thats used now days that wasn't used by out mothers. So much more was natural back then. Breast milk, rarely was there baby food. We were given stuff that was blended. For example, mashed bananas, scrambled eggs, homemade applesauce, mashed potatoes. And I have read about the immunizations causing many of the problems with kids now days. But didn't we have the very same immunizations? Also, adding something to alot of foods that makes us crave that food.
Its strange but my last child was brought up quite different from my 1st 3. I wasn't working at the time and had the time to go more of a natural route with her(minus breast feeding, I didn't want to smother her! A joke. I had an over abundance in that area). Anyway, this child seemed to have more problems than my other 3. Learning disabled, chronic ear infections as a child, polycystic ovarian syndrome now, not motivated at all and always hurting. Does she also have FMS? I tend to think so. Eventually I may mention it to her but, right now it would be a big mistake.
Does a dr. do the same tender points on children that they do on adults? I've heard children as young as 13 being diagnosed with FMS. What do they give a child for pain?
I really rambled on here, sorry folks. Worrying is something I try not to do..but so many things get going in my head..and I can't keep them straight of that ole fibro fog scrambles everything.
And something thats really bothering me is how irritable, short tempered I've been lately and I don't know why. Is it because I haven't been able to exercise in almost 2 weeks? Am I just irritable because another piece of my body fell apart? Because I wake up tired and don't want to get out of bed? How much of this is FMS?
Suz, May 13th
The last part of the previous message said(for some reason it didn't go thru).
I'm done complaining!
Much love and healing light to everyone....
Jaime 5-13
Suz, I was diagnosed with FMS when I was 18, I had it though since I was 17. The doc did the same trigger test with me, and everything I've read the diagnoses test is the same for all no matter what age.
Dee / Saturday May 13, 2006
Lee Ann/MI 05/13/06
Good evening to everyone. Thanks for the advice, Phillip, it was a good one. I had a better day today then I did yesterday but still not up to par yet. Jaime, I am hoping that the MRI will show what the problem is. In the meantime, please take it easy if you can. You don't want to aggravate any problem you may have other than the fibro. RICHARD---Happy Birthday to you, that is a belated birthday because I did not get the message on to the wall in time. That ole' fibro thing, you know. I go to my rheumy doctor at the end of the month and I can't wait. I really need her help because I am not holding up too well right now. I have a real problem keeping my head above water right now. All the pressures of being off work is finally getting to me. I still feel like I am caught between a rock and a hard place. I know that being off work has been better for me but I need to work to support myself. Those who pray, please remember me in your prayers to find the way I am to go. Closing out for tonight. Welcome to all the new people, hope you keep coming back...even it is just to read the postings. Doris--enjoy your new found freedom. Blessings do come to some of us. Gentle hugs to all and hopefully a good night's rest.
DORIS 5/14/06
HAPPY MOTHER'S DAY TO ALL THE MOMS OUT THERE INCLUDING MYSELF!!!! GOD BLESS ALL YOU MOTHERS FOR IT IS THE HARDEST UNPAID JOB IN THE WORLD YET THE MOST FULLFILLING OF ALL! I HAVE RAISED 2 KIDS THRU GOOD TIMES AND ALOT OF BAD TIMES BUT WE MADE IT! I WOULDN'T GO BACK AND CHANGE A THING CAUSE I WAS LEARNING AS I WENT ALONG AND IT WAS WORTH IT ALL! HAVE A WONDERFUL DAY LADIES!
Bernadette May 14
I am having a hard time today. I think that I am down and irritable because I am having difficulty accepting my limitations. It is beautiful outside now and I want to be out in it doing lots of fun things with my son. I also want to be helping my husband more with the finances, by working more. But after a few hours of activity in any given day, I am DONE! Yesterday, after going to the park with my son, I had to come home and fall asleep. I didn't get to the housework or anything. I guess that I am afraid that my husband and son will get resentful of me for not doing more. I just look out on the beautiful day and feel awful that my son is in watching videos while I sleep when he should be out playing in it. I feel like I am robbing him of the childhood he deserves. I am supposed to work all next week and I know that after work I will come home and crash on the sofa and leave the housework and my son to the TV. We only get a few weeks of decent weather a year up here and I hate to waste any of it. I just wish I was able to do it all in any given day like a normal person. I guess I still look on my fibro as a moral issue or personal failing sometimes. Like if I just tried harder somehow, it would go away. I look at it as my fault. Does anyone else struggle with this?
