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Hope all are feeling better today. I have been trying to get some outside work done before my next heart procedure. I over-do every day to the point I can no longer stand up straight, but it will be nicer to look at when I am sitting on the deck recovering.
WELCOME to all the new people I see here. Too bad that we have to meet this way, but happy to see you have found us.
Richard, have fun on your vacation, don't just work...you do enough of that at home!

Carol - I'm sorry I haven't been on since your post until now. You asked about thyroid, which a lot of people with fibro have. When I was in my 30's my thyroid was underactive (hypothyroid) which means my metabolism was very slow. You don't have much energy, your skin tends to get dry and itchy, your hair gets dry and tends to fall out. Then one day when I was having my hair washed, my mother noticed a problem with my neck. Turns out I had a goiter, which is caused by the thyroid. Also the thyroid caused my eyes to swell which caused my corneas to split - that is absolutely agonyzing. Then I got pregnant and the thyroid reversed itself - it went overactive (hyperthyroid). That causes you to lose weight and it can make your heart beat too fast, which can be dangerous. It also makes you very nervy and jumpy. My ob/gym got very mad at me because I lost weight during my pregnancy and she kept accusing me of dieting but it wasn't until after Ben was born and my heart rate went sky high that they figured it out. I had surgery and they removed 3/4ths of my thyroid gland, thinking the remaining gland would function normally. A year later it had enlarged again and it looked like I never had any surgery so I took a radioactive pill to completely kill the gland. I have no thyroid gland anymore - I take a thyroid pill everyday and have blood tests at least once a year to see if the level needs adjusted.

My son, who is in his early 30's, also has thyroid trouble. It tends to run in families I think. They tried adjusting his with meds and couldn't so he had his gland destroyed also and takes the medicine. It is much easier to regulate the medication and it is only one small pill a day, not very expensive. He hasn't had any more trouble.

Your thyroid can affect your whole body - your mind, your memory, your cognitive skills, how you feel physically, everything. My friend had a ten-year old son that she was having an extremely hard time with - he was doing badly in school, she had him to a psychologist. Then a doctor decided to check his thyroid because of his mother being on thyroid and turns out his was way too low for his age. Once they got his medicine adjusted right he turned into a normal happy energetic 10-year old, wouldn't know it was the same kid.

I always tell people to be sure they have their thyroid thorougly checked because so many people have it. I hope this helps.

I hope everything had a safe and peaceful 4th.

Lisa, I was turned down my first time also, and I didn't even know I had fibro at the time. I filed again, with a lawyer, and won the second time. The lawyer gets 25% of any back pay that you might have coming. I might could have gotten it the last time, without a lawyer, but I don't have any regrets.,

It seems that we all have or had carpal tunnel. I remember my time dealing with it. Long story short, I went to a carpal doc, he did tests & said I didn't have it, sent me to a nerve doc, nerve doc said I had nerve damage & carpal tunnel, went back to carpal doc, who sent me back to nerve doc, more tests and nerve doc swore it was carpal, carpal doc reluctanly did the surgery, and I got "some" relief...now I figure it was fibro all along.,

I have a question...my finger nails have long raised ridges in them, and two have pitts. Do any of you have this?

Thank you for your time and have a blessed day and may God bless America. :)

Bernadette, thanks for the tip on the vitamin supplements. I took a look at my multi-vitamin bottle and I'm getting 100% of some stuff, 29% or less than others..and 0% of iron. I'll get some individual supplements to add to the multi, just as soon as I can afford to. Thanks again!

Juanita, I hope you get some relief for your fingers. My Rhuemmy gave me steriod shots in the palm of both hands (where there were knots) a few months ago. My thumbs and ring fingers were all drawn up. It hurt like #@!! when he made my fingers open, before the shots. The shots also hurt...but...good news...those fingers haven't drawn up again.

To those who hurt as a child...I did too, but it was dismissed as "growing pains", and they were severe. It's weird how some docs just take our money and don't make any attempt to "really" help us. I'm 54 now, and I've just this year found two docs that really listen to my symptoms, run the right tests, and treat the underlying problems, and not "just" the symptoms. I pray that everybody here gets the real help they need. I had to get mad, before I could get glad!

Libby, I hope you really are taking a good long rest. Your husband is right!

Richard, we miss you and hope you are well!

Have a blessed day!

