Donna VT 5/1/07
Good morning everyone. The sun is shinning and the birds are singing so I am trying to tell myself that I am in a great mood. I have done nothing but sit and yawn since I got here at work. The fatigue is really getting to me.

I think this summer that I am going to do what I did last year and instead of taking a couple of weeks vacation here and there I am going to work 4 days and have long weekends. Monday the temperature is suppose to be 73 so I think I will take Monday off and just relax. I am wondering if some of you can help answer a question for me as I have read so much and have conflicting information, so here goes my question: Does Fibromyalgia progress? What I want to know is does it seem to get worse, like are there stages of progression. Some of the books say that it doesn’t, but what I am seeing from talking with different people is that it does. What do you all think?

Amber in S.C. May 1st, 2007
Hello everyone! Welcome all newbies! I just wanted to take a quick minute to respond to the question that Donna posted about Fibromyalgia and if does it progress. Donna, i have had these syptoms for about 2 years now and i do have to say that even with treatment over the past year out of 2- that i feel that i have gotton worse with my symptoms overall. Doctors say that it does not progress and that it has no degenerating effects. I believe that it does progress, but that maybe it does not cause any major degenerating (i.e.-bone damage, muscle loss etc.). This is just my opinion and just from what i know being a Former Medical Assistant and the knowledge i gained working with a Family Practicioner that specialized in recognizing Fibromyalgia. Now..as far as my doctor knows (the one i used to work for)she does not see degenerating effects of the symptoms, but just with speaking with her on several occasions i do believe that she may think that it does progress. Yes, we do have our good days and i do believe that we can have periods of remission, but it is not a curable disease or syndrome and i do believe that it will always come back eventually. Anyway..just wanted to give my side of the question posted by Donna. Everyone have a nice day and i just want to say that i love all of you that post on this site and each and every one of you are a great support.

Richard in Tucson 5/1/07
Hi everyone Good afternoon: I find myself very tired today, but I thought I would type a short post before I lay down for my short nap.
Eugenia-TX: Thank you for your concern for me, my Monday went quite well even though I was so tired all day, I got a nap after dinner then I was able to get a shave & Shower and go get gas for my wife's car. I also did the dinner dishes and put away the food from dinner & make lunch for my wife and put it in the fridge, did all this by 9:00pm.
Donna VT: I will give you my version of the question about Fibromyalgia progression, I have progressively gotten worse over the last six years it kind of was a slow progression, I would say month to month I have notice it, I am not sure if it is because I really have not been taking care of myself, or maybe it is linked to never ending stresses, I allow to consume me. I will give you an example, four years ago I could keep my check book balanced to within ten dollars, know I don't even write any entries in my register any more. I haven't done this for like two years, it is not because I don't care about it anymore, it is just too exhausting to keep it up. I would love to discuss this further, but I need to lay down for a while.

Talk to you all later love Richard in Tucson...

Robin NC 5/01/07
Hello everyone! I was telling Ray about your post DONNA on progression of FMS. He feels he is getting worse. His flare ups seen to last longer than they used to. He doesn't even push himself lately like he used to. RICHARD it is so good to see you posting more. I was getting a little concerned. When I first started posting, you had a post everyday. You have been a great support to everyone on the WALL, now it is time to let us support you too. We are here for you, so let out those feeling and it may help relieve some of the stress that is making your days more painful. That's what we are all here for, "each other". I bought some of the 024 spray today for Ray. I found it at CVS pharmacy. A little pricey at $19.99 for 1 ounce. But if it works, Ray is well worth it. It has a very strong smell. Ray sprayed some on and I asked him how it felt. He said the pain would ease where it was sprayed and rubbed in, but the pain would worsen somewhere else. Oh well, anyway I will try to keep you all posted on the long term results. We were suppose to go out to dinner tonight for our 26th wedding anniversary, but I could tell he just wasn't up for it. So I ordered take out at one of our favorite Italian restaurants, and went to pick it up. We had dinner in the comfort of our own home, while watching a movie (Flicka). Good movie! Gotta go for now, gentle group hugs to all.

Jaime 5/1/07
Hi everyone! Sorry its been so long since I've been on here. It seems that the fibromyalgia has gone into remission on me, hopefully for good. I also have some good news to share with you all. I am 10 weeks, and 6 days pregnant!!!! Finally after having two miscarriages three years ago, thankfully the Good Lord has smiled on Jim and me and blessed us. The way we found out though was really interesting. Back on March 25, I was sick with a stomach flu for 5 days. I got to the point where I was so dehydrated that I was almost passing out, and had to call 911. Jim was working in the ER that night, and got to take care of me. As he was doing lab work on me, he came back and told me he knew why I wasn't feeling well, and that I was pregnant. At that time I was 5 weeks, and 4 days. Although since I was in the ER throughout the night, by the time I got the ultrasound I was 5 weeks, 5 days. LOL. With the ultrasound that night, not only did I find out that I was carrying, but also got to see the heartbeat! For about 5 days now I've been feeling the fluttering of the baby. Even though I thought it was too early for me to feel the baby, we talked with many friends who have children and they said it was about this time that they felt their baby. The baby is due the day before thanksgiving on 11/21/07. Which is only 7 days before Jim's birthday. We think that its a boy, and so do most of our friends. My mom and one of my friends wants the baby to be a girl. To us, as long as the baby is healthy and doing fine, thats all that matters. We've already had 4 ultrasounds done, since I'm high risk. Hope you all are doing well, and are as pain free as possible. Take care.

Eugenia-TX.5/3/
Eugenia-TX.5/3/ Good afternoon to one and all. Congratulations Jamie and hubby.nothing like a precious baby.you take good care of your self. glad you are not having fibro pain ect. Robin N.C. Congrats on anniversary. take out food and a movie is what we like too.Donna and Ray does the stress factors in your lives make you hurt worse? It sure does me. I dont do too good handleing stress. my dr. says i need to not worry so much. LOL. It is hurting that brings on more stress for me.fibro, discs in back and neck. some are protruding and lays on the nerves.i am the one with the unfixable torn rotor cuff in rt. shoulder. i am just praying when i go to the pain clinic tommorow they will do something to help. i am also scared to pieces. i have had injections in my back before but this is also including my neck. I kinda hope they hit me in the head with a hammer so i dont feel what goes on.LOL Richard hope today is a better day for you. I will hush and may go back to bed.the weather is cloudy and damp so i feel worse. hope all have a better day than the one before .

Sharon IL 5-2-07
Hello everyone ...haven't been on in a few days....Grand mom is better but if she has another spell she want make it...she went home today...my aunt want her to spend her last days at home....Father real sick this time ...hoping his next set of test...shows he want have to do more kimo.............Hi Engenia TX, and Kate NYC, been reading your post...From what I have learn stress factor is a big apart of FM and other health problems...It feds on it....Yes for me it does....big time....even change of weather does too....it does make me worse....or overing doing hahahah.....Friends.. yes it happen to me, lossing friends not becouse they mean too, For me life moves to fast and I move to slow, and we all remmber, missing what we had,and life goes on...with out me....Then I found myself doing all the calling,not becouse they( friends, family ,childeren) dont mean to...my and their lives changes,but it doesnt mean they forget...Life just gets busey..I get real lonely, but living in this new life I have to except, puts me in a different space................Richard in Tucson, sorry you had another spell...hope you feel better..................I also was reading on Amberin SC and Donna posted too...yes for me there is different stages of fatigue and fm....I go for a while feeling wondeful... then bam it hits me again....but controling it is a good factor in my health...yes I hear it can go into remission....I know I keep praying....but all of us have different stuff with our fm...I dont know for sure but I was told to have to fix, control,keep yourself com....it takes time ..yes I heard some goes into remmision.....I keep hoping.................Deeahahahha no veggie for me ether...to much...I do grow a tom...or pepper plant in a pot every year.......Nicole welcome...........I been hearing yal talking about 024...Does it really smell..How bad? becouse I do need a change but,I dont want to smell in town..hehheh ,,, well I am long winded tonight, and i know this post is getting long and I really need to lay down...take care....

Bernadette May 2
Hello and welcome everyone. JAIME I just wanted to say a big congratulations to you. I remember how sad you were about the miscarriages and I am so happy that you are almost out of that scary first trimester. I am sure that you will be a great Mom and I wish you much joy.

I asked my rheumy if fibro was progressive and he said 25% get better 50% stay the same and 25% get worse. In my own experience of four years I would say it has stayed about the same but I have gotten better at managing it. I think it depends a lot on the stress in our lives too. If the stress gets worse, so will we.

Donna 5/3/07
First, I want to say thank you to everyone for giving me an update on the progression of Fibromyalgia. Eugenia, I agree that stress defiantly does make mine worse. Sometime I will share with all of you where I work and then you will understand why I have all the stress in my life; I just am not ready to share that yet. Eugenia, I also have a herniated disc in my neck in the C5-6 vertebrate and have had the cortisone injections in my neck, I have had this done 3 times and each time it was done in same day surgery and I would have this done again if need be as the relief was worth it. Sharon, the 024 does have a smell but some of my co-workers actually like it, I just don’t like to use it at work cause I don’t like anyone to know that I am sick. I guess I like to try to hide this as much as possible, not that I am worried about loosing my job because that wouldn’t happen but I don’t want sympathy or pity or people saying all day, “are you okay”. I don’t want to lie and say, yes and I don’t want to explain how bad I feel and why, I don’t know why. You get it so I don’t have to explain it to all of you. Today is beautiful here so I am going to go for a walk at lunch and I am going to take an extra long lunch and have a plate of Nacho’s. My treat to myself. Gentle Hugs.

Dee ~ Thursday May 03, 2007
Good day all...

Jaime (is this really how you spell your name)?: I'm so happy for you and your husband! When is the due date? From listening to others experiencing pregnancy along with fibromyalgia, seemed that their fibro lessoned considerably during that time and for some time afterwards. We can pray that yours is gone so you can enjoy that new bundle you got coming. Keep us up to date.
My husband and I are expecting our 3rd Great-Grandchild in December. WOW....hard to believe. Seems like my babies were just born and here we are with 8 Grandchildren and almost 3 Greats.

Richard: Are you feeling any better? What all are you diagnosed with (not my business if you don't want to tell me)? Do you have FMS and other conditions also? Maybe like CFS, IBS, depression? I think I remember you having a sleep study done and you have a form of sleep apnea? Personally I think if you have FMS, you also have CFS. I also think the medical community is beginning to think the same way. Sometimes we just have to stop and rest without feeling guilty about it. You take care of yourself.

Welcome to all the Newbies. I need to go out and start building a small version of the Ark. Rain, rain and more rain!!! My grass is so out of control....but it's green!

Hugs To You All...Dee

JuneKaye Ohio May 3, 2007
It was a lovely day today---sunshine, warm, but perfect Spring weather and the trees are blooming and the grass is soooo green. I've been cranky, crabby, grouchy, and grumpy all day---tomorrow has got to be a better day. To top it off when we went to pick up my Vicodin at KMart the sun was so bright that even with sunglasses I got a migraine. Whine! Whine! Whine!!---I need some cheese with those whines!!! It was a week of off and on fibro flares---pain in the shoulders and arms--flu-like symptoms another day--legs aching---the whole nine yards all week. I tried the 024 when it first came out a couple years ago, but it was too strong on my upper back and seemed to burn. Plus I can't use anything with a strong scent because I have a trach. Blue Emu cream and Activon seem to be the best for me. I,too, have hypothyroidism and take Levothyroxin 100mcg every day. My weight stays the same, but I can't seem to lose any which is frustrating. I bought a book on Amazon last year called the Trigger Point Therapy Workbook and have tried some of the techniques to help with pain---it's a complicated book, butso far it has been useful.. hope for better days

esmeileen vazquez may 5 2007
the chat room is great.

Dee ~ Saturday the 5th of May
Test Post....it's unusual to have a day without posts here at the Wall. Thought I would do this test and say hello to everyone at the same time.

Welcome "esmeileen" to the Wall. Hope the reason we had no posts on the 4th was that everyone felt so good they all went shopping.

I'm going to try and do a bit of yard work while it's not raining. Hugs to you all and have a great week-end.....Dee

Yolanda Mia 5/5/07
Hello All! It's been awhile for me to post b/c life has been busy and exhausting. Welcome to all the Newbies! Jaime, Congratulations!

I had a lot of posts to catch up on so I don't remember anything I read...lol. Dang fog. Still been working overtime and the swelling is still not going down. Have not been able to figure out what's causing the swelling. After talking to my dad yesterday though, we think it may be my calcium tabs, so I'm discontinuing them right now. The amish doc put me on magnesium along with the calcium.