Crishanna/May 14, 2006
Hello all. It's been a while since I posted. I have been really sick
from the oxycontin but I am now on the Duragesic Patches and they are
really helping my pain finally. Happy Mothersday to all the mothers. I
have been kind of depressed because I don't have a relationship with
my mother, because she was and is a very abusive person. My grandmother
raised me but she's not talking to my right now. I went to my in-laws
today and that was ok. I just wish I had someone to be there for me all
the time. My husband is good, but he dosen't really know how to be
comforting. Anyways that's my vent for the day. I will try to post more
often. I still pray for all of you every night. Take care. Hope you
all have happy days with little pain. Love Crishanna/AZ
Barb(Pa) 5/15/06
Happy Belated Mothers Day and Happy Belated Birthday Richard and everyone else up to this date... finally have a minute to get on line. Left Pa. 8:30 Friday night and am in California today,(Sunday night).We will deliver in Redding,Ca later this morning.Hope to get a chance to catch up on the posts later today. Have a great week,Gentle hugs.
Judy May 15, 2006
Hello FMily. I've not felt up to par for quite a few days now and haven't posted but I've been reading, none the less. I don't know if I actually have a problem aside from the FMS or if it IS the FMS! I read someone else's statement to that effect too. It's really hard to tell sometimes. This time tho I have some serious cankor (?) sores on my tongue. Has anyone ever heard of that before? I hadn't. The dr. said she was sure that's what the problem is tho. I can tell you it sure slows your eating down alot! But like some others here, I also have been struggling to stay "up", rather than cave into the depression lately. With so many gloomy days and so much rain, it's not easy tho.
Bernadette, I am glad I'm not the only one who thinks like you describe. I probably am my own worst enemy. I often catch myself thinking exactly like you said...'if only I would try harder I know I could do better!', but you know I think as I sit here thinking about it all, I must still be in some denial over this mess. I have a feeling all the time that I'm waiting for it to pass, if you know what I'm saying. It's like eventually it will go away. Now conciously I know better. But inside my mind I still feel like I'm just waiting for the time to come that it's over with and I'll be back to my normal self again. HA! I DO know better but somehow part of me just keeps badgering me over and over again. And when my family members act like I'm mental and such a wimp for 'just laying back and accepting it, feeling sorry for myself and making a big deal out of what everybody goes thru in life anyway', well, it's not easy to not feel guilty over it. Don't you think? I spend days trying to get my head on straight to deal with this in a way that it will become more normal and natural as a way of life for me so it's won't be a big deal so much. But one day around my family or my husband's family and there goes all those days of telling myself I can deal with this and find a "norm" for me. I know I'm probably not making sense right now at 5AM this morning but I'm trying to be sensible about it all. I'm sorry if I've just confused you all.
Phillip, you've done it again! What a beautiful poem. You bring a sense of peace to the Wall and I'm so glad you're here with us these days!...tho I AM sorry you have a reason to be one of us.
My thoughts and prayers are with you all, all of whom are too many to name right now for my state of mind. Sorry! But I also wish everyone a happy belated birthday, too. I've missed so many days on here I've neglected you all. Sorry about that too. I just want to take a second and say how good it is to not be one of a kind but to have you all to comiserate with. How awful this would be if there was not one person who could possibly understand what this is all about! Thanks for always being here at the Wall, not only for me but for everyone else too! I praise God for each of you!
Take care and I pray for restful, sleeping nights and painfree lives for each one of you. God bless! Judy
Christine\May12
Happy belated Mther's Day to all you wonderful mom's!!!Happy Birthday to all I missed.Thank you all for being here.I'm having a really hard time lately.I've had to try to push the fibro aside to deal with other health issues.My body feels like it can't go anymore,I keep pushing myself for my daughter's sake,but It's getting harder and harder.My fiance doesn't understand at all.He is bi-polar and is on alot of med's for it,but he still has some pretty bad moments.If Icouldn't come to the wall I'd probably be suicidal.I would never leave my daughter,she's my savior!I pray every night for a cure to this awful disease.I go Wednesday for my biopsy,I'm really worried about the new lump I found.Well Haley is crying for me ,so big gentle hugs to you all!
Richard in Tucson 5/15/06
Good Monday morning to you all: "WEW" What a weekend I had, I need a week or two just to rest-up from it lol. I have really had a real nice time, but not enough rest.