Hello to all,

My foot is healing since surgery and I get the stitches out Wed. Wondering how that will feel. Will find out how long I where this special shoe. My husband has had to drive me every where. Boy, he got a pic of what I do in a week!

We have weather heating up here and the humidity. I'm looking for that to break soon with rain coming. My syptoms are flaring of pain in arm/carpal tunnel area and some nausea along with brain fog.

Carol...I am a thyroid patient - hypo- and first started with bad symptoms of not being able to move quickly, walk was slow, emotions ran high to eventually a break down and in bed for three months. I say it just died. After blood tests and med I began slowly to come around and then is when the FMS symtoms grew high. Lots of reading, talking to others and a doc who diagnosed me brought a lot of help. My carpal tunnel problem began then too. I slowly but continually kept going to walks and eventually exercise at Curves. I am a lot better than I was. My step daughter at 21yrs was diagnosed with hyperthyroid and was very thin. She went thru some real stressful stuff with her Mom. She took the radiation pill and became hypo and then treated with med like I. She had gained a lot of weight then. Eventually all became norm and she looks better and is dealing with some large eyes now. Graves disease. The specialist says her blood levels are ok and keeps a watch. She has pretty eyes and the largest is quite that noticeable to most just we who are close. She does experience anxiety and some mood swings. She hasn't resolved to more meds that would help these things. She is 23 now and works two jobs and goes to area college part time. Busy and stressful as you might imagine. My best thing was to get a specialist for I first started with a fam doc who helped awhile yet I came to a place I needed a specialist. My step daughter & I go to the same office where two of them are. We each have one of them. We share too about all this which is neat to compare what with us.

Beth...I love Curves and found it to be my miracle to getting back a lot of my energy and reduce stress. I use to ache going in or coming out. Now it's neither. I have flare-ups and they know when I do yet I perservere for it does help. There have been days when it's too much of a flare up and then I take a day off. Yet for the most part I am there. It's over 4ys now. I am on a freeze now do to constructive foot surgery on five toes. Two months they say I can go back. I miss it and them. Also I love to take pictures of my garden. I have a garden journal where I write about recent things I have planted, put pictures in of their growth(for comparison) and see what didn't work. Also do some dreaming and planning in my notes of things I'd like to try. I cut pictures of things in magazines and newspapers of interest to me and glue those in also. We are in our house 5yrs and it has been a God send for all the windows I look out I can see something growing for most of the seasons. It's a great other focus to get my mind off of my pain and etc. Your lillies sound pretty.

I read all the posts and am grateful for what all I learn here. It's a great place to keep centered in the fact that others are out there understanding this journey. Cheryl

Well... it's so nice to have most of my mornings off right now. With my service I have been getting more afternoon work and I can have my mornings to get a slow, not stressed and choatic start. When I had certain clients, I was out the door at 5:oo am. This is a nice change, except if I lay up in the bed too long, that can bring on the pain, as we all know!

I had a little bad news come my way yesturday. A client of mine that I usually have contact with often, was found dead at his home on Friday. He and I talked several nights last week, and several days he called into work not feeling well. Anyway...on the nights that he and I ran into each other, I mentioned to him that his lips were white and achy nad he mentioned that he just didn't feel well. He only said he couldn't get over some congestion and didn't feel well. He worked July 4th and didn't call or showup on his Thursday and Friday 3-11 shifts at the hopsital. I thank GOD for his caring and loving coworkers. One girl had a gut feeling and had the cops sent to his home and that's when he was found. He was a healthy man overall and he probably never thought he had anything that bad. This man is a med/tech in the hospital...and I would think that he ran some tests on himself, even thou he may not have gone to the doctor. I havn't heard cause of death yet. I will miss him so much, he was a good person and easy to work with. Life is too short for some and too long and painful for others. God has wonderful plans for us all and I leave that in his hands totally! Well...I guess that's for now. Warm fuzzies to all and have a wonderful day! Libby

First of all, I want to apologize for bad-mouthing past doctors. I'm feeling rather bad for doing that. Fibromyalgia is a mysterious beast than baffles the medical community as well. All of my past docs, were very good people, and I "was" just frustrated. But, now I do have docs who understand, of whom I am very grateful for. I need to quit "reliving" the past, and focus of now and the future. If I offended anyone, I am truly sorry!