One thing I wanted to post was about an awesome thing I discovered last weekend at a convention. I was in Detroit all last weekend helping a past poster (Kelly R.) with her booth at the convention. There was a booth next to ours that was selling these awesome balls called Bongers. They are like racket balls on a flexible stick and a wooden handle. You can use them to "beat" knots out of your muscles. They were amazing! I had a major headache b/c the muscles in my neck were so tight and after just a few minutes of the Bongers, my muscles relaxed and my neck popped and my headache alleviated. So, I bought them, they were worth the $20. I recommend them for all on here. They also say they are good to put some oopmh in sluggish blood - hello more energy...lol, and also they can smash cellulite - I'll believe that when I see it. But, to help sore muscles is the greatest it can deliver.

I'm gonna go for now. I wish I could respond to most of the posts, but my energy is still way down b/c of working too much, no sleep and getting over the flu. Wish all of you well. Love ya all! Yoyo

Kate/NYC May 6, 2007
Kate/NYC May 6 2007 Hi everyone, thanks for your support and kind words, I am feeling much better emotionally about my friend even though I think it is all over for us. We move on. Jaime, congratulations on your baby. I want one, too, and am in a unique position to have one too because my girlfriend is biologically male in most ways still. . .(she is transgender and in transition) but I can't afford to bring a child into the world yet so I have to be patient. I am on 17 different medications anyway so I think I better think about adoption. . . :o) I really love reading people's posts because it helps me feel safe and less alone. You all are perfect examples of the triumph of the human spirit over adversity. You deserve my support and you'll get it. All the gentle hugs you can imagine. Thanks again. love kate <3 xoxo

5.7.07 LIBBY/TX

5.7.07 LIBBY/TX
Libby/tx5.7.07 Hello....this is my first post and i hope to do this right! Lots of instructons when we do not feel well. Well...I'm Libby, from Texas, but my husband refers to me as Lucky and thats because I have one good eye and can only hear well out of one ear, besides having the fibro condition. I have read alot of what you all write, and I can say its good to have others that know what its like and understandS the true daily struggle. Thanks for that up front! First....I would like to know if anyone is on the Mannatech/glyconutrients, that is suppose to heal this beast? I have been approached with this.....and what is your opinion and have they worked for you? It is suppose to heal us from our cellular level. Do you believe this could happen...I really don't know how to feel, since I have had fibro for 25 years now. Oh...by- the- way I will be 49 yrs old this next birthday so.... I have seen alot and heard alot about Fibro and...it could be just another money down the drain thang! New at this and waiting to hear from you all. Libby

Donna 5/7/07
Well it is another beautiful day here in Vermont. I was suppose to take the day off and just relax but I want to wait until I can get to the campground as that is where I am the happiest. I don’t want to waste any leave time to just sit around the house. I slept all day yesterday, I was only off my couch for the a.m. I came to work today and the young woman that I supervise called in sick, I think she only did that because she thought I was out, my director is out with sore feet. I swear no one around me knows what a hard days work is anymore. Well, enough with the complaining. Libby in Texas, good to have you on the wall, these are wonderful people here. I have not heard or read anything about Mannatech/glyconutrients and I have done extensive research but I could have missed something. Good luck and keep us posted.

Libby/TX 5.7.07
Hello again....I was just thinking about the bad weather that is going on all over...I hope all is well with you that post here. Please be safe and careful! We had tornado watchs and warnings until bedtime last night down here in Texas. I really hope all of you and your families did not have to experience this in your areas. Again be safe and watch the skies! Libby

Sherry/ 05/07/2007
I am not sure yet if I have this condition but the more time that passes I am beginning to wonder, and can't figure why the specialists that I am seeing are not looking in other dirrections. I saw a chart on signs of Fibro, and most of them fit me to the tee, even the plurisy(sp) thing, I have had one chest infection or just plain pain like feeling for over 4 yrs now. My thumb was first, it would hurt like I sprained it and usually with certain kinds of weather, but it kept going away. then my one elbow, i could not even drive my motorcycle anymore, between the pain, and the fingers falling a sleep. Shortly after, I notice I had this pain in my left hip, thinking I bumped it on something but a black and blue mark never appeared and it never went away. I also have asthma, but it became more sever in NC, thinking the warmere climate would make my aches go away. Did not happen but lucky me got sever asthma after moving. LOL We got that undercontrol, after discovering I had polyps and it added to the attacks along with lung infectons. After the operation I was great for about 3 -4 yrs then my body just seemed to always have something wrong. I often would wake up from my sore hip, so I got little sleep tossing and turing, cause the hip that hurt was my favorite sleeping side. Anyhow, to shorten this, now both hips hurt, both elbow, my wrists and even my ribs and shoulders and I feel like I am always having one of those fevers that just plain make you feel icky. what should I do, who will listen to me, is there a specialist in this area. I am tired, of feeling there is no answer, and yet maybe this is what is going on, at least I would not feel like I am a hypo, or crazy. SLD, lost, where do I go from here.

Libby/TX 5.7.07
Yes... me again! Hey thanks to you Donna for that warm welcome. I'm just glad to have found all of you in the FM family. Sherry, girl I went through a lot and my best advice for finding a doctor to listen to you would be a Rheumatoid Spec. there seems to be one in every town. Now ..would they be up-to-date on FM, that is the question! I assure you that if every time you go to the doctor and they rule out what it should be with the symptoms that you are having most likely you will be back to visit with FM family. There is one disease that seems to be on the rise with some symptoms that we share...and that is RSD. One of the symptoms that they have and I share is the burning on the skin. Now I only have it in small areas and only on occasions. It has happened 3 times now and it apprears on the base of my neck and when this happens it is bad enough to remove my necklace, and it does not turn red but it feels just like chap skin. Believe me Sherry...everyone here on this site has spent alot of money and time in the doctors offices, just to find out what its not!BEWARE FMer's when you have shoulder pain, don't baby it too much...it will freeze up on you that's what I just went through and it takes therapy.Okay..I must save room for someone else now...I'm just so excited to find you out there! Bye...Libby

Donna 5/8/07
I wanted to say hello to everyone today and to tell Sherry not to give up. I have read a lot and listened to everyone who talks about the struggles to find someone to give them the diagnosis of Fibro. I was one of the lucky ones. I suffered for about a year with a long list of various symptoms and when I went to the doctors, (I have a Physician’s Assistant) I only took a partial list because I didn’t want her to think I had totally lost my mind. She explained what Fibromyalgia was and Chronic Fatigue Syndrome and said that there was no test that would confirm either one so we needed to rule everything else out, I went to the hospital the next morning and gave so much blood that I thought they would run out of tubes. When I went back we discussed how my life was now changed and what we together could do. I have a wonderful P.A. and we work together very well so I would say that I am one of the lucky ones. We share books and literature and she is open to anything that I want to try. She never has made me feel like less of a person, actually she calls me her poster patient. I wish you luck finding the right doctor, PA.

LIBBY/TX 5.8.07
Hello everyone ...it's Tuesday a.m. and I woke up thinking about all the past postings I read last night. There was alot of recent discussion on the progression of FM. I think of this alot and I can tell you that I have more symptoms and felt worse the past 5 yrs of the 25 yrs that I have had FM. Do you think that our aging process has alot to do with progressing? ....I do! Our whole body is aging and our tissue/nerves and muscles are aging with this beast living in them ....so I think that we feel more (different) each year with the FM. What do you all think? Sherry good luck with finding the right doctor in helping you get to a DX. I'm sitting here remembering back in my travel with this mess. I was sent to FT Worth,Texas, to see a specialist that my internist wanted me to see. He wanted $350.00 on the table to see me and I had insurance...yes... he wanted the money first! What was that all about? Anyway, he reviews my charts that I took with me from my doc and does no further testing and told me I had LUPUS. He puts me on strong meds for Lupus and sent me home to follow up with my doc. Well....that went on for 3 yrs and I took myself off the meds after attending the seminars. I felt out of place with the whole group ...I do not have Lupus, because I went to Lubbock, Texas to RA doc and retested and he ruled it out and he was the one that told me it was FM. He really educated me on this beast. So that's a little of what I went through and more. Sherry...keep your head high and march forward girl. Your travel may not be much different then some on this WAll. I sure don't wish for you to have anything life threatening. I would rather you have FM then alot of the others out there!Take care. Libby

Richard in Tucson May 08, 2007
Good Tuesday Morning to you all; I have finally found a little time to be able to post a few words here on this wonderful Wall.
I just got home late Sunday Night, from being in Mexico over the week-end. I had too much going on yesterday to post. I really have wanted to post for the whole day yesterday, but I was too exhausted when I finally had some time to do it.
Kate/NYC: I really feel for you in your need to have the relationship with your best friend. I do believe that sometimes people need some space, if she was your therapist for one year as you said, then it is quite possible she might be a little burned out on you. I hope you don't take this the wrong way, I think that in time she will call you or something, if she is your best friend. Please give it time. You are very welcome here with your new friends at the Wall, please know we will try to be here for you, and will comfort you as much as possible.
Robin NC: Please know that I have been having too much on my plate to post as often as I did before, I will be here as much as possible, and be as helpful as I can be, under the circumstances. Tell Ray to e-mail me again I would love to keep in-touch with him if he is able to.
Jaime: Congratulations to you and Jim on your new joyful Blessing, I think you will do just fine, we are here for you. Keep us informed.
Eugenia-TX: Thank you for your concern last Friday, I am doing a bit better now, I did have a great day that day, I got to go with my daughter Nicole and her Brownie Troop to Build-A-Bear Workshop, if was very cute. How did your pain clinic visit go? Did the injections help you with your pain?
Sharon IL: Thank you for your concern last week. I hope you are having better days too, keep coming back to the Wall.
Dee: I am feeling better this week, although a little tired from the week end. I have Fibromyalgia, Chronic Fatigue Syndrome, Sleep Apnea and secondary Depression. Thank your for asking and for your concern. I also agree with the stop and rest thing you said. I am so glad your grass is green, I hope the rain has stopped by now, how is your Ark coming along that you were going to build lol.
Hi Yoyo: It was great to read your post. I hope your swelling goes down soon, maybe the calcium tabs are causing that, who knows anything is possible with the way we seem to be sensitive to a lot of different things. Thank you for telling us about the Bongers, Where do we get one of those, do they have a link on the Internet?
Welcome Libby /TX: to the Wall, I have not tried the Mannatech/ glyconutrients. I have read something on this subject, from what I remember it was positive, they are probably worth a trial if they are not too expensive, I think they could not hurt, go for it let us know if they help.
Sherry: Welcome to the Wall, You will find your answers here, keep coming back.

I must close now this has gotten too long and I have to go pick up my daughter soon. Gentle Hugs from Richard in Tucson....

Yolanda Mia 5/8/07
http://www.torvea.com/store/product47.html This is the link to the info on the Bongers. Now, they are part of an adult toy site, but are for massage for tension in the muscles.

Love ya all! Yoyo

Bernadette May 8
I have a book to recommend. It is called "The Triple Whammy Cure" by Dr.David Edelberg. I checked it out from my local library. It has been helping me a lot. According to him, the triple whammy is low seratonin, stress and hormonal imbalance and they can lead to a lot of physical problems like IBS, fibromyalgia, CFS, TMJ, PMS etc. He talks about ways to increase seratonin and deal with stress and horomonal imbalance. My symptoms have not gone away, but I am managing them better thanks to inspiration from this book.

One thing I have really been focusing on is good nutrition.I don't have a lot of energy to cook, but fresh fruit and vegetables, nuts and seeds and yogurt are the ultimate "fast food!" Having FMS is kind of like not having any reserve tank at all to draw upon. I have to pay very close attention to giving my body the rest and fuel that it needs on a daily basis. I have also been really trying to manage stress by monitoring my thoughts carefully. I still have bad days, and I don't think I will ever be the same that I used to be, but I am determined to have a full quality of life. I urge all of you to keep searching for doctors, medications, an exercise plan, a support group, and an understanding of what your body is trying to tell you. Thanks for being here.