On Friday I worked five hours @ my parents preschool. Then I went to my parents house to visit for a while. My Sister Came from Germany for the summer, so we visited with her and her kids there until about 10:00pm. Saturday we slept in late, we went to a Birthday party for one of Nicole's classmates @ 11:00am. @ 1:00pm we left to buy the food for my Birthday pool party. The party was a success, but I helped my Brother-in-law cook dinner & serve it, that sure was tireing. We cooked, ate, swam, played & ate some more until abouit 12:00am we had about four couples & their kids over.
By the time we cleaned up & got to bed it was 1:30am. Yesterday was almost as eventful with Mother's day and all.
I want to thank you, for your Birthday well wishes. Doris I really wish I could be 39 & holding, I am now 44, but wishful thinking.
Well I am goimng to stop here, because my computer is doing weird things, something to do with a program called sticky keys, @ one point It stayed locked on all caps, now it is putting three words only at a time on a line than is slowly building the post. This strange way of word processing is driving me crazy. Talk to you soon, from Richard in Tucson...
Lee Ann/MI 05/15/06
Good evening to all! I am having a really bad day, also. I was doing pretty good until the afternoon when a rain front moved in. I am hurting so much right now that it is bringing me to tears. I was hardly able to fix supper and it made me so frustrated which made the pain hurt worse. And around and around we go!!! Even though I have been dealing with this for such a long time I have found that I still occasionally go through the "tantrums" and the feelings of "why me". I guess it is just part of being the way that I am. I am going to sign off now and go take some pills to try to calm the pain. Good night's rest to all. Tomorrow is another day.
Doris 5/16/06
Good morning all. Welcome back Richard and glad to hear you had a good time. Sounds like you need a nice long rest now....LOL. By the way I am just a year older than you...I turned 45 in January.
I just read alot of the posts and they reminded me of how I felt when I first found out I had fibro and also some of the other medical problems I have.
First, I need to tell you that you have to be so STRONG and it's hard but you have to learn how to handle your pain and you have to ACCEPT that you have fibro which is tough too! It's not the end of the world BUT there will be days when it will feel like it and that's when you have to be the STRONGEST! And it's ok to cry and feel bad at times cause we all do. There will be days you will be so mad at God and ask Why Me? It won't change things. Sure you can no longer do alot of the things you used to do......believe me I know. And you miss it ......really bad. I had to give up my job, my independence, my whole way of living. That's what it did to me. I sunk into depression, anxiety,pain,
and I felt like I had lost everything.
Then one day I realized I was so wrong. I had alot to be thankful for.
I had a great boyfriend who had stood by me all along and still does. I was able to get out of bed everyday which so many people can't. I had 2 kids and 2 sweet grandkids who I love dearly. Even with all my pain and problems I have so many blessings in my life. God didn't forget me after all. He was just waiting for me to see what I had right in front of me. I kept my faith in God all along
and I felt like he would take care of me and he did. He never let me go without the things I needed. And then He really blessed me a few weeks ago. My disability went thru and I know He had a hand in that. Faith is the word friends. Just have faith in all you do. Always believe in yourself and have faith! We are all special in our own way. I know it's rough to be sick. I know some of you have family issues BUT don't let it get you down. You have enough to handle with your medical problems. If you are having other problems, just have faith and hand those problems over to God. He will handle those for you.
Well,I hope this message helps even one person feel better and I just felt compelled to write it. Love you all and hugs to you. God bless.
5/16/06 Jane/OH
Hello all - sorry I've been absent for awhile - I've had pnemonia and a major fibro flare - needless to say I wasn't on the computer for a couple of weeks.