Bernadette, thanks again for the vitamin advice...now I have another question...and I have read alot on the net about this, and am still confused. If I am allergic to sulfa, sulphates, sulphites....would't I be allergic to iron, since it is ferrous sulfate? I can't find out if there are good versus bad sulfates, sulfites, etc., for me. Sorry for all the questions...

Bestamor...I'm sorry to hear of your family loss, and illness. Hang in there, Friend, and may God bless you and yours.

I miss gardening, but I enjoy reading about Ya'lls, and I want to at least plant some flowers soon, (with my Hubby's help...he can dig holes, and I'll plant...lol)

Tigger, I think we all understand what you are going through. Even some of my family haven't come to grips with this yet...after all, I look "fat and sassy", as always..."must feel pretty good, at least." I think they are in denial also, afterall, they want "me" back. Ask you doc to refer you to a rheumatologist, (some require referrals). Or call some and see if they require a referral or not. He/she will be your best hope of a diagnosis. I know you get the treatment and understanding that you need. Keep searching until you find one that knows about the fibro beast.

Best wishes, Debbie :)

Speaking of remembering, I'm going to read about the miracle dog, Bama, right now!

Have a good day... (:o)

I read the posts about thyroid. It is amazing how many of us have similar problems - thyroid, carpal tunnel, etc. It is also amazing how many of us were Type A personalities.

I also love Curves but right now I cannot afford to go so I dug out an old stretching/breatching video and am trying to use it and trying to walk some. But I really miss going to Curves and would recommend it to anyone. I have found that if I can get my balance right of mild exercise, diet, etc., I feel better. Obviously I'm off balance now.

As far as parenting goes, I have two grown sons who are very self-sufficient. When they were in grade school they had to put their own laundry away and help with the dishes. When they started junior high they took over complete care of their rooms - changing the beds, cleaning, everything. I stopped going in there - there were some times when I thought the health department was going to come and contend them but they finally got over that. They also started getting themselves up for school with their own alarm clocks, although I was up. Their first year in high school they started being in charge of their own laundry. Plus at some point along the way they took over mowing the grass.

Both of my boys know how to cook - actually they both like to cook - they know how to clean the house, including the laundry, sew on a button and iron a shirt. They also know some basic household and car maintenance. If I had a daughter, she would know the same things. I wasn't diagnosed with fibro then either

Teaching your children how to take care of themselves is teaching them life skills they will also be able to use. When my son was in basic training in the Air Force his squadron he needed to know all that because he had to do his own laundry, etc. He complained to me about how some of the other guys in his squadron didn't know how to do anything and he was mad because they were in some kind of competition and the guys who didn't know how to make a bed or iron their clothes were holding them back.

I found out that open communication with the boys helped and also, being the home room mom or the soccer mom or whatever was a whole lot better for them than making sure their room was spotless. If you want a good example of parenting - watch the Little House on the Prairie reruns and see how much those kids had to do.

I hope everyone had a good night. I'm going to try to get a few hours now. Gentle hugs.

I'm in alot of pain today! That big bright yellow ball in the sky was out for a couple of days. My Hubby had a lot to do in the yard, of which I'm not much help anymore. But, I tried to be a good Gopher...you know...Go for this...Go get that, etc. And it was very hot and humid !! So last night, I couldn't sleep well, moaned with every toss and turn. When it was time to get up, well, it felt like a 300 lb. gorilla with boney knees, was grinding those boney knees right into my shoulders and breast bones. After wrestling with that, I tried to stand up, but felt as though I was chained to the bed. After getting the chains off, it felt like someone had put my feet on backwards, as I didn't know if I was coming or going. Then my Hubby said...Honey, I'm so hungry, I could eat a horse! Sadly, we don't own a horse, so I made breakfast, dropping and spilling food all over the kitchen. At least he got full and even complimented my efforts.

Now, as I type this, I've noticed that my left fingers want to type what my right fingers should be typing, so I'm making this short, and laying down... thank goodness, we skipped lunch, but now it's almost time to fix supper... and we live out too far to order pizza.

Take care, Debbie :)

P.S. Glad to see you back Richard. I hope you and your family had a great vacation. Donna, I only ate Rice Chex this morning, and it had 50% of my daily needed dose of iron...think I'll have it again for supper! LOL

Hello everyone.

I have a quick question. Lately I have been getting a sore throat quite regularly. My tonsils feel very swollen and it is awful swallowing. After two days or so everything is back to normal for a couple of weeks. Is this something that anyone else here is experiencing?