Cari K. 5-08-07
Cari K. 4-08-07 This is just to let you all know that I have bought and tried the O24 Fybromyalgia spray that someone mentioned (Jamie?)It feels like icey-hot.But when my feet or legs don't hurt as much as they usually do,then I turn to this spray.It helps when I'm not in a full flare or really hurting.The main ingredient is camphor.So you can imagine how bad it smells.But on the days when I need some thing just to help aleveate some of the pain,it works.But I'm sure another product such as icyhot or bengay,anything that heats up, will help.Just to keep in touch,Richard,it was so good hearing from you.As well as all the others that come here often to seek advice or to comment on the dragon that has taken over our lives.To the newbies: keep coming back!!!! I came here almost a year ago,and I've learned so much and made such wonderful,caring friends.We are all here for you.Gentle,warm hugs,Cari K.

nicole az 5/9
i post as often as i can but, i never get a response...i guess my concerns and trubles aren't important enough for anyone. oh well. i thought this was a place to be. i guess ....not ~nicole~

Donna 5/9/07
Nicole, I sent the following message to you in an email and your email address does not go through so I have copied it for the wall. I was just in reading on the wall and I am feeling bad that you don't think anyone is responding. I have only been on for less than a month so I am not sure what it is that you are looking for, have you asked a particular question and have not gotten a response? I just got the impression that people just went in and wrote how they were feeling or if they had a question they would ask it. If they connected with someone then they would either write back to them on the wall or in an email. I would hope that you wouldn't leave the wall as I think this is a good place to write or somedays to just read and not reply if you don't want to. Please don't leave the wall.

Libby/TX 5.9.07
Hello Everyone....Hope your Wednesday has been good for everyone on the WALL. I have had a good day....even thou it's been raining for the last week on and off. Every other Wednesday, several of my immediate family meet at our parents for lunch, and this was my week to prepare the meal. I DID BEAUTIFULLY and stayed on my feet until time to serve. My Mother was like , "are you sure you don't want me to do something"....no, I'm fine! I know they thought that I would pay for it later.....but so far I'm doing okay. Tonight may be a different story thou. ANYWAY....I wanted to share with you something I use for pain that really works. I keep with me at all times a certain inexpensive pain patch and it's called, SALONPAS. I get these at Walgreens and Walmart. You can use several on the body at the same time and they do work. Whoops! I must go for now I need to take care of some other business. I'll chat at you all later. Sending you all star dust to help you sleep peacefully tonight...bye. Libby

Cari.K.5-10-07
Cari K. 5-19-07 This is to Nicole;honey,what is it that you need for us to understsnd?I am here right now to listen.Please let me know what it is I can do .I will listen to you.You can vent to me.I will be here to let you cry on my shoulder.Everyone that I have ever talked to here at the wall,has taken time out of thier busy days to help someone.somehow.Even if it's just to listen to to you.So, please,keep coming back to the wall. We are all here for you.Some days are harder than others but I know at least I will do ny part to help you out,ok? Gentle,warm hugs,Cari K.

Libby/Tx 5.10.07
Hi Nicole...I'm new on the wall..so far I love it! I know there is no one on during different times of day...but I write what I feel and just move on. I know that everyone usually reads all thats written...but they maynot be in train of thought or have any response to it. I do realize that sometimes they may respond several posts later on down the page. I too... don't have a lot of people to hang with except family..and this wall draws me back daily. I can talk about things that a lot of family don't have a clue about or ever experience. I guess what I'm saying we have a connection to each other on this wall and we all have everyday pressures and stress. When we need to vent I think this is where we come and each of us here know to well that our depression can lead us to lonely thoughts in our head, but remember Nichole...our FM and CSF causes us sometimes to feel alone and that no really cares...but it's all with what we deal with daily. I wish you happier thoughts and I do wish you peace of mind. Just know that everyone here deals with the sames kinds of things..but just on a different days. DON'T GIVE UP...IT SOUNDS LIKE YOU NEED TO KEEP COMING BACK! I'll try to respond to you as much as I can. I wish you a better day and thoughts. Libby

Richard in Tucson May 10,
Good Thursday to Everyone: I have a few minutes so I thought I would post as breifly as it may be.
It is breaking my heart to know that so many of us, are going through such depressing times, I know how lonely it can be, Normals just don't understand, than we come here and sometimes it takes what seems like for ever to get a response from someone on one concern or the other. Libby/Tx: I agree about the connection we have here, that is what keeps me coming back. Everyone is hurting and some times we seek help for something we see as a desperate need at the time, and the answer will come, everyone is compassionate and understanding here we just may not be as responsive as we would like to be.
Nicole az: This Wall is your place to be, please be patient, We Love You.
Yoyo: Thank you for the Link on the Bongers, I also Googled it and found many others. You can also buy them a the Relax The Back Store for $16.00 and Drugstore.com for $13.95 anyway thanks for the information.
Bernadette: Thank you for the Book Recommendation. I received your e-mail after all this time yesterday & I replied to you. I appreciate your honesty. Cari K: I am so glad you enjoy hearing from me, I will try to keep up my presence here although summer time is approaching and my family will be home all of the time and it will be difficult to post.

I must end this post with, Thank you all for being a big part of my Life, Your being here has made the difference in me. Have a great weekend, Have a wonderful Mother's Day, see you here next week. Gentle Hugs from Richard in Tucson...

Debbie
Debbie, aka Strawberry,or Strawumpkin 5/10/07

A big ole "Howdydo", from a tiny town in the big state of TX. I have been sneaking a peek at Ya'lls site for a while now, even made it my homepage. (Actually, my hubby did...I can't remember everything about these pooters.)

I am sooooo thankful to have found this site. It's taken while to get the courage to post. My family and friends have NO CLUE, just what I (we) are going thru. My Husband really tries and has been very helpful. He's taken me to so many Dr.'s, watched me go through all kinds of tests and studies. He's watched helplessly, as I just bust out crying...he knows then, that I have been "holding in" the pain until I am at my breaking point.

Like many of you, I don't sleep well (apnea & oxygen), I can barely pick up a carton of milk, drop things, gained weight, have IBS, Colitis, or Diverticulitus (depends on which Dr. I was seeing), anxiety, panic attacks, no self-worth, high cholesterol, reflux, memory loss, brain fog...no need to beat a dead horse...Ya'll know what I'm talking about...but, I could use up all of my post just revealing how I feel. BUT...explain all this to a "normal" (as Ya'll called them), and they think I am NUTS, or just wanting attention, or feeling like I'm not being respected, or as just showing the "NORMAL signs of ageing"..(I'm 54), or have just a big ole case of "HYPOCHONHRIA" !!

I live in a rural area, don't have a close girlfriend anymore ( I tell my Husband sometimes, that I am thankful that he listens like a girlfriend...haha) and my girls and grandkiddos don't visit that often. (I'm not THAT bad of a person...they just have busy lives (I've been told).

I promise not to take up so much space next time...I think we could all write a book, don't Ya'll?

Thank you for Ya'lls time, and I'll add Ya'll to my prayers.
I hope I did this right...maybe I shouldn't try the

's and stuff)

Donna 5/10/07
I am not working tomorrow so I won't be on the wall. I hope that you are well and that you all Have a Happy Mother's Day. Take Care and I'll drop in next week.

Libby/TX 5.10.07
HELLO! Richard...it feels good to have a male in the mix...don't take me wrong..I'm so sorry that you have this condition...but it could be nice to have a males point of view on certain subjects....and you know what we as woman go through. You are witness that this is not in our heads or just hormone trip. I've heard of only one other male to have FM/CFS besides yourself. This other man I speak of got so bad that his doc ordered him to mix alcohol with his meds. He would hurt so bad he could not stand to have the bed sheet to touch him. Not to sure this man didn't have something else along with FM. Debbie...welcome to the wall.I think that if you let it flow on the wall it will flood your heart with joy. I've been on for a week now and I have enjoyed my time here. I can't wait until all the wallaby's start posting away again...it's obvious everyone real busy this time of year...probably getting caught up on things. I think that becomes our life story after living with FM/CFS...you know always getting caught back up. okay...sending star dust to you so you can have a restful night. Signing off for now. Libby

Libby/TX 5.11.07
GOODMORNING TO DEBBIE IN TEXAS....I'm Libby down in Texas. I wanted to say I hope you don't feel lonely now since you found this site. Keep coming back cause now you have a friend/me close to your home. A little about myself.... I'll be 49 yrs old this year, married, 1-son, 3 step-kids, 5 grandkids in Iowa, 2 grandkids in Texas, I do contract delivery service for our medical community here, and I have had FM/CFS for 25 yrs. now. I can say I have experienced every symptom that post on all criteria lists out there for this beast. Girl...I do know what you are going through. I think after having this for so long now that our aging process does make it worse/or different. It's obvious..cause our tissue/muscles and nerves age as well. I know that the last 5 yrs have been worse for me....but more in the pain and more symptoms. The cognitive problems really depend on how much depression or lack of sleep I get...but I do beleve that all other has gotten worse for me. I think you mentioned in your post that you are not sure what your intestinal problems are. I also have terrible intestinal problems and my doc has always just called it IBS...but lately I'm getting concerned and to the age I really need to be retested with a lower GI series. Well...again welcome...and keep coming back. Oh...by the way if you use this site for nothing else...use it like a diary...cause I think others will still benefit from it. Have a good day and a better tomorrow.Libby

Libby/TX 5.11.07
THIS IS A TEST AND ONLY A TEST FOR ALL WALLABY'S! GOTCHA!!

HAPPY MOTHERS DAY WITH MUCH LOVE FROM TEXAS!!!

Deb 5/11/2007
Sue in Tenn

Here are some sites for you to check out. http://www.sustainable.doe.gov/profiles/Tenn.htm#federal

LIHEAP is the contact for your utilities. They should be able to help you out. Your lawyer does not appeared to have helped you. I am not sure how long you were married but you should have received half of what he received plus he should pay your bills. You really need to find yourself someone who is looking out for you.

I receive a SS disability check but my husband does work and holds a good job with insurance. The SSI check could hurt you if receiving other benefits so your lawyer needs to check on that. You also should be eligible for part of his 401k, pension or any other benefits he may have. It took me 2 years to get the SS benefits but I'm so thankful they went through. Good documentation is a plus and a good lawyer.

Check out services such as food stamps web site is http://state.tn.us/humanserv/adfam/fs_1.htm along with home energy assistance, medicade all which are on this site. Check out the site http://www.downardandsaul.com/ which explains some on family law and disability.

I too have this crazy thing along with disc problems in my neck and lower back, chronic fatigue, the list goes on. I take the pain pills and my specialist has me on the combination of cymbalta, gabapentin and celebrex. It's the combination that worked for me, I'm so thankful. I to can't work but keep myself going and resting in between is so important. Find yourself someone who understands this disease and don't give up. Please let us know how you are doing, I care.

Deb 5/10/2007
Sue in Tenn

Here are some sites for you to check out. http://www.sustainable.doe.gov/profiles/Tenn.htm#federal

nicole az 5/11
dear everyone,
thank-you all for the nice words. i guess i just need some encouragement from time to time. i do get it from my boyfriend but i find that i need it more from other people too. i don't have friends anymore either.
i just have a few minutes this morning because i have an appointment with a new neuro in a differant city an hour and a half away. long story on that front. will fill you in on that later. thanks again for listening.

~nicole~

Robin NC 5/11/07
Welcome all Newbies. I have had the week off from work. Ray (he is the one with FMS) and I took a day trip. It was enjoyable, but wiped him out. He is trying to regroup before Sunday, we are going to a Mother's Day cookout. I think he is at the point where he is going to ask the doctor to up his amount of methadone he takes for pain. I just wish all of you could rid yourselves of this horribly beast. I admire the inspiration you have to offer each other. What a great support group!!! Hope all of you have the most enjoyable Mother's Day possible. Gentle group hugs to all.

Kate/NYC May 11, 2007
Kate NYC 5/11/07 Hi Everyone, I have been busy if you can call it that *ROTFL* sleeping, swimming at the Y, going to therapy, and my Weight Watchers mtg last night (I lost a pound, yay.) but mostly sleeping because I spend more than the average third of my life sleeping. I am almost always exhausted. One of my friends said that exhaustion can be caused by chronic dehydration, so I'm ramping up my water intake, but all it is doing so far is making me pee.

Richard in Tucson: I don't think my friend could be burned out on me because I have only seen her four times in the past year and when she was answering my emails that was about once a month. I think that's reasonable. And she was my therapist in 2002---five years is plenty of time to recover. She's playing head games and I don't like it. *grimacing in pain* Somebody said something about not babying a hurt shoulder. I agree resoundingly. My shoulder has only gotten worse over the past three months and when it started my doctor thought it was just a deltoid sprain. . .now it hurts me so much they are sending me for an MRI to rule out a torn rotator cuff. I didn't wear a sling, thank heaven, but I went to physical therapy for the shoulder and aquatic therapy for my FM, and the shoulder got worse. Anyhoo. . . hi to Nicole in AZ and everyone else. . .you all have my attention even when I can't type to post. love, kate/nyc

Dee ~~~ Friday May 11, 2007
First and foremost on my mind is to wish each and everyone a Happy Mother's Day on Sunday. It is still my most absolutely fun day and will be as long as my Mother lives. She is 82 years young and used her disabled parking tag the other day so I wouldn't have to walk too far...lol. Bless her heart! My Mother is who I want to be when I outgrow this Fibro. She cancelled an Awards Luncheon, card club and knitting class that she teaches just for me when I went to visit her on Wed. I'm so thankful I still have my mom because I don't care how old you are...you need your mom.