The weather is horrible here this week - I'm just bracing myself for a full week of pain - I thank God for leading me to this place - I find comfort in your words and expressions of concern for each other. I noticed this week there are alot of us in pain. I too have questioned God and asked what's up with all of this - and I am constantly reminded that he will not ask us to bear more than we can handle and that he is soveign and in control - not us - there are times though when I think I would like to see the road map and at least have an idea where I'm headed, but then again it would probably scare me right into the pearly gates! lol - My daughter graduates in 3wks, so I am trying to focus more on that than on the pain that seems to be increasing lately. I've had to miss alot of work - I've run out of sick time and vacation time so the days missed are now with out pay. I try to only stay home when I absolutly can not move. I can pretty much go to work through anything except when my hands swell and lock up. It's kinda hard to type when your hands are locked in a fist. - Oh well I've complained enough - I'm praying for all of you and trust you will do the same for me. God bless you all - tender hugs and kisses -
Phillip - 5/16/06
I wanted to pass on to all, my thoughts on pains meds. I have taken the full gambet of opiod laced pills. The result was up, then down. If for some reason you run out, there is a possibilty of Jitters, and Withdrawl. Now I'm on an opiod patch. No up and down. Also, there is no withdrawl symptoms at all. I figured it out that a steady flow of pain meds, 24/7 will not cause you withdrawl when administered through a patch system. So, my question is, why can't the drug companies create a patch system for the lower dosed opiod meds, like hydrocone, oxycodone, and the pill form of oxycontin (Which is really what is in my patch, I think)? The trauma of taking pills would be eliminated not to mention easier on your stomach. I think this is a good idea for the FMS organization to advocate for.
Richard in Tucson 5/16/06
Good Tuesday Morning everyone. This is going to be one of those days, Our daughter Nicole has a half day, I have so many things to get done in a short time.
I forgot to wish those here that are Mothers "Happy Belated Mother's Day"
Janet: We all go through denial, this is a process that I don't think is completed in a certain time period. I go through it constantly. Don't fear your husband's reactions, if he is as loving & compassionate as you say, I think he will handle it. Keep doing your Accupuncture Massages & Physical Therapy, and you will continue to heal.
Debbie: What is your Othro doc planing to do to treat your broken vetebrae? I wonder how much of your suffering is due to that condition?
Kathy in Maine: Your welcome, please keep coming back & thanks for the reminder of the FM Awareness Day.
Phillip: "Celestial Blue" Another wonderful work of your creative mind, keep-um coming, Thank you.
Suz: I am so glad to read your grandaughter is fine.
Lee Ann/MI: Thank you for the wonderful Birthday wish. We all have trouble keeping our heads above the water. Pace yourself, I will be praying for you.
Well as I said before I have alot to do in a short time, so I have to go. Just know you all are dear to me, I will be back soon. Richard in Tucson..
Debbie 5-16-06
Richard, I am not sure what is going to happen at this point. When I saw my ortho last week he said that my back is in such bad shape that one or two surgeries wouldn't help that much. I will probably just end up having physical therapy on my back and surgery on both knees. Then see how I feel. I have had problems for over 20 years or more so I don't think my back is the bulk of my problems.
Thursday is my MRI on the knees and a followup with the doc on the 25th, see what comes of it.
Until then it is Mobic all the way!!
Richard in Tucson 5/17/06
Good Wednesday Morning to all you wonderful people:
Janet:I want to wish you A Wonderful "Happy Birthday" in advance, In case I can't come to the wall tomorrow.
Barb(Pa): I wanted to say thank you for the Birthday wish, as well as have a safe trip Back from California. I hope you can rest up when you get home.
Judy: I have had small cankor sores on my tongue, I think these are an indication of a Viruse being present in our bodies. The tongue is the bodies forcaster of illness, that is why the doctors look @ it during an exam.
Christine: I feel the same way you do about your body not being able to go anymore, in the late afternoon is when I am really dragging myself along.
I pray for you that your biopsy Wed. goes well, that the lump is not cancerous.
You will be all right. Just keep coming to the Wall.
Lee Ann/MI: I too go through that "Why Me" feeling, I just remind myself that there is a reason for this pain & Fatigue & our God is in control.He will not give us more than we can handle, although it feels like a ton of bricks some times. I find if I can take a rest in the afternoon just before my daughter Nicole gets home, I get some-what re-charged.
Doris: I am so glad to read that you are only a year older than me, it makes me feel younger, some-what anyhow. You are right we do have a lot to be thankful for. Thank you for being here, your inspirational to me.
Jane/OH: Are you recovering from the Pnemonia? My friend has it too, he is really having a bad time of it. I am so glad God Lead you to The Wall.
Is your daughter Graduating from Highschool? I hope you find relief for your swelling hands, I do get alot of pain in mine but no swelling.
Debbie: Thank you fro responing to my "?" yesterday. Have you considered alternative Therapy, such as Accupucture, Reiki, Biomagnetic touch healing, and many others.