By the time I can get into the doctor everything is back to normal.....

Gentle hugs to all! ~Lisa

Jeannie, you are not alone here...please keep coming back...e-mail me personally...I am a very good listener. I can't give you all the answers, as I am still searching for them myself, but, we are not alone.

Lisa, I too get sore throats, and my ears hurt down deep in my canal or whatever it's called. I assume it's normal for fibro, 'cause I don't have a fever or anything. My eyes are also very blurry, and I feel like I have motion sickness. I "see things moving", that no one else sees. If it wasn't for this forum, I would believe that I was losing my mind. I still can't control my typing...I don't know if anyone else experiences this, but, I feel like I'm spastic. I have to correct my typing so much, and it takes a very long time to get this right.

I pray the best for all of us, and again, I thank Ya'll so much for listening.

Love & Prayer's, Debbie :)

Debbie,Tx, The ridges in your nails is common with RSD,you may want to check out www.rsdhope.org and compare your symptoms with those listed. I have both RSD and Fibro.

My hubby is in San Diego today and getting to spend some time with his daughter and granddaughter.

Gotta run for now,my son needs the computer for a bit. Stay well,gentle hugs

My one son accidently put a virus on our PC so my other son is trying to fix it. That entails me watching his three kids. Also, I'm still job hunting. That's getting very discouraging. Looks like I might have to try someplace liek Target or something like that

Hi to all the new and old people. Take care everyone.

There might be a clinic you could get medication from. Also, some drug companies will give you free medication in unusual circumstances. You should also contact the Salvation Army and the Red Cross. Even if they cannot help you, they might be able to find someone who can.

I know how hard this is but you have to do this to protect your family - and some day you will be in a position to help someone else. Don't let this get you down, all of us on the wall have struggled with similar problems. I lost my job in May because my boss didn't like me. Hang in there.

My doctor told me today that I need to have my A1C test done - this should be interesting since I haven't been taking my diabetes medication, although I've been trying to stay on the diet.

Last night was one of those nights - I didn't get to sleep until 3:00 a.m. - so I'm hoping tonight is better. Deep sleep to everyone.

Hello to all

I have read from where I last posted. Learning always as I listen. The common ground is the biggy that is helpful.

I have a new computor...Yea!!! It's a delight. My daughter's boyfriend took me and did the shopping. He's comp geek. Truly. He installed it also and I am grateful.

My foot is healing. The swelling is going down. I am in the special shoe yet and therefore cannot drive. That's a biggy for me and my husband who is wonderful even thru this. His trucking hours have changed so all this new stuff(foot & all) is challenging. Wed it will be a month since the surgery.

I have a new granddaughter named Katelynn Marie and have had her here several times with some more coming up. They are moving and I'll watch her during those days.

Yesterday I feel down the stairs half way. Called to my husband and then said I am afraid to move for something might hurt. I was going slow yet somehow the carpet on the stairs became glass and down I went. My right arm was like a wing catching a stair as I sat hard hitting my back against the step. Too my amazement today I am pretty good. I did take some pills, use my bio-freeze, have my husband massage the area and just rest it some. Moving is best so it doesn't freeze up in the muscles. I believe I bruised the muscle. Dealing with FMS gave me a lot to work with for my muscles and pain.

Bernadette...Did you say you are married? I was wondering if he helps with the parenting? I liked what Starr wrote and agree. Behaviors grow bigger when they get older so it is good you are doing all these things now. Prioritizing is great concerning yourself for as I was told I am important. I heard what you said about affording Curves yet I wonder if there is anyone you can exercise with for I find I do better if I am with others. On my own is discpline I might do but eventually lose it. Boring also.

Carol...great news about your thyroid! I love your life look over it all. I deal with thyroid and take synthroid. It's years now and I am good. See a speacilist and feel good about that.

Getting late here so to all a good nite and week ahead.Cheryl

Carolhappy - I'm a teacher too. Do you work full time teaching? How do you handle it? I had to leave at the end of the last school year when things went bad. I'll be working a couple afternoons this coming school year, but that's all I can handle! When I forget names (which I do regularly) I just tell the kids that I know who they are, but my brain forgot their name!