Nicole.Thankyou for being patient when it came to someone answering your post.It's nice to have a boyfriend who understands but it's also nice to have those girlfriends to really chit chat with. My true friends are fewer now than prefibro but my real friends are still here with me. Just not many...

Welcome to our Newbies. This is a great place full of great people. The only thing we ask that you all remember is that we also have fibro along with other conditions. We all do our best to answer questions in a timely manner but life sometimes gets in our way. Hang in there with us and you won't be disappointed.

OK....I'm off to bed. Richard, how's our Richard? I must agree with whomever said it....it's nice having a man to talk to and compare with, you take care.
Good-nite everyone.....Loves and Hugs.......Dee

ANGEL GIRL
I HAVE HAD FIBRO FOR OVER TWENTY YEARS. I AM CURRENTLY TAKING CYMBALTA WHICH WILL HELP WITH DEPRESSION AS WELL AS THE SIGNLS IN THE BRAIN TELLING THE BODY TO FEEL PAIN. A PERSON WITH FIBRO FEELS 6 TIMES MORE THE AMOUNT OF PAIN AS A REGULAR PERSON. WE DO NOT REM SLEEP SO OUR BODIES ARE NOT RESTORED. WE FEEL AS IF A MAC TRUCK HAS RUN YOU OVER EVERY MORNING. THERE ARE TIMES WHEN THE PAIN IS UNBEARABLE AND I FEEL LIKE GIVING UP BUT I DON'T AND I WON'T AND YOU WON'T. GO SEE THE TREES OR MOUNTAINS TAKE A DRIVE LISTEN TO UPLIFTING MUSIC, SING A SONG. ADOPT A CHILD FROM A FOR COUNTRY FOR $20.00 A MONTH. THERE LETTERS ARE SO GRATIFYING AND LOVING AND TO WATCH THEM GROW UP AND GO FROM SAD TO SMILING IN JUST A FEW MONTHS WITH YOU HELP WILL KEEP YOU WAITING FOR THE NEXT LETTER FROM THEM. BUT NEVER, NEVER, NEVER, NEVER, NEVER GIVE UP. THAT'S NONSENSE WE ALL UNDERSTAND HOW EACH OTHER FEELS EVEN IF OUR FAMILIES DO NOT AND IF THEY REALLY COULD UNDERSTAND IT WOULD ONLY BURDEN THEIR HEART MORE SO MAY BE IT IS A BLESSING THAT THEY DO NOT TRULY UNDERSTAND. MY DAUGHTER WAS DIAGNOSED WITH A BRAIN TUMOR WHEN SHE WAS 5 AND I WATCHED HER GO THROUGH HELL AND BACK. I SAY I KNOW WE'RE GOING TO HEAVEN BECAUSE WE'VE BEEN TO HELL AND BACK. SHE IS GOING TO BE 15 ON MAY THE 20TH. CANCER FREE!!!!! SO IF SHE CAN HAVE THE COURAGE GO FORWARD SO CAN I AND YOU. JUST TRY ONE OF THE THINGS ABOVE AND OFFER ENCOURAGEMENT TO ONE ANOTHER AND KNOW THAT GOD SITS BESIDE YOU. WE ARE THE GUINNE PIGS OF TODAY THAT WILL HELP SOMEONE IN THE FUTURE. WE HAVE TO MAKE DOCTORS LISTEN TO US AND MAKE THEM UNDERSTAND OUR PAIN IS REAL AND IT IS. ONE DAY THEY WILL LISTEN AND WE WILL BE THE ONES THAT PAVED THE ROAD FOR FUTURE SUFFERS. SO NO GIVING UP YOU ARE HOPE FOR THE FUTURE AND MAYBE A CURE OR A CAUSE. ALWAYS REMEMBER NO MATTER HOW BAD WE HAVE IT THERE IS SOMEONE SOMEWHERE ALOT WORSE OFF THAN YOU. BE THANKFUL FOR OUR BLESSINGS. ANGEL GIRL

Kate/NYC Sat May 12, 2007
Hi everyone, I wanted to ask you all what your solution to difficulties with clothing are--(meaning trouble with buttons and zippers and stuff) I have found one solution that fits my style of dressing and that is wearing different colored leggings under elastic-waist skirts (from very short to very long) and coordinating t-shirts. When I want to dress up I put on jewelry and a very light pima cotton knit cardigan that I got from LLBean.com. (which is black and goes with everything) I worked on Wall Street dressed like that so I know I can get away with it. :o) I can't wear jeans or other pants with buttons because I am fibro-handed. Unless I am having an amazing day. I am kind of punk--I wear vintage 60s cat's eye glasses and have had blue, purple, and flame colored hair before; presently it is jet black because I had to go to church with my cousins and I didn't want to stick out like a sore thumb LOL even though at Christmas I wrapped silver tinsel garlands around my turquoise crutches and I DID stick out pretty much. To the newbie who types in all capital letters: welcome, but please turn off your caps lock--it's considered shouting to type in all caps and it's difficult to read. Thanks. Love and support to all, including gentle hugs to those who would like them, kate/nyc

Amber in S.C. May 12,2007
Happy Mother's day to all the mother's that post on the wall.

nicole az 5/13
happy mothers day everyone. i hope everyones mothers day was pain free. gentle hugs to all (((( ))))

~nicole~

Debbie, TX 5/13/07
Without "shouting", I want to wish Ya'll a very Happy Mother's Day!! (Richard, it's your turn next month,haha.) I'm sorry for shouting in my first post for certain descriptions. Won't happen again...

My dear Hubby took me to the beauty parlor this week, and I had my hair trimmed and colored. (I used to do this at home, but I'm not exactly qualified.) Anyhow, I wanted to look as pretty (as possible) today, and it felt good to "look like I felt good". My daughters just raved...said they hated to have left their cameras at home.

I don't want to take up much of your time, but, I did want to give a little history about myself. I've worked since I was 14 years old, last job was Christmas Eve, 2003. I was the only woman printer for 25 years that I held that position. I was so proud of that accomplishment...and I was good!! I lifted cases of heavy paper and worked with inks, chemicals and broke production records. For 13 of those years, I was married to my childhood sweetheart...who, over the years, became a monster...beating me often...there is not a part of my body that hasn't been kicked with a steel-toed boot. In those days, it was considered "domestic violence" and the cops would not get involved. I had two children, was 970 miles from Mama, felt trapped, and didn't dare leave. Now, with Fibro...I believe that it was the combination of those two factors, that has ruined my health.

It wasn't until this year, that I was diagnosed with FM. I fought for SSD for several years...even tried working for three years during that time...and if I wasn't working for a friend...I would have be tossed out. I filed again in 2004, finely won in Aug.,'06. I've had a couple of major accidents, head traumas, eight surgeries...and FM was never brought up. I am thankful for my new Dr., 'cause, just knowing a diagnosis of FM, helps me know I'm not crazy and now I can accept my bad health better and learn how I can help myself. Does that make sense?

I realize I've written too many lines...won't do that again either...it's just hard to keep it short, when I've been "keeping it in" for so long.

I wish each of you the best, and thanks very much for the support (and e-mails) that I've received here. "Everybody needs a friend, and I'd like to be yours as well." You "go girls" (and guys)...God Bless

Barb(Pa) 5/13/07
Hi FMily,

Its been awhile since I've posted,I've been so busy this past month. Dave and I have been across the country so many times this month I think I could drive it with my eyes shut.

Richard I have been through several times,but its been on weekends or late at night.

I am sooooooo looking forward to getting back home from this run because I will be off for awhile and will get my pool open and get ready for the summer. My son is coming home this week to begin work on the house again(I hope we can get it finished this summer). My Fibro is in a flare and I spend alot of time in the bunk laying in bed....not much help to my dear husband on these long trips.

A very special Happy Mothers Day to all Moms in here. Gentle hugs to everyone.

Eileen, May 14, 2007
Hello all, It has been a very long time since I've been here. Just wanted to say that for many, many months and even years, this was a source of great support for me as I struggled to manage my fibro. I am doing well these days and mostly stay out of flares. There was a time when I couldn't turn a doorknob, so my life now is amazing. There is hope. I work 25 hours a week and am raising my kids now as a single mom. Barb, Pa.. I was thrilled to see you still posting.

Bernadette May 14
Thanks for the mother's day shout out everyone and let me also wish everyone a happy mothers day.I have an eight year old boy and he keeps me going (sometimes when I don't want to).

Kate-as far as fashion goes-my biggest concession to fibro is that I rarely wear underwires because they hurt. I like those camisole tops and yoga pants and that is pretty much my at home uniform. You know, I live in Alaska which is not exactly the fashion capitol of the world.. but I still like to have fun with scarves in my hair and vintagey stuff too. The clothes have to be comfortable though. I do make the effort to wear makeup everyday and dye my hair red because I feel better about myself when I look better. Even though I mostly dress from thrift stores, I will not buy cheap shoes anymore. My whole body feels better when I wear nice shoes. I usually wear flat shoes like the kind you get at sport stores like Keene and Dansko. Makes a big difference on my back and correct posture and pain level.

Donna 5/14/07
Hello everyone, Eileen it is great that your feeling so good what do you think is the biggest reason? I am 48 years old and I wanted to go for a walk at lunch time today but I am too tired and my hips and legs are hurting so bad that I can't possibly think about a walk. Debbie in Texas I am glad that you are out of the Domestic Violence relationship, that was not nor never is a health realtionship, even when the battering isn't happening you are just anticipating the next time. I work with Domestic Violence and the affects on children. I work for DCF Child Safety Unit, we try to keep children safe and we are often hated for it. I see physical and sexual abuse and neglect on a daily basis and it is very stressfull, I also listen to complaints that come in to our governor's line that have to do with DCF, so I have to listen to people yell and scream. So much for trying to keep my stress level low. Maybe that is why I have a good sense of humor, one has to have it to do this job. Well now you all know about me and what I do. Great to see everyone posting. Love to all.

Sher, May 14,2007
Hi every one. I found this site while doing some research to bring to one of my many doctors. I belive I wrote to a couple of you and one did answer me back, forgive me, I forget who, but it was the post I read, from the mo. of Jan. It struck me cause of her lung infections, and when I research Fibroy, it never metions that as a possible sign, there for, I phoo it and think it is all in my head cause my docs seem to think it is not Lupus or fibro. Anyhow to get on with it. I have many of the symtoms, and more so sense moving to a colder state once again. We were in NC for 7 yrs till my husbands job was cut and we ended up in St. Lois, and transfered from there to here, even colder. LOL I wake up many times thinking I have a fever, my body hurting all over and joints hurting. Some of that has gone, but the hips hurt more so than 8 yrs ago, the elbows constantly all the way to my wrists. I have had lung infections, one after another, usually shortly after I get off the medications,for 4 yrs now. this last one has not come back now for nearly a month, that is a good sign. I have been on prednisone and antibiotics during all that time, soon as my lungs flair up again. So far I don't have copd, go figure. However when I read about the one person, having the same problems and fiboridmy?? it gave me hope that maybe there is finely an answer. I am off to see a new specialist, and if he phoo hoo's me, I am walking out that door till I find some one who is going to listen. I don't want it, but it would at least ease my mind as to what the heck is going on. Oh, I have asthma, and get hives now and then and then they go into remission as does the pain sometimes, lately not. A bit about me, I am 58 this year, love being busy, miss our kids, in VA, twin boys and their lovely wives, one is pg, after trying 10 yrs. Been married 38 yrs this year, and love him so much for being so patient with me. Never was hardly sick a day in my life, unless I wanted to skip school and was very active, now I do photography, write poetry when it strikes me, draw amiturishly, and love plants and cooking, camping and fishing. Thanks for listening, I am glad I can take a lot of pain, try not to let it get to me and only take tylenol when I can not longer get enough sleep. Hugs to you all, Sher

Libby/TX 5.14.07
HELLO....to everyone out there. I'm still new ..but I told myself and also posted that this site will get really interesting when the others start posting again. I told myself that I would stay in here and post like a diary...if nothing else ...and quess what?...here you all are old and new posting away. I love this site. NICHOLE- I had a feeling that you were just going through a fibro time...we have all had them. How long have you had FM? I'm thinking that you may not have had too long....and that you are not aware of all the cognitive problems that you will experience. The mind and nerve problems can be just as bad as the painful days. I have totally experienced going to the dark side with the beast. You can tell your mind anything and make yourself believe it. NO...I don't mean hearing voices...I mean you telling yourself when you feel bad that no one is on your side and no one understands. Hey..enough of that...you hang in there! Well Hubby calling...must go and see what this is about. Chat with you later. Sending love to all the the FMer's out there. Libby

Cari K. 5-15-07
Cari K. 5-15-07 Happy tuesday to you all.I figured since everyone else is posting to tell about themselves,I would too.I am 49 years old and just recently lost a job that I had for the past 15 years.It was factory work and I thought that they were doing me a favor by letting me go because the work was getting just so much more than I could handle.But now that they have turned me down for unemployment benefits,I'm really scared.Now,I have to find another job and figure out how to pay for doctor visits and medications too.I am married,but my husband is on disability so there's not much income coming in right now.I am putting in applications everyday,so I hope some thing comes up soon.All I can do is pray that I find something soon.so there you have it. Gentle hugs from me in Ohio,Cari K.

bestamor 05, 15, 07
Hello. I am fairly new to this fibro thing. I was just diagnois about three month ago. but I think I had it for years and just did not know it. I had to retire from being an LPN because of the stress. But I am old enough for SS. Would like to know some ways of handling stress. Can anyone help me. My brain feels like it is out to lunch. LOL. We are a senior couple who are on social security but my husband still works. And he has dystonia and has taken botox for years for this. botox was developed for dystonia not to get a pretty face. lol. We have five grown children, 15 grandchildren, 2 and 1/4 great-grandchildren, and my 92 years young mother. We like to travel but with the gas prices can not go as much. I keep busy with my hobbies, my mother, housework, family and our new puppy, Buddy. I did not know that there are so many people out there with this fibro thing. Would enjoy chatting with you all. I remember where we first found out that my husband had dystonia. We felt like we were the only ones in the world that had to live with it. Two of ours children were still in school and the oldest one in school did not understand what there Dad was going though.