05/18/06 Jane/OH
Morning everyone! Well it is still raining here...and true to form my hands hurt to the point of distraction. Why is it I can handle my neck and shoulders, the constant head aches, my back, knees and feet when they hurt, but when my hands swell and throb to the point where they almost feel as if my fingers have all popped the sockets, I simply cannot function. I feel like such a whimp. Thank God my bosses wife suffers with fibro also, which makes him very understanding when on days like today I type quite a bit slower than usual. Richard - my daughter Megan is graduating High School. Thank you for asking. She has worked very hard. And God love her - on top of the stress of making sure all her credits are in and passing finals - she fell at working while helping a patient in the shower who was ready to fall - and they think she has a meniscus tear in her right knee. She is in so much pain. I feel so bad for her -and because it is a workers comp case, treatment and care comes slowly - please keep her in your prayers. And you becareful on that ladder this week! Tender hugs with love and prayers to everyone.
Bernadette May 18
Christine how did the biopsy go?
Good Morning All! Thank you Doris for your post. It reminds me of the conversation I had recently with my aunt who has lived with rheumatoid arthritis for several decades now. I was sharing my frustrations about living with this illness with her and she said that it is hard but that she focuses on living in gratitude for what she is still able to do and the fact that it could be worse. I needed to be reminded of that. I am grateful to you Doris for your kind words and faith. I wasn't raised with any kind of relationship with God so it just doesn't feel natural to me to pray, but I do try sometimes and admire what a source of strength it seems to be for so many of you. It is nice to see that you haven't abandoned us since your fortunes have turned.
Today I am feeling much admiration and affection for all of you struggling with this invisible illness. It is interesting how we look fine so people forget or don't realize that we are always struggling with pain. I had a sore throat recently and people were like, "Oh you poor thing". I wanted to say, "Are you kidding me, this is nothing-I am always in pain way worse than this, and have been everyday for years!" If we had a cast or something visible, our illness would get treated differently. I guess that there are positives to our hidden illness though. I bet there are a lot of people with visible illnesses who would love to have it not show so they WOULD be treated the same as everyone else!!
In the past I have shared how I explain my fatigue to my 7 year old by telling him that Mommy only has so many energy marbles to spend every day so I have to spend them carefully. Yesterday he was rough housing on me (which HURTS!) and I told him that I love being touched by him but that he has to be gentle with me. I told him that the pain volume on me is turned way up, so that what would be a gentle touch to someone else is a painful touch to me. He seemed to get it! Well, everyone have a good day I hope.
Nan 051806
Hello all -
I am newly diagnosed, in lots of pain, and not sleeping well... as you all probably are too. I have a couple of new books about FMS and lots of questions.. my dr is writing various prescriptions that I'm not comfortable taking... any suggestions for more natural ways to relieve pain and get rest will be welcome. I don't want to be doped up on pain meds and sleep aids.
Another question... do you tell your employer? For some reason I hesitate to tell, but I must admit due to pain and exhaustion I missed 2 days of work this week.
I am also new to posting messages so hope I'm doing okay... thank you.
Christine/May19
Thank you all for your concern.I had my biopsy Wed. unfortunately I have to be back to the hospital in two hours because the area around the spot is red,hot and extremely painful.But I know God isn't going to let this be cancer. Before surgery I met the rudest intern,she was helping prep me for surgery and I had asked for something for pain(because I hadn't taken anything that morning and my back and arms hurt bad).She actually laughed at me when I told her I have Fibro and told me that fibro was something they told hypochondriacs they had to keep them happy!!!!Thank God a Dr. overheard and pulled her away,because I wanted to slap her.I have to go the Hospital's an hour away.Lot's of love to you all!!!!
Richard in Tucson 5/19/06
Good Friday Morning to you all. This week has been more hectic than usual. I have been having a hard time just staying awake during the day. I accomplished three things yesterday. I got our family dog (our Son's Dog) her licsence, I have been putting this off for four months, hoping my
son would take care of it. I put the dog paperwork in his name, so any thing in the future will need his attension. The second thing I did was take my neglected Pick-up Truck to the Car Wash. I felt better driving a clean vehicle.
The third thing was I tried my new Pool Radio in the pool, that I had gotten for my "B-Day", It is Cool, For a Radio the size and shape of a frisby, it gets good reception.
Jane /OH: Congratulations On Megan's up coming Graduation Day. She is in my prayers, Is she on crutches & did they put her knee in a brace or something?