So a funny thing happened (OK not funny at the time) I was home alone last week and I started fainting. I kinda freaked out and called 911. They took me to the hospital and they kept me in emergency for over 5 hours pumping liquids into me because I was seriously dehydrated and my (usually too high) blood pressure was too low. I stopped taking my blood pressure meds and saw my doctor. Apparently the changes I've made in my lifestyle and the new meds I'm taking for the fibro caused my body to "accidently" cure my high blood pressure! Now . . . how can I "accidently" cure the fibro???

I'm taking Cymbalta and Lyrica this week. Has anyone noticed the side effects on this med? Headache, dizzyness, tiredness . . . How can you tell if the meds not working, or if it IS but you're experiencing the side effects!!!! Tee Hee.

Keep writing everyone. Just reading other people's stories is suportive for me!

Caran

I've been diagnosed with fibromyalgia (amoung other things)since 03-97 and
its been very difficult. I'm very excited about this web site and the drug
lyrica that I seen here. I go to the doctor 8-3-07.I will ask him about it
I'll write again letting you all know what he says. I am very much in need
of friends and or people to talk to that understand what I am going through
and maybe there will be a way for me to help others. I'm also looking for
a support group that meets in my area. Thanks to whoever started this site
and blessings to all who have or love someone with fibromyalgia. M.E.

To Eva...I had a cocketeil and she died of being egg bound. I would have liked to save her. I got her from the Animal Res. Lg. and she was very personable in time. She would lay 5 or 6 eggs after awhile every 3 months or so. No male with her. I had no plans for this just wanted a cocketeil. I read books and talked to people about the eggs. They thought she became comfortable with her surroundings that this was happening for it never happened at the An.Res.Lg. I buried her under our Hibiscus Bush. I different birs buried in our yard and presently have two parakeets. Both females we hope. We might put two males with them yet I am waiting. I was told that with four they will feel uneasy to think about eggs and mating. Well what does this have to do FMS. Another focus. There is more to life than pain and that is my perservering being. When pain I just say be kind to me and this will pass too. It does and until it returns again I try enjoy my days. I was told this won't kill me it just may feel like you want to die.

My foot is in a sneaker 3 days now. When late day it comes off. Enough is enough. And I love my new comp - it's sooo much quicker. We put the old one out on the curb and someone took it. Cheap way to be rid of it without paying.

Renee....after I was diagnosed with hypothyroid years back I was very sick in bed for 3 months. My blood levels became normal yet the pain was continual. The search began and found I have FMS. Many I talked with had a similiar experience. I am not saying this is a sure shot reason for FMS yet it is interesting to think about. Hormonal stuff I think about. One day I believe will know yet till then I do what I can do. Having 3 children was my beginning before they thyroid dying on me. One left to live with his Mom(I am a step-mom)while the other two(twins)were with me when they thyroid went. I quit work and was in bed. Some aid from them and much for me to get understood and eventually work on. Mine were older than yours. I believe it's hard being a young Mom with children and if working if so and try to find time for yourself when needed. I pray you find to be easy on yourself at this time. I needed to be my best friend for I could be my worse enemy. Like a parent to a child to be caring. It's not selfish it's self caring. Take care.

Blessings in health to all! Cheryl

To all those out there at the end of your rope, DON'T DESPAIR!!! Know that we're here for each other and that others are thinking of you. Personally, I think this is my body's way of telling me to slow down and go back to my art, instead of worrying about teaching.

Here's wishing you all more good days then bad.

Caran

Someone said that they don't post sometimes because they can't remember who said what in previous posts. Hey! Get out of my head! Somedays I can't remember anything.

Saw my physician today. She is very reluctant to prescribe a narcotic pain reliever. I'm with her.....so far. Honestly I'm getting very tired of just "muscling" my way thru. We are going to try Salsalate for pain and Migquin for my headaches.

I'm just hoping for a little relief. Everyday is a struggle. I am a single mom, one of my sons has "special needs" and is 3 years old, and I am the sole support we have. It's hard, but I refuse to give up or give in.

Someone sounded so despondent (I'm sorry I don't remember your name) and I wanted you to know that we are all here. I've had a couple of very nice encouraging and informational emails from the members of the wall.

Oh and I have one more issue I'm dealing with that maybe one of you has some input on. I was injured at work almost a year ago. I am dealing with Workman's Comp now. I suffered a "whip-lash" type injury and it just is not getting better. I have an Independent Medical Exam at the end of August. The state is trying to determine just how "impaired" I am. My FMS diagosis is so recent and I'm still learning so much how can I tell what ouchie is caused by which. So do I just list out all of my aches and pains, tell them about the FMS, or what?