Nicole AZ
Hello everyone, I went to my 3rd and new neuro on friday. I haven't felt up to posting untill today I've been so tired. He was really good regarding the MS. He wants a new mri because my last one was done over a year ago. He is worried about the lack of feeling in my lower legs and feet and he wants the mri to see if the MS is progressive. I believe it is, due to the fact that I have not had a remission in over 7 years. But if its not progressive there is a old medication that the FDA has let back on the market its called Tysabri. It will stop the plack(sp)from building in the spine. Theres so much more to it....

Anyway I asked about fibro being a seperate illness,(dragon to us)and if I could have both MS and fibro and he said absulutely. He doesn't want to deal with my sympthoms of either right now, just stopping the MS. Well I do....so I will be seeing my pcp on friday to see about something for the pain. I have not wanted to and have been putting it off for too long I think. I do have a very high tolerance to pain but lately its just been too much for me to bear.
I take medicine right now for spascity, nerve pain(tingling)in hands, feet, and lower legs, hypertension, cholestrol, and a potasiam supplement...but only naproxen for pain and not very often at that because it can really can hurt your stomach. So I hope my primary will help me with the pain. Then after the mri we can fix me up with a rhummy or something. Any suggestions...
Well, enough typing for me right now. Gentle Hugs ~nicole~

Richard in Tucson May 15
Good Tuesday afternoon to all here: I thought I would try to make a brief post.
I have been extra tired lately partly because I have not slept good fro several days, and also we have been having some real hot days over 100 degrees.
Warm welcome to the Newbies, I am glad to read your posts. You have come to a wonderful place here at the Wall.
Debbie, aka Strawberry: Welcome to the wall. I understand the family and friends not understanding, I have been dealing with that for years. I too have sleep Apnea and have been on CPAP therapy for a year now, I sleep a little better then before the therapy.
Libby/TX: Welcome back to the Wall and thank you for making me feel so welcome in your presence. I have been to a support group online for Men with this condition, there are many of us, most don't stay here at this group, because they have a hard time admitting being this frail, I think that is what it is. I have tried to post on the Men's Fibromyalgia Page and I am still a member there, but I feel more accepted here at the Wall.
Kate/NYC: I am sorry to assume your friend could be burned out on you. Please accept my apologies. Yes maybe it is head games, I would not waste any of your energy on her, there are many wonderful people in this world, maybe even in your town that can and will be a good friend. You are very welcome here to this Wall of great friends.
Dee: I am here for you, I have just been battling this tiredness and fatigue that is much more intense then ever. I will never leave this Wall, I might not post as much but I am here reading the posts every chance I get.
Barb (Pa): Glad to read your Post. I think you are very much help to your Husband, I am sure you keep him good company and you are there for him.

I wish I could rely to every one's concerns, just know I am here for you. I have got to get going talk to you soon.
Gentle Hugs from Richard in Tucson...

Eugenia-TX.5/15/
Eugenia-Tx.5/15/ Hello to all of you.I just finished reading the new posts.Cari K I am so sorry you lost your job. I guess there is about no security in any job. 15 yrs a long time to work and then be turned down for unemployment.I pray you get an easier and better job.Hi,bestamor i am glad to meet you on the post wall. we are senior citizens also. my husband gets disability from the army. If i make until June i will start getting a SSck.Dont know where the time has gone. I was 62 this month. I wish i could tell you how to cope with stress. Even w/meds. i am stil streesed i know so much of it is my pain and i think i was born a worrier.LOL I really do know how you feel. I told my DR.i always felt like i was just waiting for something bad to happen. changed my med. we will see when it starts to work i have been on it 2months. see her next week. Nicole AZ. sounds like you are having a very tuff time. MS and fibro. together.i pray your drs. will get you to feeling better.Hello Richard /Tucson. I always like reading your post.I can tell you are a good guy. you always let all of us know you are sincere and it is good to hear a mans feelings with this desease and your other health problems.i am so glad i found this place where so many care so much for others.Hi Kate/NYC. I think i have better friend on this wall site than i ever had. Even with just getting to know the people here i feel cared about a lot more than my friends that dont understand these health problems.I always heard walk a mile in some one elses shoes.I guess that is true.Hi,Barb/PA. I admire you for being there for your husband. I am so fortunate to have a husband that cares for me. When we said in sickness and in health we took it too heart. so many dont these days.at least in my family!sorry if i wrote too much. gentel hugs from me to all of you.

Libby/TX 5.15.07
HELLO TO EVERYONE - I'm so loving this wall right now...it's amazing in this short time that I have been posting all that we have experienced as a group. Nichol is doing better...past Fmer's posting again....everyone sharing more about themselves. JUST KEEP OPENING UP EVERYONE...CAUSE WE CAN HELP EACH OTHER WHERE NO ONE ELSE CAN. I can truly say that I'm not new anymore...so a BIG WELCOME TO ALL THE NEWBIES! IF no else has told you today...I will..."This pain is real and I love you and care about what you are going through", and....great big fuzzies to all!!!

Nichol- Girl....you sound alot better today...keep it up!! AND...my heart goes out to you. I know that FM is tough, but having MS also... it's got to be like two beast fighting each other inside of you....bless you girl!

bestamor- welcome to you and your family. It 's great to hear about more of us having good support in the home... as well as on the wall. You will meet some good people here....and you talk about anything and eveything that you want to beat some of that stress...cause we are listening on this wall. If you read my earlier postings you will see that I explained that I went to the dark side with this many times. If I had had this wall earlier I would have done better on certain days.Sending a special fuzzy just for you!

Everyone...I'm on my second day of colon cleansing(pill formula)...you know the one they advertise on the t.v. Dual-action Cleanse. It's $39.00, but I think this one really does work. I hope you all realize colon cleansing is real important with FMer's getting all the toxins out of your systems. These toxins do keep us sensitive ones ill longer. I hope that one day my IBS will get better with this cleansing everyother month.

Richard- we want you on our wall!!!! Other men...and we do know the kind of men that you are referring to...oh well....they can do their thing. I really like you and ...I do enjoy reading your posts. You really seem to be a cool person and family man. I wish you and your family all the happiness that you deserve. OH...I've taken lots of room on the wall....I must cloe until later. Hey... sleepy star dust to everyone for a good nights sleep . Libby

bestamor 05, 16, 07
bestamor 05/16/07. bestamor in Danish means Grandmother. I have enjoyed reading all your posting. And it is nice to know others are out there. this morning I woke up with arms hurting really bad. some times they feel like they want to fall off. I believe my family is pretty much supportive. I know my husband understands because of his dystonia. And my children are happy that I took a year off of work. A chronic condition is not really something I would wish on anyone. I also have a pacemaker for my heart. Are all of you on alot of medication? I know I am. and the part D does not paid alot for some of them. One of the drug company is helping me with 2 of my meds. Richard I enjoy hearding the male side of this condition. I know it says that God does not give you anymore than you can handle. But I wish that God would stop seeing if I can handle more. I know I was not able to give my grandchildren very much Christmas presents this year and that hurt me. but my kids said they were glad we were spending our money on ourself. The one that is pregant. and afraid of miscarriage. I think I know how you feel.. we are expecting a new great grand baby in December and already I would hate to lose it. And I am not even the mother. Must close for now. May God give the strength to make it thru your day.!!!!!!

Debbie, TX 5/16/'07
Good Morning or Afternoon to the "Slayers of Dragons",

I just wanted to say (again), just how glad I am to have found this site. I hope that I can be of help to Ya'll sometimes too. It may take me a long time to remember everyone's name and questions, so please bear with me. I take forever just trying to type (mostly due to brain-fog), but also because my arms hurt also. My arms feel like they have "charlie horses" in them.

I also have seen the "dark side" of this beast. I used to be unable to listen to my favorite classic rock music, without thinking of a death message, or as just a neat song to play at my funeral. The funeral that I hoped would be soon...even thought about...well...never mind...it's hard to even say it out loud. I say all this only to tell everyone that I know that there is a better way. Hang in there and you'll be stronger for it and a blessing to all that know you.

I think unemployment initially turns everyone down at first, but they make most of it up in a few weeks. I hope that is how it happens for you. At one time, we had to go on Indigent Health Care and Food Stamps. I wasn't embarrassed at all, because we all have been paying in to the system when we were able to work. We only stayed on it until we got over the hump. I realize that some abuse the system, but don't feel bad to ask for help...no one knows unless you tell them. Also, several churches helped with utilities and more. We were only members of one, but alot of them want to help their community.

I've done it again...talked (wrote) too much. Just want to say one more thing...I too have trouble with comfortable clothes...don't wear a bra at home, wear stretchy clothing. When I have to go out, I still wear stretchy pants and loose blouses and my most "comfortable bra" (if there is such a thing), and at least mascara. But, there have been times that I've gone to the Dr., looking like I just got out of bed...only because somedays I don't have the strength to hold my arms up.

I truly wish the best for each of you...if I had a magic wand, I would use it. I can pray though, and I do.

Donna 5/16/07
Hello to everyone, it has been a few days since I have been on the wall. I had a few minutes to catch up with everyone and I am so glad that everyone keeps coming back and is sharing. This is a great place to learn and help someone. Richard, you are a great support to everyone here so Please keep on coming back. I have been struggling with more pain in the past few days and I am sure some of it is my own fault for taking on too much over the weekend, over did and now paying the price but this rain that we are having here in VT is so damp and cold that it hurts. This is the first time that I have been just sitting or laying on the couch and out of nowhere comes the stabbing/piercing pains in my feet, also having trouble with my knees going up the stairs. I feel like I am 100 instead of 48. Well I am going to stop complaining as I don't have to look far to see someone worse off then me, dealing with Abuse and Neglect of Children you see far more than you ever want to. Everyone have a great day.

Barb(Pa) 5/16/2007
Happy Hump Day Everyone, I enjoyed a great steak dinner and a night in a comfy motel for Mothers Day. The motel had a hot tub and pool and was wonderful !!! I got a wonderful relaxing massage and felt like a new woman if only for a short time. We will be heading into Fontana,Ca today and get a load going back home where I will stay for awhile.

Richard,I will probably be coming your way again this week,hope it cools off a little. I, like the other ladies in here enjoy your posts,keep them coming. You are such a caring man!!

Welcome to the newbies,so glad you found this wonderful caring place. Gotta run for now. Gentle hugs

Dee ~ Wednesday May 16, 2007
Hello friends.....

Richard...A year ago I was so jealous of all you could do in one day...now I hate it that you are having so much pain and fatigue. There's one thing I've always felt when I read your posts....having FMS doesn't define you as a man anymore than it does me as a woman. It's the condition we have, not who we are. Wish I could hop in the truck with Barb and Dave and have coffee with you. Take care my friend.

Barb...Motel, massage, pool, hot tub and a steak dinner? Wow! I miss your emails...did you lose my address?