I will be careful on the Ladder. For your hand's Jane look for Arnica in the Health food store, if you rub it on, you should get the swelling to reduce.
Bernadette: I am glad to see your post. I Love how you explained to your Son, About your Energy Marbles, that is such a great analogy. The pain Volume is Great too.
Welcome To Nan: You have found the right place keep coming back. List what perscritions your taking here, you will get sugestions in time. Just remember we all are having a difficult time.
Chriatine: Keep us posted on your biopsy results. Some people like the intern you mentioned just don't get it, You need not waste you energy on them. I hope all goes well today and that you don't have an infection or something. I am praying for you girl.
Lee Ann/MI 05/19/06
Good day to all! Nan, welcome! Hope you keep coming back. Bernadette, I loved your little story about the marbles. I am going to keep that in mind when I talk to my 7 year old great nephew. He had questioned me one time about why I needed help to keep my house clean. (He and his mother come periodically to help me). I told him that my muscles have "owies" all the time and that it was hard for me to do things. He thought about that for a while and then let out a big sigh and said "ok". He has never questioned it again but I will have the marble story read for the next time. Kids are more understanding sometimes than we give them credit for. I have a little neighbor boy to help take my trash out for me. It is giving him a "job" and it sure is helping me to get those bags of trash into those big trash containers we have in our townhouse complex. It was so hard to lift them up practically over my head which caused me a lot of pain. I want to thank everyone for the encouragement you have given me. I am still struggling but am having a little better outlook on things. Please keep me in your prayers. To all in pain I bid you relief. To all in despair, I have been there and please do not give up. My hope for all is a peaceful and restful night. Gentle hugs and much prayer for all.
Bernadette May 19
OOOH Christine what you shared about the intern just got me hopping mad. When I was coming down with fibro I had a job as a medical receptionist and the doctors that I worked for felt nothing but disdain for my pain and the pain of the people they treated that had fibro. On several occasions, I heard them bad-mouthing these patients as wacko hypochondriacs after they had left the office. I have had to go through really asking myself-am I creating this pain for attention, does this pain really exist, etc. etc.I have gone through all sorts of new agey contemplation about why I am making myself sick and finally concluded that I am not. I have had to advocate and stand up for myself in a way I never did before. I was raised to always respect and follow authority and you know what? Those doctors are wrong. My pain is real. I am not making it up for some gain. What am I possibly gaining?
An article I read in the paper recently said that a pharmeceutical company is coming out with a new drug in 2007 specifically geared for fibromyalgia and it said that then maybe doctors will believe it is real, that because of the way the medical world is structured, if there isn't a medicine to cure something, it doesn't exist. I believe that fibromyalgia is a neurological disorder that has something to do with chemicals in the nervous system sending pain messages to our bodies. So far, doctors have had some success in treating fibro with antidepressants, so they think that fibro is psychological. Or maybe antidepressants are helpful to us because chronic pain is depressing!
It has been proven in studies that we have way more of something called substance P in our spinal fluid than normal people. Substance P is responsible for the sensation of pain. Our bodies do not create it in response to pressure or touch from the outside, but generate it on its own from the inside. Maybe if insurance companies start covering some kind of test that measures this substance P for its patients, we will have a measurable test that "proves" to these idiot doctors that what we have is real. I hope that that intern comes down with fibromyalgia themselves so that they know what we are going through. Jerk.
OK sorry. I am calming down now. I guess that I just needed to vent my anger. Sorry guys. Have a good one.
Victoria Moody May 19,2006
Hi Everyone, I have a question about a possible symptom. Does anyone run a fever after too much activity? I find that after overdoing things (such as a very long mother's day weekend) I get a fever. The Monday after this past mother's day I awoke at 3 a.m. with 101.4 then it broke around 9 a.m. and was 6 pts. below normal. Needless to say that felt just as bad as a fever. It is now friday and my body is still playing catch up,still a little shaky. I'vd had fibro for 13 years now and am a whole lot better than I was years ago but at least I am not bed ridden. Thanks for your imput. Prayers with you all. Vikki in Texas / May 19,2006.
Christine/May19
Richard and Bernadette thank you so much for your support,I really needed it today.The oncologist said I have a roaring infection at the biopsy site.He gave me a strong antibiotic to take four times a day,which I'm having an allergic reaction to.I'm hurting so bad tonight I just want to pull the covers over my head and stay there forever.Vicky I've had a low grade fever for over six weeks but don't have a clue why.I really don't feel so well so have a good night everyone.