SSI would be a dream come true, but I can't stop working in order to file.....

Ok, enough of that. I hope all of you have deep and restfull sleep.

~Lisa

I havn't posted in a few weeks now since I was going thru testing and waiting for my results. I'm glad to report that my ENT told me my tests are normal. This is good and confusing...I'm glad that there is not anymore wrong at the same time...I 've spent more money on this just to point at FM again. By the way newbies I am one that has had this Fm for 25 or more years and welcome to the site. In all the years I have spent so much money and time on my medical problems and this Fm does get confusing at times. When I come down with something I naturally want to blame it on Fm..but sometimes I will and can get confused and it makes me think that it can be something else.

To all that is having hard time with depression...just remember that this is also a symptom of Fm....it to will soon pass(come and go) try not to let it take you too far. BE STRONG AND LET IT PASS!! Like I tell many...you can go to bed blue, but you can wake up the next day singing like a bird!

Hey has anyone seen the T.V. commercial for FM. I was so shocked to finally see a commercial for our condition. I know that SS is trying to validate FM...and when I found this out, I knew that more doors would open. Please forgive me but I 'm getting excited because I'm finally seeing more done with us and they are looking closer at FM. You see I have had this so long now that I am one of those that the world looked at as crazy...when the world thought we were pysco or hypercondriacs. Today I got a brochure for a FM center..which I'm finding out they have several centers in several states.

Tomorrow will not be good day for me and my family. I have a sister-in-law that will have a breast removed and then tested for cancer. She has two large tumors in left breast and removing the breast is necessary since these are so large. Just about all the people I know want to think the worst...but I will remain hopeful until the doc tells us what is going on.Please keep her in your prayers...her name is Beth. Thank you for caring and sharing! I must go for now.Warm fuzzies to all and to all a good night! Libby

then one day as we argued she just came out and said she was stealing the
money and there was nothing I could do about it as I had signed over the
house to her. That she never wanted to see or here from me again. That I
was a useless human being and the world would be a better place if I would
just hurry up and kill myself get it over with.

Today I've come to better terms with what my mom has done and said to me
I moved to California with a old friend (I rent a room )I live off of my
social security witch isn't that much but I'm able to manage. My friend and
I have become intimate and He has been good about trying to understand FMS
and all that goes with that. We fought today I bought a pack of cigerettes,
He said that we are not on the same page in life, as he is trying to get
healthier and I am always fighting just to feel well enough to do basic
things. In anger he said I needed to find somewhere else to live. I am
so afraid I don't have anywhere to go no friends or family. no home
or money. I do have my car at least a PT cruiser I could sleep in the back
I'm so alone, useless, scared, and I don't know where to turn. I feel like
taking my own life may be the best for everyone. I take so many meds i'm
sure I could overdose on it. I'm crying out for any suggestions.HELP ME!!
I'm open to any suggestions. I'm praying for Guidence. Bless all who took
the time to read this and I pray that everyone always feels loved.M.E.

Today I go to the pain dr. I'm on a fentynal patch, norco for break through
pain.klonopin for nerves, cymbalta for depression, maybe I should ask
about a dosage change on the antidepression med. ha ha But instead of more
pills I believe I found a better solution this web site. again Thank you
Soft hugs and blessings to you all. ME

To those that believe that their lifes are over...think again! You will find strength in yourself that you never knew existed. Every day for me is a challenge, but it is also a reward. I'm learning that I've been working way to hard, stressing over stuff I can't fix, and worrying for nothing. Life is a gift, and if it means that I live in pain, well, I have faith that God will give me the strength to go forward, even if I'm a little slower. Slowing down has shown me "other" traits within me, that I would have probably never realized.

To those that asked for prayer...you're on my prayer list...even those who didn't ask. I hope you'll keep me in your prayers also.

The phrase,"Never put off till tomorrow, what you can do today", has a whole new meaning for me.

I really, really wish Ya'll the best!

Last night my uncle died of conjestive heart failure and a massive stroke. He has not been doing well for a long time. I don't know what my aunt will do without him. She is not in good health either, and is not able to drive very much. My mom does not have a drivers license so my brother is taking her over to her sister's house today. I am waiting to see what everyone is doing. I don't think she will want a crowd of people with her today. I will miss him. He was a good man and a very funny person to be around. Bye for now.