Debbie/TX...we used to have another Deb/TX and I thought maybe she had returned when I first saw your post. It's nice to meet another Debbie from Texas. Don't worry about remembering names here, that's way too much pressure...lol. You mentioned your arms hurting, do they swell? How about your hands?

bestamor....welcome to the Wall. I too am a Great-Grandmother and expecting our third one in Dec. I'll say a little prayer for the health of your unborn gg baby. We'll have to compare notes as time goes by.

Well I must get off here and get in the shower. I spent the day at the cemetery cleaning and decorating for Memorial Day. Welcome to all the Newbies.

Libby/TX 5.16.07
Hello to all....I hope it's a good night for each of you..cause it's not my night. A little pain here...a little pain there...bloated....legs feel like cement and feet stinging....but most of all I can't think too clear tonight. Just wanted to say HI!

A warm fuzzy to everyone and sending sleepy star dust for a good night sleep!

Sorry if this sounds silly..cause I feel a little lou-lou tonight...I probably shouldn't waste space so I will close. Libby

Bernadette May 16
Can I just say that I am having a great day. I am so thankful that summer is finally here. I have often wondered if the weather is indeed a factor to my fibro. I didn't have it until I moved to Alaska and then I had it with vengeance. I am here to stay though, so I make the best of it-but oh I am so glad that summer is here, with all the long bright days and the green everywhere-so glorious. And I am thankful for my dear dog Mijo who keeps me walking and gives me unconditional love. I am so grateful for my son and my dear dear husband who stays with me despite all my craziness. I am grateful for my job which I love and a good school for my son and two close girlfriends who understand what it is like having fibro and love me anyway. I am grateful that I healed the relationship with my mother. I am grateful for yoga and my rheumatologist and my medications that work. I am grateful for my comfy home and for really good books and for you the gals that keep this wall going for us.

I just want to give some words of encouragement for those who are just learning about this illness. For me, it has gotten better. Just do not give up. Keep trying new things, reading things, and you will eventually find the combination of nutrition, exercise, stress relief and medications that will help you. It sounds weird, but I'm not "fighting" this anymore. I am coexisting with it. I decided that my body was trying to tell me something. It was telling me that my old way of life was not working. It was telling me to slow down, pay attention, quit demanding so much of it and of myself and everyone else. I am working on being positive and grateful, even of my illness.

Debbie, TX 5/17/07
Good Afternoon Friends,

I want to say "Thanks" again...can't say it enough. I think that I once said, that I didn't even get a diagnosis (FM) until a few months ago. I got SSD from many other major accidents, head traumas, surgeries, "symptoms" of several diseases, etc. But, I thought I would recover from all those things someday (over the past 10 years), but instead I was/am in so much pain (for no recent reason, (I thought). Doc would tell me that I was depressed...I'll tell him that I was too blessed to be depressed...that it was the pain that kept me blue. Finally, he sent me to my Rheumy Doc, and on the first visit, he told me that I am suffering due to FM and has put me on meds that seem to be taking the edge off somewhat. I'm grateful for the diagnosis "because now" I am reading and learning about it and the past problems all make sense now. I am learning what I can do to help myself live/cope with this beast.

I once was very strong, worked hard, loved the outdoors, fishing, camping, and gardening. Now, I'm grateful that once upon a time, I could freeze fish and I canned the garden's bounty. We're still eating from those gardens. I look forward to fishing this year, even though my tremors won't allow me to bait a hook. I'm thankful that my Hubby won't mind helping me. Afterall, I usually catch the most fish. Haha..

I've given up crafts, art, and sewing, and look forward to the day that my hands might quit shaking.

I have a new hobby now...raising birds...cockatiels, parakeets and finches. (also have three dogs & fishies). I have to admit that my bird hobby is becoming stressful and more like a chore. The finches are like rabbits....if you know what I mean. But, I can always give some away or maybe sell a few, when it gets to be too much.

I'm thankful that my Hubby loves to grill (alot)...his grilling and my "put up" veggies, make having meals more enjoyable.

I regret that I can't ride a motorcycle anymore...not even on the back of my Hubby's...at least not for very long distances. We used to ride all over the country, camping along the way...just had a blast. But, I'm thankful for those memories and for the fact that my dear Hubby is going to build a "trike" for me...and hopefully I'll have the strength (on some days) to use the hand controls.

I'm thankful that I can "vent" here, and for Ya'lls understanding and encouragement. I'm thankful that I reckon I added myself to the birthday list, and thankful that Dee e-mailed me at a addy that I seldom use...thankful for that e-mail, because today I don't even remember doing that.

I'm so glad that the pooter does't "time out" whilst I'm posting, 'cause it takes me a long time to do this. (and not because I talk too much)...wink.

Well, I've done it again...but, my heart and my mouth are both big...I think that if the day comes that I don't talk too much, it could be the day I'm tired of trying to cope...and now,if Ya'll excuse me...I have to clean up alot of bird poop and am thankful for that too, as it will keep my hands and mind busy for awhile.

I got the following from...

http://www.positivepress.com/saying/subscription.php3

"Shared joy is a double joy; shared sorrow is half sorrow." (a Swedish proverb)

Richard in Tucson May 17
Hi all I have a couple of minutes to post.
I am not sure If I will have time to post tomorrow, so here goes. I did two days of my Silver sneakers exercise program this week Monday & today I feel pretty good about that.
Libby/TX: I am so happy that you are loving the Wall, we need your enthusiasm here. Thank your for your kind words, I will look forward to posting more as I can, but not too much because I do go on & on sometimes.
bestamor: Welcome to the Wall. Thank you for your kindness.
Donna: Thank you for appreciating my support, I really try to be as supportive as I can be.
Barb(Pa): I hope it cools off a little to, Beware Many of the exit and entrance ramps in Tucson to I-10 are closed or closing , it has been crazy, this is a several year widening project of I-10, I would love to meet with you some day, but it seems our paths never cross on the same days.
Dee: I understand, thank you for your concern. Talk to Barb about making the trip some day, we all can have coffee together lol.
I have got to go to pick my daughter up Have a great weekend everyone Love Richard in Tucson....

Emma A. 5/18/07
Emma A. -- I am looking for answers.....Does anyone have seizers....I have FMS and now I am having seizers.....I have noticed that I have a seizer when I over do it.....But it is hard when I am having a good day not to over do it.... then I pay for it besides the seizers I will have to spend several days in bed....I have had several test MRI's etc...My Doctors say the seizers must be caused from stress.... any information will be appreciated.... I pray you all will have better days....

Sher May 18, 2007
I have poste on here before, and some of you have seen my posts, however I can only see the ones from March, not May, can some one help me how to find the recent posts. To update, I went to my COPD doctor Tuesday, and he began to phoo hoo me about my consernes with my lungs and a possible connection to Fybroidmyagia. I started to get a bit irritated, and told him he has a pamplet that I just read that connects the same lung problems with Rhumitoid Arthritic and he started agaian to phoo hoo me and called it age stuff and I think he noticed my desperation and also my telling him, I am desperate,all I want is a name to my problems and even though he is not in that field, if it is part of what is going on, I would at least like to know or have my mind put at rest. There is so much pain anymore, I rarely sleep a full night, and I have noticed that I really do have rls, so I am about to go nuts. LOL If I had my preferances I would not want to have any of the three I asked him to check out, Lupus, Fybroidm, and RA, which I am actualling thinking not that may turn out to be the last one, especially sense his pamplet even said it could be with my constant lung proplems, and that also has come back this week. I got lucky for 26 days with our prednizone, started them up yesturday again. Been 4 yrs for it to be that long. Well thanks for listening, I will up date you in a month, that is when I go back once he collects all my records from all the scans and tests I have had for the past 6 mo. I will be thinking about you all also. Even if I turn out not to have this, I do know your pain. Hugs, Sher.

Amber in S.C. 5/18/07
We'll.. this week has been very busy and i am exhausted, but the best thing that happened this week was the birth of my nephew on Wednesday. I got to see and hold him yesterday and my sister-in -law is just glowing with this new addition to her family.(She is a 1st time mom)I am now having Fibro problems now because i think i have just over done it with all that i have done this week. My mom keeps my sisters baby and has R.A. and sometimes has problems keeping up with her now that she is 8 months old and very active...so i decided to help her with the baby and then yesterday she needed help keeping up with my nephew that's 3 and extremley active (my brothers son). So i am very tired and in pain, but it was all worth it because i got to see my niece and nephew, help my mom, and hold my new nephew...all in one week. This weekend will be non-stop too and today is my only rest day.. so i am going to take advantage of it and hope it's enough to get me through the rest of the weekend. Anyway.. just wanted to say hi to everyone...especially to all the newbies and i hope all of you have a good weekend. Take care.

Debbie, TX 5/18/07
Hello Friends,

I almost got all seven bird cages cleaned yesterday...had to leave one for today. I pooped out very quickly, but had to finish as much as possible. There were 27 little birdies awaiting clean cages, toys, and filled food & water bowls.

I'm still having trouble remembering names, but I do remember that Amber has a new nephew...Congratulations! You won't "spoil" him, now will you? Haha..

I'm not up to tooting my own horn today, so I'll just read what Ya'll are tooting about...hahaha,

Take care, Debbie

Dee ~ Friday May 18, 2007
Welcome Newbies!!!

Emma A.....Isn't it strange that you would have seizers and so many of the medications we are given are for seizers. I myself have never had a seizer that I know of. Would you mind telling me what your seizers are like?

Sher...If you are only able to view past posts here at the Wall, you need to "refresh" the page after it loads. In other words, when this page opens press "Refresh" or F5 on your keyboard and that should update your screen. I have the Wall saved to my favorites and so everytime I open it I have to refresh to bring up current posts. Hope that was clear for you because I have a hard time explaining things and putting them in words.

Amber....Congratulations on the new Nephew. Running after little ones is definatly an invitation for pain. Enjoy those babies while you can.

Debbie...I know what you are going through with raising birds. Several years ago I too had a bird house and several hundred feathered friends to care for. Yes, those finches are a lot like rabbits aren't they? I had to find homes for all and kept my baby which is an African Grey Parrot. She is enough work for me. Besides, she is smarter than I am...lol. Don't overdo, but enjoy them.

Have cooked all day for a grandson's graduation party tomorrow. I'm pooped and am sorry to say, I can't wait for it to all be over. I used to love parties and cooking for large groups, but no more. Have a nice week-end....Dee

Cari K. 5-19-07
Cari K. 5-19-07 To Emma,my daughter has been having seizures for the past few months and they are contributing them to stress also.She has not been diagnosed with FMS but I wouldn't doubt that she has it also.Do you see the auras before a seizure comes on? She does and that little bit of a warning helps somewhat.Her doctor has put her on Dilantin.She is only out of it for a few minutes but then she is very confused for about fifteen minutes afterward.She has to have oxegen too when she is being brought out of one.One time she told the EMT that her name was "poopy".They have done every test known to man and they still can't find any reason other than stress.(It doesn't help that she is going through a separation and then a divorce).They also have her on a nerve pill to help reduce the stress.Hope this helps somewhat.Take care and let me know what happens,we all care here at the wall.Gentle hugs,Cari K.

Cheryl 5/19/07`
Cheryl PA

Hello everyone,

It's been a month for sure since posting. Read up on a lot of posts. Learning more just listening.

Bernadette it sticks with me about yr being grateful that yr body thru illness says the old ways of doing things didn't work and has to change. That sums up a lot of things for me. I truly have experienced change over the yrs dealing with fibro. Many stages and much reading and learning have benefited me to live with it and in spite of it. To accept when it flares to go with it's flow so not add more stress. Stress definitely for me is a biggy to flare up the pain levels more. When feeling good I go girl and get done what you desire and then in the process kick butt and suffer later. As one post I read sometimes I don't mind for it was worth it yet on the other hand it might say hey what did you do to yourself for the doin' wasn't worth it. I think balance falls in here somewhere. When the end result of the doin' seems worth while to deal with pain next or not worth while. I'm not sure if this makes sense to anyone yet that's the way I can describe it from my experience.

I have been stressin' since my husband's hours changed in trucking in my getting use to the new schedule of how to do things I do but do them in a different scheduled fashion. As it goes week to week the way to do comes clearer. Yet the stress of change, as any change, is a challenge especially dealing with fibro. I love to garden and that's one thing I need to pace myself b/c of pain flaring up in my right hand,arm, shoulder, and back. Massage and chiro have helped along with just taking breaks to rest. I am my own parent talking to me as a kid to say what I need to hear so to take care of me. Exercise is still a part of my list to improve me and it is working. Soon I look to have an operation for bunion. I go to doc this coming week to discuss it. I for a long time had no pain issues with it but that has changed. I am 60yrs and it's all changing(the body that is). Being active is good for my stress to work it out along with some meds. I got a pedometer and try to do 10,000 steps a day. Several days I suceed and then some I don't. It's a game for me actually. A goal to try. My cholesterol went down and my blood pressure keeps at 118.