Betsy (GA) 5-19-06
I have had fibro since 1985. I don't know how long before that year. I had a cervical disc that had been getting worse and worse for six years, so I finally had it removed and a fusion using bone from my hip. I assume I had fibro develop during that process and trying to get a diagnosis since the surgery in 1983. I am now approaching 75 and still no cure and very little help. I wanted to ask if any of you have had your thyroid stop functioning. Mine has and I was wondering if that problem might be prevalent with some of you?
Debbie 5-20-2006
WAY TO GO CHRISTINE!!!!!!!
You just said what I have been thinking for a long long time. I have had depression/anxiety disorder along with MS since 1980(when I was diagnosed) or before. I think I had fibromyalgia then but everything has always been treated as psychological when I know good and well the pain is so very real. My doctor will not tell me I have fibro directly, he just says "probably" and gives me Cymbalta.
Like you said, maybe in the near future there will be a test for it, let's hope.
Take care and have a bright and painfree day!
Debbie in Ky
Debbie 5-20-2006
Sorry guys n gals, my post should have actually been addressed to Bernadette, so WAY TO GO BERNADETTE. And Christine I hope you are doing much better very soon. God love you all.
Debbie in Ky
Christine/May20
Hi everyone.I thought I was having a bad reaction to the Keflex the Dr. gave me for the infection,but the infection is spreading through my body.We took my daughter and niece to a carnival today and I almost passed out.It was only fiftythree degrees and the sweat was pouring off me.I shouldn't have gone the way I felt in the first place,but I've promised my daughter for a month.Needless to say I'm paying for it know.I just hope I don't end up spending time in the hospital. Vikki I'm sorry for spelling your name wrong last night,I was really out of it. Thank you all for your support,my love and prayers are with you all.
Jaime 5-21
Hi all, Hope you all are doing alright. This week has been so terrible. The pain from the possible herniated disc is horrible. Went for the MRI on Wednesday, however the doctor's office can't get me in until the 31st of the month to go over the scan. Then yesterday (Friday) I made the mistake of having to bend down to get something, well I stooped down but still had to bend some, and I heard and felt the same snap again. This time it was much worse though. My dad took me into the ER, it took 4 shots each 2mg of Dililaud, 10mg of Valium, and 3 shots of antinausea medication. If it weren't for the fact that my body can't fit into a regular MRI machine they were going to have another one done then. Even with all that medicine, which would normally make me higher than a kite, it never phased me. I guess due to the pain being so extremely high, it was just working on the pain. Anyway, today I've been so exhausted, and in so much agony with pain. The ER stated to contact my surgeon ASAP, so Monday hopefully when I call them they can get me seen sooner than the 31st.
Diana 5/21/06
It's me again! I've been out for a very long time. I was hospitalized on Tues. May 2 for suicide ideations- of which I never had. Then I was involuntarily committed when the hospital messed up my meds, they gave someone else's meds. I then demanded to be released & they forced me to stay! My husband & son set up a small protest in the parking lot, my husband demanded my release & they still wouldn't let me go! Long story, but the bottom line was I had serotonin syndrome from combining prozac & ultram! Never heard of that one! They told me as I was leaving the hospital, I had to look it up when I got home. If I hadn't have gone to the hospital I would definitely be dead right now, no jokes. I wasn't aware of this syndrome & I would've continued these meds as directed! Scary stuff, I hope all you guys will research this if you don't know about it already. It's become more prevalent with people who have fibromyalgia just because of the medications that so many of us use to control the pain. My pharmacy didn't even know about it! Look it up but only if you're sitting down!
Christine/May21
Hi everyone,hope you all had a good weekend.Diana thank you for sharing about the seratonin syndrome.I looked it up and it really scared me because I'm on alot of the med's they mentioned and have felt that way often. I am feeling a little better tonight.I had to go to the hospital at two a.m. because my heart was racing and my temp. went up to 104.I passed out walking into the hospital.They gave me tree bags of I.V. antibiotics and let me go at five tonight.Hopefully it'll get better from here.Everyone should take the time and look up the seratonin syndrome,it could affect most of you.Well for once I'm not going to push myself and I'm going to retire early.Lot's of love prayers and big gentle hugs!