I see alot of newbies here...welcome to our site!.We are sorry that you had to join us...but we wouldn't want you anywhere else if they don't understand you like we do. Hey...fm is not fun, but it's not giving up on us so it's better we try to understand it. To all that choose to take several meds....my heart goes out to you. I choose to take less...I personally can not take more. I feel worse with too many chemicals in my system. I have had fm for 25 plus years now, I work a 24/7 contract job. This is one reason I don't take alot of meds....I couldn't drive and I need the income. My husband is a heart patient and he is still working until he just can't. To the person asking about the fm commercial....I can't remember what station on the T.V. it was on. I live in Texas and we have DIRECT T.V. I was literally shocked when I saw the commercial. I truly believe the world will change their attitude about the fm when they hear about it more.

To all of you that are dealing with emotional pain with fm...I hear you loud and clear. The depression is terrible and I felt myself going down today because I'm dealing with alot on my plate, but tomorrow I will have to prioritize and fight it. Mary I hope things better for you! Hey Sue...sorry I couldn't be of much help to you on the commercial! Beth my sister-in-law did have cancer and we are waiting on the lymph node reports, but good news the bone scan is negative and we hope to keep it that way. There is too much cancer in our lives....so I guess I will continue to feel blessd, because we could have it worse. I do know that alot of you have mutiple problems...my heart is with you. Well...everyone stay as strong as you can, and continue to hope for the answers to solve the mystery of fm and other conditions. Signing off now....warm fuzzies to all and to all good night. Libby

Hey Amber, sorry that you are having so much trouble lately....fm is enough to deal with! About your cyst on your back, in my family we have a history of fatty tumors and they can and will pop up anywhere. I have had 2 removed and right now I have 4 that are growing, but not bothering me right now. Usually the only reason we get them removed is where they are located...as on top of muscles or painful areas. These tumors are no harm to us. I had one removed on my left arm on top of the main muscle between the wrist and elbow, because it was putting pressure on the nerve that finally started to numb my left hand. My brother had one removed on his clavacial that was 7 inches long. Now I have to admit that one did scare the family and we did think it was cancer. Oh....the other one was on the bottom of my left foot. This one eventually caused damage to my nerves again. In our feet the damage is more severe, cause when the damage is done it is called neuromas and that part of the nerves that gets damage turns into what feels like rocks in your feet...very painful. I hope that I have been of some help to you, because I don't wish for you to have something worse. Oh...you might not want to press on it too much until you find out what it is. Take care...AND WARM FUZZIES TO YOU AND EVERYONE ON THE WALL! Libby

I was diagnosed with Fibromyalgia a year ago and have now found out what's actually wrong with me. Turns out I have Lyme's Disease. I wanted to give my story just in case someone might benefit from it. If my story can help prevent one person from going through the trauma I have experienced, then I have served my purpose. I'm not saying that all fibro cases are indeed a result of Lyme's Disease but I think it's worth looking into.

I was bit by a tick in 2003 and had a small red round rash around the bite site. I was ignorant of tick bites at the time and just thought it was an allergic reaction (like a mosquito bite). 6 months later, my battle began. I had extreme muscle, joint nerve pain.

If caught immediately, Lyme Disease can be easily treated w/ antibiotics. The problem is, testing for Lyme’s is not reliable and 60% of Lyme sufferers have a false-negative result.

Over the years, I went to countless doctors and spent thousands of dollars trying to figure out what was wrong with me. At that point a couple years had passed and I went into full blown Lyme’s Disease. I had Parkinson like symptoms (convulsions, tremors, memory loss), I had MS symptoms (speech problems, difficulty walking, numbness and tingling in my extremities and face). I had fibromyalgia symptoms (chronic pain, fatigue) and last but not least I had auto-immune disorder symptoms (swollen lymph nodes, perpetual low grade fever). Lyme Disease is known as the “Great Imitator”. It can mimick many disorders.

Many of those untreated will suffer chronic debilitating illness. Some unknowingly will pass the disease on to their unborn children.

The average time from infection to diagnosis is 4.7 years. Most are misdiagnosed for years with incurable conditions such as chronic fatigue, fibromyalgia, lupus, multiple sclerosis, Alzheimers or ALS. I ca