We have a puppy that's a new child in our house to throw ball with and hug. Another older dog - 12yrs and a cat about 8yrs. Puppy chases cat and I'm trying to teach her no. We had two one parakeets and one died suddenly the other week. I buried it in our yard and gave our parakeet a plastic buddy bird which she moved close to after losing the other. My family. Nice when my husband works long hours.

I will be a grandmother again June 18th to the second granddaughter and looking forward to that. The first one will be 2yrs May 24th.

Well I use to post more regularly so this is a start again yet will see. It's true as many say It's great to hear and talk with others who "get it". Cheryl

Eugenia-TX. 5/19
Eugenia-Tx.5/19 Hello to each and every one of you. When i 1st found this web I knew after reading a few posts how good it is to meet people that really understand and care about each other. Now I want every one to have a good laugh at my expense!!! when I 1st started to read the posts I asked [WHERE DO THESE POSTS GO?} I dont remember who told me they just kept going. So due to me being me and fibro fog every time I came to the wall I scanned from top to bottom to read the posts. took a long time to get to the new posts and can you imagine how long it took me to scan back to the top so i could post? I just now read where somone told someone to press F5 and it will take you to the latest posts.I am sorry I dont remember who was telling another wall member this info.,but I sure am thankful to you. Hope all of you dont try to have me commited!! Hope each and every one have a good night. Soft Hugs from me to each of you.. Mary

Eugenia-TX. 5/19
Eugenia-TX.5/19 I hit F5 and it did not work. please help goofy me to get right. thanks Mary

Dee ~ Sunday May 20, 2007
LOL...Eugenia, pressing F5 won't take you to the latest post and has nothing to do with scrolling top to bottom and back up again. It (F5 or Refresh) simply loads the newest posts to the page if you can't view them at the time. You will still have to scroll the page yourself. I'm sorry if that was confusing but, even if I understand what I'm saying...I don't always explain it very well.....either fibro fog or just a senior momment. My bad....Dee

LIBBY/TX 5.20.07
Hello to all...!! I havn't posted in few days now..but feeling better! >p> Not sure whom is asking(still new myself)...but I havn't read or experienced seizures with FM. I have had it 25 plus yrs now and I do know that in the last 5 yrs that I have had more symptoms and harder hit with a higher level pain. I truly believe that I also have MPS (myofascial pain syndrome), meaning: pain coming from the muscle fiber and connective tissue. I have had three (3) episodes now that required me getting to the doctor or E.R. 1st time - pain hit in what I thought was the kidney...right in the middle in my back on right side. I went to E.R. and they thought I was trying to pass kidney stones. I stayed in ER 8 hrs with IV/pain meds to relieve....conclusion: HOT SPOT. 2nd time - ER chest pains with coughing...ran all heart tests...conclusion: coughing from brochitis caused severe pain...again srong meds to get through. 3rd time- reached around my front seat in car to grab something...bam.. pain between shoulder blade and spine..took me two yrs for pain to ease with strong meds/muscle massages and BLUE STOP ointment all day long. AND really a 4th time- pain from turning my work GEO car with a little strain on my bicep...bam !! again...cortisone shots, therapy, ointments, ultrasound therapy...because the pain was so widespread then and went up into all my tissue in my shoulder ...it froze up and now I'm dealing with tendonitis in the shoulder. WHAT A NIGHTMARE!!! Just wanted to know if anyone out there ever experienced these happenings as well? I have had the FM so long that I feel the difference with the new stuff! I did read in FM bible..that I have had for yrs now that they think that FM brings on MPS or vice versa.

My FM book is called the "FIBRO-MYALGIA: a comprehensive approach..what you can do about chronic pain and fatique", by, Miryam Ehrlich Williamson, and foreword by David A nye, M.D.

This book has helped me so much...I still read and find myself re-reading to remind myself all that I experience...to help control and deal even after all these yrs living with the beast. WHOOOPS..I must close I've taken alot room up today. Hope all has a good Sunday and time with your families....and yes pain free day !! Closing for now. Libby

LIBBY/TX 5.20.07
HELLO Again!!

Just wanted to let everyone know that when you need to get to the lastest post...you should be able to use the "END" button on most pooters. You have a "HOME AND END" button...this is for paging up or down. Try this... see if it works for you! Bye for now...Libby

Debby W. Westland, MI
I am 47 years old. I was diagnoised with Fibromyalgia on March 8, 2006. It took 8 months of Physical Therapy every other day to get me back to work. I would of had 24 years with my company on June 11, 2007. My company is closing their doors within the next few weeks. At the same time, My first court date for my divorce is May 30th. I fear that I'll be left without insurance. My soon to be Ex says he'll make sure I'm taken care of, yet he is refusing to pay me any Spousal Support. He makes $65,000. a year and we own a landscape company which he brags will be bringing in $7,000. a month. My apt. lease is up July 1, 2007. I need to give my notice by June 1, 2007. He also says he's thinking about filing bankruptcy as well. My lawyer says if he does, he won't have to pay me any spousal support. I've worked really hard to have a good credit score. I didn't want to file, and ruin that. Yet if I don't , than I'm responsible for the debt we incurred together. I'm trying to get my medical bills paid, finish divorce papers and complete filing our joint taxes together. I'm afraid after a bankruptcy, I won't be able to get a place to live. I'm filled with anxiety!! I have no family to guide me thru all of this. But I am blessed to have my 12 step group. Any Advice on how to get thru all of this would be greatly appreciated!! Thanks bunches!!!

Debby W. Westland, MI 5/20/2007
I am 47 years old. I was diagnoised with Fibromyalgia on March 8, 2006. It took 8 months of Physical Therapy every other day to get me back to work. I would of had 24 years with my company on June 11, 2007. My company is closing their doors within the next few weeks. At the same time, My first court date for my divorce is May 30th. I fear that I'll be left without insurance. My soon to be Ex says he'll make sure I'm taken care of, yet he is refusing to pay me any Spousal Support. He makes $65,000. a year and we own a landscape company which he brags will be bringing in $7,000. a month. My apt. lease is up July 1, 2007. I need to give my notice by June 1, 2007. He also says he's thinking about filing bankruptcy as well. My lawyer says if he does, he won't have to pay me any spousal support. I've worked really hard to have a good credit score. I didn't want to file, and ruin that. Yet if I don't , than I'm responsible for the debt we incurred together. I'm trying to get my medical bills paid, finish divorce papers and complete filing our joint taxes together. I'm afraid after a bankruptcy, I won't be able to get a place to live. I'm filled with anxiety!! I have no family to guide me thru all of this. But I am blessed to have my 12 step group. Any Advice on how to get thru all of this would be greatly appreciated!! Thanks bunches!!!

Yolanda Mia 5/20/07
Hello All! I've been trying to keep up on reading posts but haven't had the energy after reading to post. Still working 9 hour days, and I worked 5 yesterday. I've been letting a lot of things fall vy the wayside b/c I have no energy to do them at all. But, I did want to welcome all the newbies! Also, Debby W, I'm confused, if the business is making good money why is he going to file bankruptcy? With the new laws, he shouldn't be able to do so. I hope it all works out ok for you. I know it's rough, my mom is going through the same problem. My dad has left her with a mounting debt. She has talked to several of the companies, and a few have been very good about not making her pay the entire debt. Love ya all! Yoyo

bestamor. 05/20/07
Bestamor 05/20,07 Hello everyone. Hope FM is treating you kindly, but know it most likely isn't. I did not know that seizures are a part of FM. My youngest daughter had seizures but outgrew them. to Debby, Going thru a divorce is a hard thing to do. I did not know someone could file bankrupty making 7000 a month. Maybe disability is an option you should look into. the stress of what you are going thru is not helping FM. May God grant you the strength to make it thru this bad time. My husband and I have been married for 43 years. But this is my second marriage. And you do get thru it. but I was only 21 years old and had a family to help me thru it. My husband and I worked all day putting in our garden. we have to work about an hour then rest an hour. I am glad we did it because it is going to rain tomorrow or that is what the weather man said. My arms hurt no matter what I do so I just do it. We each have difficulty things in our lives. It is nice to share some of them. I am glad that my disorder has a name. It is easier to deal with if you know what you are up against. Not knowing really did worry me. the stress of not knowing I think make it worse. Must close for now. If today is a bad day for you, I hope tomorrow is a better day.

Donna-Vt 5/21/07
First a warm and soft hug to everyone. Wow I have only been away from the wall for 3 days and I couldn't believe all the posts that were here. I use the End key and then scroll up until I get to the last post that I have read and read down from there, when I am finished I hit my Home key which takes me to the top so that I can post my message. Bernadette, I can't believe that your doctor won't prescribe the Lyrica for you as it has been a blessing for me, but I also take it in combination with Topimax. I felt a difference the first day. I also have hydrocodone for the pain and I don't have a problem with my doctor giving it to me as she doesn't believe that I will become addicted as June said that usually doesn't happen with Fibro patients, we aren't using it to get high we are using it for relief. Emma, I have to agree with someone else who said that you shouldn't be getting seizures because of our meds, I don't want to scare you but my sister was having seizures and when they did a catscan they found a brain tumor, she was operated on last January and is fine now. Again please have that checked but I don't want to scare you but I want you to beware. Debby-my sister with the brain tumor had to go through a divorce with a husband who also owned a business, he threatened alot of the same things and he had to keep her on his insurance until the divorce was final so hang in there. Juanita, the thing with the hip I understand what you are saying totally, my hips both feel like I am being given injections. I have tried a couple of things, one thing that I am doing is sleeping with a leg pillow between my legs to keep the weight off each leg and keep my hips more in line and I am sleeping on a heated mattress pad. It hasn't taken all the pain away but I haven't given up yet either. Love to you all.

Debbie, TX 5/21/07
Hi Friends,

I hope Ya'll are having a good day. I felt pretty good this morning, so I decided that I didn't like the "antique look", that the "dust on the furniture" was causing. So, I tackled that job first (really, only two rooms), did the dishes next and made the bed. I'm pooped! I don't really have a lot of dishes to do, 'cause I've been using paper plates for a long time. The "real plates" became too heavy. Plus, I(we) make big meals once a week, and eat from them all week. Breakfast is usually the only meal that I cook daily.

I want to say something about the seizures. I take a handful of pills daily, as Ya'll do. Five of those meds...Cymbalta (for nerve pain), Hydrocodone (for pain), Hydroxyine (for anxiety), Bupropian (for depression), and Trazadone (for sleep-aid)....all "contradict" each other and the side affect of that is...seizures...or worse.!! After finding this out on the net,I brought this up to my Doc(s), and they said that (in my case), that the "benefits outweigh the risks". To date, I have not had a knock down/out seizure, but I wonder somedays, if the complete memory loss, is a mild one happening. Perhaps some of you are taking these same meds.

Also, my Doc(s) said that " too much of any one of these could cause seizures". So, it could be that your dosage is prescribed too high. "Never abruptly stop taking any meds, as the result could be the same."

Pleaseeeee...talk to your Doc about your concerns. I (at least) feel better knowing that I asked, as well as knowing that my Doc(s), are "really aware".

Take care or yourself and ask for help whenever you need it. It is not a sign of weakness or failure!! Letting others help you, also helps them in other ways!