Richard In Tucson May 22, 2006
Good Monday morning to you all.
I have been missing you, It is so hard to catch-up on reading the posts.
I feel for you, I have been having a real hard time just staying awake the past few days.
Christine: I'm sorry I got your name spelled wrong the other day, sometimes I don't know where my head is. The Low Grade Fever is part of the CFID'S diagnosis, I'm not sure if it is part of Fibro or not, our bodie's temperature regulation is all out of wack.
Welcome to Victoria Moody, Betsy (GA) & Anyone I missed mentioning. You have found a wonderful place here, please stay a while and keep coming back if you hurt to much to stay today.
ANN
ANN
MY REASON FOR ENTERING THIS SITE ARE PROBABLY THE SAME AS EVERYONE I JUST NEED TO KNOW I'M NOT ALONE. I'VE BEEN DEALING WITH FM SYNDROME SINCE ABOUT 1993. AT THAT TIME I HAD TO QUIT MY JOB AND WAS SUCCESSFUL AT GETTING MY SOCIAL SECURITY DIABILITY.
I AM IN SO MUCH PAIN ALL OVER MY BODY RIGHT NOW I DON'T KNOW WHAT TO DO. I'M ON ALL THE USUAL MEDICINES AND HAVE THE USUAL PROBLEMS. BUT RIGHT NOW IT IS JUST GETTING ME DOWN.
TRYING TO HAVE A LIFE WITH MY RETIRED HUSBAND IS REALLY GETTING TO ME. IT IS SO HARD TO MAKE HIM REALIZE THAT I AM NOT CAPABLE OF CARRYING ON LIKE NORMAL.
I'VE RECENTLY HAD TO STOP GOING OUT SHOPPING, ETC. AND IT JUST KEEPS GETTING WORSE.
IT SEEMS LIKE THE CORE OF MY BODY JUST IS RAW.
CAN SOMEONE OUT THERE WRITE BACK
Diana 5/22/06
Ann- All of us here know how you feel. You've been dealing with it for a long time now, KUDOS! I was just diagnosed last year. You know "they" say that fibro is not a progressive syndrome, but as we age & get all the "normal" aches & pains, they exacerbate our symptoms! I've also lost the 2 jobs that I had & had to give up just about everything else that I did around the house. I thank God for my husband & 10 yr old son! They've really stepped up to the plate! I worry sometimes about the future & if everyone will still be so supportive. I've learned that our attitude towards our disabilities makes a huge difference! I've had doctors not believe me when I say my pain is off the charts, just because of my positive approach to people. You can't change how others react, you can ONLY change the way YOU react to them! Then it comes back 2 fold! Keep your focus on you & make sure that you tell people how you are feeling, sometimes their attitute is just because they don't understand. It's our job to educate everyone around us & pray that they can understand the pains & depressive feelings. Ok I'm off my soapbox! Keep coming back here & we can help you gain some good feelings, sometimes it just helps to talk to people who understand the syndrome already, you won't ever have to fear rejection here! All of us here are very compassionate & we would love to have your input as well, your a veteran you know & us rookies count on your experience!
Lots of love & little hugs!
Lee Ann/MI 05/22/06
Hello to all! Welcome to all the new people. You should find some comfort here and not feel all alone. ANN, I hope you will find some relief just knowing that there are a lot of people out there that have the same struggles, pains and concerns that you do. You have something that a lot of us don't and that is the support of your family. Please keep them close and keep them informed so they do not tire of what you are experiencing. The hardest thing is getting people to understand but following on the heels of that it getting them to understand that you are never going to be rid of this infliction. You may experience long stretches of times in which it doesn't effect you are much but it will always be there. You will find a lot of empathy and sympathy here. Please keep coming back, even it is to read the postings. RICHARD, you might be sleeping so much because you are over extending yourself. Congrats on getting the stucco work done. Do you have anything else to do on your deck after that is done? CHRISTINE - how is the infection coming? I hope that the doctors have gotten to the bottom of what is causing it. JAIME - any news on your back? Are they going to get you in for earlier. My prayers are with you.
DIANA - thank you so much for that info on serotonin syndrome. I had not heard of it before and so I made sure to read up on it. I really feel so bad how you were treated. I hope things are going better for you now. Well, prayers and hugs to all.
Judy Mead
Hello all. I just read the posts of the past few days and my goodness FMly, so much is going on and so much pain here! My prayers will be intense to