BEX
BEX OF NV, I am curious why very few of anyone talks about pain medications. UNTIL i got to a healthy minded pain doc did i begin to find wellness. he said an interesting thing, a person in true pain cannot become addicted!, it is the pain driving the person to seek relief not an addict seeking relief. addiction and a person in a pain syndrome are a different breed than each other. who of us would want to take a handfull of pills 2-3 times a day, bound to bed or wheely chairs? not me i want my job of $60 plus i loved, a social life out of the fog quit running from dragons and "fakes" wanting to get into my "stash for thier headache, like i would even offer or do such a thing, thier pleading is pathetic! until i quit telling non fm'rs and broken ones anything. those pill mongers make me want to puke! but honestly i have finnally after all the surgeries and trauma, and fm since '97 dx'd, i got into a tangle with a semi, a 19 yr old no license no ins haulin timbe doin 70 in the snow, on icy bridge out of control he took me apart. it took 2 hrs to cut me out...i forgot about fm for a while there was so much pains i did not know what was what until my next to last surgery, a complete reconstruction of left leg las feb. and that pain subsided did the "DRAGON" return those familiar claws in my shoulders and back, that hot breath searing me at every trigger point! i began to remember and a new discussion return to my pain/nuerologist doc/ the shots returned in the triggers/ on top of the intralaminals and epidurals from bones twisted into new formations not human. i was stable on 200 of ms contin no fog from it very safe medication a 12 hr dosing now i had to add a 30 mg fast release2 time to 3 a day to overcome the dragons appearance. i refuse to raise my steady medication dose, my doc is happy, i am his miricle patient, his sarrow is real for me. but i don't take all of many strange sounding medicines i read i just take regular old narcotic type medication very effective. i do take one for post traumatic stress to sleep at the lowest dose. it stops the night-terrors and i sleep. serequel. so my question again why all the strange sounding stuff? experimental? i am affraid of pills, i want my liver or ointments sprays..i do like good vitamins and the new v-8 splash very healthy good juice. i will say no matter how hard life has gotten i am a infectiously cheerfull person, there's nothing i or we can do to stop this mess so don't join the misery, join the joy that we have a life to share that with! i am waitin for heaven, but until those gates open for me i will be happy the best i can, and if sad, hide it away a day or so, i'll come back....so honestly do you all just take these strange sounding stuff or have you found a board certified pain specialist to deal with the hard core issues? if not why not? all that other stuff is just mentally addicting as anything why suffer, i have 90% or better "good" days since i quit the garbage forced on me by gp's and those spinal docs and those other fellas and let the real hard core doc let me live! i have an agreement, and give urine, we talk evry 3 months or evry month if i would prefer, i like to see him monthly. i do not mind the co pay he is my joy to see, he gives me a life, it is never fun to go to or for spinals but the relief is worth it! and if i fallow my p and q's it all goes fairly well, it took about a year to get into a pattern but folks it's worth it...look for the board certifications, training, colleges it is your right and it all checks out give yourself a break, make the dragon RUN have great days trust the narcotic medicatins..ect... stay clear of oxycontin...it is a killer and the fog is 50 times thicker!! trying to withdrawl is close to hell you know those scarrabs from the movie where that guy comes back from dust, and those black bugs eat people..well it is like they eat you up 3-6 days and come back once in awhile for 3 months! so not advisable, go off slowly using methdone if you want of of course all by you dr's directions i just read it is horible my friend added scarrabs....there are so many clinics to help you switch off in every city. be honest with your doctor if you are on it already, think hard, unless you have no choice about switching. a good doc will never insult you for honosty. that goes both ways! i would rather curl up and die before telling any lie to my doc, he is such a good doc and person. i used to not walk before i met him without braces a scooter ect, he and orthopedists made me over. i almost bleed to death the last surgery, scarred him real good he does anethsia, nurology, pain mngt. wow! but l lived and he was relieved..to say it lightly the poor guy...so write truthfully, i am interested who else goes to pain docs if it helps and do not feel ashamed! they are dedicated physisians, they want us functioing, out of bed! if he or she is not 100% interested in your wellness keep moving my friends. we are not stuck, i thought my doc owned me 6 years! before i fired him! what a mess my emotions were in. if you do feel better and better as you visit. move on. you two should mutually feel a good relationship, you did not beg for this disease, and you should not beg for help! FIGHT THE DRAGON!!!!

bestamor 05/22/07
bestamor 05/22/07, I do not go to a pain doctor but I have been thinking about going. I was reading the last posting. I only take Tylenol ex strength for pain. but something it is just not enough. But I am afraid stronger pain pills will make me more in a fog. I fell down about six months ago and the er doc gave me Tylox and it make me sleepy, crazy, itchy, etc. But I do take Seraquel for sleep. And that really helps. I have some crazy dreams but I sleep. They are not nightmares just stupid stuff. One night my dream was we were in Hawaii and they had ice statues in the ocean. lol. Ice in the ocean in Hawaii I do not think so. they tell me I was not getting the deep sleep that I needed. so the dreams are a good sign. I am starting a new job today. I will be in Walmart saying Welcome to Walmart need a cart? lol. If it does not work out that in OK. If it does that is Ok to. All you people have a good day. chin up everyone their are people out there who understand!!!!!

Donna 5/22/07
Kudo's to Bex, if you haven't gotten to either a pain doctor or anyone that is listening and helping you than move on. I totally agree with you Bex, you have to have someone that you can trust and is willing to work with you as only we know what are bodies are saying. Does anyone suffer from the Migraines that accompany this? I had one this a.m. that was so bad that I thought my brain was going to blow, I have a new perscription for when this happens that I want to let you know about, it is called Maxalt-MLT, it comes in foil wrapped paper and you place it on your tongue and let it disolve, my headache was gone completly within 20 minutes. The only affects that I am having are being really tired but I would be anyway so maybe I can't blame that on the drug. I used to use Imitrex but that stopped working for me. Bestamor, good luck with your first day at Walmart. Love to all my fibrofriends.

Richard in Tucson May 22,
Good Tuesday Morning to all of my good friends here at the wall:
Welcome to all the newbies that have been lucky enough to find this tranquil place of love, caring and understanding, We are all good friends here. I hope to be communicating with each and everyone who feels this need.
I will do my best to help anyone here who wants to be helped, I may not be the best person for each persons needs, but I have found so much comfort with my friends here. I believe we will find the answers to this.
Emma A.: I have not had seizures per-say, I have had some major neurological difficulties, I have had major head and body vibrations, I have lost all control of my ability to think, and this fuzzy vibration inside my head has come and gone many times, it is related to stress and panic attacks, I have found. I have learned to recognize this feeling and just have tried to relax and flow with it. These vibration feelings have not come to me as before. I am not denying the existence of your seizures, I'm just saying. That you might be able to reduce your stress thus deducing the frequency of them.
Sher: I understand your issues with talking to your Doctor, They do get so closed minded sometimes, They don't have to live with the strange symptoms that we live with. Please know we all care, and you will find the answers to your questions.
I want to share with you all, something I have recently been given. My Sister got me The Audio version of "The Secret" by Rhonda Byrne,for my Birthday. I am listening to the first CD of four while I am typing this post. It is very interesting, I will let you know how it goes, I have been told to get the DVD, but it is kind of expensive, so I will take advantage of this blessing while I can.
I wish I could share more with all of my friends here at the Wall, I seem to be running out of my leisure time, it is already 11:00am and I must get going.

have a wonderful day and the rest of your week.

Gentle Hugs to All here from Richard in Tucson...

Debbie, TX 5/22/07
Hi Friends, I hope everyone is having a good day...

Isn't it strange how medicines work? Some meds are either "Miracles" or "Demons". Some of the meds that I'm presently taking, are to help "undo" what years of taking "Seroquel did to me"...weight gain, Type II Diabetes, worsened depression and anxiety, elevated BP, and paranoia, to name a few. It was very addictive (for me), and made the pain worsen as well. I had to be "weened" off of it and that was just awful.

Yet, others of us can tolerate it with no problems. My "old" Doc, would not give me pain meds...only NSID's, nor did he do blood tests. Now that I'm seeing a Specialist, he is trying meds that he feels will help "me" best. They could change in the future, and since I trust this Doc, I will take his advice.

I'm only saying this, because I have no doubt, that each of us are doing the best we can in whatever method our Docs prescribe (not just meds, but other things also). I'm very lucky to have found this Specialist that understands FM. Doctors may each have different ways of treating the same symptoms. What's right for me, might be wrong for Ya'll and visa-versa. My Doc does blood tests every three months to check my liver. I too, am grateful for the (lowest) dose of prescription pain meds are all I need (at this time.)

I joined this forum to "learn & share"...none of us are Docs (that I know of.) It is my hope that we can all help one another, whilst we fight the Dragon...FM.

Thank Ya'll for your time!

Cheryl 5/22/07
Cheryl PA

Hello, I am suffering since yesterday with stomach ache. Feel like I'll get sick yet don't. Try rolaids, ginger ale,eating different, rest and read a lot of fiber. I'm seeing I get this once a month. It passes in a day or so. I was telling someone today I believe when my neck muscles are tense my equilibrium is off and therefore my stomach gets upset. I usually believe this and just relax about it yet I am tired of it. Does anyone reading this relate to this symptom with FMS? I'd appreciate the feed back.

Thanks, Cheryl

JUANITA MAY 23
JUANITA/TX good wed. morning everyone. it has been a month since my last post here, just havent been able to have time and energy to talk to you all. finally got my blood pressure under control after my dr. increased my DIOVAN from 160 to 320 . and i had carpel tunnnel surgery a little over a week ago and just got the stitches out yesterday. still have some tenderness but working thru ut and gonna have the other hand done in a couple of weeks. my husband's job is changing insurances in july so i want to get it done before the change. YOYO, how are you doing? i hope all is good with you. i keep up with my reading but to be honest, i can't remember many names. i have CRS. can't remember .... there are so many differnet problem assosated with what we have that everyone is different. i can't beleive all the differnce things we each have but i do know that we all need each other to share our feelings and pain. YOU don't know how much this site helps me and i sure it helps alot of people. i am so gratful to have the opp. to be able to talk about my feelings to everone without judgement or criiziement (ms). no matter what we talk about or don't talk about. i am so confused i can't even make sense of what i am talking about so i will just stop here and let someone else talk. i hope everyone understands what i am trying to say. GENTLE HUGGS TO ALL. JUANITA

Donna 5/23/07
Good morning everyone, I was just reading the post regarding the nausea, I too have suffered from that. It comes in waves and I agree that the only thing that I have been able to link this to is the neck muscles being tight. I have had more problems with being light headed and afraid that I was going to pass out and as you know that definatly makes you feel sick to your stomach. I too am glad that I have found this site because if I was to sit and discuss everything that I feel with anyone that isn't afflicted with this they definatly wouldn't understand and would think that I was nuts. I guess all of us here on the wall can be our own package of nuts, and I thought cashews were my favorite.

Libby/TX 5.23.07
Hello everyone:

I also havn't posted in a few days. I see a lot of interesting concerns out there!

Eugenia: Hey girl....thank you for your e-mail. I was glad to help you out with your pooter problem. I hope all is well with you today. I'm personally still wearing my bra...even with the pain that I experience in the chest walls. It's funny this is coming up at this time thou...cause I have been looking in one of those little sales book, "Carol Wright"...that we get in the mail. They have bra's that the plastic surgeons put on their patients after breast surgery...and they look comfortable....check those out!!

Cheryl: I too have stomach problems lately...not experienced before with the IBS. I swell, nausea, acid problems, tight throat muscles. I had so much bloating that I'm taking a cleanser, as we speak now...this takes out the toxins from the intestines and all organs. I take for 15 days and then repeat in a month. I personally prefer healthy food over fast...but sometimes when I get so fatiqued the junk can pick me up faster....but I don't make it a habit to eat unhealthy.My bloating is better and I feel lighter in the intestines. You do realize that we Fm'ers are so sensitive to our whole environment that all becomes toxic in or systems and we need to detox regularly. OH....duty calls I must close for now...but I will will be back..cause I'm not through yet. Libby

Libby/TX 5.23.07
HEY I'm back...

I see alot of discussion on the meds everyone taking or questioning why we shouldn't be ashamed to take these meds. WELL...IN MY CASE...the less I take the better my system...I think that me and chemicals do not get along.My system is very sensitive and the less the better. I am one those that even has to stay away from soap...I have to use the no sulfate or PABA freen soaps. I have found out in my 25 yrs plus with the Fm what we put in or on our bodys makes a difference. At times... of course...I have had to be on very strong meds with several ER visits with 10+ pain level. I personally think that my pain threshold is higher now....a lot of my daily pain has become apart of me and I do live with it, but when I get down and it does still come in waves...I reach for my Aleve.

To anyone out there....QUESTION: How much nerve pain do you have? I have been experiencing sharp nerve ending pains anywhere in the body for last couple of days. It can happen from my big toe to the side of face, anywhere just lasting few seconds...but sharp pain, enough pain to make me stop and think "what was that"! Has anyone experienced this? Well...I'll close for now... sleep sweet! Libby

Libby/TX 5.23.07
To Debbie/MI...

Girl....I'm so sorry for all that you are going through! May God be with you during this time to relieve you this stress of all that has been placed upon you. I really don't know what to say ...but just keep believing in yourself and march forward. As far as legal advice...keep asking..and the answers will come to you. I just wanted you to know that I hear you all the way down in Texas...because I have been there. I was ill without a dx at that time, going through divorce and scarred. JUST WANTED YOU TO KNOW THAT WE CARE AND WE DO FEEL YOUR PAIN!! I just wished I had some answers for you! Good night. Libby

Donna 5/24/07
Libby, Yes I experience those little "jabs", I consider them my reminders of the little baby dragon wanting to rear his ugly head. I can be laying down very calmly reading a book and out of the blue get a sharp pain in the bottom of my ankle for about 15 seconds that will